THANKS

[Guest guest]

Glad you're feeling a bit better Angi. The other comment I got fed up with

was " oh I suppose you must be wanting a girl this time? " .....That really got

me mad. No, I wasn't going for a girl, I was having a baby. Yes, it would

have been easier to have a third boy just because that was what I was used

to, but I'd have been happy either way. It was just annoying that people

thought I was only going for number 3 in order to have a girl, including

MIL. Nobody said a word when son number 3 arrived! I have no idea what

they'll say if I do go for number 4.

The other thing I found incredibly annoying was near the end of the

pregnancy (although I think it's happened all three times) and people

(mainly childless) start saying from about 36 weeks onwards " Haven't you had

that baby yet? " .... It still winds me up to even think about it. Plus,

because I had them all at home, if anyone ever came to visit, then several

neighbours would phone up and say " Oooooh, is that a midwife visiting? " By

39 weeks I just wouldn't answer the phone!

Hannah

thanks

for all your congrats messages... I hadn't really been offended..

so no need for apologies,

I'm due the same time as , so coming up for almost 16 weeks

now, have been very sicky but its gone now. I'm excited and scared

silly about having 3 but as everyone says 2 to 3 is not as bad as 0

to1 or even 1 to 2, I'm not panicking!! What I am **really** fed up

with are the " oh was it planned? " reactions which I find rude &

intrusive, but I'm usually too nice to say!

Needless to say they come from single/childfree people on the whole,

or people with one small baby who can;t yet imagine that someone might

do it all again, let alone again..... (or again.....)

still... their problem:-))

_________________

Angi 0:-)

Georgi 3 3/4, Susy 2, Tim 34

[Guest guest]

LOL, Hannah - I've always had the " haven't you had that baby yet "

comment, too - last time I took to answering " yes, three weeks ago.

This is just a cushion " . Now, when people hear that I'd like another

I get a lot of " ANOTHER one!! " or " FOUR!! " or " God, you must be MAD! "

Still, at least I have both sexes, so I should be thankful for small

mercies - I won't get the " I suppose you're going for a... "

My favourite pg comment, though, was when DS (baby 2) was visible but

not yet enormous. I was coming home from work and standing at the bus

stop outside the station, and there was a lad in the queue in front of

me, who had obviously been celebrating the end of his GCSEs, and was

reeling somewhat. He propped himself against the bus shelter, stared

fixedly at my belly for about three minutes, then looked me in the

face and said in perfect Tim Nice But Dim " Gosh! Ish tharra *baby*

you've got in there?? "

I hope he hadn't been doing biology...

Vicki

>

> The other thing I found incredibly annoying was near the end of the

> pregnancy (although I think it's happened all three times) and

people

> (mainly childless) start saying from about 36 weeks onwards " Haven't

you had

> that baby yet? " ....

[Guest guest]

LOL, Hannah - I've always had the " haven't you had that baby yet "

comment, too - last time I took to answering " yes, three weeks ago.

This is just a cushion " . Now, when people hear that I'd like another

I get a lot of " ANOTHER one!! " or " FOUR!! " or " God, you must be MAD! "

Still, at least I have both sexes, so I should be thankful for small

mercies - I won't get the " I suppose you're going for a... "

My favourite pg comment, though, was when DS (baby 2) was visible but

not yet enormous. I was coming home from work and standing at the bus

stop outside the station, and there was a lad in the queue in front of

me, who had obviously been celebrating the end of his GCSEs, and was

reeling somewhat. He propped himself against the bus shelter, stared

fixedly at my belly for about three minutes, then looked me in the

face and said in perfect Tim Nice But Dim " Gosh! Ish tharra *baby*

you've got in there?? "

I hope he hadn't been doing biology...

Vicki

>

> The other thing I found incredibly annoying was near the end of the

> pregnancy (although I think it's happened all three times) and

people

> (mainly childless) start saying from about 36 weeks onwards " Haven't

you had

> that baby yet? " ....

