Thought this might be of interest to others too

By Guest guest
February 26, 2009 in Health, Medicine and Natural Healing 09

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Guest guest

Posted February 26, 2009

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Posted February 26, 2009

I'm pretty plugged into the rare disease world as HPS is so rare. I know there are others here who have PF thanks to rare medical conditions. Thought this might interest you. It's all about Rare Disease Day - Feb. 28.

http://www.rarediseaseday.org/

Hermansky-Pudlak Syndrome albinism 02/ PF 06

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