Re: Oxaliplatin-Anyone Taking This Please Respond

[Guest guest]

, Glad you are here and posting with us. Please do not worry

yourself so much with the Folfox treatment. I too went through it for

six months. Everyone does react differedntly to it. But for me the

cold sensitivity only lasted a few days. Yes, you will be able to

have cold drinks and touch cold things. That lasts a few days after

treatment and then you will be be fine. Yes, you will be able to eat

the foods you want. Again each and everyone reacts a bit different.

Just think about getting yourself through the chemo.The side effects

are temporary and do subside between treatments. Just come here and

post, vent, ask questions. You will find a lot of answers here from

others who have gone through this. Tell us about yourself and talk to

us. We are all here for you. We support each other and get support.

Post again soon and let us know how you are doing and feeling. Ingrid

> Hi Everyone:

> I will be starting chemo the week after next. It will be Folfox,

> i.e., Oxaliplatin, 5FU, Leucovorin every 2 weeks. Day one, I will

be

> in the office for about 4 hours; I will leave with a waist pack of

> 5FU for the next 2 days at home. Avastin will be added after the

> second or third round; it is too early to add it now as it will

stop

> my surgical wounds from healing.

> I am in need of answers with respect to side effects from

> Oxaliplatin. Most importantly, I understand that I cannot drink

> anything cold and cannot touch anything cold (as in the

refrigerator)

> without gloves. Has anyone experienced this sensitivity to cold and

> this " choking " feeling when they drink something cold? If so,

please

> let me know how long this lasts; that is, do I have to drink room

> temperature beverages/water for only a few days or does this last

the

> entire time I am on chemo? Also, this must mean no more milk or

soy

> milk on cereal, right? What do you do to get enough hydration

while

> avoiding this side effect? Also, does this mean I cannot eat

yogurt,

> cottage cheese, fresh fruit, etc. from my refrigerator? Does

> everything have to be room temperature or more?

> Please let me know what to expect and whether I can expect to be

able

> to eat at all while on this chemo.

> Thanks so much and love to you all.

>

[Guest guest]

Hi ,

I hope I can answer some of your questions because I had the same

treatment.But,as always confirm things with your doctor and oncology

nurse. They have good ideas to help ease the problems side effects

can cause.

The doctors determine when one can go through this round of chemo

based on the condition of your surgical wounds, among other factors.

You should be healed by the time this begins. When healed, chemo has

no effect on wounds.

I experienced the sensivity to cold. Touching cold things in the

fridge feels like a shock. It would be good if you can keep a pair

of wool gloves nearby.Your feet will also be tingling. Keep some

socks handy. I was warned about my eyes too, but did not have to

wear shades due to cold.

Drinking cold things makes the tongue numb and gives the feeling of

a closed throat. It's best to drink room temperature things. I even

had to nuke salads for awhile. Leave other foods like yogurt on the

table for 5 minutes or so. Drink lots of water too. Some say sports

drinks are also good. I was told that caffeinated drinks did not add

to ones hydration, therefore don't count them toward the 8 glasses a

day.

I found my tastebuds were off and everything tasted strange. I kept

limes to suck on and they usually brought my taste back.

I was told that the side effects would last 5 days after each

treatment. I had them for about 7 days afterwards. The oncologist

will have you take calcium/magnesium to ease this. It's usually

given in your IV before the oxiliplatin is administered.

In a nutshell, you will have this sensitivity to cold for a few days

after each treatment. It will end completely when you are all done

with chemotherapy.

I am in my 6th week post-treatment and drink with ice, use cold

milk, etc.

I had stage 3 rectal and as of last week, have a clean PET and CEA.

Tomorrow makes one year from the day I was told I had cancer. After

2 rounds of chemo, radiation and surgery, I am here to tell it!

Count each round of chemo as one day closer to your next glass of de-

caf iced green tea!! It's coming!

Blessings and Best of Luck!!