[Guest guest]

<

>

I get this all the time at the moment and it is driving me CRAZY (well I get Oh

want a boy this time).. NO I don't want a boy I would like a healthy baby.. and

should there somehow magically be a way I could decide then I would prefer a

girl again. Would make life SO much easier for me (clothes would fit and dh's

worries about rooms would go away) People are just so amazed when I say no

hoping for another girl but a boy will be just as welcome.. but to me whenever

they suggests that I would like a boy that makes me feel like they don't think

my girls are " enough " and frankly I can't imagine anyone as perfect, sweet, cute

and wonderful (irritating messy and smudgy) as my 2 girls .. WHY on EARTH would

I want to change that??

Lonnie Phoebe & Eloisa's mama

& expecting a Christmas delivery...

My therapist told me the way to achieve true inner peace is to finish what you

start.

So far today, I have finished 2 bags of chips and a Chocolate cake.

I feel better already.

[Guest guest]

>I get this all the time at the moment and it is driving me CRAZY

(well I get Oh want a boy this >time).. NO I don't want a boy I would

like a healthy baby.. and should there somehow magically >be a way I

could decide then I would prefer a girl again. Would make life SO much

easier for >me (clothes would fit and dh's worries about rooms would

go away) People are just so >amazed when I say no hoping for another

girl but a boy will be just as welcome.. but to me >whenever they

suggests that I would like a boy that makes me feel like they don't

think my girls >are " enough " and frankly I can't imagine anyone as

perfect, sweet, cute and wonderful >.(irritating >messy and smudgy) as

my 2 girls .. WHY on EARTH would I want to change >that??

>Lonnie Phoebe & Eloisa's mama

OH Lonnie, I can **so** relate to this, I feel exactly the same:-)

for pretty much the same reasons!

I will be happy with whatever I get, but both DH and I would like

another girl,( which is not to say when I announce that I've had a boy

that you are all to be sorry for me, cos I will be happy!!)

Angi

[Guest guest]

>I get this all the time at the moment and it is driving me CRAZY

(well I get Oh want a boy this >time).. NO I don't want a boy I would

like a healthy baby.. and should there somehow magically >be a way I

could decide then I would prefer a girl again. Would make life SO much

easier for >me (clothes would fit and dh's worries about rooms would

go away) People are just so >amazed when I say no hoping for another

girl but a boy will be just as welcome.. but to me >whenever they

suggests that I would like a boy that makes me feel like they don't

think my girls >are " enough " and frankly I can't imagine anyone as

perfect, sweet, cute and wonderful >.(irritating >messy and smudgy) as

my 2 girls .. WHY on EARTH would I want to change >that??

>Lonnie Phoebe & Eloisa's mama

OH Lonnie, I can **so** relate to this, I feel exactly the same:-)

for pretty much the same reasons!

I will be happy with whatever I get, but both DH and I would like

another girl,( which is not to say when I announce that I've had a boy

that you are all to be sorry for me, cos I will be happy!!)

Angi

[Guest guest]

BTDT. With 3 boys, my second 2 pregnancies were littered with remarks along the

lines of " oh you must want a girl this time " . Why? Is my family incomplete or

dysfunctional if we don't have babies of both genders? I am one of 3 girls, so

it makes an interesting change being in a house of testosterone ;o)

And I wouldn't change my boys for the world, even if DS3 was blessed with blond

curls and a pretty face and I have to resist the urge to dress him in

pink.........

Alison

OH Lonnie, I can **so** relate to this, I feel exactly the same:-)

for pretty much the same reasons!

I will be happy with whatever I get, but both DH and I would like

another girl,( which is not to say when I announce that I've had a boy

that you are all to be sorry for me, cos I will be happy!!)

Angi

[Guest guest]

BTDT. With 3 boys, my second 2 pregnancies were littered with remarks along the

lines of " oh you must want a girl this time " . Why? Is my family incomplete or

dysfunctional if we don't have babies of both genders? I am one of 3 girls, so

it makes an interesting change being in a house of testosterone ;o)

And I wouldn't change my boys for the world, even if DS3 was blessed with blond

curls and a pretty face and I have to resist the urge to dress him in

pink.........

Alison

OH Lonnie, I can **so** relate to this, I feel exactly the same:-)

for pretty much the same reasons!

