Re: Re: Donna--Just Do It! --- Jackie &

[Guest guest]

In frequent-dose-chelation Donna wrote:

>>>>>Jackie wrote: And my oldest sister sounds alot like you. She has been

searching for answers for 30 years, trying expensive alternative doctors and

supplements, very strict diets, etc. She finally got her amalgams all removed, I

think about a year ago, but I still haven't been able to get her to try

chelation either.

Jackie, I did EDTA IVs years ago and they did a lot of damage. Hearing how

some people on here seem to digress does NOT make me feel confident. There's no

way to know if I'll be one of them. As I said: if I can get lower dose capsules,

I'll probably try it, regardless of how scared to death I am. And no, it's not

an excuse. Years ago, to save money, I purchased Nystatin powder and empty

capsules to make my own. It was a nightmare and a large portion of the powder

was wasted because it stuck to the outside of the capsules, my fingers,

everything. I don't want to deal with the nonsense, the waste and the time if

that's how it's going to be.

----------------------I have been feeling bad about using the word " excuse " in

my posts to you, sorry about that. I have no idea if Nystatin powder is more

sticky or harder to work with, so can't say if you'd have the same experience

with DMSA. And I can totally understand your concerns after having a bad

experience with EDTA. I was lucky enough to have found Andy's protocol right

away. And I had a really bad experience last fall with antibiotics, so I

understand the feeling of not wanting to go back there again. But if we can

help you in any way by answering specific questions, just ask, there are lots of

knowledgeable people here. Maybe pick whatever your most troubling

symptom/issue is, and see if we can help.------Jackie

>>>>>>>>Also, have you done a hair test? If not, I think they are very

worthwhile to do. You get alot of information for the money, I think. It can

help you determine if you might have adrenal and thyroid problems,

I considered doing it, but am not confident in what the results will show. I

already know I'm VERY mercury toxic from tests done back when my doc had me do

the EDTA IVs. I also do take Armour Thyroid already. I was given a great link

(from a fellow FDCer) to learn about adrenals, but as I said: it's too much and

I'm overwhelmed by all of it. I'm hoping I'll be able to do more reading soon.

>>>>>>>>>Not feeling any difference with any supplements might mean that you

are not absorbing your supplements, and might need to be taking Betaine HCl

(extra stomach acid) with your meals to absorb your nutrients better.

Actually, the only time I felt a difference taking supplements was when I

started taking Mannatech glyconutrients because they enabled my cells to start

communicating more efficiently, which in turn makes your body assimilate

nutrients better.

------------That's great you found something that helps.---------Jackie

>>>>>>>>>I think I feel the effects of supplements now, and I was finally able

to get my ferritin up by taking iron with Betaine HCl.

Hmmmm...is this a med or supplement?

----------Betaine HCl is stomach acid, and is a supplement, no prescription

needed. If you are low in it, then you don't digest your food and absorb your

supplements properly. Mostly low minerals on your hair test is a sign of

this.-------Jackie

There are so many different suggestions by different people as to what helps

with what issue, and unless you actually KNOW all your issues, you don't even

know what to focus on.

------------I agree this gets very confusing and overwhelming. I read about

adrenal stuff here for about a year, before I tried anything for them. Maybe

you should try to just pick one issue/symptom, and see if we can

help.----------Jackie

>>>>>>>But in your case, I think you're getting bogged down with all the other

possible issues, and this is distracting you from the main thing to focus on,

which is trying chelation.

But I've read posts on here (can't remember them! lol) that warn about the

dangers of not properly preparing your body or finding out certain things about

your body/health BEFORE chelation. It makes it confusing and more scary.

----------Yes, some highly recommend addressing alot of things before yous

start. IF you can do this, it will probably make chelation go much smoother, so

they are not wrong for suggesting this. But, I know I have read past posts from

Andy stating that too many people put off starting by trying to fix everything

first, so they never get started. You can work on fixing other things while you

are chelating, and my hope for you is that you would feel better on round so

that you would be able to focus enough to figure out some of this other stuff.

I was so pleasantly surprised at how I felt better on round and could function

better and felt more normal, that I guess I am just hoping this for you. But

you are right, I cannot promise this for you. We are all

different.--------Jackie

The technical aspect is over my head, and I don't understand most of the

acronyms thrown all over the place, and I am SO sick of this constant reading

and thinking about it for so many years.

>>>>>>>>>But you'll never know what chelation feels like if you never try it,

VERY true, and again---the low dose capsules are key.......

-----------Yes you're right. A big mistake people make is starting with a too

high of a dose. I think Nahla said her doctor makes low dose capsules, I don't

remember if she said he requires a prescription. Maybe she'll

respond.--------Jackie

>>>>>>>>Splitting capsules isn't that bad...........this may be another excuse

for yourself to not to try it.

