Re: Joes Oncologist appt!!

[Guest guest]

Congradulation. I also like the way you keep a summary under your name. It

would provide a lot of information if everyone would do the same.

[Guest guest]

>>>He is a tough guy with a soft interior >>>

Deb, congrats on the wonderfully encouraging news for Joe!!!

I'm so happy for you :)

nancy j

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[Guest guest]

I ditto what said.... Hugs to you all Jolene

wrote:

> >>>He is a tough guy with a soft interior >>>

>

> Deb, congrats on the wonderfully encouraging news for Joe!!!

> I'm so happy for you :)

>

> nancy j

> ----------

>

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>

>

>

[Guest guest]

Deb, I am so thrilled that Joe is doing well. I am concerned that the

Onc did say that the neuropathy is going to be around for the winter.

How awful!!! But you know that the Onc cannot predict that. Winter is

still a ways off. Could be that it may get better before that. I am

Praying for that to happen. And of cource am Praying that Joe stays

healthy, and for Dani especially who is way to young to be going

through all she has endured. Ingrid

> Went WONDERFULLY!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

> The doctor has him scheduled for Ct scans in Oct , after that he

has to see the surgeon for a checkup , and since he is seeing the

surgeon right after the scans , oncologist is not going to see him

for SIX MONTH!!!!!!!!!!!!! unless of course , bad things show up on

those scans BUT THEY ARENT GONNA ~!!!!

> He was interested in Joe's syrinx that they found , especially when

I asked him if chemo could cause the syrinx(fluid cyst like thing in

spinal canal ) , as Joe had no symptoms of this BEFORE chemo.

> He says he is going to look into it and see if it can cause it

> So anyhow Joe is doing GREAT , the doc said the neuropathy is most

likely going to be WORSE in the winter ( we live in Michigan

brrrrrrrrrrrrrrrrr) but should be all better by spring!! (joe didnt

care for that bit of news lol)

> And yes Joe does keep me on my toes!!!!!!!!!!!!!!!!!!

> He is a tough guy with a soft interior (((((shhh dont tell him I

told ya)

> The other night he sat down with my parents and told my mom if she

needed anything to let him know even if its just a cup of coffee (

she started chemo today )

> He is such a softy at heart

>

> Deb

>

>

> 33yrold husband Joe, was diagnosed with CC in Sept,

> resection on Sept 27th 2004

> found mets to the abdominal wall lining 3 lymph nodes involved

> open wound from infection until Jan 2005

> Ileostomy reversal Dec 7th 2004

> Chemo regiment begun Jan 2005

> 5fu/levorican/Oxaplatin/ Avastin added Feb 14 2005 (Happy

Valentines

> Calcium Magnesium added for the Tingles Feb 28 2005

> Ct Scan done March 23rd 2005 , 16 millimeter cyst like object on

liver found

> April 1 2005 PET scan done awaiting results

> April 11 PET SCAN SHOWS

NED!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

> May 9 Plateletts are low 75,000

>

>

>

>

> __________________________________________________

>

[Guest guest]

Thanks Ingrid , heck winter is coming earlier and earlier for us here in good

ole Michigan , we have seen snow as early as Halloween ,

I told Joe he is going to have to wear EXTRA layers this winter

Dani is doing ok , still suffering with the headaches, went back to school and

cant carry a backpack which peeves her off to no end, she doesnt want to be

" differrent "

The part of the hair where they shaved up top on her head is now at the spikey

stage , the rest of her hair is LONG so we have to try to hide the spikes UGH

poor kid

She goes in Sept 10 for MRI to try to see why she is having the headaches

Thanks for thinking of them both

Deb

Ingrid Lowe lowenco@...> wrote:

Deb, I am so thrilled that Joe is doing well. I am concerned that the

Onc did say that the neuropathy is going to be around for the winter.

How awful!!! But you know that the Onc cannot predict that. Winter is

still a ways off. Could be that it may get better before that. I am

Praying for that to happen. And of cource am Praying that Joe stays

healthy, and for Dani especially who is way to young to be going

through all she has endured. Ingrid

> Went WONDERFULLY!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

> The doctor has him scheduled for Ct scans in Oct , after that he

has to see the surgeon for a checkup , and since he is seeing the

surgeon right after the scans , oncologist is not going to see him

for SIX MONTH!!!!!!!!!!!!! unless of course , bad things show up on

those scans BUT THEY ARENT GONNA ~!!!!

> He was interested in Joe's syrinx that they found , especially when

I asked him if chemo could cause the syrinx(fluid cyst like thing in

spinal canal ) , as Joe had no symptoms of this BEFORE chemo.

> He says he is going to look into it and see if it can cause it

> So anyhow Joe is doing GREAT , the doc said the neuropathy is most

likely going to be WORSE in the winter ( we live in Michigan

brrrrrrrrrrrrrrrrr) but should be all better by spring!! (joe didnt

care for that bit of news lol)

> And yes Joe does keep me on my toes!!!!!!!!!!!!!!!!!!

> He is a tough guy with a soft interior (((((shhh dont tell him I

told ya)

> The other night he sat down with my parents and told my mom if she

needed anything to let him know even if its just a cup of coffee (

she started chemo today )

> He is such a softy at heart

>

> Deb

>

>

> 33yrold husband Joe, was diagnosed with CC in Sept,

> resection on Sept 27th 2004

> found mets to the abdominal wall lining 3 lymph nodes involved

> open wound from infection until Jan 2005

> Ileostomy reversal Dec 7th 2004

> Chemo regiment begun Jan 2005

> 5fu/levorican/Oxaplatin/ Avastin added Feb 14 2005 (Happy

Valentines

> Calcium Magnesium added for the Tingles Feb 28 2005

> Ct Scan done March 23rd 2005 , 16 millimeter cyst like object on

liver found

> April 1 2005 PET scan done awaiting results

> April 11 PET SCAN SHOWS

NED!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

> May 9 Plateletts are low 75,000

>

>

>

>

> __________________________________________________

>

[Guest guest]

>>> Friday

morning head for Waco and my son's and then around Noonish we fly out

to Dallas and then Kansas City. I am soo looking forward to this weekend...

Hope you are doing well, take care Jolene

>>>

Jolene, sounds like you are making great progress in regaining your strength!!

Keep it up!!

And I hope you have the MOST wonderful trip this weekend!! Be sure to come back

and tell us all about it, k?

nancy

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[Guest guest]

>>> Friday

morning head for Waco and my son's and then around Noonish we fly out

to Dallas and then Kansas City. I am soo looking forward to this weekend...

Hope you are doing well, take care Jolene

>>>

Jolene, sounds like you are making great progress in regaining your strength!!

Keep it up!!

And I hope you have the MOST wonderful trip this weekend!! Be sure to come back

and tell us all about it, k?

nancy

----------

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Checked by AVG Anti-Virus.

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[Guest guest]

>>> Friday

morning head for Waco and my son's and then around Noonish we fly out

to Dallas and then Kansas City. I am soo looking forward to this weekend...

Hope you are doing well, take care Jolene

>>>

Jolene, sounds like you are making great progress in regaining your strength!!

Keep it up!!

And I hope you have the MOST wonderful trip this weekend!! Be sure to come back

and tell us all about it, k?

nancy

----------

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Checked by AVG Anti-Virus.

Version: 7.0.344 / Virus Database: 267.10.17/85 - Release Date: 8/30/2005