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Re: stress incontinence

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Beth,

I really hope the therapy will work. I find it so many women on this

board have the same problems, and we resist saying anything to our

doctors. My incontinence got so bad that even though I would go just

before leaving work, by the time I got home 45-60 minutes later I would

have to go so bad that the minute I stood up I started to urinate and

there was no stopping it. My gp put me on Detrol LA and it has helped

but still have problems and still have to wear a pad. Its funny all

women our age can not stop peeing and the men our age can't pee half the

time if their life depended on it. I really think there was a pisspoor

(pun inteneded) design for the plumbing!

Dyane Phoenix, AZ IPF 02

>

> Beverly,

> That's really interesting. I wonder if the condition you're

having�it for makes a difference. We'll see. I expect it to�be

plenty undignified but I'm past worrying about stuff like that.�My

Gyn seems pretty positive this will help my stress incontinence so we'll

see.�Surgery is not an option for me because of my lungs so any

improvement at all that I get is a bonus. I guess for me it's a matter

of nothing ventured, nothing gained! I'm�just going to give it a

shot and see what happens!

> �

> Beth

> Moderator

> Fibrotic NSIP 06/06 Dermatomyositis 11/08

>

>

>

>

> ________________________________

> From: Beverley Joy sparrow4@...

> To: Breathe-Support

> Sent: Sunday, March 29, 2009 1:14:41 AM

> Subject: Re: stress incontinence

>

>

> I have had the pelvic floor physical therapy. It wasn't for my bladder

though. I had surgery for a bowel rupture and to lift up everything that

had fallen from my hysterectomy. I don't know what he did but I am no

longer able to strain. The PFPT didn't help me. I was also something

that I didn't enjoy but you may not have the same thing because mine was

for the bowel. Good luck. I hope that it works for you. Beverley Joy

> �

> stress incontinence

>

> I don't think I'm the�woman on this board who deals with this

problem. It started for me prior to my diagnosis. Back then it was awful

and it was very difficult to keep myself dry. The pressure on my pelvic

floor muscles from�coughing caused my bladder to leak and that's

putting it mildly. Since my diagnosis and getting on oxygen and

minimizing the cough it's better but the stress incontinence is still

very much with me and I hate it.

> I was talking to my gynecologist the other day and she suggested that

she refer me for " pelvic floor physical therapy " . She feels strongly

that we can get rid of 75-90% of the stress incontinence. Well that was

news to me but it got my attention. She also told me that Medicare would

definitely pay for it. So to make a long story short, in about 3 weeks I

have an appointment with a physical therapist to begin working on this.

I can only imagine what " pelvic floor physical therapy " will entail but

if it will help I'm more than willing to put up with a little indignity.

> I'm hopeful it will help and I'll keep you all posted but will spare

you the details. LOL I honestly thought the only solution was surgical

and I knew that wasn't an option. My gyn however was adamant about two

things " kegels by themselves don't work " and " pelvic floor pt does " .

I'll let you know!

>

> Beth

> Moderator

> Fibrotic NSIP 06/06 Dermatomyositis 11/08

>

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Beth,

I really hope the therapy will work. I find it so many women on this

board have the same problems, and we resist saying anything to our

doctors. My incontinence got so bad that even though I would go just

before leaving work, by the time I got home 45-60 minutes later I would

have to go so bad that the minute I stood up I started to urinate and

there was no stopping it. My gp put me on Detrol LA and it has helped

but still have problems and still have to wear a pad. Its funny all

women our age can not stop peeing and the men our age can't pee half the

time if their life depended on it. I really think there was a pisspoor

(pun inteneded) design for the plumbing!

Dyane Phoenix, AZ IPF 02

>

> Beverly,

> That's really interesting. I wonder if the condition you're

having�it for makes a difference. We'll see. I expect it to�be

plenty undignified but I'm past worrying about stuff like that.�My

Gyn seems pretty positive this will help my stress incontinence so we'll

see.�Surgery is not an option for me because of my lungs so any

improvement at all that I get is a bonus. I guess for me it's a matter

of nothing ventured, nothing gained! I'm�just going to give it a

shot and see what happens!

> �

> Beth

> Moderator

> Fibrotic NSIP 06/06 Dermatomyositis 11/08

>

>

>

>

> ________________________________

> From: Beverley Joy sparrow4@...

> To: Breathe-Support

> Sent: Sunday, March 29, 2009 1:14:41 AM

> Subject: Re: stress incontinence

>

>

> I have had the pelvic floor physical therapy. It wasn't for my bladder

though. I had surgery for a bowel rupture and to lift up everything that

had fallen from my hysterectomy. I don't know what he did but I am no

longer able to strain. The PFPT didn't help me. I was also something

that I didn't enjoy but you may not have the same thing because mine was

for the bowel. Good luck. I hope that it works for you. Beverley Joy

> �

> stress incontinence

>

> I don't think I'm the�woman on this board who deals with this

problem. It started for me prior to my diagnosis. Back then it was awful

and it was very difficult to keep myself dry. The pressure on my pelvic

floor muscles from�coughing caused my bladder to leak and that's

putting it mildly. Since my diagnosis and getting on oxygen and

minimizing the cough it's better but the stress incontinence is still

very much with me and I hate it.

> I was talking to my gynecologist the other day and she suggested that

she refer me for " pelvic floor physical therapy " . She feels strongly

that we can get rid of 75-90% of the stress incontinence. Well that was

news to me but it got my attention. She also told me that Medicare would

definitely pay for it. So to make a long story short, in about 3 weeks I

have an appointment with a physical therapist to begin working on this.

I can only imagine what " pelvic floor physical therapy " will entail but

if it will help I'm more than willing to put up with a little indignity.

> I'm hopeful it will help and I'll keep you all posted but will spare

you the details. LOL I honestly thought the only solution was surgical

and I knew that wasn't an option. My gyn however was adamant about two

things " kegels by themselves don't work " and " pelvic floor pt does " .

I'll let you know!

>

> Beth

> Moderator

> Fibrotic NSIP 06/06 Dermatomyositis 11/08

>

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