Nah, not an excuse. I explained the reason somewhere WAAAAAAAAY up there! lol

-------------Once again, I apologize for using the word

" excuse " .---------Jackie

>>>>>>>>>>>>>>>The protocol here is simple. Start with 12.5mg of DMSA and take

it every 4 hours, around the clock, including at night, for a minimum of 3 days.

If this goes well.......................................I think Klipfel is

the one who comes on here occassionally and reminds us not to lose focus on

chelation, because that is what is going to eventually get us well, and then

hopefully we won't need all those other interventions. That

Jackie, between you and the simplified/condensed version posted by

(thank you SO much, ), this helps tremendously. " Simplified " is GOOD!

It's the only way I can do things at this point.

---------------Glad it helped. If there is anything else that we can try to

explain in a clearer manner, just ask, maybe we can help.----------Jackie

>>>>>> wrote: If you can't afford to go backwards, I strongly

encourage you to

focus on the most basic principles of the protocol. People do many

things differently, but These Principles Are The Same For Everyone:

****I removed the list of 's WONderful instructions to shorten the

post********

>>>>>>>>I know how overwhelming things are sometimes. I felt like that

for so many years. For many people, adrenal support helps a lot

and makes everything so much easier.

, I still haven't read the info on the sites to learn about adrenals.

I know I saved info on this that was posted here, but I don't know which things

suggested are supplements and which are meds, so I really don't know where to

start (if I need a doctor, if I can just purchase stuff OTC).

Anyway, thanks SO much to both you and Jackie for these extremely helpful

posts!!!!!!

: Donna

-----------I do mean to be helpful, and I'm sorry if I have come across as

pushy and not too nice on some of this. It took me a long time to absorb some

of this, and I certainly still don't get it all when it comes to all these other

issues, so I know it can be very confusing and overwhelming. But I think if you

continue reading here and ask questions, then hopefully things will start to

make sense and sink in. I do really hope the best for you, Donna.

-------------Jackie

[Guest guest]

In frequent-dose-chelation Donna wrote:

--------- -I have been feeling bad about using the word " excuse " in my posts

to you, sorry about that. Jackie

Jackie,no need to apologize. You're commenting by what you're assuming or

perhaps how I'm coming across. It was a very long time ago that I even posted

anything about my history, and going into it now is just not something I feel

like doing lol I think everyone can understand how old that gets, and it's so

time-consuming. ....Donna

=======Yes, I didn't remember you had a bad experience with EDTA-IV's. That

most certainly justifies you being very leary to try anything else. If you do

try it at some point, maybe starting lower than 12.5 mg would be a good idea,

just to help ease some fears. And remember, a small dose is out of your system

in a few hours, and if you don't like how you feel, you can stop. Not like the

massive dose you got in your IV's.---------Jackie

----------You can work on fixing other things while you are chelating, and my

hope for you is that you would feel better on round so that you would be able to

focus enough to figure out some of this other stuff. I was so pleasantly

surprised at how I felt better on round and could function better and felt more

normal, that I guess I am just hoping this for you. But you are right, I cannot

promise this for you. We are all different.-- ------Jackie

Yep, that's always the problem: we're all different. There's no sure results

to expect and knowing I could get worse, well....

=========And a very legitimate fear, with what you have already been through.

So if you do try it, start with a really low dose.-------Jackie

-----------Yes you're right. A big mistake people make is starting with a too

high of a dose. I think Nahla said her doctor makes low dose capsules, I don't

remember if she said he requires a prescription. Maybe she'll respond.----

----Jackie

I saved the link she put up and wrote down the doctor's number. I'm hoping

within a week or two I'll be making phone calls, getting some answers and acting

on things, getting the ball rolling....Donna

========Good. If this works out, that may solve your problem of having to

split capsules. It seems she mentioned real low doses like 4 and 8 mg, if I

remember correctly, so that would probably be good for you. Not sure about the

cost. Just to give you something to compare to, 25mg DMSA capsules from VRP

costs $28.95 for 120 capsules. (www.vrp.com) But the convenience might be

worth alot.----Jackie

Anyway, thanks SO much to both you and Jackie for these extremely helpful

posts!!!!!!

: Donna

-----------I do mean to be helpful, and I'm sorry if I have come across as

pushy and not too nice on some of this. It took me a long time to absorb some of

this, and I certainly still don't get it all when it comes to all these other

issues, so I know it can be very confusing and overwhelming. But I think if you

continue reading here and ask questions, then hopefully things will start to

make sense and sink in. I do really hope the best for you, Donna. ------------

-Jackie

No, you're not pushy at all. You're taking out precious time to encourage me

and try to help. There's nothing I appreciate more and I hope that soon I'll be

putting to use so much of the info I've gathered from these lists. THANKS,

Jackie and everyone else who posts here.

: Donna

========You're welcome Donna, but the other poster made some good points about

not rushing into things. I think said she read about Cutler's protocol

for a year before starting also, so only you can decide when you're ready to

give it a go. And it is soooooo wonderful to have these lists so we can support

each other and help each other and have a place to come, where people

understand.-----Jackie