Re: New topic: Post-op transportation

[Guest guest]

Bill

At UTSW it also goes a step further in saying that you must have someone

with you 24 hours a day for at least six weeks. Unfortunately, if you

don't have family or friends who can be, that is considered custodial

care and not covered by medicare. I'd suggest talking to social services

at the transplant center, at your local senior center, at churches and

anywhere else you might in your area. Perhaps given enough time you can

arrange the help you would need with a minimal of paid assistance, if

any.

>

> I'll be going through the tests in July which could end up with me

listed

> for a transplant. I live in the hill country N. of town, PA,

about

> two hours from the U. of PA Lung Center. They've indicated the

post-op

> therapy would be three times a week, for several weeks, and that I

can't drive

> for a few weeks. I'm thinking with no significant other or friends

who

> don't work, this could be a deal breaker. Have any of you faced this

> situation, or do any of you have any ideas re: finding transportation?

I know it's

> a little early to worry about this but it'd be one more thing off my

worry

> list. By the way, I'm finding that stress affects my breathing about

as

> much as anything.

>

> Bill IPF 10/08

> N. of town, PA

> **************We found the real ‘Hotel California’ and

the ‘Seinfeld’

> diner. What will you find? Explore WhereItsAt.com.

>

(http://www.whereitsat.com/#/music/all-spots/355/47.796964/-66.374711/2/\

Youve-Found-Where-Its-At?ncid=eml

> cntnew00000007)

>

[Guest guest]

Bill -- that is a big concern

some people stay in local hotels post transplant

i think i also heard that there are people who will let you live in their homes during that time period

Gift of Life is fundraising to build a facilty where families can stay after transplant, i think Penn is also trying to do the same thing -- kind of like a Mc house, but for adult transplant patients

there might be a "youth" hostel, but I don't know where it is

at the transplant support group, there is a young woman from New Orleans or someplace else in Louisiana who lived in philly for a year waiting for her transplant, the last time i saw her was several weeks after the transplant, she still needed to be here

don't know what her living arrangements were

the social worker will probably discuss that with you and hopefully offer suggestions as to where you could stay during that time period

of course if money is not an issue you could stay in any downtown hotel, but that can be extremely expensive

see how things go with the evaluation, then consider calling Gift of Life, maybe they can suggest something

i have been told that rehab is 3 times a week for 12 weeks

Pink Joyce (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund.org---

Subject: New topic: Post-op transportationTo: Breathe-Support Date: Tuesday, June 2, 2009, 9:21 AM

I'll be going through the tests in July which could end up with me listed for a transplant. I live in the hill country N. of town, PA, about two hours from the U. of PA Lung Center. They've indicated the post-op therapy would be three times a week, for several weeks, and that I can't drive for a few weeks. I'm thinking with no significant other or friends who don't work, this could be a deal breaker. Have any of you faced this situation, or do any of you have any ideas re: finding transportation? I know it's a little early to worry about this but it'd be one more thing off my worry list. By the way, I'm finding that stress affects my breathing about as much as anything.

Bill IPF 10/08

N. of town, PA

We found the real 'Hotel California' and the 'Seinfeld' diner. What will you find? Explore WhereItsAt.com.