Carolyn

> Hi Everyone:

> I will be starting chemo the week after next. It will be Folfox,

> i.e., Oxaliplatin, 5FU, Leucovorin every 2 weeks. Day one, I will

be

> in the office for about 4 hours; I will leave with a waist pack of

> 5FU for the next 2 days at home. Avastin will be added after the

> second or third round; it is too early to add it now as it will

stop

> my surgical wounds from healing.

> I am in need of answers with respect to side effects from

> Oxaliplatin. Most importantly, I understand that I cannot drink

> anything cold and cannot touch anything cold (as in the

refrigerator)

> without gloves. Has anyone experienced this sensitivity to cold

and

> this " choking " feeling when they drink something cold? If so,

please

> let me know how long this lasts; that is, do I have to drink room

> temperature beverages/water for only a few days or does this last

the

> entire time I am on chemo? Also, this must mean no more milk or

soy

> milk on cereal, right? What do you do to get enough hydration

while

> avoiding this side effect? Also, does this mean I cannot eat

yogurt,

> cottage cheese, fresh fruit, etc. from my refrigerator? Does

> everything have to be room temperature or more?

> Please let me know what to expect and whether I can expect to be

able

> to eat at all while on this chemo.

> Thanks so much and love to you all.

>

[Guest guest]

Hi ,

I hope I can answer some of your questions because I had the same

treatment.But,as always confirm things with your doctor and oncology

nurse. They have good ideas to help ease the problems side effects

can cause.

The doctors determine when one can go through this round of chemo

based on the condition of your surgical wounds, among other factors.

You should be healed by the time this begins. When healed, chemo has

no effect on wounds.

I experienced the sensivity to cold. Touching cold things in the

fridge feels like a shock. It would be good if you can keep a pair

of wool gloves nearby.Your feet will also be tingling. Keep some

socks handy. I was warned about my eyes too, but did not have to

wear shades due to cold.

Drinking cold things makes the tongue numb and gives the feeling of

a closed throat. It's best to drink room temperature things. I even

had to nuke salads for awhile. Leave other foods like yogurt on the

table for 5 minutes or so. Drink lots of water too. Some say sports

drinks are also good. I was told that caffeinated drinks did not add

to ones hydration, therefore don't count them toward the 8 glasses a

day.

I found my tastebuds were off and everything tasted strange. I kept

limes to suck on and they usually brought my taste back.

I was told that the side effects would last 5 days after each

treatment. I had them for about 7 days afterwards. The oncologist

will have you take calcium/magnesium to ease this. It's usually

given in your IV before the oxiliplatin is administered.

In a nutshell, you will have this sensitivity to cold for a few days

after each treatment. It will end completely when you are all done

with chemotherapy.

I am in my 6th week post-treatment and drink with ice, use cold

milk, etc.

I had stage 3 rectal and as of last week, have a clean PET and CEA.

Tomorrow makes one year from the day I was told I had cancer. After

2 rounds of chemo, radiation and surgery, I am here to tell it!

Count each round of chemo as one day closer to your next glass of de-

caf iced green tea!! It's coming!

Blessings and Best of Luck!!

Carolyn

> Hi Everyone:

> I will be starting chemo the week after next. It will be Folfox,

> i.e., Oxaliplatin, 5FU, Leucovorin every 2 weeks. Day one, I will

be

> in the office for about 4 hours; I will leave with a waist pack of

> 5FU for the next 2 days at home. Avastin will be added after the

> second or third round; it is too early to add it now as it will

stop

> my surgical wounds from healing.

> I am in need of answers with respect to side effects from

> Oxaliplatin. Most importantly, I understand that I cannot drink

> anything cold and cannot touch anything cold (as in the

refrigerator)

> without gloves. Has anyone experienced this sensitivity to cold

and

> this " choking " feeling when they drink something cold? If so,

please

> let me know how long this lasts; that is, do I have to drink room

> temperature beverages/water for only a few days or does this last

the

> entire time I am on chemo? Also, this must mean no more milk or

soy

> milk on cereal, right? What do you do to get enough hydration

while

> avoiding this side effect? Also, does this mean I cannot eat

yogurt,

> cottage cheese, fresh fruit, etc. from my refrigerator? Does

> everything have to be room temperature or more?

