Guest guest Posted December 20, 2002 Report Share Posted December 20, 2002 Margaret wrote: > > Thanks so much for your input. This group has already been a much bigger help than all my doctors. I was wondering- why are you on PTU if you already had RAI? Wouldn't that just make you more hypo? This long after RAI Jody's thyroid is dead, so there is no thyroid hormone production for PTU to suppress. PTU has a slight suppressive effect on the antibodies that cause Graves/TED, although the scientific evidence for Jody's treatment is sparse (only one major trial, that was inconclusive). Still she says it works for her. The suppressive effect on antibodies is not how PTU works, it is just a side effect, and not a potent one at that, alas. Tapazole does something similar. This is touched on briefly in the EJE review article I mentioned. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 20, 2002 Report Share Posted December 20, 2002 Margaret wrote: > > Thanks so much for your input. This group has already been a much bigger help than all my doctors. I was wondering- why are you on PTU if you already had RAI? Wouldn't that just make you more hypo? This long after RAI Jody's thyroid is dead, so there is no thyroid hormone production for PTU to suppress. PTU has a slight suppressive effect on the antibodies that cause Graves/TED, although the scientific evidence for Jody's treatment is sparse (only one major trial, that was inconclusive). Still she says it works for her. The suppressive effect on antibodies is not how PTU works, it is just a side effect, and not a potent one at that, alas. Tapazole does something similar. This is touched on briefly in the EJE review article I mentioned. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 20, 2002 Report Share Posted December 20, 2002 Margaret wrote: > > Thanks so much for your input. This group has already been a much bigger help than all my doctors. I was wondering- why are you on PTU if you already had RAI? Wouldn't that just make you more hypo? This long after RAI Jody's thyroid is dead, so there is no thyroid hormone production for PTU to suppress. PTU has a slight suppressive effect on the antibodies that cause Graves/TED, although the scientific evidence for Jody's treatment is sparse (only one major trial, that was inconclusive). Still she says it works for her. The suppressive effect on antibodies is not how PTU works, it is just a side effect, and not a potent one at that, alas. Tapazole does something similar. This is touched on briefly in the EJE review article I mentioned. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 21, 2002 Report Share Posted December 21, 2002 Hi, Steroids prevent GO from worsening or developing immediately after RAI, but there are no long-term studies showing if the people using steroids developed GO later. Hale, the president of the American Foundation of Thyroid Patients used steroids with RAI and still developed GO bad enough to eventually require surgery. Since antibodies can be increased for up to 10 years after RAI, the benefits of short-term steroids would be limited. The risk is small but it is significant. Take care, Elaine Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 21, 2002 Report Share Posted December 21, 2002 Hi, Steroids prevent GO from worsening or developing immediately after RAI, but there are no long-term studies showing if the people using steroids developed GO later. Hale, the president of the American Foundation of Thyroid Patients used steroids with RAI and still developed GO bad enough to eventually require surgery. Since antibodies can be increased for up to 10 years after RAI, the benefits of short-term steroids would be limited. The risk is small but it is significant. Take care, Elaine Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 21, 2002 Report Share Posted December 21, 2002 Hi, All the doctors aren't for RAI. In Europe and Japan, RAI is rarely used and never in women of child-bearing age. And today, more and more doctors in the states are using ATDs and more thyroidectomies are being performed than ever before. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 21, 2002 Report Share Posted December 21, 2002 Hi and welcome. You've come to a great place to get information; I assume that while yes, there is a strong anti-RAI bias here you can discriminate between the solid info and the random rhetoric. It isn't easy to accept that 80% of drs. will recommend something that is not in the patient's best interests, but welcome to 21st century medicine. Given that the overwhelming majority of drs. are pro RAI, most of us are stuck getting treatment from them. Actually, I'd like to think that a number of these drs. will use ATD's when asked and may even be competent using them. (I wouldn't know, having reached remission in the hands of an incompetent dr.) What's especially sad is that of these 80%, not too many know how to administer RAI to achieve maximum success and how to treat patients post-RAI. It is important to stabilize a patient prior to RAI with ATD's to minimum thyroid storm post-RAI; it is important NOT to let a patient get badly hypo post RAI which