Re: I have questions - BRUCE

[Guest guest]

Thank you Bruce - I was hoping you would respond. I did have pulmo tests and was below the scale. Yes, I am super excited to have more evidence of my diagnosis. The CAT Scan scheduled for the 28th should tell me more. I understand it is going to be a high resolution scan - Hope so anyway! Thanks, Ken

Subject: Re: I have questionsTo: Breathe-Support Date: Friday, April 24, 2009, 8:53 PM

KenI read your statement of your ILD diagnosed a year ago from a chestxray. I cannot imagine any pulmonologist stopping at that point andmaking a firm diagnosis without immediately proceeding with a highresolution CT. Please please please get to a medical center with ILDexpertise and get a full complete diagnosis of all your conditions.>> Good morning!>> I have several questions maybe someone could give some insight on.>> I had a treadmill stress test yesterday and during the exam I was toldI have Atrial Fibrillation and was lacking oxygen to a muscle in myheart. After the test I was drawn a picture showing what was

going on. The cardiologist wonders if I have a partially closed artery but doubtedit because my cholesterol is extremely low. They are sending me for anuclear scan of the heart. I said I wondered if the lack of oxygen isdue to my ILD but he didn't say much. I am scheduled for a CAT Scan ofthe lungs on the 28th. I am very excited about that since my ILD wasdiagnosed about a year ago from a chest x-ray. I am having some chestand back discomfort. My questions I guess are more that I would likeyour thinking on this. I would be humbly grateful for your comments!!! Thanks, Ken R..> PS Someday I'll know enough to return the favor>

[Guest guest]

Ken

There is no nice way of saying this though. You don't continue with a

pulmonologist who would wait a year for a CT Scan. Find good medical

treatment. With your current pulmonologist, you'll never get all the

answers you need if his history is any indication.

> >

> > Good morning!

> >

> > I have several questions maybe someone could give some insight on.

> >

> > I had a treadmill stress test yesterday and during the exam I was

told

> I have Atrial Fibrillation and was lacking oxygen to a muscle in my

> heart. After the test I was drawn a picture showing what was going on.

> The cardiologist wonders if I have a partially closed artery but

doubted

> it because my cholesterol is extremely low. They are sending me for a

> nuclear scan of the heart. I said I wondered if the lack of oxygen is

> due to my ILD but he didn't say much. I am scheduled for a CAT Scan of

> the lungs on the 28th. I am very excited about that since my ILD was

> diagnosed about a year ago from a chest x-ray. I am having some chest

> and back discomfort. My questions I guess are more that I would like

> your thinking on this. I would be humbly grateful for your comments!!!

> Thanks, Ken R..

> > PS Someday I'll know enough to return the favor

> >

>

[Guest guest]

Ken

I've been on oxygen since the day I was diagnosed. I have UIP and I'm on

anywhere from 2 lpm to 5 lpm depending on what I'm doing. I'm actually

doing quite well considering. I traveled more last year for pleasure

than anytime of my life. My slogan is " have oxygen will travel. " I just

moved so been busy the last month but anticipate doing a lot of things,

especially in June. I'm living life as full as possible and treating

each year like it's my last, because it may be. However, I wish I'd

always lived my life like that. For my condition or many conditions, my

life is pretty great.

> > >

> > > Good morning!

> > >

> > > I have several questions maybe someone could give some insight on.

> > >

> > > I had a treadmill stress test yesterday and during the exam I was

> told

> > I have Atrial Fibrillation and was lacking oxygen to a muscle in my

> > heart. After the test I was drawn a picture showing what was going

on.

> > The cardiologist wonders if I have a partially closed artery but

> doubted

> > it because my cholesterol is extremely low. They are sending me for

a

> > nuclear scan of the heart. I said I wondered if the lack of oxygen

is

> > due to my ILD but he didn't say much. I am scheduled for a CAT Scan

of

> > the lungs on the 28th. I am very excited about that since my ILD was

> > diagnosed about a year ago from a chest x-ray. I am having some

chest

> > and back discomfort. My questions I guess are more that I would like

> > your thinking on this. I would be humbly grateful for your

comments!!!

> > Thanks, Ken R..

> > > PS Someday I'll know enough to return the favor

> > >

> >

>

[Guest guest]

Bruce, You are right - We need to live each day like it is our last. Now and then I tell my wife that when one of us is gone we would give anything for one more day - Let's make this that day! Ken R.

