Guest guest Posted March 17, 2009 Report Share Posted March 17, 2009 MB...thanks for the videos. Hey, here's an idea....next time you go around have everyone give their name. Newbies don't know everyone and neither do we older ones. Looks like a great crowd! MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there! Orlando trip Hi everyone, Sitting here in my hotel room in Walterboro, SC reviewing the weekend in my mind. It seems to be the same everytime I meet someone from this group in person. Regardless of who it is and how little we may have in common, meeting someone with this disease is like finding a long lost sibling. It's an incredible experience. I have two regrets about this weekend, one that my crappy camera doesn't take better pictures. (At least I have the little videos, especially the one from Olive Garden where Peggy's daughter filmed the entire group. Those videos are at www.youtube.com/mbmurtha) The other regret is that there is never enough time to sit and talk with everyone. I was so happy to meet newer members...like , Barbara, Sandy, Eileen etc etc etc. If start naming names I'm going to get in trouble I don't want my oxygen deprived brain to forget someone. And of course I was happy to see old friends like Peggy, Leanne and Jane. Peggy's "SuperCaregiver" husband and her daughter Theresa were with us also as was Jane's sweetheart of a daughter . I honestly feel as though my family expands everytime I go to one of these things and I'm grateful for that. This group is one of the blessings of this horrible disease. It's not a small blessing either. You all make this bearable for me and I thank you all for that. Here's to the next get together! Beth Moderator Fibrotic NSIP 06/06 Dermatomyositis 11/08 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2009 Report Share Posted March 17, 2009 MB...thanks for the videos. Hey, here's an idea....next time you go around have everyone give their name. Newbies don't know everyone and neither do we older ones. Looks like a great crowd! MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there! Orlando trip Hi everyone, Sitting here in my hotel room in Walterboro, SC reviewing the weekend in my mind. It seems to be the same everytime I meet someone from this group in person. Regardless of who it is and how little we may have in common, meeting someone with this disease is like finding a long lost sibling. It's an incredible experience. I have two regrets about this weekend, one that my crappy camera doesn't take better pictures. (At least I have the little videos, especially the one from Olive Garden where Peggy's daughter filmed the entire group. Those videos are at www.youtube.com/mbmurtha) The other regret is that there is never enough time to sit and talk with everyone. I was so happy to meet newer members...like , Barbara, Sandy, Eileen etc etc etc. If start naming names I'm going to get in trouble I don't want my oxygen deprived brain to forget someone. And of course I was happy to see old friends like Peggy, Leanne and Jane. Peggy's "SuperCaregiver" husband and her daughter Theresa were with us also as was Jane's sweetheart of a daughter . I honestly feel as though my family expands everytime I go to one of these things and I'm grateful for that. This group is one of the blessings of this horrible disease. It's not a small blessing either. You all make this bearable for me and I thank you all for that. Here's to the next get together! Beth Moderator Fibrotic NSIP 06/06 Dermatomyositis 11/08 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2009 Report Share Posted March 17, 2009 MB...thanks for the videos. Hey, here's an idea....next time you go around have everyone give their name. Newbies don't know everyone and neither do we older ones. Looks like a great crowd! MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there! Orlando trip Hi everyone, Sitting here in my hotel room in Walterboro, SC reviewing the weekend in my mind. It seems to be the same everytime I meet someone from this group in person. Regardless of who it is and how little we may have in common, meeting someone with this disease is like finding a long lost sibling. It's an incredible experience. I have two regrets about this weekend, one that my crappy camera doesn't take better pictures. (At least I have the little videos, especially the one from Olive Garden where Peggy's daughter filmed the entire group. Those videos are at www.youtube.com/mbmurtha) The other regret is that there is never enough time to sit and talk with everyone. I was so happy to meet newer members...like , Barbara, Sandy, Eileen etc etc etc. If