means frequent monitoring and possible use of ATD's even post RAI; and while I would not brand a dr. irresponsible for suggesting steroids pre-RAI to reduce the risk of later TED (given the current info I can understand this approach while not subscribing to it) recommending RAI when TED already presents itself is an absolute dealbreaker!!! I have to confess to skimming and having been too quick to press delete lately. So where exactly are you as far as your basic labwork after a year on Tap? Why would you want to switch to PTU if you want to wait till summer for a pregnancy if you might be in remission by then? (I'm not confusing you with someone else, am I?) If I were faced with Graves and wanting to start a family (I'm not; I started a long time ago but I've thought this through) I would consider trying if I were on a very low dose of PTU. I would also very seriously consider surgery. Though Simon became hyper again after a partial thyroidectomy it's not too common. The hypothyroidism post surgery is much easier to regulate than post RAI, surgery does not increase the antibody activity that's such a factor in TED, as Jody explains(BTW, save Jody's posts and reread them; hers is the voice of experience), doesn't carry the short term (exposure to family) and long term risks that RAI does, wouldn't leave me with the cloud of " what if the GD comes back postpartum " among other reasons. I don't mean to suggest that hypoT is ever a piece of cake, just that it's a different kettle of fish (ok, so I'm hungry) when surgery-induced vs. RAI induced. Take your time and take care, Fay ________________________________________________________________ Sign Up for Juno Platinum Internet Access Today Only $9.95 per month! Visit www.juno.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 21, 2002 Report Share Posted December 21, 2002 Hi and welcome. You've come to a great place to get information; I assume that while yes, there is a strong anti-RAI bias here you can discriminate between the solid info and the random rhetoric. It isn't easy to accept that 80% of drs. will recommend something that is not in the patient's best interests, but welcome to 21st century medicine. Given that the overwhelming majority of drs. are pro RAI, most of us are stuck getting treatment from them. Actually, I'd like to think that a number of these drs. will use ATD's when asked and may even be competent using them. (I wouldn't know, having reached remission in the hands of an incompetent dr.) What's especially sad is that of these 80%, not too many know how to administer RAI to achieve maximum success and how to treat patients post-RAI. It is important to stabilize a patient prior to RAI with ATD's to minimum thyroid storm post-RAI; it is important NOT to let a patient get badly hypo post RAI which means frequent monitoring and possible use of ATD's even post RAI; and while I would not brand a dr. irresponsible for suggesting steroids pre-RAI to reduce the risk of later TED (given the current info I can understand this approach while not subscribing to it) recommending RAI when TED already presents itself is an absolute dealbreaker!!! I have to confess to skimming and having been too quick to press delete lately. So where exactly are you as far as your basic labwork after a year on Tap? Why would you want to switch to PTU if you want to wait till summer for a pregnancy if you might be in remission by then? (I'm not confusing you with someone else, am I?) If I were faced with Graves and wanting to start a family (I'm not; I started a long time ago but I've thought this through) I would consider trying if I were on a very low dose of PTU. I would also very seriously consider surgery. Though Simon became hyper again after a partial thyroidectomy it's not too common. The hypothyroidism post surgery is much easier to regulate than post RAI, surgery does not increase the antibody activity that's such a factor in TED, as Jody explains(BTW, save Jody's posts and reread them; hers is the voice of experience), doesn't carry the short term (exposure to family) and long term risks that RAI does, wouldn't leave me with the cloud of " what if the GD comes back postpartum " among other reasons. I don't mean to suggest that hypoT is ever a piece of cake, just that it's a different kettle of fish (ok, so I'm hungry) when surgery-induced vs. RAI induced. Take your time and take care, Fay ________________________________________________________________ Sign Up for Juno Platinum Internet Access Today Only $9.95 per month! Visit www.juno.