RE: Re: ENOUGH is ENOUGH!! new worries

August 17, 2005

remember you can get a second opinion and you can be the gatekeeper to make

decisions on your own care. The internet is at your disposal for

information. I am going through something similar now. I have had gastric

bypass surgery. Following a tummy tuck developed periontinitis and was

discovered to have grade 3 colon cancer found accidently during the

perionitnitis surgery.... anyways following a subsequent resection for

another cancer in the colon, the mesh never healed properly and is exposed

and is infected. They discovered an ulcer in my pouch where it joins the

intestine. Bariatric surgeon says leave ulcer alone, onocological surgeon

who will work with plastic surgeon to fix the mesh says all should be done

at once because he feels ulcer can perforate and cause another case of

periontinitis. Gastroenterologist says wait. I have a decision to make

which may mean a second surgery.. Only the bariatric surgeon will handle the

ulcer which in my opinion, since it doesn't bother me and i have no pain

etc... may never be an issue. I'm trying to coordinate it all and not jump

on one's bandwagon which is more surgery. It would be complicated because I

know i am full of adhesions. I forgot to mention i had an ostomy and an

ostomy reversal so my insides are mush. I can eat a bit now and maintain my

122 pounds without too much difficulty and do not want my innerds disturbed.

Just telling you what is going on. I know there is no opinion anyone can

give me. The point of this message is you have to think for yourself and

should have insisted on biopsy before a major procedure. I have learned

that if doctors don't operate, prescribe or do something they can't bill the

insurance company. Sometimes they do not have the best interest of the

patient in mind. Please keep this in mind.

Nonnie

Re: ENOUGH is ENOUGH!! new worries

Deb, Oh, I feel so bad that you and Joe have got to go through these

worries again. But, these doctors are always jumping the guns. Just

because you have a cancer history they treat everything like you have

cancer again. Like with my nodule I had in my lung. Just because I

have a colon cancer history it was treated like I had cancer in my

lung now. Of course after I had a lung resect they found out it was

not cancer. Now I have to go through the long healing process of my

ribs being stretched and all the muscle tenderness as well as the

nerves that are screaming if I move a certain way or do to much. All

because they did not want to biopsy it first. Do not get all worked

up. The doctors always look for the worst. It is thier job to do

this. Just take it one day at a time.

Has his CEA counts gone up? Colon cancer does not normally go to

the spine. It can but does not usually. So please try to look on the

brighter side for now.

When is his MRI scheduled?

I go tomorrow to see the ONC and see what and if I need more

treatment with my reoccurance in the intestines. Surgery did get it

all. I am waiting to find out about my CEA counts. I know I could

call now and find out about my CEA. I am fighting the urge to call.

Am afraid to know if it is still an eight or if it has gone up more.

But then it could have gone down since they removed the new nodule.

Then I worry what if the cancer is somewhere else. Don't know if I

should call or wait till four o'clock tomorrow afternoon. Am fighting

with myself about calling. What if it is bad news??????

I am Praying for you and Joe. Ingrid

> Ok , I am seriously on the verge of a mental breakdown,

> Joe went to neurologist today , didnt help much with neuropathy in

hands and feet , just gonna up the neurontin

> HOWEVER , did I tell you about the electrical jolts Joe is having ?

> When he turns his head a certain way ( he cant make it happen) he

gets an electrical jolt that goes down his whole body.

> When we mentioned this to the neurologist , he said hmmmmm I want

you to have an MRI done to see if its possible METS to the

spine!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

> NO NO NO NO NO NO NO!!!!!@!!!!

> Joe does NOT have cancer anymore DAM IT!!!!!

> The rational side of me realizes its probably nothing , however

OMGGGGGGGGGGGGGGGGGGGGG

>

> DEB

>

> 33yrold husband Joe, was diagnosed with CC in Sept,

> resection on Sept 27th 2004

> found mets to the abdominal wall lining 3 lymph nodes involved

> open wound from infection until Jan 2005

> Ileostomy reversal Dec 7th 2004

> Chemo regiment begun Jan 2005

> 5fu/levorican/Oxaplatin/ Avastin added Feb 14 2005 (Happy

Valentines

> Calcium Magnesium added for the Tingles Feb 28 2005

> Ct Scan done March 23rd 2005 , 16 millimeter cyst like object on

liver found

> April 1 2005 PET scan done awaiting results

> April 11 PET SCAN SHOWS

NED!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

> May 9 Plateletts are low 75,000

>

> __________________________________________________

>

August 17, 2005

Good advice Nonnie.

Karima