Re: Sunny's Poem of today [1 Attachment]

[Guest guest]

Sunny, I loved your poem. And I love it's feisty attitude. I hope you write more. The talent is there. Jack79/IPF - UIP/dx06/05 Maine

To: Breathe-Support Sent: Tuesday, April 28, 2009 6:43:04 PMSubject: Re: Sunny's Poem of today [1 Attachment]

Barbara,

Here is a concise look at my new attitude. Hope you enjoy the attached poem I wrote today.

Sunny

From: Barbara McD

Sent: Tuesday, April 28, 2009 11:18 AM

To: Breathe-Support@ yahoogroups. com

Subject: Re: Sher

Sunny: How WONDERFUL to hear you with such a "can-do" attitude. And you can do it! Ain't God good?

B

Barbara McD

IPF, Sept 08

Beautiful Western NC

Let us not become weary in doing good, for at the proper time we will reap a harvest if we do not give up. Galatians 6:9

From: "rpickel1 (AT) msn (DOT) com" <rpickel1 (AT) msn (DOT) com>To: Breathe-Support@ yahoogroups. comSent: Tuesday, April 28, 2009 1:35:41 PMSubject: Re: Sher

To all Newbies: Here what you get on this site: Love, support, knowledge, understanding, caring, a kick in the butt if you need one, people who know exactly what you are going through. Today and everyday I will start my day thanking the Lord I found this site and the wonderful people who belong to it. Because of them I am no longer drowning in self-pity and recrimination but feel like I have started a new chapter in my life called "Take charge of and care of Sunny". No more guilt because I am sick. Not my fault! Love yourself, treat yourself as something precious and treasure each day. It gets better, even if not physically, emotionally.

Mama She, I do love you and your attitude. Not a lot of folks can get me thinking about what nonsense is going through my head but you did. You, along with Bruce, Beth and the others are the reason I went to the ER and in their words "It's a good thing you came in when you did." My body was in a very bad downward spiral. No, they did not give me any diagnoses other than severe impaction, vitamin deficiancy, etc.... They advised me to seek out my GI and Rheumy immediately. I have already made the appointments. We have insurance but it only pays 80% of ER plus there is $150 co-pay but hey like Bruce (I think) said they have to see me even if I don't have the money. Last night I just said "Sorry, can't pay today, can you please bill me." I was amazed at how easy going they were about it. Now I won't be so reluctant to go to the ER or run around trying to borrow the

money before I go. What a blessing! Today my body is still giving me fits but I would be dancing if I could. I feel like I have a second chance to get my medical problems straightened out; right this time. Giving up WAS not and NEVER is the answer! I am woman, hear me roar instead of whimper. Yes, I know there will still be days like that. Didn't mama say so? But thanks to ALL OF YOU I will go forward stronger. So, from my heart, thank you Sher, Jack, Bruce, Joyce, beth, Beverly and all the ones I can't bring to mind right now. Hugs back too all of you and pats on the back for your strength of character and heart.

Sunny, PF 09, CAN 09, etc..., Idaho

From: Sher Bauman

Sent: Tuesday, April 28, 2009 10:15 AM

To: Breathe-Support@ yahoogroups. com

Subject: Re: Sher

Sunny.... I am so relieved to find your post this morning saying you went to the ER! And I'm glad you're a 'little bit happy' too...

I do get the picture of the problems you were having...thus the urgency to go to ER.

Do you not have any insurance to cover hospitalization. ..especially under 'emergency admittance'?

I truly did not know (obviously) that Lupus makes it harder to get an IV in. Thanks for the information. My grmother/mother both had Lupus and they never mentioned it. Of course that was many years ago.

I get the same put-off. Our income is barely above poverty level but it's still too much to qualify for the help I need. I understand the battle between finance/needs. Each Govt program has it's own guidelines and most always we fall between the cracks.

I understand too about self esteem being tied into what we 'do'. I battled with that for about 3 years after I had to stop working....If I didn't work I thought I wasn't worth anything. Of course now I know that is just not true. For you either.

We have value, worth and dignity no matter what we do or don't do.

Truly, you and I are not the only ones who are living tight. There are others here on the board who have financial problems too.

So did you come home knowing what is causing what you are going through?

Your new resolutions sound just great.

Keep on keepin' on Sunny.

hugs

MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there!

Update after pulmo doc - hate to even call him a doctor

Hi Everyone,

Just got home from pulmo dude. Refused to let me do 24 hour oximeter! My O2 at night is dropping to 83% so will go on night oxygen. So anyway I don't have IPF any more. Now it's just PF because they found out why my lungs are scarring so badly and why I can't breathe. I have Chronic Aspiration Neuritis (spell incorrectly I am sure). I am aspirating so much stomach contents that it is and has been scarring my lungs badly that's why I am down to 40% capacity. Pulmo doc says there are only two treatments: Raglan (which I am extremely allergic too) or surgery. He has referred me to gastro guy for surgery which in his words "is very intense". Anyone ever had or know anyone who has had this type of surgery. My gastro dude isn't back until Monday and I really want to know if they are going through my abdomen. or throat or where? I am so upset. How can there be only

one drug to treat this? There are a hundred to treat everything else.. Normal stain of stomach oil in lungs is about 55. Mine was 142. Doc says without the surgery my lungs will continue to deteriorate and I will get worse and worse. Said the pain in my chest is esophageal spasm and it hurts like a very bad word but there is nothing he can do about it. That's gastro guy's department. Believe it or not pulmo doc said "I just diagnose this I don't treat it." Go see gastro guy and come back to me in 2 months. & *^ & **** & ^^%^ & **!!!!! And that's how I feel about all of it.

Sunny, PF '09 & whatever else could possibly be wrong with the human body, Idaho