Guest guest Posted March 4, 2009 Report Share Posted March 4, 2009 Beverly talk to your oxygen supplier Pink Joyce IPF 3/06 Pennsylvania Donate Life Listed 1/09 www.transplantfund.org--- Subject: Re: A HomeTo: Breathe-Support Date: Tuesday, March 3, 2009, 5:05 PM  Hello Walt, I have tried to ask you a question several times. I have problems posting so I hope that that is why you haven't answered my posts. If you don't answer this time I will stop asking. I spend a lot of time on a boat that is moored at the Oak Harbor Marina. I haven't been there since I have been diagnosed and am on oxygen 24/7. Do you know a way that I can go out on the boat for several days and still have oxygen. I really don't want to have to give up boating. Thank you. Beverley Joy, 70 IPF, Jan 09, Idaho A Home It’s sad that there are So many new people here and a blessing we have some place to go and so many that don’t even know were here. For me this (home) board is the only place where I can go that people “get it†understand. Most of us don’t look sick. And that’s hard for people and family to understand I am still working full time and am one of the odd ones that doesn’t need O2 I have lost almost 70% of lung capacity but sats stay up I just run out of air. I hope to make it to one of gatherings some time. Soon I want to try and make a trip down to Oregon to take Mama Sher and her Hubby out to lunch. Take care all and for the newbie’s Welcome, all I can add is ask ask ask this is a safe place no judgment. Walt on Whidbey Nsip.Uip.IPF 06 Courage doesn't always roar. Sometimes courage is the quiet voice at the end of the day saying, "I will try again tomorrow.†Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2009 Report Share Posted March 4, 2009 Beverly talk to your oxygen supplier Pink Joyce IPF 3/06 Pennsylvania Donate Life Listed 1/09 www.transplantfund.org--- Subject: Re: A HomeTo: Breathe-Support Date: Tuesday, March 3, 2009, 5:05 PM  Hello Walt, I have tried to ask you a question several times. I have problems posting so I hope that that is why you haven't answered my posts. If you don't answer this time I will stop asking. I spend a lot of time on a boat that is moored at the Oak Harbor Marina. I haven't been there since I have been diagnosed and am on oxygen 24/7. Do you know a way that I can go out on the boat for several days and still have oxygen. I really don't want to have to give up boating. Thank you. Beverley Joy, 70 IPF, Jan 09, Idaho A Home It’s sad that there are So many new people here and a blessing we have some place to go and so many that don’t even know were here. For me this (home) board is the only place where I can go that people “get it†understand. Most of us don’t look sick. And that’s hard for people and family to understand I am still working full time and am one of the odd ones that doesn’t need O2 I have lost almost 70% of lung capacity but sats stay up I just run out of air. I hope to make it to one of gatherings some time. Soon I want to try and make a trip down to Oregon to take Mama Sher and her Hubby out to lunch. Take care all and for the newbie’s Welcome, all I can add is ask ask ask this is a safe place no judgment. Walt on Whidbey Nsip.Uip.IPF 06 Courage doesn't always roar. Sometimes courage is the quiet voice at the end of the day saying, "I will try again tomorrow.†Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2009 Report Share Posted March 4, 2009 Walt i was feeling similar to you upset that there are so many new people being diagnosed with this "rare" disease it seems like our numbers are growing -- very unfortunately for our children's sake i hope they find cures to stop it and causes so it can be prevented btw--did anyone else see that Robin canceled his tour due to Shortness of Breath? scary, isn't it? Pink Joyce IPF 3/06 Pennsylvania Donate Life Listed 1/09 www.transplantfund.org--- Subject: A HomeTo: "Lung" <Breathe-Support >Date: Tuesday, March 3, 2009, 11:38 AM It’s sad that there are So many new people here and a blessing we have some place to go and so many that don’t even know were here. For me this (home) board is the only place where I can go that people “get it†understand. Most of us don’t look sick. And that’s hard for people and family to understand I am still working full time and am one of the odd ones that doesn’t need O2 I have lost almost 70% of lung capacity but sats stay up I just run out of air. I hope to make it to one of gatherings some time. Soon I want to try and make a trip down to Oregon to take Mama Sher and her Hubby out to lunch. Take care all and for the newbie’s Welcome, all I can add is ask ask ask this is a safe place no judgment. Walt on Whidbey Nsip.Uip.IPF 06 Courage doesn't always roar. Sometimes courage is the quiet voice at the end of the day saying, "I will try again tomorrow.†Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2009 Report Share Posted March 4, 2009 Walt i was feeling similar to you upset that there are so many new people being diagnosed with this "rare" disease it seems like our numbers are growing -- very unfortunately for our children's sake i hope they find cures to stop it and causes so it can be prevented btw--did anyone else see that Robin canceled his tour due to Shortness of Breath? scary, isn't it? Pink Joyce IPF 3/06 Pennsylvania Donate Life Listed 1/09 www.transplantfund.org--- Subject: A HomeTo: "Lung" <Breathe-Support >Date: Tuesday, March 3, 2009, 11:38 AM It’s sad that there are So many new people here and a blessing we have some place to go and so many that don’t even know were here. For me this (home) board is the only place where I can go that people “get it†understand. Most of us don’t look sick. And that’s hard for people and family to understand I am still working full time and am one of the odd ones that doesn’t need O2 I have lost almost 70% of lung capacity but sats stay up I just run out of air. I hope to make it to one of gatherings some time. Soon I want to try and make a trip down to Oregon to take Mama Sher and her Hubby out to lunch. Take care all and for the newbie’s Welcome, all I can add is ask ask ask this is a safe place no judgment. Walt on Whidbey Nsip.Uip.IPF 06 Courage doesn't always roar. Sometimes courage is the quiet voice at the end of the day saying, "I will try again tomorrow.†Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2009 Report Share Posted March 4, 2009 Walt i was feeling similar to you upset that there are so many new people being diagnosed with this "rare" disease it seems like our numbers are growing -- very unfortunately for our children's sake i hope they find cures to stop it and causes so it can be prevented btw--did anyone else see that Robin canceled his tour due to Shortness of Breath? scary, isn't it? Pink Joyce IPF 3/06 Pennsylvania Donate Life Listed 1/09 www.transplantfund.org--- Subject: A HomeTo: "Lung" <Breathe-Support >Date: Tuesday, March 3, 2009, 11:38 AM It’s sad that there are So many new people here and a blessing we have some place to go and so many that don’t even know were here. For me this (home) board is the only place where I can go that people “get it†understand. Most of us don’t look sick. And that’s hard for people and family to understand I am still working full time and am one of the odd ones that doesn’t need O2 I have lost almost 70% of lung capacity but sats stay up I just run out of air. I hope to make it to one of gatherings some time. Soon I want to try and make a trip down to Oregon to take Mama Sher and her Hubby out to lunch. Take care all and for the newbie’s Welcome, all I can add is ask ask ask this is a safe place no judgment. Walt on Whidbey Nsip.Uip.IPF 06 Courage doesn't always roar. Sometimes courage is the quiet voice at the end of the day saying, "I will try again tomorrow.†Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2009 Report Share Posted March 4, 2009  I did. She just thought that my conserver and the E tanks would work. I'll have to ask again about nightime oxygen. Beverley A Home It’s sad that there are So many new people here and a blessing we have some place to go and so many that don’t even know were here. For me this (home) board is the only place where I can go that people “get it†understand. Most of us don’t look sick. And that’s hard for people and family to understand I am still working full time and am one of the odd ones that doesn’t need O2 I have lost almost 70% of lung capacity but sats stay up I just run out of air. I hope to make it to one of gatherings some time. Soon I want to try and make a trip down to Oregon to take Mama Sher and her Hubby out to lunch. Take care all and for the newbie’s Welcome, all I can add is ask ask ask this is a safe place no judgment. Walt on Whidbey Nsip.Uip.IPF 06 Courage doesn't always roar. Sometimes courage is the quiet voice at the end of the day saying, "I will try again tomorrow.†Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2009 Report Share Posted March 6, 2009 Thanks! I'm glad I found the board. I am still learning by reading, so I don't write yet, but in the future I'm sure you'll all tire of my questions. I tried to send a Thank You Note the night I was accepted into the site, but it just kept coming back to me. I think I understand now that I have to send mail to Breathe Support, and put the persons name or subject I'm commenting on in the Subject space. I had never used Yahoo in the past, so this is all new to me. Thanks for all of the SUPPORT! Sally Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2009 Report Share Posted March 6, 2009 Thanks! I'm glad I found the board. I am still learning by reading, so I don't write yet, but in the future I'm sure you'll all tire of my questions. I tried to send a Thank You Note the night I was accepted into the site, but it just kept coming back to me. I think I understand now that I have to send mail to Breathe Support, and put the persons name or subject I'm commenting on in the Subject space. I had never used Yahoo in the past, so this is all new to me. Thanks for all of the SUPPORT! Sally Quote Link to comment Share on other sites More sharing options...
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