Re: New alarming test results

[Guest guest]

Oops...Looks like the last column with the TSH numbers mingled in with my lab

" dates " when I sent the post. It makes it a bit more difficult to read but

the TSH is less than .01 every time anyway.

While I'm back here, one more question, why would my TSI be inching up a bit

if I'm coming down from hyper? I thought I was getting better. I am so

tempted to lower to say 15. Have any of you experienced veterens gone

through this? What did you do?

Thanks again.

[Guest guest]

Oops...Looks like the last column with the TSH numbers mingled in with my lab

" dates " when I sent the post. It makes it a bit more difficult to read but

the TSH is less than .01 every time anyway.

While I'm back here, one more question, why would my TSI be inching up a bit

if I'm coming down from hyper? I thought I was getting better. I am so

tempted to lower to say 15. Have any of you experienced veterens gone

through this? What did you do?

Thanks again.

[Guest guest]

mercai@... wrote:

>

> I am so tempted to lower to say 15.

> Have any of you experienced veterens gone through this?

What the temptation to fiddle with ones own dose because your

sure you know better?

Possibly ;-)

> What did you do?

It is a while back in the dusty attics of my memory, but when I

was diagnosed I went on 45mg Carbimazole, and came down in (I

think) two jumps to 15mg a day.

I think a little fiddling, dropping to 10mg finding it too

little etc, took place at that point, but my GP was very

experienced in doing this (I never knew how lucky I was, I guess

I always assumed doctors knew what they were doing, so finding

my GP did wasn't a surprise - hell I even believed " headache "

was an unusual presentation of Graves' disease since it seemed

to make sense of so many doctor's failure to diagnose), and I

was a younger and more robust then despite the years of

thyrotoxicosis.

I don't think dropping from 20 to 15mg will make much difference

at this stage, work with them for a few weeks. Most of us don't

get to euthyroid without wobbling a little one way or the other,

although to be honest I think a brief experience of a few hypo

symptoms lets you know what to look out for, which isn't all

bad.

Go read the hypo symptom list, if you feel the need to do

something to help yourself, but stick with the doctors

recommendations, till you've learnt more about your own

reactions to different levels.

[Guest guest]

mercai@... wrote:

>

> I am so tempted to lower to say 15.

> Have any of you experienced veterens gone through this?

What the temptation to fiddle with ones own dose because your

sure you know better?

Possibly ;-)

> What did you do?

It is a while back in the dusty attics of my memory, but when I

was diagnosed I went on 45mg Carbimazole, and came down in (I

think) two jumps to 15mg a day.

I think a little fiddling, dropping to 10mg finding it too

little etc, took place at that point, but my GP was very

experienced in doing this (I never knew how lucky I was, I guess

I always assumed doctors knew what they were doing, so finding

my GP did wasn't a surprise - hell I even believed " headache "

was an unusual presentation of Graves' disease since it seemed

to make sense of so many doctor's failure to diagnose), and I

was a younger and more robust then despite the years of

thyrotoxicosis.

I don't think dropping from 20 to 15mg will make much difference

at this stage, work with them for a few weeks. Most of us don't

get to euthyroid without wobbling a little one way or the other,

although to be honest I think a brief experience of a few hypo

symptoms lets you know what to look out for, which isn't all

bad.

Go read the hypo symptom list, if you feel the need to do

something to help yourself, but stick with the doctors

recommendations, till you've learnt more about your own

reactions to different levels.

[Guest guest]

Hi ,

It is best to lower your dose slowly to prevent hyper symptoms. When you get

to your maintenance dose, you should be on 2.5-10.0 mg Tap daily, but it's

best to get there in small steps.

FT4 generally has a range of 0.8-1.8 ng/dl. If he gave you a higher range on

a different occasion, it could be that an FT4 by dialysis was done. Dialysis

methods are the best because they extract out any interfering substances. But

they're also much more expensive and only ran at certain labs. Most local

labs, even small labs, can run an FT4 level, but only Quest and a few other

reference labs run the dialysis method. Take care, Elaine

[Guest guest]

Hi,

There is no real difference between a 153 and a 151. If you repeated either

test you could get values from say 148-158 because these are very small units

of measurement. Also, TSI last for about 3 months. TSI and all antibodies are

derived from immunoglobulin proteins. These proteins eventually break down

into amino acids and are excreted after about 3 months. When you quit

producing these antibodies the levels will go down but I wouldn't expect to

see a reduction just yet. Take care, Elaine

[Guest guest]

,

If your doc lowered you to 20 based on those labs, and those labs were made

while on 30, I DEFINATELY WOULD NOT go any lower than 20 right now. You'll

end up on the ATD rollercoaster and go hyper again. Slow changes are always

better. Give your body 4 to 6 weeks to get used to the new dose, and if you

still feel hypo, get new labs before you make a dosage adjustment again.

I've been there, believe me....

Holly

Dx. 8/2001; 2.5 mg MMI

Re: New alarming test results

Oops...Looks like the last column with the TSH numbers mingled in with my

lab

" dates " when I sent the post. It makes it a bit more difficult to read but

the TSH is less than .01 every time anyway.

While I'm back here, one more question, why would my TSI be inching up a

bit

if I'm coming down from hyper? I thought I was getting better. I am so

tempted to lower to say 15. Have any of you experienced veterens gone

through this? What did you do?

Thanks again.

[Guest guest]

,

If your doc lowered you to 20 based on those labs, and those labs were made

while on 30, I DEFINATELY WOULD NOT go any lower than 20 right now. You'll

end up on the ATD rollercoaster and go hyper again. Slow changes are always

better. Give your body 4 to 6 weeks to get used to the new dose, and if you

still feel hypo, get new labs before you make a dosage adjustment again.

I've been there, believe me....

Holly

Dx. 8/2001; 2.5 mg MMI

Re: New alarming test results

Oops...Looks like the last column with the TSH numbers mingled in with my

lab

" dates " when I sent the post. It makes it a bit more difficult to read but

the TSH is less than .01 every time anyway.

While I'm back here, one more question, why would my TSI be inching up a

bit

if I'm coming down from hyper? I thought I was getting better. I am so

tempted to lower to say 15. Have any of you experienced veterens gone

through this? What did you do?

Thanks again.

[Guest guest]

,

If your doc lowered you to 20 based on those labs, and those labs were made

while on 30, I DEFINATELY WOULD NOT go any lower than 20 right now. You'll

end up on the ATD rollercoaster and go hyper again. Slow changes are always

better. Give your body 4 to 6 weeks to get used to the new dose, and if you

still feel hypo, get new labs before you make a dosage adjustment again.

I've been there, believe me....

Holly

Dx. 8/2001; 2.5 mg MMI

Re: New alarming test results

Oops...Looks like the last column with the TSH numbers mingled in with my

lab

" dates " when I sent the post. It makes it a bit more difficult to read but

the TSH is less than .01 every time anyway.

While I'm back here, one more question, why would my TSI be inching up a

bit

if I'm coming down from hyper? I thought I was getting better. I am so

tempted to lower to say 15. Have any of you experienced veterens gone

through this? What did you do?

Thanks again.