I will be happy with whatever I get, but both DH and I would like

another girl,( which is not to say when I announce that I've had a boy

that you are all to be sorry for me, cos I will be happy!!)

Angi

[Guest guest]

BTDT. With 3 boys, my second 2 pregnancies were littered with remarks along the

lines of " oh you must want a girl this time " . Why? Is my family incomplete or

dysfunctional if we don't have babies of both genders? I am one of 3 girls, so

it makes an interesting change being in a house of testosterone ;o)

And I wouldn't change my boys for the world, even if DS3 was blessed with blond

curls and a pretty face and I have to resist the urge to dress him in

pink.........

Alison

OH Lonnie, I can **so** relate to this, I feel exactly the same:-)

for pretty much the same reasons!

I will be happy with whatever I get, but both DH and I would like

another girl,( which is not to say when I announce that I've had a boy

that you are all to be sorry for me, cos I will be happy!!)

Angi

[Guest guest]

& Ben,

I take percocet for pain which usually helps. When it doesn't I get

demerol or morphine in the ER but demerol usually 50-75mg every 4

hours when hospitalized. You just need to try different meds to see

what works for you.

N'Awlins Gal-

-- In pancreatitis@y..., " lungsforben " wrote:

> Ben and I want to thank all of you who have given us some great

information and a lot of research.I am sure I can find something we

can use.I am also wondering if you all are not using Morphine for the

pain(if you do not mind telling us)what kinds of pain medication are

you using for the pain?Ben does not want to be on Morphine and if we

can find something to manage his pain besides Morphine then great we

want to know what it is so we can present it to his doctors and see

if Ben can find something to help him.Please let us know.Thank

You, & Ben Terry

[Guest guest]

& Ben,

I take percocet for pain which usually helps. When it doesn't I get

demerol or morphine in the ER but demerol usually 50-75mg every 4

hours when hospitalized. You just need to try different meds to see

what works for you.

N'Awlins Gal-

-- In pancreatitis@y..., " lungsforben " wrote:

> Ben and I want to thank all of you who have given us some great

information and a lot of research.I am sure I can find something we

can use.I am also wondering if you all are not using Morphine for the

pain(if you do not mind telling us)what kinds of pain medication are

you using for the pain?Ben does not want to be on Morphine and if we

can find something to manage his pain besides Morphine then great we

want to know what it is so we can present it to his doctors and see

if Ben can find something to help him.Please let us know.Thank

You, & Ben Terry

[Guest guest]

& Ben,

I take percocet for pain which usually helps. When it doesn't I get

demerol or morphine in the ER but demerol usually 50-75mg every 4

hours when hospitalized. You just need to try different meds to see

what works for you.

N'Awlins Gal-

-- In pancreatitis@y..., " lungsforben " wrote:

> Ben and I want to thank all of you who have given us some great

information and a lot of research.I am sure I can find something we

can use.I am also wondering if you all are not using Morphine for the

pain(if you do not mind telling us)what kinds of pain medication are

you using for the pain?Ben does not want to be on Morphine and if we

can find something to manage his pain besides Morphine then great we

want to know what it is so we can present it to his doctors and see

if Ben can find something to help him.Please let us know.Thank

You, & Ben Terry

[Guest guest]

,

I know your mom will get better care at Rapides...I have a couple of

friends who work there. I hope she is feeling better and remember

y'all are in my prayers. If there isn't a Dr there who has a good

deal of knowledge of cp...I know it's a road trip but Dr.

at Oschner is the top expert in the state of Louisiana. I see Dr.

Meyers at East Jefferson and he's been my student through all

of this. Hopefully he has learned well enough as his group has

diagnosed 5 more patients with cp in the past 2 months. I'll check on

GI's that are pancreatic specialists or at least have treated it

enough to know what's going on that are in your area.

Peace,

N'Awlins Gal

> Thank you Karyn, Heidi and for the info!

