Re: Re: Oxaliplatin-Anyone Taking This Please Respond

[Guest guest]

In a message dated 7/18/2005 11:01:38 A.M. Eastern Daylight Time,

JSAVAGE@... writes:

;

Several people have replied about the side effects of FOLFOX, but I

want to remind you to focus on the benefit you will receive. This

stuff really works! I had mets to my lungs and liver in January,

2004, and the FOLFOX combo cleared everything up in a matter of

months.

Sure the side effects are discomforting, and you may end up with

some permanent degradation of sensation in your hands and feet; but

you can end up killing lots of cancer cells. As you sit through the

hours of boredom in the infusion chair, or as you wrestle with the

pump as you try to sleep, just remember that this chemo is one of

the very best that you can get.

Don't focus on the side effects. They are tolerable. Focus on the

benefit, it's really worth it.

-joe-

Very good advice, Joe. Life is worth the fight!!

Donelle

Caregiver to Glenn

[Guest guest]

In a message dated 7/18/2005 11:01:38 A.M. Eastern Daylight Time,

JSAVAGE@... writes:

;

Several people have replied about the side effects of FOLFOX, but I

want to remind you to focus on the benefit you will receive. This

stuff really works! I had mets to my lungs and liver in January,

2004, and the FOLFOX combo cleared everything up in a matter of

months.

Sure the side effects are discomforting, and you may end up with

some permanent degradation of sensation in your hands and feet; but

you can end up killing lots of cancer cells. As you sit through the

hours of boredom in the infusion chair, or as you wrestle with the

pump as you try to sleep, just remember that this chemo is one of

the very best that you can get.

Don't focus on the side effects. They are tolerable. Focus on the

benefit, it's really worth it.

-joe-

Very good advice, Joe. Life is worth the fight!!

Donelle

Caregiver to Glenn

[Guest guest]

In a message dated 7/18/2005 11:01:38 A.M. Eastern Daylight Time,

JSAVAGE@... writes:

;

Several people have replied about the side effects of FOLFOX, but I

want to remind you to focus on the benefit you will receive. This

stuff really works! I had mets to my lungs and liver in January,

2004, and the FOLFOX combo cleared everything up in a matter of

months.

Sure the side effects are discomforting, and you may end up with

some permanent degradation of sensation in your hands and feet; but

you can end up killing lots of cancer cells. As you sit through the

hours of boredom in the infusion chair, or as you wrestle with the

pump as you try to sleep, just remember that this chemo is one of

the very best that you can get.

Don't focus on the side effects. They are tolerable. Focus on the

benefit, it's really worth it.

-joe-

Very good advice, Joe. Life is worth the fight!!

Donelle

Caregiver to Glenn

[Guest guest]

In a message dated 7/19/2005 10:35:17 PM Eastern Standard Time,

daniel111@... writes:

Oh yeah, I forgot one other thing. She is having trouble sleeping

and I am sure that part of that, if not all, is due to the chemo.

Dan

Yes, I think you might be right on that Dan, but check as always with Onc.

Glenn also had trouble sleeping at night, but slept a lot during the day...

mostly on chemo weeks.

Lots of hugs and prayers, Donelle

Caregiver to Glenn

[Guest guest]

Most of my folfox 6 symptons were mild but initially I had trouble sleeping.

If I took ambien less than 30 minutes prior to trying to go to sleep it

worked well. If the phonr rang or something kept me up the ambien did not help.

Thus when I did what I should the ambien worked great.

After I finished chemo I said no more ambien. The onc said I did not have to

quit cold turkey but I figured you had to stop sometime.. I did not sleep

well for a couple of nights but after that it was like pre-chemo

[Guest guest]

my father also has trouble sleeping and takes ambien regularly. he only gets

about 3-4 hours sleep at night.

Joe Savage JSAVAGE@...> wrote:

Then, again, it might be one of the pre-meds. I got Decadron to keep

my stomach from going crazy. One side effect was sleeplesness; the

other was relief of my arthritis pain. A mixed bag, but interesting.