start naming names I'm going to get in trouble I don't want my oxygen deprived brain to forget someone. And of course I was happy to see old friends like Peggy, Leanne and Jane. Peggy's "SuperCaregiver" husband and her daughter Theresa were with us also as was Jane's sweetheart of a daughter . I honestly feel as though my family expands everytime I go to one of these things and I'm grateful for that. This group is one of the blessings of this horrible disease. It's not a small blessing either. You all make this bearable for me and I thank you all for that. Here's to the next get together! Beth Moderator Fibrotic NSIP 06/06 Dermatomyositis 11/08 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2009 Report Share Posted March 17, 2009 Sher, That's a good idea that we just didn't think of at the time. At the restaurant Theresa just grabbed the camera and tried to go quickly around the table before the waitstaff came with our food. We were really kind of jammed in that room and it was difficult to get everyone on camera at all. Still pictures are obviously easier in that respect which is why I am unhappy that my regular camera wasn't really working properly. Beth Moderator Fibrotic NSIP 06/06 Dermatomyositis 11/08 To: Breathe-Support Sent: Tuesday, March 17, 2009 8:29:19 PMSubject: Re: Orlando trip MB...thanks for the videos. Hey, here's an idea....next time you go around have everyone give their name. Newbies don't know everyone and neither do we older ones. Looks like a great crowd! MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there! Orlando trip Hi everyone, Sitting here in my hotel room in Walterboro, SC reviewing the weekend in my mind. It seems to be the same everytime I meet someone from this group in person. Regardless of who it is and how little we may have in common, meeting someone with this disease is like finding a long lost sibling. It's an incredible experience. I have two regrets about this weekend, one that my crappy camera doesn't take better pictures. (At least I have the little videos, especially the one from Olive Garden where Peggy's daughter filmed the entire group. Those videos are at www.youtube. com/mbmurtha) The other regret is that there is never enough time to sit and talk with everyone. I was so happy to meet newer members...like , Barbara, Sandy, Eileen etc etc etc. If start naming names I'm going to get in trouble I don't want my oxygen deprived brain to forget someone. And of course I was happy to see old friends like Peggy, Leanne and Jane. Peggy's "SuperCaregiver" husband and her daughter Theresa were with us also as was Jane's sweetheart of a daughter . I honestly feel as though my family expands everytime I go to one of these things and I'm grateful for that. This group is one of the blessings of this horrible disease. It's not a small blessing either. You all make this bearable for me and I thank you all for that. Here's to the next get together! Beth Moderator Fibrotic NSIP 06/06 Dermatomyositis 11/08 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2009 Report Share Posted March 17, 2009 Sher, That's a good idea that we just didn't think of at the time. At the restaurant Theresa just grabbed the camera and tried to go quickly around the table before the waitstaff came with our food. We were really kind of jammed in that room and it was difficult to get everyone on camera at all. Still pictures are obviously easier in that respect which is why I am unhappy that my regular camera wasn't really working properly. Beth Moderator Fibrotic NSIP 06/06 Dermatomyositis 11/08 To: Breathe-Support Sent: Tuesday, March 17, 2009 8:29:19 PMSubject: Re: Orlando trip MB...thanks for the videos. Hey, here's an idea....next time you go around have everyone give their name. Newbies don't know everyone and neither do we older ones. Looks like a great crowd! MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there! Orlando trip Hi everyone, Sitting here in my hotel room in Walterboro, SC reviewing the weekend in my mind. It seems to be the same everytime I meet someone from this group in person. Regardless of who it is and how little we may have in common, meeting someone with this disease is like finding a long lost sibling. It's an incredible experience. I have two regrets about this weekend, one that my crappy camera doesn't take better pictures. (At least I have the little videos, especially the one from Olive Garden where Peggy's daughter filmed the entire group. Those videos are at www.youtube. com/mbmurtha) The other regret is that there is never enough time to sit and talk with everyone. I was so happy to meet newer