> We are moving my mom to a better hospital that has a GI clinic next

> door. She is still on antibiotics and her temp shoots up to 101

> about 4-5 times a day. The current doctor says that her pancreas

is

> not infected, but gives no explanation for the fever and white

blood

> cell count being elevated. She is on Demerol for the pain, but

seems

> to be asking for it a little less. Her pain is in her abdomen and

> back, and her stomach looks a tad swollen. Things should look

better

> soon. The GI doc will help a bunch I am sure - her current doc is

a

> surgeon and I really think he is lost on this but does not want to

> admit to it. Thanks to all of the postings on here and the links

> provided I am learning more and more on Pancreatitis. I will post

> again this week when I get actual answers from the new doc. Thanks

> Again Everyone!

>

> Oh yeah, I live in Louisiana. She has been in Avoyelles Hospital,

> but will be moving to Rapides Regional Medical Center (the

difference

> is like night and day lol).

[Guest guest]

,

I know your mom will get better care at Rapides...I have a couple of

friends who work there. I hope she is feeling better and remember

y'all are in my prayers. If there isn't a Dr there who has a good

deal of knowledge of cp...I know it's a road trip but Dr.

at Oschner is the top expert in the state of Louisiana. I see Dr.

Meyers at East Jefferson and he's been my student through all

of this. Hopefully he has learned well enough as his group has

diagnosed 5 more patients with cp in the past 2 months. I'll check on

GI's that are pancreatic specialists or at least have treated it

enough to know what's going on that are in your area.

Peace,

N'Awlins Gal

> Thank you Karyn, Heidi and for the info!

> We are moving my mom to a better hospital that has a GI clinic next

> door. She is still on antibiotics and her temp shoots up to 101

> about 4-5 times a day. The current doctor says that her pancreas

is

> not infected, but gives no explanation for the fever and white

blood

> cell count being elevated. She is on Demerol for the pain, but

seems

> to be asking for it a little less. Her pain is in her abdomen and

> back, and her stomach looks a tad swollen. Things should look

better

> soon. The GI doc will help a bunch I am sure - her current doc is

a

> surgeon and I really think he is lost on this but does not want to

> admit to it. Thanks to all of the postings on here and the links

> provided I am learning more and more on Pancreatitis. I will post

> again this week when I get actual answers from the new doc. Thanks

> Again Everyone!

>

> Oh yeah, I live in Louisiana. She has been in Avoyelles Hospital,

> but will be moving to Rapides Regional Medical Center (the

difference

> is like night and day lol).

[Guest guest]

,

I know your mom will get better care at Rapides...I have a couple of

friends who work there. I hope she is feeling better and remember

y'all are in my prayers. If there isn't a Dr there who has a good

deal of knowledge of cp...I know it's a road trip but Dr.

at Oschner is the top expert in the state of Louisiana. I see Dr.

Meyers at East Jefferson and he's been my student through all

of this. Hopefully he has learned well enough as his group has

diagnosed 5 more patients with cp in the past 2 months. I'll check on

GI's that are pancreatic specialists or at least have treated it

enough to know what's going on that are in your area.

Peace,

N'Awlins Gal

> Thank you Karyn, Heidi and for the info!

> We are moving my mom to a better hospital that has a GI clinic next

> door. She is still on antibiotics and her temp shoots up to 101

> about 4-5 times a day. The current doctor says that her pancreas

is

> not infected, but gives no explanation for the fever and white

blood

> cell count being elevated. She is on Demerol for the pain, but

seems

> to be asking for it a little less. Her pain is in her abdomen and

> back, and her stomach looks a tad swollen. Things should look

better

> soon. The GI doc will help a bunch I am sure - her current doc is

a

> surgeon and I really think he is lost on this but does not want to

> admit to it. Thanks to all of the postings on here and the links

> provided I am learning more and more on Pancreatitis. I will post

> again this week when I get actual answers from the new doc. Thanks

> Again Everyone!

>

> Oh yeah, I live in Louisiana. She has been in Avoyelles Hospital,

> but will be moving to Rapides Regional Medical Center (the

difference

> is like night and day lol).

