Guest guest Posted December 3, 2002 Report Share Posted December 3, 2002 Hi Elaine, and all, In the final stages of taking Tapazole, I went from 2.5 mgs to 1.25 which I continued for 2 to 3 weeks. I then did a week of 1.25 every other night. I believe the 1.25 made a difference to me but I'm small (under 120 lbs) and sensitive to meds. After stopping Tapazole, I had 2 false alarms where I thought I might be going Hyper again. Each time I took 1.25 mgs of Tap. The first time for 3 nights and the 2nd time for 2 nights. Both times the Tap made me feel somewhat sluggish and foggy. I promised myself, no more Tapazole. This is just my experience. Micro-dosing seemed to have worked for me. Best wishes to all, Zoey Re: NEWBIE - To Elaine Thanks for the info, Elaine - You say: >>> But I haven't seen anything saying that 1.25 mg daily is effective.<<< Neither have I seen anything that proves beyond a shadow of a doubt that it is NOT effective. >>>....weaning slowly from the meds has immune system benefits. That's where a 1.25 mg dose, intended not to lower thyroid hormone levels, but to slowly withdraw the immune suppressing effects of the meds comes in.<<< The 1.25 a day dosing could be used in helping the body to wean from the meds, and I wasn't specifically referring to further lowering this patient's thyroid levels, but what's to say that is not a possibility to be explored in at least some of the people? There could be those so sensitive that dropping from 2.5 a day to nothing, or even 2.5 mg every other day, might cause a rebound effect. Who knows? If I came to that fork in the road (as 3 mg a day was the lowest I got until I ran into a batch of expired meds and had to start over), I would at least give it a whirl. I'd take 1.25 a day until I saw whether or not it did any good in MY case. What harm can be done in experimenting with this? Almost everything that this group has done with ATDs so far has been a guessing game anyway, thanks to the ignorant, lying endos. I just feel it is wrong to give absolutes one way or another when nobody really knows how each individual will react in any given situation. I'm not trying to be antagonistic with this, but there are so many aspects to this medication that have hardly been explored. And this is due in part to the popular 18-month, predetermined cut-off, leaving few patients to use for comprehensive data in long term usage of the meds. So few people up until now have even been allowed to taper down this far, that there is no etched-in-concrete, one-size- fits-all determination regarding the usage of ATDs. Mona was using PTU for 4 years, and tapered very, very slowly. I'll have to ask her how she worked it at the finish line. Thanks again, Chris Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2002 Report Share Posted December 4, 2002 It also helped me transition from 7.5 mg. to 5 mg. I started feeling a little hyper when I reduced to 5 mg., so I took 6.25 for a couple of weeks. It may have all been in my head, but that extra 1.25 mgs. made a big difference in how I felt. Then I was able to drop on down to 5 mg. without any hyper symptoms. Holly Dx. 8/2001; 5 mg. MMI for last three months (and starting to get muscle cramps again!) Tap 1.25 Hi Elaine, and all, In the final stages of taking Tapazole, I went from 2.5 mgs to 1.25 which I continued for 2 to 3 weeks. I then did a week of 1.25 every other night. I believe the 1.25 made a difference to me but I'm small (under 120 lbs) and sensitive to meds. After stopping Tapazole, I had 2 false alarms where I thought I might be going Hyper again. Each time I took 1.25 mgs of Tap. The first time for 3 nights and the 2nd time for 2 nights. Both times the Tap made me feel somewhat sluggish and foggy. I promised myself, no more Tapazole. This is just my experience. Micro-dosing seemed to have worked for me. Best wishes to all, Zoey Re: NEWBIE - To Elaine Thanks for the info, Elaine - You say: >>> But I haven't seen anything saying that 1.25 mg daily is effective.<<< Neither have I seen anything that proves beyond a shadow of a doubt that it is NOT effective. >>>....weaning slowly from the meds has immune system benefits. That's where a 1.25 mg dose, intended not to lower thyroid hormone levels, but to slowly withdraw the immune suppressing effects of the meds comes in.<<< The 1.25 a day dosing could be used in helping the body to wean from the meds, and I wasn't specifically referring to further lowering this patient's thyroid levels, but what's to say that is not a possibility to be explored in at least some of the people? There could be those so sensitive that dropping from 2.5 a day to nothing, or even 2.5 mg every other day, might cause a rebound effect. Who knows? If I came to that fork in the road (as 3 mg a day was the lowest I got until I ran into a batch of expired meds and had to start over), I would at least give it a whirl. I'd take 1.25 a day until I saw whether or not it did any good in MY case. What harm can be done in experimenting with this? Almost everything that this group has done with ATDs so far has been a guessing game anyway, thanks to the ignorant, lying endos. I just feel it is wrong to give absolutes one way or another when nobody really knows how each individual will react in any given situation. I'm not trying to be antagonistic with this, but there are so many aspects to this medication that have hardly been explored. And this is due in part to the popular 18-month, predetermined cut-off, leaving few patients to use for comprehensive data in long term usage of the meds. So few people up until now have even been allowed to taper down this far, that there is no etched-in-concrete, one-size- fits-all determination regarding the usage of ATDs. Mona was using PTU for 4 years, and tapered very, very slowly. I'll have to ask her how she worked it at the finish line. Thanks again, Chris Quote Link to comment Share on other sites More sharing options...
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