Guest guest Posted August 5, 2002 Report Share Posted August 5, 2002 In a message dated 08/05/2002 7:17:42 PM Pacific Daylight Time, laughingbear@... writes: > > Hi I am new to the list .I have really bad leg cramps and nothing seems to > help them. They are there all day, but at night in bed is when they really > come hard and quick. Does anyone know of things that help get rid of them. > I take calcium and magnesium, walk four > times a day, take soma at bed time. Nothing is making a dent in the cramps > and pain. > > Age: 57 > > Male/female: Female > > What are the symptoms? leg pain, can't stand in one place more then a > couple of minutes. Have trouble walking very far and can't stay seated for > very long and still walk. Pain in other parts of body. Points all painful. > > Has you illness been diagnosed? Yes > > How long did you suffer before you got help? About six years. > > Is there a time that you can remember when it started? Yes after a flue > bug hit I was unable to walk very far at all. That was the first real alarm > signal. > > Some of us have found lack of exercise we are overweight. Have you found > this to be a problem also? Am overweight have been for all of adult life. > Only been a physical problem with the onset of fibro. > > Are you on disability? Yes > > If you are any pointers for others trying to get on disability? Just keep > appealing. If can get state aid to say yes you have fibro it helps. > > What have you found that helps ease the pain, warm baths, medications etc.? > Rest, soma for cramps . Not really anything but learning your body and > trying not to overdo anything. > > Do you have sleep problems? How do you deal with it? Yes. I don't deal > with it I need help in this area. > > Do you have family that understands your illness? No both daughters don't > want to acknowledge their mom is sick. > > Some have found certain foods causes problems with CFS or Fibro, have you? > I have food allergies like wheat, night shade family that when don't go > near I feel better. But I haven't found anything that triggers fibro flare. > > What type of Doctor have you found that has helped you the most? One who is > willing to listen is my current Dr. but he has no real handle on fibro. I > am still looking for a Dr. who really has a clue on fibro. It's frustrating > and I feel so hopeless. I mean I have to > do research and then I have to convince my Dr. to go with a certain > treatment. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 5, 2002 Report Share Posted August 5, 2002 In a message dated 08/05/2002 7:17:42 PM Pacific Daylight Time, laughingbear@... writes: > > Hi I am new to the list .I have really bad leg cramps and nothing seems to > help them. They are there all day, but at night in bed is when they really > come hard and quick. Does anyone know of things that help get rid of them. > I take calcium and magnesium, walk four > times a day, take soma at bed time. Nothing is making a dent in the cramps > and pain. > > Age: 57 > > Male/female: Female > > What are the symptoms? leg pain, can't stand in one place more then a > couple of minutes. Have trouble walking very far and can't stay seated for > very long and still walk. Pain in other parts of body. Points all painful. > > Has you illness been diagnosed? Yes > > How long did you suffer before you got help? About six years. > > Is there a time that you can remember when it started? Yes after a flue > bug hit I was unable to walk very far at all. That was the first real alarm > signal. > > Some of us have found lack of exercise we are overweight. Have you found > this to be a problem also? Am overweight have been for all of adult life. > Only been a physical problem with the onset of fibro. > > Are you on disability? Yes > > If you are any pointers for others trying to get on disability? Just keep > appealing. If can get state aid to say yes you have fibro it helps. > > What have you found that helps ease the pain, warm baths, medications etc.? > Rest, soma for cramps . Not really anything but learning your body and > trying not to overdo anything. > > Do you have sleep problems? How do you deal with it? Yes. I don't deal > with it I need help in this area. > > Do you have family that understands your illness? No both daughters don't > want to acknowledge their mom is sick. > > Some have found certain foods causes problems with CFS or Fibro, have you? > I have food allergies like wheat, night shade family that when don't go > near I feel better. But I haven't found anything that triggers fibro flare. > > What type of Doctor have you found that has helped you the most? One who is > willing to listen is my current Dr. but he has no real handle on fibro. I > am still looking for a Dr. who really has a clue on fibro. It's frustrating > and I feel so hopeless. I mean I have to > do research and then I have to convince my Dr. to go with a certain > treatment. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 5, 2002 Report Share Posted August 5, 2002 In a message dated 08/05/2002 7:17:42 PM Pacific Daylight Time, laughingbear@... writes: > > Hi I am new to the list .I have really bad leg cramps and nothing seems to > help them. They are there all day, but at night in bed is when they really > come hard and quick. Does anyone know of things that help get rid of them. > I take calcium and magnesium, walk four > times a day, take soma at bed time. Nothing is making a dent in the cramps > and pain. > > Age: 57 > > Male/female: Female > > What are the symptoms? leg pain, can't stand in one place more then a > couple of minutes. Have trouble walking very far and can't stay seated for > very long and still walk. Pain in other parts of body. Points all painful. > > Has you illness been diagnosed? Yes > > How long did you suffer before you got help? About six years. > > Is there a time that you can remember when it started? Yes after a flue > bug hit I was unable to walk very far at all. That was the first real alarm > signal. > > Some of us have found lack of exercise we are overweight. Have you found > this to be a problem also? Am overweight have been for all of adult life. > Only been a physical problem with the onset of fibro. > > Are you on disability? Yes > > If you are any pointers for others trying to get on disability? Just keep > appealing. If can get state aid to say yes you have fibro it helps. > > What have you found that helps ease the pain, warm baths, medications etc.? > Rest, soma for cramps . Not really anything but learning your body and > trying not to overdo anything. > > Do you have sleep problems? How do you deal with it? Yes. I don't deal > with it I need help in this area. > > Do you have family that understands your illness? No both daughters don't > want to acknowledge their mom is sick. > > Some have found certain foods causes problems with CFS or Fibro, have you? > I have food allergies like wheat, night shade family that when don't go > near I feel better. But I haven't found anything that triggers fibro flare. > > What type of Doctor have you found that has helped you the most? One who is > willing to listen is my current Dr. but he has no real handle on fibro. I > am still looking for a Dr. who really has a clue on fibro. It's frustrating > and I feel so hopeless. I mean I have to > do research and then I have to convince my Dr. to go with a certain > treatment. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 22, 2002 Report Share Posted November 22, 2002 Hi Arlyn, Pretty frustrating isn't it? I'm sure that there are others on the board who can offer more constructive advice. My problem seems to be the exact opposite of yours. Normal range labs and very hypo. Thanks to a bunch of very kind people on this list, I think I'm finally figuring it out. Please don't despair. If you were stubborn enough to find this list, you are probably stubborn enough to find some answers to your dilemma. Hang in there, Laurel Re: Newbie > Hi, > Well that was $300 down... > Saw an endo today. Said while I had all the symptoms, since my TSH was > 2.3, I couldn't possibly be hyper. > Suggested I see a psychiatrist. > Anyone have normal numbers and are still being treated by their doctor? > Would appreciate any input. > > Thanks, > > Arlyn > > > > > ------------------------------------- > The Graves' list is intended for informational purposes only and is not intended to replace expert medical care. > Please consult your doctor before changing or trying new treatments. > ---------------------------------------- > DISCLAIMER > > Advertisments placed on this yahoo groups list do not have the endorsement of > the listowner. I have no input as to what ads are attached to emails. > -------------------------------------------------------------------------- ------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 22, 2002 Report Share Posted November 22, 2002 Hi Arlyn, Pretty frustrating isn't it? I'm sure that there are others on the board who can offer more constructive advice. My problem seems to be the exact opposite of yours. Normal range labs and very hypo. Thanks to a bunch of very kind people on this list, I think I'm finally figuring it out. Please don't despair. If you were stubborn enough to find this list, you are probably stubborn enough to find some answers to your dilemma. Hang in there, Laurel Re: Newbie > Hi, > Well that was $300 down... > Saw an endo today. Said while I had all the symptoms, since my TSH was > 2.3, I couldn't possibly be hyper. > Suggested I see a psychiatrist. > Anyone have normal numbers and are still being treated by their doctor? > Would appreciate any input. > > Thanks, > > Arlyn > > > > > ------------------------------------- > The Graves' list is intended for informational purposes only and is not intended to replace expert medical care. > Please consult your doctor before changing or trying new treatments. > ---------------------------------------- > DISCLAIMER > > Advertisments placed on this yahoo groups list do not have the endorsement of > the listowner. I have no input as to what ads are attached to emails. > -------------------------------------------------------------------------- ------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 3, 2002 Report Share Posted December 3, 2002 Hi, Studies show that TSI is effective at predicting remission. Since your TSH fell so much with the change of dosage, I suspect you're not quite approaching remission just yet. 2.5 mg daily is the smallest recommended maintenance dose for Tapazole. When you are in remission, then it's best to wean off slowly using the 2.5 mg every other day to adapt your immune system to the change. Take care, elaine Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 3, 2002 Report Share Posted December 3, 2002 Hi Pam - Excellent ideas! If Zhi is getting too much iodine in her diet, that may just be the last item to resolve and she could be in remission. Judging by the T4 range she listed (0.9 to 1.8) it looks like this IS the Free T4. Hopefully it is anyway. You never know what the lab ranges are these days - some really screwy ones, but usually the Total T4 is something like 5 to 12. She should double check on this though, so thanks for pointing it out. Yes, the Total T4 doesn't really tell you much because of the outside influences. We missed ya! Love ya, Chris > > Now... ummmmm ... > It is only T4 they tested here. So we really do not know what other things > could have influenced this reading. Is there any way to figure out what her > true FT4 numbers could even be close to ? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 3, 2002 Report Share Posted December 3, 2002 Hi Pam - Excellent ideas! If Zhi is getting too much iodine in her diet, that may just be the last item to resolve and she could be in remission. Judging by the T4 range she listed (0.9 to 1.8) it looks like this IS the Free T4. Hopefully it is anyway. You never know what the lab ranges are these days - some really screwy ones, but usually the Total T4 is something like 5 to 12. She should double check on this though, so thanks for pointing it out. Yes, the Total T4 doesn't really tell you much because of the outside influences. We missed ya! Love ya, Chris > > Now... ummmmm ... > It is only T4 they tested here. So we really do not know what other things > could have influenced this reading. Is there any way to figure out what her > true FT4 numbers could even be close to ? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 3, 2002 Report Share Posted December 3, 2002 Hi Pam - Excellent ideas! If Zhi is getting too much iodine in her diet, that may just be the last item to resolve and she could be in remission. Judging by the T4 range she listed (0.9 to 1.8) it looks like this IS the Free T4. Hopefully it is anyway. You never know what the lab ranges are these days - some really screwy ones, but usually the Total T4 is something like 5 to 12. She should double check on this though, so thanks for pointing it out. Yes, the Total T4 doesn't really tell you much because of the outside influences. We missed ya! Love ya, Chris > > Now... ummmmm ... > It is only T4 they tested here. So we really do not know what other things > could have influenced this reading. Is there any way to figure out what her > true FT4 numbers could even be close to ? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 25, 2003 Report Share Posted March 25, 2003 I would like some information from > > the group as my doctor thinks I am hyperthyroid. Is this the same as > > Graves disease? Hi Lisbeth. No, they are not the same, but both may respond well to anti-thyroid drugs. The idea behind ATDs is that they suppress the overproduction of thyroid hormone. Whether or not one returns to normal thyroid levels, on a long term or permanent basis, is not a sure thing. BUT, treatment with ATDs is relatively benign, compared with the standard treatment of radioactive iodine (RAI), which destroys the thyroid, and will allow you time to keep getting information. You know, alot of people do OK after RAI, and I hope that all the people on this list who have had RAI will stay in or join those ranks. However, RAI will necessitate lifelong thyroid hormone replacement and there are other not too rare complications; with all the rest of the medical stuff you have to deal with you don't need that also. How has he ruled out Graves Disease? Also, please feel free to share any bloodwork results with the group, just including your labs normal ranges. He should be taking a TSH, Free T4 and possibly T3, as well as antibodies. If I have time, gotta run now, I'll send you info on antibodies. Before starting you on ATDs you should also have an LFT (liver function) and CBC. Take care, Fay ________________________________________________________________ Sign Up for Juno Platinum Internet Access Today Only $9.95 per month! Visit www.juno.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2005 Report Share Posted March 10, 2005 In a message dated 3/10/2005 12:00:01 PM Eastern Standard Time, lyn.worth@... writes: > just bumping this one up as I recommended this site to Mo, telling her she > would get excellent advice but I haven't seen any replies yet. > i didn't feel like I knew enough about adrenal to comment...but I do agree that it appears that adrenal function is not optimum...and that adrenal fatigue is apparent. I do not think the DHEA was Normal - it was LOW ...and low DHEA is an indicator of low adrenal function. I would recommend Peatfield's protocol to her for adrenals. here's one article, but there is another one if someone has the link. http://home.no.net/ngrondal/durrant-p.html cindi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2005 Report Share Posted March 10, 2005 In a message dated 3/10/2005 12:00:01 PM Eastern Standard Time, lyn.worth@... writes: > just bumping this one up as I recommended this site to Mo, telling her she > would get excellent advice but I haven't seen any replies yet. > i didn't feel like I knew enough about adrenal to comment...but I do agree that it appears that adrenal function is not optimum...and that adrenal fatigue is apparent. I do not think the DHEA was Normal - it was LOW ...and low DHEA is an indicator of low adrenal function. I would recommend Peatfield's