> Please let me know what to expect and whether I can expect to be

able

> to eat at all while on this chemo.

> Thanks so much and love to you all.

>

[Guest guest]

Hi ,

I hope I can answer some of your questions because I had the same

treatment.But,as always confirm things with your doctor and oncology

nurse. They have good ideas to help ease the problems side effects

can cause.

The doctors determine when one can go through this round of chemo

based on the condition of your surgical wounds, among other factors.

You should be healed by the time this begins. When healed, chemo has

no effect on wounds.

I experienced the sensivity to cold. Touching cold things in the

fridge feels like a shock. It would be good if you can keep a pair

of wool gloves nearby.Your feet will also be tingling. Keep some

socks handy. I was warned about my eyes too, but did not have to

wear shades due to cold.

Drinking cold things makes the tongue numb and gives the feeling of

a closed throat. It's best to drink room temperature things. I even

had to nuke salads for awhile. Leave other foods like yogurt on the

table for 5 minutes or so. Drink lots of water too. Some say sports

drinks are also good. I was told that caffeinated drinks did not add

to ones hydration, therefore don't count them toward the 8 glasses a

day.

I found my tastebuds were off and everything tasted strange. I kept

limes to suck on and they usually brought my taste back.

I was told that the side effects would last 5 days after each

treatment. I had them for about 7 days afterwards. The oncologist

will have you take calcium/magnesium to ease this. It's usually

given in your IV before the oxiliplatin is administered.

In a nutshell, you will have this sensitivity to cold for a few days

after each treatment. It will end completely when you are all done

with chemotherapy.

I am in my 6th week post-treatment and drink with ice, use cold

milk, etc.

I had stage 3 rectal and as of last week, have a clean PET and CEA.

Tomorrow makes one year from the day I was told I had cancer. After

2 rounds of chemo, radiation and surgery, I am here to tell it!

Count each round of chemo as one day closer to your next glass of de-

caf iced green tea!! It's coming!

Blessings and Best of Luck!!

Carolyn

> Hi Everyone:

> I will be starting chemo the week after next. It will be Folfox,

> i.e., Oxaliplatin, 5FU, Leucovorin every 2 weeks. Day one, I will

be

> in the office for about 4 hours; I will leave with a waist pack of

> 5FU for the next 2 days at home. Avastin will be added after the

> second or third round; it is too early to add it now as it will

stop

> my surgical wounds from healing.

> I am in need of answers with respect to side effects from

> Oxaliplatin. Most importantly, I understand that I cannot drink

> anything cold and cannot touch anything cold (as in the

refrigerator)

> without gloves. Has anyone experienced this sensitivity to cold

and

> this " choking " feeling when they drink something cold? If so,

please

> let me know how long this lasts; that is, do I have to drink room

> temperature beverages/water for only a few days or does this last

the

> entire time I am on chemo? Also, this must mean no more milk or

soy

> milk on cereal, right? What do you do to get enough hydration

while

> avoiding this side effect? Also, does this mean I cannot eat

yogurt,

> cottage cheese, fresh fruit, etc. from my refrigerator? Does

> everything have to be room temperature or more?

> Please let me know what to expect and whether I can expect to be

able

> to eat at all while on this chemo.

> Thanks so much and love to you all.

>

[Guest guest]

;

Several people have replied about the side effects of FOLFOX, but I

want to remind you to focus on the benefit you will receive. This

stuff really works! I had mets to my lungs and liver in January,

2004, and the FOLFOX combo cleared everything up in a matter of

months.

Sure the side effects are discomforting, and you may end up with

some permanent degradation of sensation in your hands and feet; but

you can end up killing lots of cancer cells. As you sit through the

hours of boredom in the infusion chair, or as you wrestle with the

pump as you try to sleep, just remember that this chemo is one of

the very best that you can get.

