Re: Oxaliplatin

[Guest guest]

Hi Mike, Welcome to our group. So sorry to hear that your wife has to

go through this. Please come here and post more often. You will find

lots of information here and support. You may also give support. We

all get down here once in awhile and we all try to support each

other. So join us in our discussions. See if you can get your wife to

join here as well. It sounds like you are real up on things. Your

wife is lucky to have you as her caregiver. Hope you post and join us

more often. Ingrid

> Hi,

> My name is mike, my wife has crc. I found and joined this group a

few

> days ago.

> she is 44. She had an abdominal hysterectomy on 4/8/05, and the

> pathology report came back with malignancy that was later

determined

> to be colon cancer. primary tumor was in transverse colon, and was

> softball size. resection was done on 4/15/05 the tumor involved the

> omentum, which was also removed.

> mets in lungs, and liver. After the resection CEA was 72.

> Chemotherapy was started on 5/13/05 she is taking avastin,

> oxaliplatin, and xeloda. she is now 5 days into her 4th treatment

and

> her CEA is now 27.

> she is very determined, and has tolerated the treatment very well.

> there has been nausea despite emend,zofran,and anzamet. she has

drank

> diet canada dry ginger ale by the case(room temperature of

> course),chewed on crystalized ginger(which she says really helps

> sometimes) the emend and zofran really seem to help for the first

> week, but the second is tough for her she says that the anzamet

> doesn't seem to do anything for her.

> As far as the Oxaliplatin goes, she has the cold sensitivity that

last

> for about 10 days (she was told 3-4 initially) and she has an odd

> neuropathy that her onc said she had never heard of, her eyes feel

> like they are being shocked if she cries for about one week after

the

> infusion. She also has a shocking, pin-prick like sensation when

she

> first taste anything. the sensation stops after having thae

food/drink

> in her mouth for 20-30 seconds, and then doesn't return untill she

> starts eating something else.

> We were both blindsided by this, and even now after more than 3

months

> it doesn't seem real.

> Hope this helps someone. please feel free to write me direct with

any

> questions you have, but please use mikee442xx@g... (remove the xx)

> Mike