Re: Deb/

[Guest guest]

Hi ,

Glad to meet you , sorry we had to do it here.

In Sept 04 they diagnosed my husband Joe with stage 4 CC , they didnt find out

about the mets ( even with CT ) until the doc actually went in to remove his

tumor which was almost totally blocking him off.

They wound up removing all of his sigmoid colon , the very top part of his

rectum, 39 lymph nodes ( 3 tested positive for cancer ) and ALL of his abdominal

wall lining .

At that time they had said even with 6months of chemo his chances for survival

was very grim , they gave him 22months total.

He started chemo in Jan ( had ileostomy reversal in Dec)

He was on 5fu/Lecovorin/Oxaplatin/Avastin/Calcium Magnesium(to help with the

tingles )

He did this regiment monday 6hours infusion , then got a fanny pack of 5fu to

take home for 48hours , then was off the next week.

His last treatment was June 6 2005 at which time we asked again SO how much time

do we have? at this time the doc said " There is a PRETTY GOOD chance he is

cured!!! "

of course no guarantees , but heck going from a 33yrold with a death sentence to

a chance of living and seeing your kids grown is pretty good.

So far so good , he still has issues with neuropathy but it beats having cancer.

Also a Cea level of 3.3 isnt to bad, are you by chance a smoker , I know if you

smoke CEA levels are slightly higher .

What was your original diagnose??

And what treatment are you on?

Take care

Deb

asorr55555@... wrote:

Hope everything is going as well as possible. You mentioned your husband had

mets to the abdominal wall. On one of my CTs they thought they might have

seen a met in the area of the omentum. A follow up CT and PET did not see

anything but with a 3.3 cea I am concerned. Could you tell me a little bit about

how your husbands abdominal wall met treatments have been going. Thanks-