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 22, 2002 Report Share Posted December 22, 2002 Hi Fay, Thanks for getting back to me. I am really leaning against RAI at least until my eyes settle down but right now no one can tell there is something wrong with them but me. Not even my husband so I am very lucky so far. I also think I have a very light case because I was able to stabilize for 6 months on just 1 pill of methimazole/day. I know everyone says PTU is safe but I just went to the pharmacy and they printed out the report and it said that it does cause harm to the fetus. I just need to figure out what kind of harm and weigh the options. Why do you think steroids w/ RAI is irresponsible? From all the studies I can tell this helps the eyes alot. I have also read that they don't always work however so I am trying to figure out what my chances are that they would get worse if I used steroids. I am also going to try to go to a genetic counselor to discuss these possibilities. Once I am convinced PTU will not cause any permanent damage to my baby, I sure I will stay clear of RAI at least till my eyes calm down. Margaret Re: PTU vs. RAI Hi and welcome. You've come to a great place to get information; I assume that while yes, there is a strong anti-RAI bias here you can discriminate between the solid info and the random rhetoric. It isn't easy to accept that 80% of drs. will recommend something that is not in the patient's best interests, but welcome to 21st century medicine. Given that the overwhelming majority of drs. are pro RAI, most of us are stuck getting treatment from them. Actually, I'd like to think that a number of these drs. will use ATD's when asked and may even be competent using them. (I wouldn't know, having reached remission in the hands of an incompetent dr.) What's especially sad is that of these 80%, not too many know how to administer RAI to achieve maximum success and how to treat patients post-RAI. It is important to stabilize a patient prior to RAI with ATD's to minimum thyroid storm post-RAI; it is important NOT to let a patient get badly hypo post RAI which means frequent monitoring and possible use of ATD's even post RAI; and while I would not brand a dr. irresponsible for suggesting steroids pre-RAI to reduce the risk of later TED (given the current info I can understand this approach while not subscribing to it) recommending RAI when TED already presents itself is an absolute dealbreaker!!! I have to confess to skimming and having been too quick to press delete lately. So where exactly are you as far as your basic labwork after a year on Tap? Why would you want to switch to PTU if you want to wait till summer for a pregnancy if you might be in remission by then? (I'm not confusing you with someone else, am I?) If I were faced with Graves and wanting to start a family (I'm not; I started a long time ago but I've thought this through) I would consider trying if I were on a very low dose of PTU. I would also very seriously consider surgery. Though Simon became hyper again after a partial thyroidectomy it's not too common. The hypothyroidism post surgery is much easier to regulate than post RAI, surgery does not increase the antibody activity that's such a factor in TED, as Jody explains(BTW, save Jody's posts and reread them; hers is the voice of experience), doesn't carry the short term (exposure to family) and long term risks that RAI does, wouldn't leave me with the cloud of " what if the GD comes back postpartum " among other reasons. I don't mean to suggest that hypoT is ever a piece of cake, just that it's a different kettle of fish (ok, so I'm hungry) when surgery-induced vs. RAI induced. Take your time and take care, Fay ________________________________________________________________ Sign Up for Juno Platinum Internet Access Today Only $9.95 per month! Visit www.juno.com ------------------------------------- The Graves' list is intended for informational purposes only and is not intended to replace expert medical care. Please consult your doctor before changing or trying new treatments. ---------------------------------------- DISCLAIMER Advertisments placed on this yahoo groups list do not have the endorsement of the listowner. I have no input as to what ads are attached to emails. --------------------------------------------------------------------------------\ ------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 22, 2002 Report Share Posted December 22, 2002 Where did you find this information? This is the most specific I have found so far. All I have read is that radiation therapy is only 30% effective. Re: PTU vs. RAI Hi, Steroids prevent GO from worsening or developing immediately after RAI, but there are no long-term studies showing if the people using steroids developed GO later. Hale, the president of the American Foundation of Thyroid Patients used steroids with RAI and still developed GO bad enough to eventually require surgery. Since antibodies can be increased for up to 10 years after RAI, the benefits of short-term steroids would be limited. The risk is small but it is significant. Take care, Elaine Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 22, 2002 Report Share Posted December 22, 2002 Where did you find this information? This is the most specific I have found so far. All I have read is that radiation therapy is only 30% effective. Re: PTU vs. RAI Hi, Steroids prevent GO from worsening or developing immediately after RAI, but there are no long-term studies showing if the people using steroids developed GO later. Hale, the president of the American Foundation of Thyroid Patients used steroids with RAI and still developed GO bad enough to eventually require surgery. Since antibodies can be increased for up to 10 years after RAI, the benefits of short-term steroids would be limited. The risk is small but it is significant. Take care, Elaine Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 22, 2002 Report Share Posted December 22, 2002 I read the same thing on my PTU(about harm to fetus) but was told that is only on higher doses. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 22, 2002 Report Share Posted December 22, 2002 Re: PTU vs. RAI I read the same thing on my PTU(about harm to fetus) but was told that is only on higher doses. ------------------------------------- The Graves' list is intended for informational purposes only and is not intended to replace expert medical care. Please consult your doctor before changing or trying new treatments. ---------------------------------------- DISCLAIMER Advertisments placed on this yahoo groups list do not have the endorsement of the listowner. I have no input as to what ads are attached to emails. --------------------------------------------------------------------------------\ ------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 22, 2002 Report Share Posted December 22, 2002 , So did you have a baby on PTU? If there is a risk to the baby, is it permanent? I read somewhere that if there is harm to the baby it is temporary and treatable. Margaret Re: PTU vs. RAI I read the same thing on my PTU(about harm to fetus) but was told that is only on higher doses. ------------------------------------- The Graves' list is intended for informational purposes only and is not intended to replace expert medical care. Please consult your doctor before changing or trying new treatments. ---------------------------------------- DISCLAIMER Advertisments placed on this yahoo groups list do not have the endorsement of the listowner. I have no input as to what ads are attached to emails. --------------------------------------------------------------------------------\ ------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 22, 2002 Report Share Posted December 22, 2002 , So did you have a baby on PTU? If there is a risk to the baby, is it permanent? I read somewhere that if there is harm to the baby it is temporary and treatable. Margaret Re: PTU vs. RAI I read the same thing on my PTU(about harm to fetus) but was told that is only on higher doses. ------------------------------------- The Graves' list is intended for informational purposes only and is not intended to replace expert medical care. Please consult your doctor before changing or trying new treatments. ---------------------------------------- DISCLAIMER Advertisments placed on this yahoo groups list do not have the endorsement of the listowner. I have no input as to what ads are attached to emails. --------------------------------------------------------------------------------\ ------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 22, 2002 Report Share Posted December 22, 2002 Margaret, I didn't have a baby on PTU,but a bunch of women in this group have. I was dx with hyperthyroidism while I was pregnant,was closely watched & my symptoms were mild so I never took drugs. My aunt had a baby while on PTU and she is fine,thought she was a few weeks premature. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 22, 2002 Report Share Posted December 22, 2002 > Why do you think steroids w/ RAI is irresponsible? From all the > studies I can tell this helps the eyes alot. A few points here: - Drs. will administer steroids in conjunction with RAI to minimize the risk of developing TED due to RAI. Whether or not this works, short or long term, is up for debate. -As has been explained, RAI can significantly (enough for me, at least) increase the risk of developing TED, and I think the odds are even greater for exacerbating TED that was manifest before RAI. -I will be charitable enough to give endos some points for using steroids with RAI but way beyond no points for even considering doing RAI if TED is already present. (Is that where I used the word irresponsible, if I did at all?) -The effect of steroids on the immune system should not be discounted. Steroids affect the body in many ways as Jody mentioned and I would study this much more than just the statistics; get in touch with people, not just numbers, who've been through this. There have not been anywhere near enough studies on many aspects of treatment for GD and I for one have benefited greatly from what some call anecdotal references but may best be termed empirical evidence. Here's a for instance: how weaning, that is getting back to some hormonal stasis, can help remission occur in GD that occurs post-partum. My GYN said this sounded quite logical; however, there were no studies I found. I spent years being pregnant and/or nursing and while there are many factors contributing to my going into remission I think weaning was a major one. So I would say the same may hold with TED - you must speak to people who've been through it before embarking on any treatment. G-d willing you should never get to that point. Take care, fay ________________________________________________________________ Sign Up for Juno Platinum Internet Access Today Only $9.95 per month! Visit www.juno.