Subject: Re: I have questions - BRUCETo: Breathe-Support Date: Saturday, April 25, 2009, 9:17 PM

KenI've been on oxygen since the day I was diagnosed. I have UIP and I'm onanywhere from 2 lpm to 5 lpm depending on what I'm doing. I'm actuallydoing quite well considering. I traveled more last year for pleasurethan anytime of my life. My slogan is "have oxygen will travel.." I justmoved so been busy the last month but anticipate doing a lot of things,especially in June. I'm living life as full as possible and treatingeach year like it's my last, because it may be. However, I wish I'dalways lived my life like that. For my condition or many conditions, mylife is pretty great.> > >> > > Good morning!> > >> > > I have several questions maybe someone could give some insight on.> > >> > > I had a treadmill stress test yesterday and during the exam I was> told> > I have Atrial Fibrillation and was lacking oxygen to a muscle in my> > heart. After the test I was drawn a picture showing what was goingon.> > The cardiologist wonders if I have a partially closed artery but> doubted> > it because my cholesterol is extremely low. They are sending me fora> > nuclear scan of the heart. I said I wondered if the lack of oxygenis> > due to my ILD but he didn't say much. I am scheduled for a CAT Scanof> > the lungs on the 28th. I am very excited about that since my ILD was> > diagnosed about a year ago from a chest

x-ray. I am having somechest> > and back discomfort. My questions I guess are more that I would like> > your thinking on this.. I would be humbly grateful for yourcomments!!!> > Thanks, Ken R..> > > PS Someday I'll know enough to return the favor> > >> >>

[Guest guest]

Bruce, You are right - We need to live each day like it is our last. Now and then I tell my wife that when one of us is gone we would give anything for one more day - Let's make this that day! Ken R.

Subject: Re: I have questions - BRUCETo: Breathe-Support Date: Saturday, April 25, 2009, 9:17 PM

KenI've been on oxygen since the day I was diagnosed. I have UIP and I'm onanywhere from 2 lpm to 5 lpm depending on what I'm doing. I'm actuallydoing quite well considering. I traveled more last year for pleasurethan anytime of my life. My slogan is "have oxygen will travel.." I justmoved so been busy the last month but anticipate doing a lot of things,especially in June. I'm living life as full as possible and treatingeach year like it's my last, because it may be. However, I wish I'dalways lived my life like that. For my condition or many conditions, mylife is pretty great.> > >> > > Good morning!> > >> > > I have several questions maybe someone could give some insight on.> > >> > > I had a treadmill stress test yesterday and during the exam I was> told> > I have Atrial Fibrillation and was lacking oxygen to a muscle in my> > heart. After the test I was drawn a picture showing what was goingon.> > The cardiologist wonders if I have a partially closed artery but> doubted> > it because my cholesterol is extremely low. They are sending me fora> > nuclear scan of the heart. I said I wondered if the lack of oxygenis> > due to my ILD but he didn't say much. I am scheduled for a CAT Scanof> > the lungs on the 28th. I am very excited about that since my ILD was> > diagnosed about a year ago from a chest

x-ray. I am having somechest> > and back discomfort. My questions I guess are more that I would like> > your thinking on this.. I would be humbly grateful for yourcomments!!!> > Thanks, Ken R..> > > PS Someday I'll know enough to return the favor> > >> >>

[Guest guest]

I'm humbled - What an encourager you are! THANK YOU! Ken R.

PS How are you doing?

From: Bruce Moreland <brucemoreland@ gmail.com>Subject: Re: I have questions - BRUCETo: Breathe-Support@ yahoogroups. comDate: Saturday, April 25, 2009, 12:14 PM

KenThere is no nice way of saying this though. You don't continue with apulmonologist who would wait a year for a CT Scan. Find good medicaltreatment. With your current pulmonologist, you'll never get all theanswers you need if his history is any indication.> >> > Good morning!> >> > I have several questions maybe someone could give some

insight on.> >> > I had a treadmill stress test yesterday and during the exam I wastold> I have Atrial Fibrillation and was lacking oxygen to a muscle in my> heart. After the test I was drawn a picture showing what was going on.> The cardiologist wonders if I have a partially closed artery butdoubted> it because my cholesterol is extremely low. They are sending me for a> nuclear scan of the heart. I said I wondered if the lack of oxygen is> due to my ILD but he didn't say much. I am scheduled for a CAT Scan of> the lungs on the 28th. I am very excited about that since my ILD was> diagnosed about a year ago from a chest x-ray. I am having some chest> and back discomfort. My questions I guess are more that I would like> your thinking on this. I would be humbly grateful for your comments!!!> Thanks, Ken R..> > PS Someday I'll know enough to

return the favor> >>