IPF Seminar: Geffen School of Medicine at UCLA

[Guest guest]

Anyone know anything about the free seminar on Wednesday, April 22? I was

trying to get a referral from my insurance company for one of the clinics

specializing in PF. Today they sent me this link

info@...

WHAT: " Living with Pulmonary Fibrosis " Free Seminar

WHEN: Friday, April 22, 2005

Registration 9:30 - 10:00am

Program 10:00am - 2:30pm

Light lunch will be served

WHERE: UCLA Faculty Center, California Room

480 Young Drive, Los Angeles

The seminar will feature nationally recognized Pulmonary Fibrosis specialists

from UCLA, Strieter, M.D., Zisman, M.D., ph Lynch, III, M.D,

Ross, M.D., Keane, M.D., Belperio, M.D., and Rajan Saggar,

M.D. In addition, our Clinical Research Nurse, Golleher, R.N. and Clinical

Research Coordinator, Vicki Christodoulou, M.S. will also be speaking. The

seminar will address diagnosis, current standards of care, pulmonary

hypertension, promising new agents, lung transplantation, and life management

issues.

For more information and to register, please contact Golleher, R.N. at

or by email at sgolleher@....

Kind of a short notice and still no movement on a referral. I suggested that

they might need release forms signed to get the information that I have on CD to

the hospitals that they are looking at (Jewish Medical in Denver and UCLA.

Feels like more run-around. Don't know if I want to run off to California

Wednesday. I haven't got any hotel, car... and my husband isn't taking off

work... and it will have to come out of my savings (I am going to the bank today

and removing money from an IRA CD so that I have access to it for medical

purposes). I just hate spending money on a seminar that I might need for

medical procedures!!!

Stefani