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LOL  we will certainly miss you. Maybe will sneak you in on us..??? huh maybe maybe??  It would be great to meet her too.  Love & Prayers, PeggyFlorida,  IPF/UIP 2004"I believe that friends are quiet angels who lift us to our feet, when our wings have trouble remembering how to fly."  You do know that countdown is just torturing me don't you? Oh next timethere's a chance I'm going to make you pay.....double hugs.>> I'll see sweet faces in 4 count'em 4 days..> I wish everyone could come. We will be posting pictures..>>> Love & Prayers, Peggy> Florida, IPF/UIP 2004>> "I believe that friends are quiet angels who lift us to our feet,> when our wings have trouble remembering how to fly.">>> >

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LOL  we will certainly miss you. Maybe will sneak you in on us..??? huh maybe maybe??  It would be great to meet her too.  Love & Prayers, PeggyFlorida,  IPF/UIP 2004"I believe that friends are quiet angels who lift us to our feet, when our wings have trouble remembering how to fly."  You do know that countdown is just torturing me don't you? Oh next timethere's a chance I'm going to make you pay.....double hugs.>> I'll see sweet faces in 4 count'em 4 days..> I wish everyone could come. We will be posting pictures..>>> Love & Prayers, Peggy> Florida, IPF/UIP 2004>> "I believe that friends are quiet angels who lift us to our feet,> when our wings have trouble remembering how to fly.">>> >

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  • 3 weeks later...
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Dear Princess,

I am so sorry you are down in heart and body. Oceans of prayers are being sent your way. Traveling always takes a lot out of us, not to mention the emotional letdown when it is all over. You rest, rest, rest, let pamper you and get better quick. We need you perky and peppy. After all, who is going to supply us with all the hugs? You are always in my prayers and always in my heart. I love you-

R. (53) Sarcoid/PF 3/2006 Carlsbad, California

Subject: To: Breathe-Support Date: Friday, March 27, 2009, 4:35 PM

Hi everyone, My fever has broken again. I am on antibiotics so all is looking good.

I think I need to tell y'all I don't hate going to the Dr. but I do think what is the advantage of it

when we get this far along. I do stay in contact with my Dr. and her PA.

Any sigh of a problem I call or e-mail them and always get a reply within a short time.

So Thank you all for your prayers and concern. I'll keep ya posted.

Welcome to all the newbies. I'll catch up later when I am feeling better.

Love & Prayers, Peggy

Florida, IPF/UIP 2004

"I believe that friends are quiet angels who lift us to our feet,

when our wings have trouble remembering how to fly."

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Dear Princess,

I am so sorry you are down in heart and body. Oceans of prayers are being sent your way. Traveling always takes a lot out of us, not to mention the emotional letdown when it is all over. You rest, rest, rest, let pamper you and get better quick. We need you perky and peppy. After all, who is going to supply us with all the hugs? You are always in my prayers and always in my heart. I love you-

R. (53) Sarcoid/PF 3/2006 Carlsbad, California

Subject: To: Breathe-Support Date: Friday, March 27, 2009, 4:35 PM

Hi everyone, My fever has broken again. I am on antibiotics so all is looking good.

I think I need to tell y'all I don't hate going to the Dr. but I do think what is the advantage of it

when we get this far along. I do stay in contact with my Dr. and her PA.

Any sigh of a problem I call or e-mail them and always get a reply within a short time.

So Thank you all for your prayers and concern. I'll keep ya posted.

Welcome to all the newbies. I'll catch up later when I am feeling better.

Love & Prayers, Peggy

Florida, IPF/UIP 2004

"I believe that friends are quiet angels who lift us to our feet,

when our wings have trouble remembering how to fly."

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Dear Princess it sounds as though you need a right ROYAL MASK to help you get your O2 delivered into your system..... can your supplier send you one pronto?????

I do hope you're feeling better soon... I read your Post about your sadness at losing the Retirement you & had planned together...it IS sad....rotten isn't it, how life takes unexpected turns.....but HEY..... your WHOLE life hasn't been ruined..... remember BEFORE the PF came upon you.... & now ask yourself how the bond between you & has changed, maybe deepened due to the changed circumstances.

Your Daughter Theresa is clearly a great mate, beside you all the way... you two must have such a good understanding of each other ... that doesn't always get to be the way it is with mothers & daughters !

Life works in mysterious ways... we have to face our sense of loss & disappointments & find the humanity in how we continue with our changed way of being.