I looked forward to the chemo sessions because I was able to walk so

well for two days following.

-joe-

>

>

> In a message dated 7/19/2005 10:35:17 PM Eastern Standard Time,

> daniel111@c... writes:

>

> Oh yeah, I forgot one other thing. She is having trouble

sleeping

> and I am sure that part of that, if not all, is due to the chemo.

>

> Dan

>

>

>

> Yes, I think you might be right on that Dan, but check as always

with Onc.

> Glenn also had trouble sleeping at night, but slept a lot during

the day...

> mostly on chemo weeks.

>

> Lots of hugs and prayers, Donelle

> Caregiver to Glenn

>

>

>

[Guest guest]

my father also has trouble sleeping and takes ambien regularly. he only gets

about 3-4 hours sleep at night.

Joe Savage JSAVAGE@...> wrote:

Then, again, it might be one of the pre-meds. I got Decadron to keep

my stomach from going crazy. One side effect was sleeplesness; the

other was relief of my arthritis pain. A mixed bag, but interesting.

I looked forward to the chemo sessions because I was able to walk so

well for two days following.

-joe-

>

>

> In a message dated 7/19/2005 10:35:17 PM Eastern Standard Time,

> daniel111@c... writes:

>

> Oh yeah, I forgot one other thing. She is having trouble

sleeping

> and I am sure that part of that, if not all, is due to the chemo.

>

> Dan

>

>

>

> Yes, I think you might be right on that Dan, but check as always

with Onc.

> Glenn also had trouble sleeping at night, but slept a lot during

the day...

> mostly on chemo weeks.

>

> Lots of hugs and prayers, Donelle

> Caregiver to Glenn

>

>

>

[Guest guest]

I still suffer from a bit of limited sleep, but I do sleep longer than I

used too while on chemo. I loved that Decadron, it sure was my feel good

drug. I did alot of reading when I couldn't sleep, and took naps during

the day. So I really didn't suffer that much. They did offer Ambien but

I refused it, I figured it wouldn't work on me anyway. I also have COPD,

so doc then offered me the benedryl, said it would help my breathing as

well as help me sleep. I have not taken it at all.

Don't worry about not sleeping at night, if one can't sleep just get up

and do something. Read awhile, watch a movie, work on a jigsaw puzzle.

Just sleep when you can and don't fret about it. Is all part of the

chemo thing... I still keep fairly regular hours, is rest of the family

that sleeps in and I couldn't do any house work in the morning if I

wanted too. So when I get up in the a.m I usually read, and work on the

computer and some crafts...This too will pass and soon we can get back

to normal. Cheers JOlene

Nic D wrote:

> my father also has trouble sleeping and takes ambien regularly. he

> only gets about 3-4 hours sleep at night.

>

>

>

> Joe Savage JSAVAGE@...> wrote:

> Then, again, it might be one of the pre-meds. I got Decadron to keep

> my stomach from going crazy. One side effect was sleeplesness; the

> other was relief of my arthritis pain. A mixed bag, but interesting.

> I looked forward to the chemo sessions because I was able to walk so

> well for two days following.

>

> -joe-

>

>

> >

> >

> > In a message dated 7/19/2005 10:35:17 PM Eastern Standard Time,

> > daniel111@c... writes:

> >

> > Oh yeah, I forgot one other thing. She is having trouble

> sleeping

> > and I am sure that part of that, if not all, is due to the chemo.

> >

> > Dan

> >

> >

> >

> > Yes, I think you might be right on that Dan, but check as always

> with Onc.

> > Glenn also had trouble sleeping at night, but slept a lot during

> the day...

> > mostly on chemo weeks.

> >

> > Lots of hugs and prayers, Donelle

> > Caregiver to Glenn

> >

> >

> >

[Guest guest]

I still suffer from a bit of limited sleep, but I do sleep longer than I

used too while on chemo. I loved that Decadron, it sure was my feel good

drug. I did alot of reading when I couldn't sleep, and took naps during

the day. So I really didn't suffer that much. They did offer Ambien but

I refused it, I figured it wouldn't work on me anyway. I also have COPD,

so doc then offered me the benedryl, said it would help my breathing as

well as help me sleep. I have not taken it at all.