Don't focus on the side effects. They are tolerable. Focus on the

benefit, it's really worth it.

-joe-

> Hi Everyone:

> I will be starting chemo the week after next. It will be Folfox,

> i.e., Oxaliplatin, 5FU, Leucovorin every 2 weeks. Day one, I will

be

> in the office for about 4 hours; I will leave with a waist pack of

> 5FU for the next 2 days at home. Avastin will be added after the

> second or third round; it is too early to add it now as it will

stop

> my surgical wounds from healing.

> I am in need of answers with respect to side effects from

> Oxaliplatin. Most importantly, I understand that I cannot drink

> anything cold and cannot touch anything cold (as in the

refrigerator)

> without gloves. Has anyone experienced this sensitivity to cold

and

> this " choking " feeling when they drink something cold? If so,

please

> let me know how long this lasts; that is, do I have to drink room

> temperature beverages/water for only a few days or does this last

the

> entire time I am on chemo? Also, this must mean no more milk or

soy

> milk on cereal, right? What do you do to get enough hydration

while

> avoiding this side effect? Also, does this mean I cannot eat

yogurt,

> cottage cheese, fresh fruit, etc. from my refrigerator? Does

> everything have to be room temperature or more?

> Please let me know what to expect and whether I can expect to be

able

> to eat at all while on this chemo.

> Thanks so much and love to you all.

>

[Guest guest]

;

Several people have replied about the side effects of FOLFOX, but I

want to remind you to focus on the benefit you will receive. This

stuff really works! I had mets to my lungs and liver in January,

2004, and the FOLFOX combo cleared everything up in a matter of

months.

Sure the side effects are discomforting, and you may end up with

some permanent degradation of sensation in your hands and feet; but

you can end up killing lots of cancer cells. As you sit through the

hours of boredom in the infusion chair, or as you wrestle with the

pump as you try to sleep, just remember that this chemo is one of

the very best that you can get.

Don't focus on the side effects. They are tolerable. Focus on the

benefit, it's really worth it.

-joe-

> Hi Everyone:

> I will be starting chemo the week after next. It will be Folfox,

> i.e., Oxaliplatin, 5FU, Leucovorin every 2 weeks. Day one, I will

be

> in the office for about 4 hours; I will leave with a waist pack of

> 5FU for the next 2 days at home. Avastin will be added after the

> second or third round; it is too early to add it now as it will

stop

> my surgical wounds from healing.

> I am in need of answers with respect to side effects from

> Oxaliplatin. Most importantly, I understand that I cannot drink

> anything cold and cannot touch anything cold (as in the

refrigerator)

> without gloves. Has anyone experienced this sensitivity to cold

and

> this " choking " feeling when they drink something cold? If so,

please

> let me know how long this lasts; that is, do I have to drink room

> temperature beverages/water for only a few days or does this last

the

> entire time I am on chemo? Also, this must mean no more milk or

soy

> milk on cereal, right? What do you do to get enough hydration

while

> avoiding this side effect? Also, does this mean I cannot eat

yogurt,

> cottage cheese, fresh fruit, etc. from my refrigerator? Does

> everything have to be room temperature or more?

> Please let me know what to expect and whether I can expect to be

able

> to eat at all while on this chemo.

> Thanks so much and love to you all.

>

[Guest guest]

;

Several people have replied about the side effects of FOLFOX, but I

want to remind you to focus on the benefit you will receive. This

stuff really works! I had mets to my lungs and liver in January,

2004, and the FOLFOX combo cleared everything up in a matter of

months.

Sure the side effects are discomforting, and you may end up with

some permanent degradation of sensation in your hands and feet; but

you can end up killing lots of cancer cells. As you sit through the

hours of boredom in the infusion chair, or as you wrestle with the

pump as you try to sleep, just remember that this chemo is one of

the very best that you can get.

Don't focus on the side effects. They are tolerable. Focus on the

benefit, it's really worth it.