Gosh..... listen to Scilly being all serious... SORRY... I'll stop the Pollyanna Carry-on...

You are one heckova gal HRH.... I really appreciate YOU!

lotsa,

GIO

> >> > From: Peggy pac1773@> > Subject: > > To: Breathe-Support > > Date: Friday, March 27, 2009, 4:35 PM> >> >> > Hi everyone, My fever has broken again. I am on antibiotics so all > is looking good.> > I think I need to tell y'all I don't hate going to the Dr. but I > do think what is the advantage of it> > when we get this far along. I do stay in contact with my Dr. and > her PA.> > Any sigh of a problem I call or e-mail them and always get a reply > within a short time.> >> >> > So Thank you all for your prayers and concern. I'll keep ya posted.> > Welcome to all the newbies. I'll catch up later when I am feeling > better.> >> >> >> >> >> >> >> > Love & Prayers, Peggy> > Florida, IPF/UIP 2004> >> >> > "I believe that friends are quiet angels who lift us to our feet,> > when our wings have trouble remembering how to fly."> >>

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  • 3 weeks later...
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HEY YOU.. 1773  I know my face could use a little ironing but that is a few centuries to many.. lol Love & Prayers, PeggyFlorida,  IPF/UIP 2004"I believe that friends are quiet angels who lift us to our feet, when our wings have trouble remembering how to fly."  PeggyWell, we got Verizon Fios installed late yesterday and it is reallyreally fast plus 257 channels of tv or so for .I like Peggybreathing or anything else that makes sense to you. I likedpac1773....figured that was your initials and birthdate. (that commentshould get her attention).>> Good Morning Air Family, Well today we begin the process of changing> out TV, cable and internet so I have no idea what> is going to happen with my e-mail or whatever. I don't think my new> modem will be here until tomorrow.> Anyhoooo I will need a new address and am tired of the pac1773--> anyone got any ideas-- don't be a smarty.. lol> I am thinking about peggybreathing @ whatever it will be.. hows> that ??? Any better ideas ??> Where is Bruce when I need him?? Oh well. we'll see. If I have a> problem I'll call MB and she will post.> I just know you all will miss my words of wisdom.. lol>>> Love & Prayers, Peggy> Florida, IPF/UIP 2004>> "I believe that friends are quiet angels who lift us to our feet,> when our wings have trouble remembering how to fly.">>> >

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Peggy

Just making sure you're paying attention. That would just make you 235

or 236 years old. I was going to comment on how you didn't even look a

fourth of your age.

So you're changing or not changing or changing or not changing or one or

the other again or again.

> >

> > Good Morning Air Family, Well today we begin the process of

changing

> > out TV, cable and internet so I have no idea what

> > is going to happen with my e-mail or whatever. I don't think my new

> > modem will be here until tomorrow.

> > Anyhoooo I will need a new address and am tired of the pac1773--

> > anyone got any ideas-- don't be a smarty.. lol

> > I am thinking about peggybreathing @ whatever it will be.. hows

> > that ??? Any better ideas ??

> > Where is Bruce when I need him?? Oh well. we'll see. If I have a

> > problem I'll call MB and she will post.

> > I just know you all will miss my words of wisdom.. lol

> >

> >

> > Love & Prayers, Peggy

> > Florida, IPF/UIP 2004

> >

> > " I believe that friends are quiet angels who lift us to our feet,

> > when our wings have trouble remembering how to fly. "

> >

> >

> > 

> >

>

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  • 1 month later...
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I am so sorry you are still feeling poorly. I know the visit with your

girlfriends will make you feel better. Have a great time. I'm sending hugs and

prayers to you to.

IPF 2/07 IL

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  • 3 weeks later...
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Have to agree with Jim. I have been wanting to come off prednisone for so long..

Been on 20 mg since diagnosed. July '06. In Feb'09, got the doc at temple to

agree to decrease it. Made it a few days only decreasing by 5mg then was to

decrease another 5mg.. well, prednisone has become my lifeline and sadly alot of

adverse effects come with being able to function.. Look into all your options..

Patti Friend, CH,NJ, ipf 7'06,scleroderma, raynauds'87, Pulm HTN 2'07

>

> I've been on Pred. for 7 mos and it helped me a great deal. However,

> my MD did mention that I was the exception rather then the rule. The

> side affects are pretty rough, swelling, abdominal cramps, weight gain

> etc. So, I would check into it first before refusing it. I had

> experienced some of the side affects, not all but it is tough to take.

>

> Jim

>

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