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 22, 2002 Report Share Posted December 22, 2002 > Why do you think steroids w/ RAI is irresponsible? From all the > studies I can tell this helps the eyes alot. A few points here: - Drs. will administer steroids in conjunction with RAI to minimize the risk of developing TED due to RAI. Whether or not this works, short or long term, is up for debate. -As has been explained, RAI can significantly (enough for me, at least) increase the risk of developing TED, and I think the odds are even greater for exacerbating TED that was manifest before RAI. -I will be charitable enough to give endos some points for using steroids with RAI but way beyond no points for even considering doing RAI if TED is already present. (Is that where I used the word irresponsible, if I did at all?) -The effect of steroids on the immune system should not be discounted. Steroids affect the body in many ways as Jody mentioned and I would study this much more than just the statistics; get in touch with people, not just numbers, who've been through this. There have not been anywhere near enough studies on many aspects of treatment for GD and I for one have benefited greatly from what some call anecdotal references but may best be termed empirical evidence. Here's a for instance: how weaning, that is getting back to some hormonal stasis, can help remission occur in GD that occurs post-partum. My GYN said this sounded quite logical; however, there were no studies I found. I spent years being pregnant and/or nursing and while there are many factors contributing to my going into remission I think weaning was a major one. So I would say the same may hold with TED - you must speak to people who've been through it before embarking on any treatment. G-d willing you should never get to that point. Take care, fay ________________________________________________________________ Sign Up for Juno Platinum Internet Access Today Only $9.95 per month! Visit www.juno.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 22, 2002 Report Share Posted December 22, 2002 > Why do you think steroids w/ RAI is irresponsible? From all the > studies I can tell this helps the eyes alot. A few points here: - Drs. will administer steroids in conjunction with RAI to minimize the risk of developing TED due to RAI. Whether or not this works, short or long term, is up for debate. -As has been explained, RAI can significantly (enough for me, at least) increase the risk of developing TED, and I think the odds are even greater for exacerbating TED that was manifest before RAI. -I will be charitable enough to give endos some points for using steroids with RAI but way beyond no points for even considering doing RAI if TED is already present. (Is that where I used the word irresponsible, if I did at all?) -The effect of steroids on the immune system should not be discounted. Steroids affect the body in many ways as Jody mentioned and I would study this much more than just the statistics; get in touch with people, not just numbers, who've been through this. There have not been anywhere near enough studies on many aspects of treatment for GD and I for one have benefited greatly from what some call anecdotal references but may best be termed empirical evidence. Here's a for instance: how weaning, that is getting back to some hormonal stasis, can help remission occur in GD that occurs post-partum. My GYN said this sounded quite logical; however, there were no studies I found. I spent years being pregnant and/or nursing and while there are many factors contributing to my going into remission I think weaning was a major one. So I would say the same may hold with TED - you must speak to people who've been through it before embarking on any treatment. G-d willing you should never get to that point. Take care, fay ________________________________________________________________ Sign Up for Juno Platinum Internet Access Today Only $9.95 per month! Visit www.juno.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 23, 2002 Report Share Posted December 23, 2002 Hello, You can read my story and see pictures of me before and after RAI at the URL below! God bless, http://hometown.aol.com/lisareynolds64/myhomepage/personal.htmlhttp://ho\ metown.aol.com/lisareynolds64/myhomepage/personal.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 23, 2002 Report Share Posted December 23, 2002 Hello, You can read my story and see pictures of me before and after RAI at the URL below! God bless, http://hometown.aol.com/lisareynolds64/myhomepage/personal.htmlhttp://ho\ metown.aol.com/lisareynolds64/myhomepage/personal.