members...like , Barbara, Sandy, Eileen etc etc etc. If start naming names I'm going to get in trouble I don't want my oxygen deprived brain to forget someone. And of course I was happy to see old friends like Peggy, Leanne and Jane. Peggy's "SuperCaregiver" husband and her daughter Theresa were with us also as was Jane's sweetheart of a daughter . I honestly feel as though my family expands everytime I go to one of these things and I'm grateful for that. This group is one of the blessings of this horrible disease. It's not a small blessing either. You all make this bearable for me and I thank you all for that. Here's to the next get together! Beth Moderator Fibrotic NSIP 06/06 Dermatomyositis 11/08 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2009 Report Share Posted March 17, 2009 Sher, That's a good idea that we just didn't think of at the time. At the restaurant Theresa just grabbed the camera and tried to go quickly around the table before the waitstaff came with our food. We were really kind of jammed in that room and it was difficult to get everyone on camera at all. Still pictures are obviously easier in that respect which is why I am unhappy that my regular camera wasn't really working properly. Beth Moderator Fibrotic NSIP 06/06 Dermatomyositis 11/08 To: Breathe-Support Sent: Tuesday, March 17, 2009 8:29:19 PMSubject: Re: Orlando trip MB...thanks for the videos. Hey, here's an idea....next time you go around have everyone give their name. Newbies don't know everyone and neither do we older ones. Looks like a great crowd! MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there! Orlando trip Hi everyone, Sitting here in my hotel room in Walterboro, SC reviewing the weekend in my mind. It seems to be the same everytime I meet someone from this group in person. Regardless of who it is and how little we may have in common, meeting someone with this disease is like finding a long lost sibling. It's an incredible experience. I have two regrets about this weekend, one that my crappy camera doesn't take better pictures. (At least I have the little videos, especially the one from Olive Garden where Peggy's daughter filmed the entire group. Those videos are at www.youtube. com/mbmurtha) The other regret is that there is never enough time to sit and talk with everyone. I was so happy to meet newer members...like , Barbara, Sandy, Eileen etc etc etc. If start naming names I'm going to get in trouble I don't want my oxygen deprived brain to forget someone. And of course I was happy to see old friends like Peggy, Leanne and Jane. Peggy's "SuperCaregiver" husband and her daughter Theresa were with us also as was Jane's sweetheart of a daughter . I honestly feel as though my family expands everytime I go to one of these things and I'm grateful for that. This group is one of the blessings of this horrible disease. It's not a small blessing either. You all make this bearable for me and I thank you all for that. Here's to the next get together! Beth Moderator Fibrotic NSIP 06/06 Dermatomyositis 11/08 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2009 Report Share Posted March 17, 2009 Mebbe you lot could help us out by naming everyone at the Dinner in a Post .. start from Beth, which is where the Camera started rolling...go to MB's RIGHT & name from there.... I knew some but not everybody & I wanted to SHOUT... hey tell us your NAMES! That'd be great! Pretty PLEASE!!!! Cheers, GIO >> Sher,> That's a good idea that we just didn't think of at the time. At the restaurant Theresa just grabbed the camera and tried to go quickly around the table before the waitstaff came with our food. We were really kind of jammed in that room and it was difficult to get everyone on camera at all. > Still pictures are obviously easier in that respect which is why I am unhappy that my regular camera wasn't really working properly. > > Beth> Moderator> Fibrotic NSIP 06/06 Dermatomyositis 11/08> > > > > ________________________________> To: Breathe-Support > Sent: Tuesday, March 17, 2009 8:29:19 PM> Subject: Re: Orlando trip> > > MB...thanks for the videos. Hey, here's an idea....next time you go around have everyone give their name. Newbies don't know everyone and neither do we older ones.> Looks like a great crowd!> MamaSher; 70, IPF 3-06, OR. > Nasturtiums> Don't fret about tomorrow, God is already there!