[Guest guest]

My surgery was on a Thursday and lasted 3 1/2 hours and I was in ICU for 1

day then begged to be moved to a private room - I had trouble with noise and

lights for 2 days. On the 3rd day I could stand to listen to music or tv for

short periods of time. I went home on Monday Evening. The worst problem I had

was dizziness and falling for the first 2 weeks - but if I moved slow I was

okay. After sugery the pain in the neck is the worst - because they spread

apart the muscles to get to your brain. I followed the advice of the doctor

and took the pain meds and muscle relaxers. I went back to work full-time

after 4 weeks. I have a " desk " job but spend alot of time on my feet going

around my work place. I work for a Village and hold several positions - one

of which is Network Administrator - so there is the bend over and look at the

lights on the back of the pc on the floor in the corner routines. I kept that

to a minimum.

My life today us so much better. I am more active and happier since I had the

surgery and would do it again. The only thing I wouldn't do is have 2

surgeries so close together (Decompressed 6/28/01 - Cervical Fusion 2/19/02).

Lorene

ACM 1 - 10mm

>

> I just wanted to thank everyone for all of the helpful information

> that B and I got from our questions. We are going for a second opinion.

> I have some more questions. How long is the surgery?

>

> How long is recovery from it? We live in North Carolina. We are

> concerned about what kind of work B can do in the future? His current

> job is very physical.

>

> Does anyone ever have a raised temp and then it drops and they are cold?

> What causes the short term memory loss? B has been out of work for

> over a month now and he is beside himself.

>

> What do some of you do for a living and how has it changed since you

> were diagnosed and treated?

>

> Thanks to all, M &B

[Guest guest]

My surgery was on a Thursday and lasted 3 1/2 hours and I was in ICU for 1

day then begged to be moved to a private room - I had trouble with noise and

lights for 2 days. On the 3rd day I could stand to listen to music or tv for

short periods of time. I went home on Monday Evening. The worst problem I had

was dizziness and falling for the first 2 weeks - but if I moved slow I was

okay. After sugery the pain in the neck is the worst - because they spread

apart the muscles to get to your brain. I followed the advice of the doctor

and took the pain meds and muscle relaxers. I went back to work full-time

after 4 weeks. I have a " desk " job but spend alot of time on my feet going

around my work place. I work for a Village and hold several positions - one

of which is Network Administrator - so there is the bend over and look at the

lights on the back of the pc on the floor in the corner routines. I kept that

to a minimum.

My life today us so much better. I am more active and happier since I had the

surgery and would do it again. The only thing I wouldn't do is have 2

surgeries so close together (Decompressed 6/28/01 - Cervical Fusion 2/19/02).

Lorene

ACM 1 - 10mm

>

> I just wanted to thank everyone for all of the helpful information

> that B and I got from our questions. We are going for a second opinion.

> I have some more questions. How long is the surgery?

>

> How long is recovery from it? We live in North Carolina. We are

> concerned about what kind of work B can do in the future? His current

> job is very physical.

>

> Does anyone ever have a raised temp and then it drops and they are cold?

> What causes the short term memory loss? B has been out of work for

> over a month now and he is beside himself.

>

> What do some of you do for a living and how has it changed since you

> were diagnosed and treated?

>

> Thanks to all, M &B

[Guest guest]

My surgery was on a Thursday and lasted 3 1/2 hours and I was in ICU for 1

day then begged to be moved to a private room - I had trouble with noise and

lights for 2 days. On the 3rd day I could stand to listen to music or tv for

short periods of time. I went home on Monday Evening. The worst problem I had

was dizziness and falling for the first 2 weeks - but if I moved slow I was

okay. After sugery the pain in the neck is the worst - because they spread

apart the muscles to get to your brain. I followed the advice of the doctor

and took the pain meds and muscle relaxers. I went back to work full-time

after 4 weeks. I have a " desk " job but spend alot of time on my feet going

around my work place. I work for a Village and hold several positions - one

of which is Network Administrator - so there is the bend over and look at the

lights on the back of the pc on the floor in the corner routines. I kept that

to a minimum.

My life today us so much better. I am more active and happier since I had the

surgery and would do it again. The only thing I wouldn't do is have 2

surgeries so close together (Decompressed 6/28/01 - Cervical Fusion 2/19/02).

