Guest guest Posted August 10, 2004 Report Share Posted August 10, 2004 Hi, THE ONE. I am hoping by now you will find that eveyone here will take whatever time you need to talk. Ask questions, whine, cry, rejoice in the good times (and we all need to find something to rejoice in), share our joys, disappointments and frustrations. Just jump right in and let us know what's happening! " Puppy " B. > Hi > > this is my first lupus site so to speak that i'm leaving a messege > at. Not sure what the correct protocal is. i am interested in > talking to someone, anyone who has some time. > > i have lupus > > THE ONE Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 10, 2004 Report Share Posted August 10, 2004 Hi, THE ONE. I am hoping by now you will find that eveyone here will take whatever time you need to talk. Ask questions, whine, cry, rejoice in the good times (and we all need to find something to rejoice in), share our joys, disappointments and frustrations. Just jump right in and let us know what's happening! " Puppy " B. > Hi > > this is my first lupus site so to speak that i'm leaving a messege > at. Not sure what the correct protocal is. i am interested in > talking to someone, anyone who has some time. > > i have lupus > > THE ONE Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 10, 2004 Report Share Posted August 10, 2004 this is my first lupus site so to speak that i'm leaving a messege > at. Not sure what the correct protocal is. i am interested in > talking to someone, anyone who has some time.> Wow! I'm in the same boat. This is also my first lupus site and I'm a little overwhelmed with how many members there are. I belong to only one other group (not a lupus group) and it only has 17 members. So I'm hoping to be able to just jump right in! Sonnia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 3, 2007 Report Share Posted December 3, 2007 Hi , Thanks for the advice. I became an expert on SAD when I thought I had it. For a year and a half I did light therapy -- I owned two visors and a light box. I took walks with my baby in the pram almost every day. I went to the gym, kept up with exercise, no matter how awful I felt. When the sun was out I was there, sitting in it for hours on end. Bright light helps me some, but not a lot -- it never lifted the symptoms to a very significant degree. But there's definitely been a difference between my functioning in the summer and the winter. If there are some problems with my thyroid, I hope they will right themselves with chelation. What's weird is how the depression hit me from out of the blue. I was a stay-at-home mum and I was pretty happy with that; I had a good workout at the gym 3x a week and had never been fitter in my life. To my knowledge I had no medical problems. In a way this was what led me to mercury as a possibility eventually -- I was " struck " only 2 months after those amalgams were put in. I've been on the Paleolithic Diet for a year and a half as well. I do not eat grains, and limited dairy -- usually some raw milk cheese and occasionally some yogurt. My body loves this way of eating but I've never noticed any major changes from it, apart from just feeling better. I used to have IBS and that has never been a problem since I changed my diet. I can't see any indications that I have any allergies or autoimmune problems. I am a member of a SAD forum and I look at all these people who, like me, do what they can to treat their symptoms but suffer every winter. I wonder how much a part mercury really plays in SAD. I suspect maybe it can be a big contributor in some cases. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 3, 2007 Report Share Posted December 3, 2007 > If there are some problems with my thyroid, I hope they will right > themselves with chelation. I wouldn't wait if I were you. Andy says again and again in Amalgam Illness that you will feel MUCH MUCH better if you take xyz or treat xyz. Maybe some baseline testing would be in order for you LL. Thyroid, adrenals and female sex hormones. And, I'd do saliva. HTH, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 3, 2007 Report Share Posted December 3, 2007 > Maybe some baseline testing would be in order for you LL. Thyroid, adrenals and female sex > hormones. And, I'd do saliva. I think these are all good ideas. I do have cortisol dysfunction but that came from the antidepressant withdrawal, and they helped me get that in hand on the psych med list. I've been to my GP several times for tests. They're pretty useless. The only thyroid they would test is TSH, and they say they don't test things like estrogen at all unless they suspect cancer. I tried this route (NHS in the UK) because otherwise I'd have to have the tests done privately. I looked into getting the sex hormones tested and that on its own costs a lot. I don't want to sound like I'm making money a barrier to everything, but it is a problem at the moment, and we've been very stretched as it is since I started supplements, and then things like DMSA; we've drained our savings by paying for things like all the light therapy kit, and amalgam removal. It's hard to know what to do. Mainstream doctors should be in the business of healing people but I suppose most people on this list have also discovered that they do not have a clue. I forgot to mention that I developed a problem with having very heavy periods, during the time the amalgams were in. I learned to control it by juicing about 6 carrots a day. When the amalgams came out, the problem went away. Another important indicator I think. And one that would lead me to believe that if I did have tests done, sex hormones would be what I'd look at. I just wish someone could tell me that if I did something like take progesterone, the sleep/SAD problems would go away. Not as simple as that Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2007 Report Share Posted December 4, 2007 > > > If there are some problems with my thyroid, I hope they will right > > themselves with chelation. > > > I wouldn't wait if I were you. Andy says again and again in Amalgam Illness that you will feel > MUCH MUCH better if you take xyz or treat xyz. > > Maybe some baseline testing would be in order for you LL. Thyroid, adrenals and female sex > hormones. And, I'd do saliva. > Hi Lou;-) I agree, you should investigate yr thyroids and adrenals. Waiting for them to right themselves is wishful thinking and you