> > Orlando trip> > Hi everyone,> Sitting here in my hotel room in Walterboro, SC reviewing the weekend in my mind. It seems to be the same everytime I meet someone from this group in person. Regardless of who it is and how little we may have in common, meeting someone with this disease is like finding a long lost sibling. It's an incredible experience. I have two regrets about this weekend, one that my crappy camera doesn't take better pictures. (At least I have the little videos, especially the one from Olive Garden where Peggy's daughter filmed the entire group. Those videos are at www.youtube. com/mbmurtha)> The other regret is that there is never enough time to sit and talk with everyone. I was so happy to meet newer members...like , Barbara, Sandy, Eileen etc etc etc. If start naming names I'm going to get in trouble I don't want my oxygen deprived brain to forget someone. And of course I was happy to see old friends like Peggy, Leanne and Jane. Peggy's "SuperCaregiver" husband and her daughter Theresa were with us also as was Jane's sweetheart of a daughter . > I honestly feel as though my family expands everytime I go to one of these things and I'm grateful for that.> This group is one of the blessings of this horrible disease. It's not a small blessing either. You all make this bearable for me and I thank you all for that.> > Here's to the next get together!> > Beth> Moderator> Fibrotic NSIP 06/06 Dermatomyositis 11/08> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2009 Report Share Posted March 17, 2009 MB ..... your get-togethers mean heaps, even to those of us who never get to be there. The videos were a fabulous way of getting the 'feel' of the group. I replayed them all several times over. I loved picking up different voices, accents... now I match the voice to the Posts! Thanks for sharing everyone.... I wait for ALL the snippets.... in Oz >> Hi everyone,> Sitting here in my hotel room in Walterboro, SC reviewing the weekend in my mind. It seems to be the same everytime I meet someone from this group in person. Regardless of who it is and how little we may have in common, meeting someone with this disease is like finding a long lost sibling. It's an incredible experience. I have two regrets about this weekend, one that my crappy camera doesn't take better pictures. (At least I have the little videos, especially the one from Olive Garden where Peggy's daughter filmed the entire group. Those videos are at www.youtube.com/mbmurtha)> The other regret is that there is never enough time to sit and talk with everyone. I was so happy to meet newer members...like , Barbara, Sandy, Eileen etc etc etc. If start naming names I'm going to get in trouble I don't want my oxygen deprived brain to forget someone. And of course I was happy to see old friends like Peggy, Leanne and Jane. Peggy's "SuperCaregiver" husband and her daughter Theresa were with us also as was Jane's sweetheart of a daughter . > I honestly feel as though my family expands everytime I go to one of these things and I'm grateful for that.> This group is one of the blessings of this horrible disease. It's not a small blessing either. You all make this bearable for me and I thank you all for that.> > Here's to the next get together!> > Beth> Moderator> Fibrotic NSIP 06/06 Dermatomyositis 11/08> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2009 Report Share Posted March 17, 2009 MB ..... your get-togethers mean heaps, even to those of us who never get to be there. The videos were a fabulous way of getting the 'feel' of the group. I replayed them all several times over. I loved picking up different voices, accents... now I match the voice to the Posts! Thanks for sharing everyone.... I wait for ALL the snippets.... in Oz >> Hi everyone,> Sitting here in my hotel room in Walterboro, SC reviewing the weekend in my mind. It seems to be the same everytime I meet someone from this group in person. Regardless of who it is and how little we may have in common, meeting someone with this disease is like finding a long lost sibling. It's an incredible experience. I have two regrets about this weekend, one that my crappy camera doesn't take better pictures. (At least I have the little videos, especially the one from Olive Garden where Peggy's daughter filmed the entire group. Those videos are at www.youtube.com/mbmurtha)> The other regret is that there is never enough time to sit and talk with everyone. I was so happy to meet newer members...like , Barbara, Sandy, Eileen etc etc etc. If start naming names I'm going to get in trouble I don't want my oxygen deprived brain to forget someone. And of course I was happy to see old friends like Peggy, Leanne and Jane. Peggy's "SuperCaregiver" husband and her daughter Theresa were with us also as was Jane's sweetheart of a daughter . > I honestly feel as though my family expands everytime I go to one of these things and I'm grateful for that.