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Re: Orlando trip

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To all the Orlando "meeters": glad to meet you all. To see how you can live with this disease - with humor, and grace and hope - is an inspiration.

;* <3

Barbara McD

IPF, Sept 08

Beautiful Western NC

Let us not become weary in doing good, for at the proper time we will reap a harvest if we do not give up. Galatians 6:9

To: Breathe-Support Sent: Wednesday, March 18, 2009 11:55:44 AMSubject: Re: Orlando trip

Hey, pictures are pictures and I know the board is glad to see any!

MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there!

Orlando trip

Hi everyone,

Sitting here in my hotel room in Walterboro, SC reviewing the weekend in my mind. It seems to be the same everytime I meet someone from this group in person. Regardless of who it is and how little we may have in common, meeting someone with this disease is like finding a long lost sibling. It's an incredible experience. I have two regrets about this weekend, one that my crappy camera doesn't take better pictures. (At least I have the little videos, especially the one from Olive Garden where Peggy's daughter filmed the entire group. Those videos are at www.youtube. com/mbmurtha)

The other regret is that there is never enough time to sit and talk with everyone. I was so happy to meet newer members...like , Barbara, Sandy, Eileen etc etc etc. If start naming names I'm going to get in trouble I don't want my oxygen deprived brain to forget someone. And of course I was happy to see old friends like Peggy, Leanne and Jane. Peggy's "SuperCaregiver" husband and her daughter Theresa were with us also as was Jane's sweetheart of a daughter .

I honestly feel as though my family expands everytime I go to one of these things and I'm grateful for that.

This group is one of the blessings of this horrible disease. It's not a small blessing either. You all make this bearable for me and I thank you all for that.

Here's to the next get together!

Beth

Moderator

Fibrotic NSIP 06/06 Dermatomyositis 11/08

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Barbara, It was great meeting you and Mike. Hang in here and just relax and enjoy life.  Love & Prayers, PeggyFlorida,  IPF/UIP 2004"I believe that friends are quiet angels who lift us to our feet, when our wings have trouble remembering how to fly."  To all the Orlando "meeters":  glad to meet you all.  To see how you can live with this disease - with humor, and grace and hope - is an inspiration.  ;*  <3 Barbara McDIPF, Sept 08Beautiful Western NC   Let us not become weary in doing good, for at the proper time we will reap a harvest if we do not give up.  Galatians 6:9 From: Sher Bauman <bofus (AT) wbcable (DOT) net>To: Breathe-Support Sent: Wednesday, March 18, 2009 11:55:44 AMSubject: Re: Orlando tripHey, pictures are pictures and I know the board is glad to see any!MamaSher; 70,  IPF 3-06, OR.   NasturtiumsDon't fret about tomorrow, God is already there!  Orlando tripHi everyone,Sitting here in my hotel room in Walterboro, SC reviewing the weekend in my mind. It seems to be the same everytime I meet someone from this group in person. Regardless of who it is and how little we may have in common, meeting someone with this disease is like finding a long lost sibling. It's an incredible experience. I have two regrets about this weekend, one that my crappy camera doesn't take better pictures. (At least I have the little videos, especially the one from Olive Garden where Peggy's daughter filmed the entire group. Those videos are atwww.youtube. com/mbmurtha)The other regret is that there is never enough time to sit and talk with everyone. I was so happy to meet newer members...like , Barbara, Sandy, Eileen etc etc etc. If start naming names I'm going to get in trouble I don't want my oxygen deprived brain to forget someone. And of course I was happy to see old friends like Peggy, Leanne and Jane. Peggy's "SuperCaregiver" husband and her daughter Theresa were with us also as was Jane's sweetheart of a daughter .I honestly feel as though my family expands everytime I go to one of these things and I'm grateful for that.This group is one of the blessings of this horrible disease. It's not a small blessing either. You all make this bearable for me and I thank you all for that. Here's to the next get together!  BethModeratorFibrotic NSIP 06/06 Dermatomyositis 11/08

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