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 24, 2002 Report Share Posted December 24, 2002 ... I am so sorry this had to happen!! It just makes me sick. And to think, I was about to consent to RAI when you found me wandering the net and directed me here. Now here I am... 2 months later, on 150mg PTU with levels that are teetering on normal. Thank God. I belong to a group of discussion boards related to trying to conceive. One of them is focused on thyroid issues. I try to direct people here and warn them about RAI. It's funny the flack I sometimes get... The " My doctor recommended RAI and said it was perfectly safe and I'm fine... " responses. But if one person can be spared what you've gone through I think I've passed the karma along. I don't know much about this all as I am still learning. But I hope that there is something they can do to make this better for you. Clair Diagnosed with Graves @ 19 BRT Remission for 5 years Relapse diagnosed 10/02, likely from pregnancy 8th week on 50mg PTU 3x per day Levels close to normal More labs 12/30 > Hello, > > You can read my story and see pictures of me before and after RAI at the URL > below! > > God bless, > > http://hometown.aol.com/lisareynolds64/myhomepage/personal.htmlhttp://hometown.aol.com/lisareynolds64/myhomepage/personal.html > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 24, 2002 Report Share Posted December 24, 2002 ... I am so sorry this had to happen!! It just makes me sick. And to think, I was about to consent to RAI when you found me wandering the net and directed me here. Now here I am... 2 months later, on 150mg PTU with levels that are teetering on normal. Thank God. I belong to a group of discussion boards related to trying to conceive. One of them is focused on thyroid issues. I try to direct people here and warn them about RAI. It's funny the flack I sometimes get... The " My doctor recommended RAI and said it was perfectly safe and I'm fine... " responses. But if one person can be spared what you've gone through I think I've passed the karma along. I don't know much about this all as I am still learning. But I hope that there is something they can do to make this better for you. Clair Diagnosed with Graves @ 19 BRT Remission for 5 years Relapse diagnosed 10/02, likely from pregnancy 8th week on 50mg PTU 3x per day Levels close to normal More labs 12/30 > Hello, > > You can read my story and see pictures of me before and after RAI at the URL > below! > > God bless, > > http://hometown.aol.com/lisareynolds64/myhomepage/personal.htmlhttp://hometown.aol.com/lisareynolds64/myhomepage/personal.html > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 24, 2002 Report Share Posted December 24, 2002 Clair, Can you tell me the what the discussion board is for trying to conceive with thyroid problems? Margaret Re: PTU vs. RAI ... I am so sorry this had to happen!! It just makes me sick. And to think, I was about to consent to RAI when you found me wandering the net and directed me here. Now here I am... 2 months later, on 150mg PTU with levels that are teetering on normal. Thank God. I belong to a group of discussion boards related to trying to conceive. One of them is focused on thyroid issues. I try to direct people here and warn them about RAI. It's funny the flack I sometimes get... The " My doctor recommended RAI and said it was perfectly safe and I'm fine... " responses. But if one person can be spared what you've gone through I think I've passed the karma along. I don't know much about this all as I am still learning. But I hope that there is something they can do to make this better for you. Clair Diagnosed with Graves @ 19 BRT Remission for 5 years Relapse diagnosed 10/02, likely from pregnancy 8th week on 50mg PTU 3x per day Levels close to normal More labs 12/30 > Hello, > > You can read my story and see pictures of me before and after RAI at the URL > below! > > God bless, > > http://hometown.aol.com/lisareynolds64/myhomepage/personal.html " >http://hometown.aol.com/lisareynolds64/myhomepage/personal.html > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 24, 2002 Report Share Posted December 24, 2002 Clair, Can you tell me the what the discussion board is for trying to conceive with thyroid problems? Margaret Re: PTU vs. RAI ... I am so sorry this had to happen!! It just makes me sick. And to think, I was about to consent to RAI when you found me wandering the net and directed me here. Now here I am... 2 months later, on 150mg PTU with levels that are teetering on normal. Thank God. I belong to a group of discussion boards related to trying to conceive. One of them is focused on thyroid issues. I try to direct people here and warn them about RAI. It's funny the flack I sometimes get... The " My doctor recommended RAI and said it was perfectly safe and I'm fine... " responses. But if one person can be spared what you've gone through I think I've passed the karma along. I don't know much about this all as I am still learning. But I hope that there is something they can do to make this better for you. Clair Diagnosed with Graves @ 19 BRT Remission for 5 years Relapse diagnosed 10/02, likely from pregnancy 8th week on 50mg PTU 3x per day Levels close to normal More labs 12/30 > Hello, > > You can read my story and see pictures of me before and after RAI at the URL > below! > > God bless, > > http://hometown.aol.com/lisareynolds64/myhomepage/personal.html " >http://hometown.aol.com/lisareynolds64/myhomepage/personal.html > > > Quote Link to comment Share on other sites More sharing options...
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