> This group is one of the blessings of this horrible disease. It's not a small blessing either. You all make this bearable for me and I thank you all for that.> > Here's to the next get together!> > Beth> Moderator> Fibrotic NSIP 06/06 Dermatomyositis 11/08> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2009 Report Share Posted March 17, 2009 MB ..... your get-togethers mean heaps, even to those of us who never get to be there. The videos were a fabulous way of getting the 'feel' of the group. I replayed them all several times over. I loved picking up different voices, accents... now I match the voice to the Posts! Thanks for sharing everyone.... I wait for ALL the snippets.... in Oz >> Hi everyone,> Sitting here in my hotel room in Walterboro, SC reviewing the weekend in my mind. It seems to be the same everytime I meet someone from this group in person. Regardless of who it is and how little we may have in common, meeting someone with this disease is like finding a long lost sibling. It's an incredible experience. I have two regrets about this weekend, one that my crappy camera doesn't take better pictures. (At least I have the little videos, especially the one from Olive Garden where Peggy's daughter filmed the entire group. Those videos are at www.youtube.com/mbmurtha)> The other regret is that there is never enough time to sit and talk with everyone. I was so happy to meet newer members...like , Barbara, Sandy, Eileen etc etc etc. If start naming names I'm going to get in trouble I don't want my oxygen deprived brain to forget someone. And of course I was happy to see old friends like Peggy, Leanne and Jane. Peggy's "SuperCaregiver" husband and her daughter Theresa were with us also as was Jane's sweetheart of a daughter . > I honestly feel as though my family expands everytime I go to one of these things and I'm grateful for that.> This group is one of the blessings of this horrible disease. It's not a small blessing either. You all make this bearable for me and I thank you all for that.> > Here's to the next get together!> > Beth> Moderator> Fibrotic NSIP 06/06 Dermatomyositis 11/08> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2009 Report Share Posted March 18, 2009 Hey, pictures are pictures and I know the board is glad to see any! MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there! Orlando trip Hi everyone, Sitting here in my hotel room in Walterboro, SC reviewing the weekend in my mind. It seems to be the same everytime I meet someone from this group in person. Regardless of who it is and how little we may have in common, meeting someone with this disease is like finding a long lost sibling. It's an incredible experience. I have two regrets about this weekend, one that my crappy camera doesn't take better pictures. (At least I have the little videos, especially the one from Olive Garden where Peggy's daughter filmed the entire group. Those videos are at www.youtube. com/mbmurtha) The other regret is that there is never enough time to sit and talk with everyone. I was so happy to meet newer members...like , Barbara, Sandy, Eileen etc etc etc. If start naming names I'm going to get in trouble I don't want my oxygen deprived brain to forget someone. And of course I was happy to see old friends like Peggy, Leanne and Jane. Peggy's "SuperCaregiver" husband and her daughter Theresa were with us also as was Jane's sweetheart of a daughter . I honestly feel as though my family expands everytime I go to one of these things and I'm grateful for that. This group is one of the blessings of this horrible disease. It's not a small blessing either. You all make this bearable for me and I thank you all for that. Here's to the next get together! Beth Moderator Fibrotic NSIP 06/06 Dermatomyositis 11/08 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2009 Report Share Posted March 18, 2009 Hey, pictures are pictures and I know the board is glad to see any! MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there! Orlando trip Hi everyone, Sitting here in my hotel room in Walterboro, SC reviewing the weekend in my mind. It seems to be the same everytime I meet someone from this group in person. Regardless of who it is and how little we may have in common, meeting someone with this disease is like finding a long lost sibling. It's an incredible experience. I have two regrets about this weekend, one that my crappy camera doesn't take better pictures. (At least I have the little videos, especially the one from Olive Garden where Peggy's daughter filmed the entire group. Those videos are at www.youtube. com/mbmurtha) The other