Guest guest Posted November 26, 2002 Report Share Posted November 26, 2002 Just whining becuase I still can't get a proper lot of PTU here in Canada. I am caught between the former mfg. Merck -Frosst and the current small company Paladin who now makes this " orphan drug. " I am becoming more hyper becuase of the lack of efficacy of this latest lot, this after I was euthyroid on the same dosage for almost a year. My TSH was even creeping back up to normal. I don't know whether to switch to tapazole which I didn't seem to tolerate well, add some bugleweed tea, start BRT and pray, or keep lighting a fire under both companies until I get satisfaction. I can tell within a half-hour of taking 50 mg. of PTU whether a batch is " good " . My eyes un-redden immediately and any vision weirdnesses clear right up. As well, I can swallow again! That is how close to the bone my dosage is, and how sensitive my body is to the right dosage. I am in Canada, so I am sure the USA batches are still fine. This is freaking me out, though, I thought I had a handle on all this stuff. Maribeth _________________________________________________________________ The new MSN 8: smart spam protection and 2 months FREE* http://join.msn.com/?page=features/junkmail Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 26, 2002 Report Share Posted November 26, 2002 Hi Maribeth, You sure have my sympathy. The final 6 months or so that I was on my PTU, it was very obvious how much of a difference that teeny tiny bit can make in the same time frame you describe. I do think we may have both developed the ability to be ...how did you say it ? " That is how close to the bone my dosage is, and how sensitive my body is to the right dosage " You might want to consider finding a good Naturopathic doctor and getting two tinctures. One of Bugleweed and one of Lemon Balm. I know others try the over the counter stuff, but I see no reason to take that kind of risk. This is your health and the rest of your life we are dealing with here. It is NOT a matter of cost. One appointment will be about $75 and the tinctures are $10 a piece. So under a hundred bucks, and you have supplies for 6 months to a year. ( for those of us on PTU, and very carefully working our way down. ) Think of the knowledge you will pick up in that appointment too. Now if cost is NOT a factor, then follow up appointments will be a good idea too. But no matter what, you MUST continue with regular labs every 4 weeks just as you have been doing. I did these with my regular endo. Till then, I believe it was you that said the tea was working well. Once you have the tincture though, you will be able to very carefully get the exact right amount of drops on the proper schedule, with the tea can not do. Too much variation. In my mind, I believe there was some last resistant antibody somewhere and my herbs finished it off. LOL We will never know for sure, given the lack of complete knowledge about thyroid disease, but given that YOU have become this in tune with your body over TIME, I really think this could be a viable option for YOU. -Pam L - 3 1/2 yr.Graves and TED, PTU, Remission due to education, SLOW reduction of PTU, improved lifestyle, excellent nutrition,herbs, and looking at the BIG picture ! Pills alone only fix symptoms. We must help our bodies to heal. Quote Link to comment Share on other sites More sharing options...
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