Don't worry about not sleeping at night, if one can't sleep just get up

and do something. Read awhile, watch a movie, work on a jigsaw puzzle.

Just sleep when you can and don't fret about it. Is all part of the

chemo thing... I still keep fairly regular hours, is rest of the family

that sleeps in and I couldn't do any house work in the morning if I

wanted too. So when I get up in the a.m I usually read, and work on the

computer and some crafts...This too will pass and soon we can get back

to normal. Cheers JOlene

Nic D wrote:

> my father also has trouble sleeping and takes ambien regularly. he

> only gets about 3-4 hours sleep at night.

>

>

>

> Joe Savage JSAVAGE@...> wrote:

> Then, again, it might be one of the pre-meds. I got Decadron to keep

> my stomach from going crazy. One side effect was sleeplesness; the

> other was relief of my arthritis pain. A mixed bag, but interesting.

> I looked forward to the chemo sessions because I was able to walk so

> well for two days following.

>

> -joe-

>

>

> >

> >

> > In a message dated 7/19/2005 10:35:17 PM Eastern Standard Time,

> > daniel111@c... writes:

> >

> > Oh yeah, I forgot one other thing. She is having trouble

> sleeping

> > and I am sure that part of that, if not all, is due to the chemo.

> >

> > Dan

> >

> >

> >

> > Yes, I think you might be right on that Dan, but check as always

> with Onc.

> > Glenn also had trouble sleeping at night, but slept a lot during

> the day...

> > mostly on chemo weeks.

> >

> > Lots of hugs and prayers, Donelle

> > Caregiver to Glenn

> >

> >

> >

[Guest guest]

I am using something called Natural Calm at night to sleep. It doesn't knock

me out but once I get to sleep I stay asleep and don't wake up groggy. I wake

up pretty alert. It is magnesium so all natural. Good Luck!

Jolene Ehret jehret@...> wrote:I still suffer from a bit of limited

sleep, but I do sleep longer than I

used too while on chemo. I loved that Decadron, it sure was my feel good

drug. I did alot of reading when I couldn't sleep, and took naps during

the day. So I really didn't suffer that much. They did offer Ambien but

I refused it, I figured it wouldn't work on me anyway. I also have COPD,

so doc then offered me the benedryl, said it would help my breathing as

well as help me sleep. I have not taken it at all.

Don't worry about not sleeping at night, if one can't sleep just get up

and do something. Read awhile, watch a movie, work on a jigsaw puzzle.

Just sleep when you can and don't fret about it. Is all part of the

chemo thing... I still keep fairly regular hours, is rest of the family

that sleeps in and I couldn't do any house work in the morning if I

wanted too. So when I get up in the a.m I usually read, and work on the

computer and some crafts...This too will pass and soon we can get back

to normal. Cheers JOlene

Nic D wrote:

> my father also has trouble sleeping and takes ambien regularly. he

> only gets about 3-4 hours sleep at night.

>

>

>

> Joe Savage JSAVAGE@...> wrote:

> Then, again, it might be one of the pre-meds. I got Decadron to keep

> my stomach from going crazy. One side effect was sleeplesness; the

> other was relief of my arthritis pain. A mixed bag, but interesting.

> I looked forward to the chemo sessions because I was able to walk so

> well for two days following.

>

> -joe-

>

>

> >

> >

> > In a message dated 7/19/2005 10:35:17 PM Eastern Standard Time,

> > daniel111@c... writes:

> >

> > Oh yeah, I forgot one other thing. She is having trouble

> sleeping

> > and I am sure that part of that, if not all, is due to the chemo.

> >

> > Dan

> >

> >

> >

> > Yes, I think you might be right on that Dan, but check as always

> with Onc.

> > Glenn also had trouble sleeping at night, but slept a lot during

> the day...

> > mostly on chemo weeks.

> >

> > Lots of hugs and prayers, Donelle

> > Caregiver to Glenn

> >

> >

> >