Itching-Thanks for the help

[Guest guest]

Hi, Kristi,

Thanks for responding. I do have a few questions if you don't mind. First,

what is toprol and do you need an RX? Second, how long did you go through

the hives/itching? Did the itching stop right away after the lowering or did

it take longer? How long into treatment were you when the itchies started?

I'm annoyed at myself for not picking up the Benedryl earlier today. It's

too late to go out now. It was half as bad during the day but I am going out

of my mind right now.

I'm tempted to just lower my dose till Friday, but I'm not sure it is a good

idea to do it on my own.

Thank you so much for taking the time to advise.

[Guest guest]

Hi ,

NO, No, NO....

Please do NOT lower your dose !

Start messing around and you will only make everything take longer. Plus,

when you have labs drawn they will be next to useless in figuring out what

is going on.

You have LOTs of sympathy on the itching though. So many of us did not reply

because the new gals had it so nicely covered. In fact I felt and extra warm

soft for the list when I saw Kristi and , so wonderfully help you out.

They are new, but they explained everything VERY well. Just makes us all

PROUD. :-)

Once you get labs and see that it really is safe to lower the does, you WILL

feel relief the first day. At least that is how I remember it.

I was not taking notes or getting copies back then, but my insane itching is

burnt in my memory and can never be forgotten. Trust me here. I had to be

started on 1200mg of PTU and THAT will make you ITCH !!!! If you are not

waking up every few minuets all night and finding blood everywhere from the

scratching you did while asleep, you are not really itching yet. LOL This

can be gotten through, and then you will be able to help the next poor soul

that thinks he or she is going to totally loose it.

When the itching is at its worse, just think how this is SO much better than

swallowing radioactive waste.

Find something you LOVE to do, that will keep you busy. I painted my sewing

room with the most outrageous paint technique. I used three shades of pink,

all at the same time, and brushed each shade on and overlapped, and worked

them together but still showing the different colors and brush strokes. It

is a big room with curved walls that merge into the ceiling gently, so the

walls and ceiling are all this one technique. Everyone raved about it.

Somehow I was able to do this bit by bit, and the fun of it helped me not

scratch so bad. Mind over matter will not stop the itch, but it can get it

to a manageable level, and you can pretend the screaming is from the joy of

your creation and not the frustration of wanting to slip completely out of

your skin just for a rest. :-)

-Pam L - who was never told of benadryl or tea tree oil or anything :-(

But still LOVEs my PINK room.

3 1/2 yr.Graves and TED, PTU, Remission due to education, SLOW reduction of

PTU, improved lifestyle, excellent nutrition,herbs, and looking at the BIG

picture !

Pills alone only fix symptoms. We must help our bodies to heal.

[Guest guest]

Hi ,

I'm a little sleepy, so bear with me if this message is jumbled.

toprol is a beta blocker and you do need an RX. As I remember it, the hives

lasted 2-3 weeks. They had already lessened by the time I lowered my dose,

but I don't know how much the Benedryl had to do with that. Or maybe I just

got used to it! haha. But they did disappear completely after my dose was

lowered. Pretty soon after if I remember correctly.

I think the itchies started about two months into treatment, but that's

probably because I started out at 40mg a day and it wasn't until my idiot

endo raised me up to 60 mg a day(because my hands were shaking), that I got

the hives. \

If I were you, I wouldn't lower my dose right now. Especially since you've

got blood work on the way. You dont want to send yourself into the

hyper/hypO loop. It's hard to get out of. The Benedryl really does help a

lot! Get some of that today! It's funny how many of us have gone through

this and the doctors will try to tell you (or at least mine did) that it was

not thryoid related, not related to the meds and that I should go see a

dermatologist.

Anyway, stick with it and before you know it these pesky hives will be a

thing of the past!

Kristi

Itching-Thanks for the help

> Hi, Kristi,

>

> Thanks for responding. I do have a few questions if you don't mind.

First,

> what is toprol and do you need an RX? Second, how long did you go through

> the hives/itching? Did the itching stop right away after the lowering or

did

> it take longer? How long into treatment were you when the itchies

started?

>

> I'm annoyed at myself for not picking up the Benedryl earlier today. It's

> too late to go out now. It was half as bad during the day but I am going

out

> of my mind right now.

>

> I'm tempted to just lower my dose till Friday, but I'm not sure it is a

good

> idea to do it on my own.

>

> Thank you so much for taking the time to advise.

>

>

>

>

[Guest guest]

Pam,

Thanks! I'm glad to be giving back a little of the help I received here and

SO desperately needed a few months ago!

, Pam is right...when the itching got really bad, I did think about the

radioiodine and it gave me renewed strength to get through it.

Good luck,

kristi

Re: Itching-Thanks for the help

> Hi ,

>

> NO, No, NO....

> Please do NOT lower your dose !

>

> Start messing around and you will only make everything take longer. Plus,

> when you have labs drawn they will be next to useless in figuring out what

> is going on.

>

> You have LOTs of sympathy on the itching though. So many of us did not

reply

> because the new gals had it so nicely covered. In fact I felt and extra

warm

> soft for the list when I saw Kristi and , so wonderfully help you

out.

> They are new, but they explained everything VERY well. Just makes us all

> PROUD. :-)

>

> Once you get labs and see that it really is safe to lower the does, you

WILL

> feel relief the first day. At least that is how I remember it.

>

> I was not taking notes or getting copies back then, but my insane itching

is

> burnt in my memory and can never be forgotten. Trust me here. I had to be

> started on 1200mg of PTU and THAT will make you ITCH !!!! If you are not

> waking up every few minuets all night and finding blood everywhere from

the

> scratching you did while asleep, you are not really itching yet. LOL This

> can be gotten through, and then you will be able to help the next poor

soul

> that thinks he or she is going to totally loose it.

>

> When the itching is at its worse, just think how this is SO much better

than

> swallowing radioactive waste.

>

> Find something you LOVE to do, that will keep you busy. I painted my

sewing

> room with the most outrageous paint technique. I used three shades of

pink,

> all at the same time, and brushed each shade on and overlapped, and worked

> them together but still showing the different colors and brush strokes. It

> is a big room with curved walls that merge into the ceiling gently, so the

> walls and ceiling are all this one technique. Everyone raved about it.

> Somehow I was able to do this bit by bit, and the fun of it helped me not

> scratch so bad. Mind over matter will not stop the itch, but it can get it

> to a manageable level, and you can pretend the screaming is from the joy

of

> your creation and not the frustration of wanting to slip completely out of

> your skin just for a rest. :-)

>

> -Pam L - who was never told of benadryl or tea tree oil or anything :-(

> But still LOVEs my PINK room.

> 3 1/2 yr.Graves and TED, PTU, Remission due to education, SLOW reduction

of

> PTU, improved lifestyle, excellent nutrition,herbs, and looking at the BIG

> picture !

> Pills alone only fix symptoms. We must help our bodies to heal.

>

>

>

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