regret is that there is never enough time to sit and talk with everyone. I was so happy to meet newer members...like , Barbara, Sandy, Eileen etc etc etc. If start naming names I'm going to get in trouble I don't want my oxygen deprived brain to forget someone. And of course I was happy to see old friends like Peggy, Leanne and Jane. Peggy's "SuperCaregiver" husband and her daughter Theresa were with us also as was Jane's sweetheart of a daughter . I honestly feel as though my family expands everytime I go to one of these things and I'm grateful for that. This group is one of the blessings of this horrible disease. It's not a small blessing either. You all make this bearable for me and I thank you all for that. Here's to the next get together! Beth Moderator Fibrotic NSIP 06/06 Dermatomyositis 11/08 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2009 Report Share Posted March 18, 2009 Hey, pictures are pictures and I know the board is glad to see any! MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there! Orlando trip Hi everyone, Sitting here in my hotel room in Walterboro, SC reviewing the weekend in my mind. It seems to be the same everytime I meet someone from this group in person. Regardless of who it is and how little we may have in common, meeting someone with this disease is like finding a long lost sibling. It's an incredible experience. I have two regrets about this weekend, one that my crappy camera doesn't take better pictures. (At least I have the little videos, especially the one from Olive Garden where Peggy's daughter filmed the entire group. Those videos are at www.youtube. com/mbmurtha) The other regret is that there is never enough time to sit and talk with everyone. I was so happy to meet newer members...like , Barbara, Sandy, Eileen etc etc etc. If start naming names I'm going to get in trouble I don't want my oxygen deprived brain to forget someone. And of course I was happy to see old friends like Peggy, Leanne and Jane. Peggy's "SuperCaregiver" husband and her daughter Theresa were with us also as was Jane's sweetheart of a daughter . I honestly feel as though my family expands everytime I go to one of these things and I'm grateful for that. This group is one of the blessings of this horrible disease. It's not a small blessing either. You all make this bearable for me and I thank you all for that. Here's to the next get together! Beth Moderator Fibrotic NSIP 06/06 Dermatomyositis 11/08 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2009 Report Share Posted March 21, 2009 To all the Orlando "meeters": glad to meet you all. To see how you can live with this disease - with humor, and grace and hope - is an inspiration. ;* <3 Barbara McD IPF, Sept 08 Beautiful Western NC Let us not become weary in doing good, for at the proper time we will reap a harvest if we do not give up. Galatians 6:9 To: Breathe-Support Sent: Wednesday, March 18, 2009 11:55:44 AMSubject: Re: Orlando trip Hey, pictures are pictures and I know the board is glad to see any! MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there! Orlando trip Hi everyone, Sitting here in my hotel room in Walterboro, SC reviewing the weekend in my mind. It seems to be the same everytime I meet someone from this group in person. Regardless of who it is and how little we may have in common, meeting someone with this disease is like finding a long lost sibling. It's an incredible experience. I have two regrets about this weekend, one that my crappy camera doesn't take better pictures. (At least I have the little videos, especially the one from Olive Garden where Peggy's daughter filmed the entire group. Those videos are at www.youtube. com/mbmurtha) The other regret is that there is never enough time to sit and talk with everyone. I was so happy to meet newer members...like , Barbara, Sandy, Eileen etc etc etc. If start naming names I'm going to get in trouble I don't want my oxygen deprived brain to forget someone. And of course I was happy to see old friends like Peggy, Leanne and Jane. Peggy's "SuperCaregiver" husband and her daughter Theresa were with us also as was Jane's sweetheart of a daughter . I honestly feel as though my family expands everytime I go to one of these things and I'm grateful for that. This group is one of the blessings of this horrible disease. It's not a small blessing either. You all make this bearable for me and I thank you all for that. Here's to the next get together! Beth Moderator Fibrotic NSIP 06/06 Dermatomyositis 11/08 Quote Link to comment Share on other sites More sharing options...
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