Guest guest Posted March 27, 2009 Report Share Posted March 27, 2009 What I've read most recently is that we should drink when we are thirsty. The exception to this is if we have any infection of some kind. In that case it's always a good idea to 'push fluids'. In general we can trust our bodies to tell us when we need to drink. I don't believe my stress incontinence is due to my fluid intake. I don't have to 'go' frequently, it's just that when I have that hard cough that we all know so well I 'leak'. According to the doctor it's caused by three factors, pregnancy and childbirth, being overweight and years of coughing. All those put too much stress on my pelvic floor muscles and they 'give' under the stress of coughing. The PT is supposed to 'retrain and strenthen' the muscles. Combine that with me gradually losing weight and hopefully the bulk of the problem goes away! Beth Moderator Fibrotic NSIP 06/06 Dermatomyositis 11/08 To: Breathe-Support Sent: Friday, March 27, 2009 9:39:57 PMSubject: Re: stress incontinence There are doctors saying forced water may not be appropriate. But theyaren't yet telling us how to know the right amount. Just to listen toour bodies. If you feel dehydrated, you need more. If not, you likelyare having enough.> >> > I don't think I'm the woman on this board who deals with thisproblem. It started for me prior to my diagnosis. Back then it was awfuland it was very difficult to keep myself dry. The pressure on my pelvicfloor muscles from coughing caused my bladder to leak and that's puttingit mildly. Since my diagnosis and getting on oxygen and minimizing thecough it's better but the stress incontinence is still very much with meand I hate it.> > I was talking to my gynecologist the other day and she suggestedthat she refer me for "pelvic floor physical therapy". She feelsstrongly that we can get rid of 75-90% of the stress incontinence. Wellthat was news to me but it got my attention. She also told me thatMedicare would definitely pay for it. So to make a long story short, inabout 3 weeks I have an appointment with a physical therapist to beginworking on this. I can only imagine what "pelvic floor physical therapy"will entail but if it will help I'm more than willing to put up with alittle indignity.> > I'm hopeful it will help and I'll keep you all posted but will spareyou the details. LOL I honestly thought the only solution was surgicaland I knew that wasn't an option. My gyn however was adamant about twothings "kegels by themselves don't work" and "pelvic floor pt does".I'll let you know!> >> > Beth> > Moderator> > Fibrotic NSIP 06/06 Dermatomyositis 11/08> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2009 Report Share Posted March 29, 2009 Beth thanks for stating the issue -- mine is also from coughing too hard -- the stress incontinence then becomes a symptom of how the IPF is progressing and whether or not the meds are helping with the sypmtoms -- especially the "hard caughing" now i wear a poise pad everyday just in case Pink Joyce IPF 3/06 Pennsylvania Donate Life Listed 1/09 www.transplantfund.org--- Subject: Water and hydrationTo: Breathe-Support Date: Friday, March 27, 2009, 9:53 PM What I've read most recently is that we should drink when we are thirsty. The exception to this is if we have any infection of some kind. In that case it's always a good idea to 'push fluids'. In general we can trust our bodies to tell us when we need to drink. I don't believe my stress incontinence is due to my fluid intake. I don't have to 'go' frequently, it's just that when I have that hard cough that we all know so well I 'leak'. According to the doctor it's caused by three factors, pregnancy and childbirth, being overweight and years of coughing. All those put too much stress on my pelvic floor muscles and they 'give' under the stress of coughing. The PT is supposed to 'retrain and strenthen' the muscles. Combine that with me gradually losing weight and hopefully the bulk of the problem goes away! Beth Moderator Fibrotic NSIP 06/06 Dermatomyositis 11/08 From: Bruce Moreland <brucemoreland@ gmail.com>To: Breathe-Support@ yahoogroups. comSent: Friday, March 27, 2009 9:39:57 PMSubject: Re: stress incontinence There are doctors saying forced water may not be appropriate. But theyaren't yet telling us how to know the right amount. Just to listen toour bodies. If you feel dehydrated, you need more. If not, you likelyare having enough.