Lorene

ACM 1 - 10mm

>

> I just wanted to thank everyone for all of the helpful information

> that B and I got from our questions. We are going for a second opinion.

> I have some more questions. How long is the surgery?

>

> How long is recovery from it? We live in North Carolina. We are

> concerned about what kind of work B can do in the future? His current

> job is very physical.

>

> Does anyone ever have a raised temp and then it drops and they are cold?

> What causes the short term memory loss? B has been out of work for

> over a month now and he is beside himself.

>

> What do some of you do for a living and how has it changed since you

> were diagnosed and treated?

>

> Thanks to all, M &B

[Guest guest]

-----Original Message-----

At night while I am trying to sleep my leg gets these weird sensations

and I jump or my leg does involuntarily it does it repeatedly at times

and my husband has actually went to the couch a couple of times. It is

annoying but I cant stop it. Thank you all again.

--------------------------

That sounds like classic restless leg syndrome. It's a fairly common

sleep disorder, more common in women than men, and it's treatable. You

will need to have a sleep study done to confirm it. RLS disrupts your

sleep and the lack of quality sleep can cause problems during the day,

fatigue, inablility to concentrate, memory loss etc.

There's lots of info about RLS online you can find using www.google.com

Beth in Australia

No official Chiari Diagnosis yet, no surgery

My Chiari Story & View my MRI scans

http://talhost.net/health.html

[Guest guest]

-----Original Message-----

At night while I am trying to sleep my leg gets these weird sensations

and I jump or my leg does involuntarily it does it repeatedly at times

and my husband has actually went to the couch a couple of times. It is

annoying but I cant stop it. Thank you all again.

--------------------------

That sounds like classic restless leg syndrome. It's a fairly common

sleep disorder, more common in women than men, and it's treatable. You

will need to have a sleep study done to confirm it. RLS disrupts your

sleep and the lack of quality sleep can cause problems during the day,

fatigue, inablility to concentrate, memory loss etc.

There's lots of info about RLS online you can find using www.google.com

Beth in Australia

No official Chiari Diagnosis yet, no surgery

My Chiari Story & View my MRI scans

http://talhost.net/health.html

[Guest guest]

-----Original Message-----

At night while I am trying to sleep my leg gets these weird sensations

and I jump or my leg does involuntarily it does it repeatedly at times

and my husband has actually went to the couch a couple of times. It is

annoying but I cant stop it. Thank you all again.

--------------------------

That sounds like classic restless leg syndrome. It's a fairly common

sleep disorder, more common in women than men, and it's treatable. You

will need to have a sleep study done to confirm it. RLS disrupts your

sleep and the lack of quality sleep can cause problems during the day,

fatigue, inablility to concentrate, memory loss etc.

There's lots of info about RLS online you can find using www.google.com

Beth in Australia

No official Chiari Diagnosis yet, no surgery

My Chiari Story & View my MRI scans

http://talhost.net/health.html

[Guest guest]

Geraldine,

Welcome to the group. I visited the caringbridge website you setup and am willing to copy any updates you post to the support group if you give me permission. I suspect you could be a little premature at setting up a site already. PSC can be a very slow moving disease. I was diagnosed in 1989 and nearly 20 years later still do not need a transplant or have many symptoms.

Ian (52) PSC 89

Hello Kathy & Tom,

I just joined the group a few days ago and I thank you both for the update everyday. Its a good feeling to hear good news. I was really praying that Tom would get home for Christmas, and sure he did.

I was diagnosed with PSC 3 years ago, and so far I have been feeling good. But my doctor says I am not good. I need to have an ERCP done and I have gallstones and my liver has deteriorated quite a bit over the last year.

He is now setting me up with the transplant doctors here in Portland Oregon and I am a little scared, and I have fear of the unknown, but following your updates has helped me.

Thanks again and have a great Christmas.