-joe-

> Hi Everyone:

> I will be starting chemo the week after next. It will be Folfox,

> i.e., Oxaliplatin, 5FU, Leucovorin every 2 weeks. Day one, I will

be

> in the office for about 4 hours; I will leave with a waist pack of

> 5FU for the next 2 days at home. Avastin will be added after the

> second or third round; it is too early to add it now as it will

stop

> my surgical wounds from healing.

> I am in need of answers with respect to side effects from

> Oxaliplatin. Most importantly, I understand that I cannot drink

> anything cold and cannot touch anything cold (as in the

refrigerator)

> without gloves. Has anyone experienced this sensitivity to cold

and

> this " choking " feeling when they drink something cold? If so,

please

> let me know how long this lasts; that is, do I have to drink room

> temperature beverages/water for only a few days or does this last

the

> entire time I am on chemo? Also, this must mean no more milk or

soy

> milk on cereal, right? What do you do to get enough hydration

while

> avoiding this side effect? Also, does this mean I cannot eat

yogurt,

> cottage cheese, fresh fruit, etc. from my refrigerator? Does

> everything have to be room temperature or more?

> Please let me know what to expect and whether I can expect to be

able

> to eat at all while on this chemo.

> Thanks so much and love to you all.

>

[Guest guest]

WELL Said JOE!!!!!!!!!!!!

> > Hi Everyone:

> > I will be starting chemo the week after next. It will be Folfox,

> > i.e., Oxaliplatin, 5FU, Leucovorin every 2 weeks. Day one, I

will

> be

> > in the office for about 4 hours; I will leave with a waist pack

of

> > 5FU for the next 2 days at home. Avastin will be added after the

> > second or third round; it is too early to add it now as it will

> stop

> > my surgical wounds from healing.

> > I am in need of answers with respect to side effects from

> > Oxaliplatin. Most importantly, I understand that I cannot drink

> > anything cold and cannot touch anything cold (as in the

> refrigerator)

> > without gloves. Has anyone experienced this sensitivity to cold

> and

> > this " choking " feeling when they drink something cold? If so,

> please

> > let me know how long this lasts; that is, do I have to drink room

> > temperature beverages/water for only a few days or does this last

> the

> > entire time I am on chemo? Also, this must mean no more milk or

> soy

> > milk on cereal, right? What do you do to get enough hydration

> while

> > avoiding this side effect? Also, does this mean I cannot eat

> yogurt,

> > cottage cheese, fresh fruit, etc. from my refrigerator? Does

> > everything have to be room temperature or more?

> > Please let me know what to expect and whether I can expect to be

> able

> > to eat at all while on this chemo.

> > Thanks so much and love to you all.

> >

[Guest guest]

WELL Said JOE!!!!!!!!!!!!

> > Hi Everyone:

> > I will be starting chemo the week after next. It will be Folfox,

> > i.e., Oxaliplatin, 5FU, Leucovorin every 2 weeks. Day one, I

will

> be

> > in the office for about 4 hours; I will leave with a waist pack

of

> > 5FU for the next 2 days at home. Avastin will be added after the

> > second or third round; it is too early to add it now as it will

> stop

> > my surgical wounds from healing.

> > I am in need of answers with respect to side effects from

> > Oxaliplatin. Most importantly, I understand that I cannot drink

> > anything cold and cannot touch anything cold (as in the

> refrigerator)

> > without gloves. Has anyone experienced this sensitivity to cold

> and

> > this " choking " feeling when they drink something cold? If so,

> please

> > let me know how long this lasts; that is, do I have to drink room

> > temperature beverages/water for only a few days or does this last

> the

> > entire time I am on chemo? Also, this must mean no more milk or

> soy

> > milk on cereal, right? What do you do to get enough hydration

> while

> > avoiding this side effect? Also, does this mean I cannot eat

> yogurt,

> > cottage cheese, fresh fruit, etc. from my refrigerator? Does

> > everything have to be room temperature or more?