can speed the process up by taking action. I have been investigating these for the last few months, and I must admit it is difficult to grasp, but now after reading, I understand enough to know where and what to start trying. I have started a few simple support herbs and already my temperature has stabilised and is slowly rising. Simply increasing my salt intake, liquorice tea and supplementing kelp did this. This is a great place to start investigations: " Adrenal Fatigue : the 21st century stress syndrome " by L I will post a picture of my temp graph on Herb allure forum for you. Sunshine Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2007 Report Share Posted December 4, 2007 Welcome Lou, I can't back it up with anything but I do believe that SAD is part of the toxic picture. My niece suffers from it every year. She's always been amalgam-free but the SAD started after braces. A few years ago I talked her into trying melatonin at night, which helps with her sleeping. Recently I had her add GABA and it seems to be making a positive difference. I have been taking GABA at night since June and I find that it makes a big difference in keeping me non-depressive. I've suffered with depression for years and have tried something like 18 different anti-depressants, but I find that the GABA is more effective than any of them. Andy does say something about this in AI. I can't remember all of it, but I remember he said that if you respond to SSRIs then you may respond positively to GABA. It's quite nice to get all the benefits of an anti-depressant without the side effects! You didn't mention what supplements you are on. Do they include GABA? And melatonin? Also, it seems to me that your chelator dosing may be somewhat high. It has been said many times that higher isn't better. Or faster. You also mention Algin - what is that? My own health got disastrously worse 2 years ago after a chlorella/cilantro detox attempt (before I'd heard about Andy and learned that they are not recommended). And I have to agree with others about investigating adrenal/thyroid issues sooner rather than later, especially since an imbalance of either can cause depression, as well as interfere with sleep. Another thing that's been stressed around here is that it's important to treat adrenals before thyroid, unless the adrenals have been tested and are fine (rarely the case). There are some self-tests that can be done to give yourself some idea about adrenal/thyroid status. IMHO a good place to start is Dean's site: http://www.livingnetwork.co.za/healingnetwork/adrenals_thyroid.html Remember, in addition to whatever is at the root of your health problems, the health problems themselves cause a lot of stress. And stress wears on the adrenals. So even if the mercury isn't causing an adrenal problem, the stress can, and your adrenals won't right themselves while you remain stressed. I'm speaking from personal experience on this one. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2007 Report Share Posted December 4, 2007 > I just wish someone could tell me that if > I did something like take progesterone, the sleep/SAD problems would > go away. Not as simple as that > No, it's usually not simple, unfortunately. And with hormones, they are linked to one another like interlocking arms and if one system is out of balance, it tugs and strains the others. I don't see how one can look at one system, say thyroid, without thinking of the others, say adrenals and sex hormones. Also, IME, I had hidden food intolerances and gut infections that were messing with my hormones as well. Straining my adrenals, and low thyroid symptoms. Who knew? Well, not me until I was tested. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2007 Report Share Posted December 4, 2007 Hi , Wow there are so many things to consider. Everything in the body is linked in a way and the best holistic treatments take this into consideration, I agree. I've had quite a lot of time to think about all my symptoms. The depression started just two months after the amalgams were put in and it hasn't really changed its character all that time. I felt perfectly healthy before then. My hunch is that my symptoms are being caused by mercury putting things out of whack so to speak. I don't think I have candida overgrowth, parasites, or anything else like that which takes time to develop, though obviously I can't be 100% certain. I've had a look at a link posted to me by Sunshine which has some general tests for estrogen dominance, thyroid and adrenal problems. My symptoms match the adrenal exhaustion profile remarkably well. Sometimes my cortisol gets high and I take herbs for that, but I think sometimes it is low as well. It's dysfunctional because of what the antidepressant did to me. But it's possible that I still need some adrenal support and I am looking into finding a glandular supplement. If that doesn't work I'll look into something else. Maybe by then I will have the means to get a test done. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2007 Report Share Posted December 4, 2007 Hi , Wow there are so many things to consider. Everything in the body is linked in a way and the best holistic treatments take this into consideration, I agree. I've had quite a lot of time to think about all my symptoms. The depression started just two months after the amalgams were put in and it hasn't really changed its character all that time. I felt perfectly healthy before then. My hunch is that my symptoms are being caused by mercury putting things out of whack so to speak. I don't think I have candida overgrowth, parasites, or anything else like that which takes time to develop, though obviously I can't be 100% certain. I've had a look at a link posted to me by Sunshine which has some general tests for estrogen dominance, thyroid and adrenal problems. My symptoms match the adrenal exhaustion profile remarkably well. Sometimes my cortisol gets high and I take herbs for that, but I think sometimes it is low as well. It's dysfunctional because of what the antidepressant did to me. But it's possible that I still need some adrenal support and I am looking into finding a glandular supplement. If that doesn't work I'll look into something else. Maybe by then I will have the means to get a test done. Quote Link to comment Share on other sites More sharing options...
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