Guest guest Posted February 27, 2009 Report Share Posted February 27, 2009 May good luck with the transplant evaluation Pink Joyce IPF 3/06 Pennsylvania Donate Life Listed 1/09 www.transplantfund.org--- Subject: transplant evaluation newsTo: Breathe-Support Date: Friday, February 27, 2009, 10:06 AM hijust returned from seeing my pulmododette who tellsme she has received a letter telling her that the newcastle transplant team are arranging for me to havethe three day in-patient transplant evaluation. i amsurprised as he didnt say anything like that to me.i thought i wouldn't see him for 3 or 6 months dependingon my deterioration. for all i know it might take 3/6months to get me to top of list. anyhoo, i'm just gladthat i'm in the transplant works as here in the uk we cantmove from area to area - we have to take what we get.btw, she had a very hunky trainee doctor who was actuallyvery warm and lovely rather egotistic like most of them.i dont normally take much notice of figures but she saidmy diffusion was 30something but now its 24. does thatmean anything to anyone. i got to see my lungs on the xray and we discussed another ct. i said didnt think itworth the bother as 'nothing would change' and evaluationis coming up. i will see her again in 2months where we will be doing the pfts again...oh, and she has emphasised to wear my o2 at rest too.may uip 0606glasgow, scotland 49yrs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2009 Report Share Posted February 27, 2009 Hi May, Diffusion is a big deal. A normal person moves around 95% of the oxygen they inhale into their bloodstream. The lower the diffusion rate the less o2 is getting from lungs to blood. Mine dropped from 55% to 38% this last year and now I am going to be evaluated for transplant also. Always wear your o2 as even if you feel ok, your organs are suffering from lack of oxygen! I really hate that I know all this! Dyane Phoenix AZ May good luck with the transplant evaluation Pink Joyce IPF 3/06 Pennsylvania Donate Life Listed 1/09 www.transplantfund.org--- Subject: transplant evaluation news To: Breathe-Support Date: Friday, February 27, 2009, 10:06 AM hijust returned from seeing my pulmododette who tellsme she has received a letter telling her that the newcastle transplant team are arranging for me to havethe three day in-patient transplant evaluation. i am surprised as he didnt say anything like that to me.i thought i wouldn't see him for 3 or 6 months dependingon my deterioration. for all i know it might take 3/6months to get me to top of list. anyhoo, i'm just glad that i'm in the transplant works as here in the uk we cantmove from area to area - we have to take what we get.btw, she had a very hunky trainee doctor who was actuallyvery warm and lovely rather egotistic like most of them.i dont normally take much notice of figures but she saidmy diffusion was 30something but now its 24. does thatmean anything to anyone. i got to see my lungs on the xray and we discussed another ct. i said didnt think it worth the bother as 'nothing would change' and evaluationis coming up. i will see her again in 2months where we will be doing the pfts again...oh, and she has emphasised to wear my o2 at rest too.may uip 0606 glasgow, scotland 49yrs -- Dyane L. BillingsSenior Staff AccountantBall & McGraw P.C. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2009 Report Share Posted February 27, 2009 thanks you know, i hate that you know it toooooo... may > > > > From: may > > Subject: transplant evaluation news > > To: Breathe-Support > > Date: Friday, February 27, 2009, 10:06 AM > > > > hi > > just returned from seeing my pulmododette who tells > > me she has received a letter telling her that the > > newcastle transplant team are arranging for me to have > > the three day in-patient transplant evaluation. i am > > surprised as he didnt say anything like that to me. > > i thought i wouldn't see him for 3 or 6 months depending > > on my deterioration. for all i know it might take 3/6 > > months to get me to top of list. anyhoo, i'm just glad > > that i'm in the transplant works as here in the uk we cant > > move from area to area - we have to take what we get. > > > > btw, she had a very hunky trainee doctor who was actually > > very warm and lovely rather egotistic like most of > > them. > > > > i dont normally take much notice of figures but she said > > my diffusion was 30something but now its 24. does that > > mean anything to anyone. i got to see my lungs on the > > xray and we discussed another ct. i said didnt think it > > worth the bother as 'nothing would change' and evaluation > > is coming up. i will see her again in 2months where we > > will be doing the pfts again... > > > > oh, and she has emphasised to wear my o2 at rest too. > > > > may uip 0606 > > glasgow, scotland 49yrs > > > > > > > > > > > > -- > Dyane L. Billings > Senior Staff Accountant > Ball & McGraw P.C. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2009 Report Share Posted February 27, 2009 thanks you know, i hate that you know it toooooo... may > > > > From: may > > Subject: transplant evaluation news > > To: Breathe-Support > > Date: Friday, February 27, 2009, 10:06 AM > > > > hi > > just returned from seeing my pulmododette who tells > > me she has received a letter telling her that the > > newcastle transplant team are arranging for me to have > > the three day in-patient transplant evaluation. i am > > surprised as he didnt say anything like that to me. > > i thought i wouldn't see him for 3 or 6 months depending > > on my deterioration. for all i know it might take 3/6 > > months to get me to top of list. anyhoo, i'm just glad > > that i'm in the transplant works as here in the uk we cant > > move from area to area - we have to take what we get. > > > > btw, she had a very hunky trainee doctor who was actually > > very warm and lovely rather egotistic like most of > > them. > > > > i dont normally take much notice of figures but she said > > my diffusion was 30something but now its 24. does that > > mean anything to anyone. i got to see my lungs on the > > xray and we discussed another ct. i said didnt think it > > worth the bother as 'nothing would change' and evaluation > > is coming up. i will see her again in 2months where we > > will be doing the pfts again... > > > > oh, and she has emphasised to wear my o2 at rest too. > > > > may uip 0606 > > glasgow, scotland 49yrs > > > > > > > > > > > > -- > Dyane L. Billings > Senior Staff Accountant > Ball & McGraw P.C. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2009 Report Share Posted February 27, 2009 thanks joyce dont know when it will be but i dont care. i'll get prepared and forget about it. i can't imagine being at the stage of being listed but one thing at a time. may ring phone ring > > From: may > Subject: transplant evaluation news > To: Breathe-Support > Date: Friday, February 27, 2009, 10:06 AM > > > > > > > hi > just returned from seeing my pulmododette who tells > me she has received a letter telling her that the > newcastle transplant team are arranging for me to have > the three day in-patient transplant evaluation. i am > surprised as he didnt say anything like that to me. > i thought i wouldn't see him for 3 or 6 months depending > on my deterioration. for all i know it might take 3/6 > months to get me to top of list. anyhoo, i'm just glad > that i'm in the transplant works as here in the uk we cant > move from area to area - we have to take what we get. > > btw, she had a very hunky trainee doctor who was actually > very warm and lovely rather egotistic like most of > them. > > i dont normally take much notice of figures but she said > my diffusion was 30something but now its 24. does that > mean anything to anyone. i got to see my lungs on the > xray and we discussed another ct. i said didnt think it > worth the bother as 'nothing would change' and evaluation > is coming up. i will see her again in 2months where we > will be doing the pfts again... > > oh, and she has emphasised to wear my o2 at rest too. > > may uip 0606 > glasgow, scotland 49yrs > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2009 Report Share Posted February 27, 2009 thanks joyce dont know when it will be but i dont care. i'll get prepared and forget about it. i can't imagine being at the stage of being listed but one thing at a time. may ring phone ring > > From: may > Subject: transplant evaluation news > To: Breathe-Support > Date: Friday, February 27, 2009, 10:06 AM > > > > > > > hi > just returned from seeing my pulmododette who tells > me she has received a letter telling her that the > newcastle transplant team are arranging for me to have > the three day in-patient transplant evaluation. i am > surprised as he didnt say anything like that to me. > i thought i wouldn't see him for 3 or 6 months depending > on my deterioration. for all i know it might take 3/6 > months to get me to top of list. anyhoo, i'm just glad > that i'm in the transplant works as here in the uk we cant > move from area to area - we have to take what we get. > > btw, she had a very hunky trainee doctor who was actually > very warm and lovely rather egotistic like most of > them. > > i dont normally take much notice of figures but she said > my diffusion was 30something but now its 24. does that > mean anything to anyone. i got to see my lungs on the > xray and we discussed another ct. i said didnt think it > worth the bother as 'nothing would change' and evaluation > is coming up. i will see her again in 2months where we > will be doing the pfts again... > > oh, and she has emphasised to wear my o2 at rest too. > > may uip 0606 > glasgow, scotland 49yrs > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2009 Report Share Posted February 27, 2009 Geez Bonnie May... now you're on the way...it must be quite a lot to absorb... I'll be keeping you close in my thoughts as the process continues.... lotsa, GIO> > > > From: may maymcevoystone@> > Subject: transplant evaluation news> > To: Breathe-Support > > Date: Friday, February 27, 2009, 10:06 AM> > > > > > > > > > > > > > hi> > just returned from seeing my pulmododette who tells> > me she has received a letter telling her that the > > newcastle transplant team are arranging for me to have> > the three day in-patient transplant evaluation. i am> > surprised as he didnt say anything like that to me.> > i thought i wouldn't see him for 3 or 6 months depending> > on my deterioration. for all i know it might take 3/6> > months to get me to top of list. anyhoo, i'm just glad> > that i'm in the transplant works as here in the uk we cant> > move from area to area - we have to take what we get.> > > > btw, she had a very hunky trainee doctor who was actually> > very warm and lovely rather egotistic like most of > > them.> > > > i dont normally take much notice of figures but she said> > my diffusion was 30something but now its 24. does that> > mean anything to anyone. i got to see my lungs on the > > xray and we discussed another ct. i said didnt think it> > worth the bother as 'nothing would change' and evaluation> > is coming up. i will see her again in 2months where we > > will be doing the pfts again...> > > > oh, and she has emphasised to wear my o2 at rest too.> > > > may uip 0606> > glasgow, scotland 49yrs> >> Quote Link to comment Share on other sites More sharing options...
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