Geraldine

To: < >

Sent: Tuesday, December 23, 2008 8:20:47 PMSubject: Update from Kathy re: Tom - TUESDAY, DECEMBER 23, 2008 08:50 PM, CST

Great news! Tom got out of the hospital this evening! Yes, I'm as surprised as everyone else, but what a great Christmas gift. He was having a really bad day, and he hadn't seen any of the transplant team doctors in several days, so he called me in a frustrated state. I called the hospital and requested that one of the team doctors pay a visit. When he witnessed Tom's progress the doctor was not happy that Tom hadn't been released already. Larry was also released this afternoon. What a happy day! Now I just need to figure out how to keep Tom compliant with all the doctor's orders...he's really good about things like taking his medications, but not so good about drinking his Gatorade. I need to come up with some good threats!

I need to run out to the store to pick up a few things we need at home as Tom recovers. I'm sure he'll post on this site tomorrow. In the meantime prayers of thanksgiving are definitely in order.Kathy

To send a message to Tom, Kathy and family goto;

http://www.caringbr idge.org/ visit/thomasbutl er

-- Ian Cribb P.Eng.

[Guest guest]

Geraldine,

Welcome to the group. I visited the caringbridge website you setup and am willing to copy any updates you post to the support group if you give me permission. I suspect you could be a little premature at setting up a site already. PSC can be a very slow moving disease. I was diagnosed in 1989 and nearly 20 years later still do not need a transplant or have many symptoms.

Ian (52) PSC 89

Hello Kathy & Tom,

I just joined the group a few days ago and I thank you both for the update everyday. Its a good feeling to hear good news. I was really praying that Tom would get home for Christmas, and sure he did.

I was diagnosed with PSC 3 years ago, and so far I have been feeling good. But my doctor says I am not good. I need to have an ERCP done and I have gallstones and my liver has deteriorated quite a bit over the last year.

He is now setting me up with the transplant doctors here in Portland Oregon and I am a little scared, and I have fear of the unknown, but following your updates has helped me.

Thanks again and have a great Christmas.

Geraldine

To: < >

Sent: Tuesday, December 23, 2008 8:20:47 PMSubject: Update from Kathy re: Tom - TUESDAY, DECEMBER 23, 2008 08:50 PM, CST

Great news! Tom got out of the hospital this evening! Yes, I'm as surprised as everyone else, but what a great Christmas gift. He was having a really bad day, and he hadn't seen any of the transplant team doctors in several days, so he called me in a frustrated state. I called the hospital and requested that one of the team doctors pay a visit. When he witnessed Tom's progress the doctor was not happy that Tom hadn't been released already. Larry was also released this afternoon. What a happy day! Now I just need to figure out how to keep Tom compliant with all the doctor's orders...he's really good about things like taking his medications, but not so good about drinking his Gatorade. I need to come up with some good threats!

I need to run out to the store to pick up a few things we need at home as Tom recovers. I'm sure he'll post on this site tomorrow. In the meantime prayers of thanksgiving are definitely in order.Kathy

To send a message to Tom, Kathy and family goto;

http://www.caringbr idge.org/ visit/thomasbutl er

-- Ian Cribb P.Eng.

[Guest guest]

Geraldine,

Welcome to the group. I visited the caringbridge website you setup and am willing to copy any updates you post to the support group if you give me permission. I suspect you could be a little premature at setting up a site already. PSC can be a very slow moving disease. I was diagnosed in 1989 and nearly 20 years later still do not need a transplant or have many symptoms.

Ian (52) PSC 89

Hello Kathy & Tom,

I just joined the group a few days ago and I thank you both for the update everyday. Its a good feeling to hear good news. I was really praying that Tom would get home for Christmas, and sure he did.

I was diagnosed with PSC 3 years ago, and so far I have been feeling good. But my doctor says I am not good. I need to have an ERCP done and I have gallstones and my liver has deteriorated quite a bit over the last year.

He is now setting me up with the transplant doctors here in Portland Oregon and I am a little scared, and I have fear of the unknown, but following your updates has helped me.

Thanks again and have a great Christmas.

