Guest guest Posted April 28, 2009 Report Share Posted April 28, 2009 Sunny, I mostly lurk as a newbie but I'm so glad you went to the ER. I know what you are going through, I am an accountant so I can still work since I sit on my butt all day, but the firm is small and since I make about 41000 I'm way to " rich " to get any kind of help. We have a Health Saving Account type of insurance which means I pay a @2000 deductable each year before the insurance picks up a dime. Plus the $200 a month in premiums. Usually take me to Feb 15th to do this. Last friday my employer told us that since Humana doubled the premiums we would now have a $4000 deductable and since our service runs 5/1 to 4/30 come friday I have to come up another $2000. Since my husband died last year I've lived paycheck to paycheck as I lost 50% of 'our' income and like all good babyboomers our money is in our house which I can't sell for what we paid for it. Like you I'm tired of all the doctors, GP/Internist for the diabetes & gerd & Fibro, Oconolgist for the BC, Pulmo dudette for IPF, Neuroligist for the severe sleep apnea, Dematologist for the psoriasis and lipoermatasclerosis. I'm usually fairly upbeat (hell if we cry even with the hose in nose we can't breath lol) but this week is pushing it. I know this sounds weird but it actually helps to know that most everyone on this board has had problems like this. And got through them. That is the important part. I know the Lord won't give me more than I can handle, I just wish he didn't trust me so much! Thanks for letting me vent everyone, back to lurking..... Dyane Phoenix AZ Everything but the kitchen sink since 02 LOL IPF > > Sunny, a few tears of happiness wet my checks as I read your post.� Your positive attitude will sustain > you through many a battle.��Like all of the members of this board, I have been very concerned for you and > am relieved to hear your new attitude and determination. > �Jack > 79/IPF - UIP/dx06/05 Maine > > > > > ________________________________ > From: " rpickel1@... " rpickel1@... > To: Breathe-Support > Sent: Tuesday, April 28, 2009 2:03:30 AM > Subject: Re: Sher > > > > > > Mama Sher, > � > You probably won't get this until tomorrow but I am sorry I unloaded on you.� We just got back from the ER so I am a little bit " happy " right now.� No pain at all!� The did an NG tube in my nose down to my stomach and poured in 2 gallons of Ultra Go Lightly.� Thankfully they drugged me up really good first.� I am now all nice and cleaned out.� They were worried because my O2 was low, pulse was too high, potassium was too low, iron was too low; oh well you get the picture.� I was terribly dehydrated so I am sure that was most of the problem.� When I first got there I had an irregular heart beat but by the time I left everything was pretty settled down.� Of course I left with a handful of scripts but I was just thankful to leave because the doctor was insisting that he admit me but I told him that I honestly could not afford it and promised to follow his instructions to the letter and see my doctor tomorrow.� Actually won't see GI until Wed. > afternoon but close enough.� I have to go see my primary because my blood sugar was high.� That seems weird since I haven't been eating but I guess it's not unusual.� I did want to tell you that Lupus can cause your veins to be very leathery and hard to get a needle in.� Last surgery I had they poked me 12 times before finally going in my foot which they hate to do because of infection risk.� Luckily this time it was only 6 pokes before they got the IV in.� Now, my plan: 1st quit feeling sorry for myself, 2nd get references, recommendations ect... and find a new GP to oversee my total care, 3rd find a new pulmonologist, 4th start taking better care of my body and 5th start opening my mouth and letting doctors know exactly how I feel.� I tend to be overawed or scared when I am in their office and don't argue or ask questions.� That is going to change now!� Thanks to everyone who said ER.� It was exactly the right thing to do.� When I talked to > my GI he told me to go directly to the ER.� Sometimes I am very thick headed.� Joyce you are exactly right.� Rich makes too much money for us to get state help, I am waiting on SSDI and every place I have called for help says no because we have insurance.� If we didn't we could get all kinds of help.� Seems like they would want to help those that they only had to pay part of the cost.� If Rich quit working we could also get tons of help but that will never happen.� It seems a shame that in our country the folks who really try are the ones who get shafted.� I have a very hard time with the fact that I have to fight for my SSI.� I was widowed young with three small daughters but didn't go on welfare.� I worked and put myself through college and received a degree in Business Management.� I wanted to be able to make enough to give them everything.� I ended up as an underwriter for a very large insurer making major money so the loss of the > ability to work and bring home a paycheck has been pretty hard on me.� That SSDI money is mine. I paid it in for over 20 years and now have to fight to get it.� Very sad!�But I have realized that�I had way too much of my self esteem tied in to my job and paycheck.� I have to find the value in myself that has nothing to do with my education and job skills.� That is a major part of my depression, feeling worthless and useless but I AM NOT!� I am a Saint and Daughter of the King.� God loves me and knows exactly what's going on and will pull me through.� Goodness I am woozy and rambling so I will shut up for now and go to bed before I fall asleep at the keyboard.� Love all of you guys and appreciate your caring and don't mind a bit if I need my backside chewed out to set me straight. > � > Sunny > > > From: Sher Bauman > Sent: Monday, April 27, 2009 6:53 PM > To: Breathe-Support@ yahoogroups. com > Subject: Re: Sher > > Sunny...oh my goodness. I overstepped my bounds. I apologize to you. Perhaps it helps to 'unload' and it's ok. I understand because I live the same thing. Overwhelming medical bills and Rx that are so high I fell in the donut hole last year and then had to pay 100% for all RX. > I apologize for 'sounding strange' to you. I was feeling great concern for you and yes, trying my best to prompt you to go to the ER for medical attention. > Bruce and MB both said the same thing but perhaps in a more accepting way. I am known for being outspoken. We sometimes don't have time for chit-chat when there is an emergency and I think you do need immediate care. You are worth that. > �I do think you are overwhelmed as any of us would be in your same situation and you owe me nor anyone else an explanation of your personal life. > I want good care for you in this post as I did in my last post. > God Bless you. > > MamaSher; 70,� IPF 3-06, OR.�� > Nasturtiums > Don't fret about tomorrow, God is already there! > > Update after pulmo doc - hate to even call him a doctor > > Hi Everyone, > � > Just got home from pulmo dude.� Refused to let me do 24 hour oximeter! My O2 at night is dropping to 83% so will go on night oxygen.� So anyway I don't have IPF any more.�� Now it's just PF because they found out why my lungs are scarring so badly and why I can't breathe.� I have Chronic Aspiration Neuritis (spell incorrectly I am sure). I am aspirating so much stomach contents that it is and has been scarring my lungs badly that's why I am down to 40% capacity.� Pulmo doc says there are only two treatments: Raglan (which I am extremely allergic too) or surgery.� He has referred me to gastro guy for surgery which in his words " is very intense " .� Anyone ever had or know anyone who has had this type of surgery.� My gastro dude isn't back until Monday and I really want to know if they are going through my abdomen. or throat or where?� I am so upset.� How can there be only one drug to treat this?� There are a hundred to treat everything else.� > Normal stain of stomach oil in lungs is about 55.� Mine was 142.�Doc says without the surgery my lungs will continue to deteriorate and I will get worse and worse.� Said the pain in my chest is esophageal spasm and it hurts like a very bad word but there is nothing he can do about it.� That's gastro guy's department.� Believe it or not pulmo doc said " I just diagnose this I don't treat it. " � Go see gastro guy and come back to me in 2 months.� &*^&****&^^%^&**!!!!! And that's how I feel about all of it. > � > Sunny, PF '09 & whatever else could possibly be wrong with the human body, Idaho > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.