Guest guest Posted December 2, 2002 Report Share Posted December 2, 2002 Hello! A bit of history: I'm in NYC and scheduled for surgery on December 13. My gyn found a swelling of my left thyroid lobe in January 2002 and suggested that I check it out. I had no symptoms (and no insurance) but had a blood test that showed that I was hyperthyroid. (I was hypo for a bit in my twenties but felt fine since then and periodic tests came back within normal ranges.) I felt OK until it started to get warmer in May, then the symptoms started - especially the heat intolerance and rapid heart beat. I was not able to get insurance through work so finally bought my own HMO plan, which kicked in on Nov. 1. By that time, I was also anemic and my symptoms and emotional state were pretty severe although " on paper " my bloodwork was not that bad, only an elevated T3 and suppressed TSH. Because of my asthma, I was put on a calcium channel-blocker and Klonopin, an anti-anxiety med (and my new best friend). They helped a lot. Got the usual RAI push from endos #1 and #2, PCP, family (except for bro), boyfriend, you name it. Not easy disagreeing with them; there's no extra credit from the medical community for THAT, as we know. Did uptake scan, TSI test, sonogram, more bloodwork, and finally decided on surgery. I should say that I do not have Graves, but Plummer's Disease, also known as toxic nodular goiter, and I'm here seeking info and support about Planet Surgery. I've never been in the hospital proper, (only the ER), under anesthetic or the knife, and am plenty nervous. The stories I read though re; surgery are very positive, which is so reassuring. I have faith in my surgeon, he's one of the best in NYC. He put me on iodine drops and the endo today started me on Tapazole. I'm afraid of thyroid storm but they don't think that will happen as my levels are not that high. The worst symptom for me has been the higher heart rate, which has never gotten higher than 120 beats per minute (during a panic attack) but swoops from high 70s to 100 all day, even with the channel-blocker. A beta-blocker would work better, but with my asthma, it's contraindicated. The anxiety too was awful - never experienced that before. Sorry that this is so long. I have nine days to get through until The Day. Does anyone who's been through this think that I will need a nurse at home after? I live alone. I'm also afraid of the calcium drop, if it happens. My family have been great, can't complain, but I sure feel that I have been to a place that is its own special hell, looking to get out soon. The doctors hope that my right lobe will " wake up " as the nodule is doing all the work. I did not have FNA on the hot nodule that they assured me was not cancerous but chose the surgery to be absolutely sure. I wish excellent health for everyone here. If I am lucky enough to get back the old me, I'll never take good health for granted again! Jan Quote Link to comment Share on other sites More sharing options...
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