Geraldine

To: < >

Sent: Tuesday, December 23, 2008 8:20:47 PMSubject: Update from Kathy re: Tom - TUESDAY, DECEMBER 23, 2008 08:50 PM, CST

Great news! Tom got out of the hospital this evening! Yes, I'm as surprised as everyone else, but what a great Christmas gift. He was having a really bad day, and he hadn't seen any of the transplant team doctors in several days, so he called me in a frustrated state. I called the hospital and requested that one of the team doctors pay a visit. When he witnessed Tom's progress the doctor was not happy that Tom hadn't been released already. Larry was also released this afternoon. What a happy day! Now I just need to figure out how to keep Tom compliant with all the doctor's orders...he's really good about things like taking his medications, but not so good about drinking his Gatorade. I need to come up with some good threats!

I need to run out to the store to pick up a few things we need at home as Tom recovers. I'm sure he'll post on this site tomorrow. In the meantime prayers of thanksgiving are definitely in order.Kathy

To send a message to Tom, Kathy and family goto;

http://www.caringbr idge.org/ visit/thomasbutl er

-- Ian Cribb P.Eng.

[Guest guest]

Geraldine,

Interesting...I have my 2nd ERSP (with a Ultra Sound) on the 26th...They said that it will have all my answers I need to go futrue with my PSC...Good luck to both of us after the 26th and Happy New Year!

Don,

San Clemente, Ca

To: Sent: Saturday, January 3, 2009 2:22:58 PMSubject: Thanks

Hello Ian,

Thank you for your response. Any help that I can get is appreciated. The main reason I did this site was for my friends and family to read. All my family are from Ireland and this will make it easy for them.

I really do hope that I am a long way off from a transplant, but according to my doctor that is not the case. I will know more on the 26th of this month.

I am so happy to hear that you have not had any symptoms for such a long time, may it continue.

Hope you are having a nice day

Thanks

Geraldine

From: Ian Cribb <icribb (AT) gmail (DOT) com>To: @ yahoogroups. comSent: Saturday, January 3, 2009 9:51:19 AMSubject: Re: Thanks

Geraldine,

Welcome to the group. I visited the caringbridge website you setup and am willing to copy any updates you post to the support group if you give me permission. I suspect you could be a little premature at setting up a site already. PSC can be a very slow moving disease. I was diagnosed in 1989 and nearly 20 years later still do not need a transplant or have many symptoms.

Ian (52) PSC 89

On 12/23/08, Geraldine & Newell <move2portland@ yahoo.com> wrote:

Hello Kathy & Tom,

I just joined the group a few days ago and I thank you both for the update everyday. Its a good feeling to hear good news. I was really praying that Tom would get home for Christmas, and sure he did.

I was diagnosed with PSC 3 years ago, and so far I have been feeling good. But my doctor says I am not good. I need to have an ERCP done and I have gallstones and my liver has deteriorated quite a bit over the last year.

He is now setting me up with the transplant doctors here in Portland Oregon and I am a little scared, and I have fear of the unknown, but following your updates has helped me.

Thanks again and have a great Christmas.

Geraldine

From: Ian Cribb <icribb (AT) gmail (DOT) com>To: <@ yahoogroups. com>Sent: Tuesday, December 23, 2008 8:20:47 PMSubject: Update from Kathy re: Tom - TUESDAY, DECEMBER 23, 2008 08:50 PM, CST

Great news! Tom got out of the hospital this evening! Yes, I'm as surprised as everyone else, but what a great Christmas gift. He was having a really bad day, and he hadn't seen any of the transplant team doctors in several days, so he called me in a frustrated state. I called the hospital and requested that one of the team doctors pay a visit. When he witnessed Tom's progress the doctor was not happy that Tom hadn't been released already. Larry was also released this afternoon. What a happy day! Now I just need to figure out how to keep Tom compliant with all the doctor's orders...he' s really good about things like taking his medications, but not so good about drinking his Gatorade. I need to come up with some good threats!I need to run out to the store to pick up a few things we need at home as Tom recovers. I'm sure he'll post on this site tomorrow. In the meantime prayers of thanksgiving are definitely in

order.Kathy

To send a message to Tom, Kathy and family goto;

http://www.caringbr idge.org/ visit/thomasbutl er

-- Ian Cribb P.Eng.