> > Please let me know what to expect and whether I can expect to be

> able

> > to eat at all while on this chemo.

> > Thanks so much and love to you all.

> >

[Guest guest]

WELL Said JOE!!!!!!!!!!!!

> > Hi Everyone:

> > I will be starting chemo the week after next. It will be Folfox,

> > i.e., Oxaliplatin, 5FU, Leucovorin every 2 weeks. Day one, I

will

> be

> > in the office for about 4 hours; I will leave with a waist pack

of

> > 5FU for the next 2 days at home. Avastin will be added after the

> > second or third round; it is too early to add it now as it will

> stop

> > my surgical wounds from healing.

> > I am in need of answers with respect to side effects from

> > Oxaliplatin. Most importantly, I understand that I cannot drink

> > anything cold and cannot touch anything cold (as in the

> refrigerator)

> > without gloves. Has anyone experienced this sensitivity to cold

> and

> > this " choking " feeling when they drink something cold? If so,

> please

> > let me know how long this lasts; that is, do I have to drink room

> > temperature beverages/water for only a few days or does this last

> the

> > entire time I am on chemo? Also, this must mean no more milk or

> soy

> > milk on cereal, right? What do you do to get enough hydration

> while

> > avoiding this side effect? Also, does this mean I cannot eat

> yogurt,

> > cottage cheese, fresh fruit, etc. from my refrigerator? Does

> > everything have to be room temperature or more?

> > Please let me know what to expect and whether I can expect to be

> able

> > to eat at all while on this chemo.

> > Thanks so much and love to you all.

> >

[Guest guest]

My first chemo 2.5 years ago was oxiliplatin with the leucovorin etc.

I managed to have 9 months of chemo-free life with it. I couldn't eat

ice cream (the cold makes you hurt). The neuropathy has gone away with

walking.

I had lots of nausea and fatigue.I wish I had started acupuncture for

it then. It has helped me with subsequent treatments.

Good luck.

[Guest guest]

My first chemo 2.5 years ago was oxiliplatin with the leucovorin etc.

I managed to have 9 months of chemo-free life with it. I couldn't eat

ice cream (the cold makes you hurt). The neuropathy has gone away with

walking.

I had lots of nausea and fatigue.I wish I had started acupuncture for

it then. It has helped me with subsequent treatments.

Good luck.

[Guest guest]

My first chemo 2.5 years ago was oxiliplatin with the leucovorin etc.

I managed to have 9 months of chemo-free life with it. I couldn't eat

ice cream (the cold makes you hurt). The neuropathy has gone away with

walking.

I had lots of nausea and fatigue.I wish I had started acupuncture for

it then. It has helped me with subsequent treatments.

Good luck.

[Guest guest]

Then, again, it might be one of the pre-meds. I got Decadron to keep

my stomach from going crazy. One side effect was sleeplesness; the

other was relief of my arthritis pain. A mixed bag, but interesting.

I looked forward to the chemo sessions because I was able to walk so

well for two days following.

-joe-

>

>

> In a message dated 7/19/2005 10:35:17 PM Eastern Standard Time,

> daniel111@c... writes:

>

> Oh yeah, I forgot one other thing. She is having trouble

sleeping

> and I am sure that part of that, if not all, is due to the chemo.

>

> Dan

>

>

>

> Yes, I think you might be right on that Dan, but check as always

with Onc.

> Glenn also had trouble sleeping at night, but slept a lot during

the day...

> mostly on chemo weeks.

>

> Lots of hugs and prayers, Donelle

> Caregiver to Glenn

>

>

>

[Guest guest]

When I got so sick, my onc had me on the treatment every 3 weeks, not

every 2. Made a huge difference in my quality o' life.

[Guest guest]

When I got so sick, my onc had me on the treatment every 3 weeks, not

every 2. Made a huge difference in my quality o' life.

[Guest guest]

When I got so sick, my onc had me on the treatment every 3 weeks, not

every 2. Made a huge difference in my quality o' life.