Re: New/Sue

[Guest guest]

Thank you so much, You have really been thru a lot with this, Bless

you, they were not sure if lympnodes were canerous, said they took

them in case they were, trying to get into another doctor, but on

disabilty now, and medicaid, and it takes forever, hope I live long

enough to get one.Told me I only have 1-2 years without chemo, and

will be 2 years in April/

>

>

>

>

> Hi Sue!!!

>

> Welcome to our little family...but sorry that you needed to find

us. Think

> if I was you, I would seek a 2nd opinion... were any lymphnodes

cancerous??

> A little summary of Glenn's " journey " ...it's not complete or up

to date, but

> gives you an idea.

>

> Feel free to ask questions, vent, scream, cry...or even tease,

laugh and

> joke when the mood strikes. We are here for you....and praying

for you!!

>

>

> Lots of hugs and prayers, Donelle

> Caregiver to Glenn

>

>

> Colon resection 6/03 removing 9 in. of colon including cancerous

tumore and

> 3 of 22 removed lymph nodes were also cancerous.

> Infection set in at surgical site...Open wound for 2 months,

chemo for 8

> months

> Mets to Liver found 4/04, inoperable; one tumor too close to

artery and vein

> Chemo infiltration to chest 8/04 with severe side effects

including severe

> pain and muscle damage (permanent??)

> 10/04 Severe lower ab pain unable to eat, colon shut down,

hospitalization

> w/morphine 8 days. Sent home with basically no diagnosis.

Possibly the cancer

> causing the pain.

> Ascites (Fluid build-up) and Paracentesis (draining) on a regular

weekly

> basis

> 11/09/04 on 5FU/Leu/Oxaliplatin/Avastin " cocktails " 46 hr.

infusions

> Mid Dec. 04 - CT. Scan shows largest tumor on liver has reduced

1/3,

> remaining 11 tumors stable; no growth. Chemo is working...Yippee!!

> 02/05 Continued bi-wkly Ascites and Paracentesis may mean chemo

no longer

> working.

> Emergency CT. Scan performed. Tumors are reducing in size, some

as much as

> half!!! Chemo is working!!!

> Found a blot clot in the vein going in to the liver!!! Waiting

for MRI so

> GI Dr. can decide to treat with meds or surgery. Onc. now

believes the blood

> clot is reason for the continuing Ascites.

> March 04...Lovamax shots nightly to dissolve the clot and open

the portal

> vein going in to the liver, hoping the liver will function more

normally.

> Still not sure if blood clot or tumor. Why? No answers.

>

> ICU hospitalization twice..total of 9 days out of 14 for varices

bleeding in

> the esophogus. No chemo now for 6 wks. Drs., Liver specialists,

and GI

> specialists working on a plan. Ascites is doing more damage than

chemo to Glenn's

> body. Have to " take a chance " (Drs. words) and do the shunt

surgery and

> very SOON!!

>

> " Chemo Vacation " to build up Glenn's body for whatever!!!

>

> Liver Spec. does not agree with GI Dr. re: shunt surgery...now

what??

>

> TRYING TO KICK BUTT with this darn disease!!!

>

>

>