> >> > I don't think I'm the woman on this board who deals with thisproblem. It started for me prior to my diagnosis. Back then it was awfuland it was very difficult to keep myself dry. The pressure on my pelvicfloor muscles from coughing caused my bladder to leak and that's puttingit mildly. Since my diagnosis and getting on oxygen and minimizing thecough it's better but the stress incontinence is still very much with meand I hate it.> > I was talking to my gynecologist the other day and she suggestedthat she refer me for "pelvic floor physical therapy". She feelsstrongly that we can get rid of 75-90% of the stress incontinence. Wellthat was news to me but it got my attention. She also told me thatMedicare would definitely pay for it. So to make a long story short, inabout 3 weeks I have an appointment with a physical therapist to beginworking on this. I can only imagine what "pelvic floor physical therapy"will entail but if it will help I'm more than willing to put up with alittle indignity.> > I'm hopeful it will help and I'll keep you all posted but will spareyou the details. LOL I honestly thought the only solution was surgicaland I knew that wasn't an option. My gyn however was adamant about twothings "kegels by themselves don't work" and "pelvic floor pt does".I'll let you know!> >> > Beth> > Moderator> > Fibrotic NSIP 06/06 Dermatomyositis 11/08> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2009 Report Share Posted March 29, 2009 Beth thanks for stating the issue -- mine is also from coughing too hard -- the stress incontinence then becomes a symptom of how the IPF is progressing and whether or not the meds are helping with the sypmtoms -- especially the "hard caughing" now i wear a poise pad everyday just in case Pink Joyce IPF 3/06 Pennsylvania Donate Life Listed 1/09 www.transplantfund.org--- Subject: Water and hydrationTo: Breathe-Support Date: Friday, March 27, 2009, 9:53 PM What I've read most recently is that we should drink when we are thirsty. The exception to this is if we have any infection of some kind. In that case it's always a good idea to 'push fluids'. In general we can trust our bodies to tell us when we need to drink. I don't believe my stress incontinence is due to my fluid intake. I don't have to 'go' frequently, it's just that when I have that hard cough that we all know so well I 'leak'. According to the doctor it's caused by three factors, pregnancy and childbirth, being overweight and years of coughing. All those put too much stress on my pelvic floor muscles and they 'give' under the stress of coughing. The PT is supposed to 'retrain and strenthen' the muscles. Combine that with me gradually losing weight and hopefully the bulk of the problem goes away! Beth Moderator Fibrotic NSIP 06/06 Dermatomyositis 11/08 From: Bruce Moreland <brucemoreland@ gmail.com>To: Breathe-Support@ yahoogroups. comSent: Friday, March 27, 2009 9:39:57 PMSubject: Re: stress incontinence There are doctors saying forced water may not be appropriate. But theyaren't yet telling us how to know the right amount. Just to listen toour bodies. If you feel dehydrated, you need more. If not, you likelyare having enough.> >> > I don't think I'm the woman on this board who deals with thisproblem. It started for me prior to my diagnosis. Back then it was awfuland it was very difficult to keep myself dry. The pressure on my pelvicfloor muscles from coughing caused my bladder to leak and that's puttingit mildly. Since my diagnosis and getting on oxygen and minimizing thecough it's better but the stress incontinence is still very much with meand I hate it.> > I was talking to my gynecologist the other day and she suggestedthat she refer me for "pelvic floor physical therapy". She feelsstrongly that we can get rid of 75-90% of the stress incontinence. Wellthat was news to me but it got my attention. She also told me thatMedicare would definitely pay for it. So to make a long story short, inabout 3 weeks I have an appointment with a physical therapist to beginworking on this. I can only imagine what "pelvic floor physical therapy"will entail but if it will help I'm more than willing to put up with alittle indignity.> > I'm hopeful it will help and I'll keep you all posted but will spareyou the details. LOL I honestly thought the only solution was surgicaland I knew that wasn't an option. My gyn however was adamant about twothings "kegels by themselves don't work" and "pelvic floor pt does".I'll let you know!> >> > Beth> > Moderator> > Fibrotic NSIP 06/06 Dermatomyositis 11/08> >> Quote Link to comment Share on other sites More sharing options...
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