protocol to her for adrenals. here's one article, but there is another one if someone has the link. http://home.no.net/ngrondal/durrant-p.html cindi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2005 Report Share Posted March 10, 2005 In a message dated 3/10/2005 12:00:01 PM Eastern Standard Time, lyn.worth@... writes: > just bumping this one up as I recommended this site to Mo, telling her she > would get excellent advice but I haven't seen any replies yet. > i didn't feel like I knew enough about adrenal to comment...but I do agree that it appears that adrenal function is not optimum...and that adrenal fatigue is apparent. I do not think the DHEA was Normal - it was LOW ...and low DHEA is an indicator of low adrenal function. I would recommend Peatfield's protocol to her for adrenals. here's one article, but there is another one if someone has the link. http://home.no.net/ngrondal/durrant-p.html cindi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2005 Report Share Posted March 10, 2005 In a message dated 3/10/2005 1:08:27 PM Eastern Standard Time, usns@... writes: > My adrenals are not low functioning, > yet I have low DHEA. Go figure. > > and DHEA also goes low with age..as in over 50. Cindi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2005 Report Share Posted March 10, 2005 In a message dated 3/10/2005 1:27:47 PM Eastern Standard Time, usns@... writes: > I am only 33. > okay. cindi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2005 Report Share Posted March 10, 2005 In a message dated 3/10/2005 1:27:47 PM Eastern Standard Time, usns@... writes: > I am only 33. > okay. cindi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2005 Report Share Posted March 10, 2005 In a message dated 3/10/2005 2:21:02 PM Eastern Standard Time, usns@... writes: > > Tish, what was that salary amount you told me I had to pay to keep > you here?? i'm printing that post now - and have already forwarded it to two folks. cindi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2005 Report Share Posted March 10, 2005 In a message dated 3/10/2005 2:21:02 PM Eastern Standard Time, usns@... writes: > > Tish, what was that salary amount you told me I had to pay to keep > you here?? i'm printing that post now - and have already forwarded it to two folks. cindi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2005 Report Share Posted March 10, 2005 In a message dated 3/10/2005 2:21:02 PM Eastern Standard Time, usns@... writes: > > Tish, what was that salary amount you told me I had to pay to keep > you here?? i'm printing that post now - and have already forwarded it to two folks. cindi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2005 Report Share Posted March 10, 2005 In a message dated 3/10/2005 3:31:08 PM Eastern Standard Time, usns@... writes: > And I have the body of Madonna, the intellect of Einstein, two > corvettes in our garage, and several mountain homes in the Swiss > Alps......... > you've overdosed on the chocolate again too, haven't you? cindi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2005 Report Share Posted March 10, 2005 just bumping this one up as I recommended this site to Mo, telling her she would get excellent advice but I haven't seen any replies yet. Lynda (in the UK) ----- Original Message ----- From: hepaction@... Hello everyone I am Mo and this list has been recommended to me today. I am at the very beginning stages of looking into the possibility that I am hypoadrenalic (if that's the right word!) and hypothyroid. I have been assessed as such on clinical signs and the first test I have done has come back today, the adrenal profile. The figures are below. I am hoping this group will be able to give me some feedback on these figures to enable me to understand and maybe some tips about supplementation. Salivary cortisol 8.00 10.2 6.0 to 33.0 noon 11.2 4.0 to 28.0 (this one was actually taken at 1.30 pm) 4.00 6.1 4.0 to 11.8 midnight 5.0 1.0 to 5.0 DHEA 8.00 8.2 4.0 to 29.0 noon 7.1 2.5 to 13.0 4 pm 4.6 2.0 to 6.0 midnight 3.4 1.0 to 4.0 Comments: Salivary cortisol relatively flat profile with values tending towards the lower end of reference range (particularly early morning) DHEA: overall profile indicates normal hormone output. Not at all sure what this means apart from that my DHEA seems to be OK. Any insights would be welcome. Thanks. Mo Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2005 Report Share Posted March 10, 2005 just bumping this one up as I recommended this site to Mo, telling her she would get excellent advice but I haven't seen any replies yet. Lynda (in the UK) ----- Original Message ----- From: hepaction@... Hello everyone I am Mo and this list has been recommended to me today. I am at the very beginning stages of looking into the possibility that I am hypoadrenalic (if that's the right word!) and hypothyroid. I have been assessed as such on clinical signs and the first test I have done has come back today, the adrenal profile. The figures are below. I am hoping this group will be able to give me some feedback on these figures to enable me to understand and maybe some tips about supplementation. Salivary cortisol 8.00 10.2 6.0 to 33.0 noon 11.2 4.0 to 28.0 (this one was actually taken at 1.30 pm) 4.00 6.1 4.0 to 11.8 midnight 5.0 1.0 to 5.0 DHEA 8.00 8.2 4.0 to 29.0 noon 7.1 2.5 to 13.0 4 pm 4.6 2.0 to 6.0 midnight 3.4 1.0 to 4.0 Comments: Salivary cortisol relatively flat profile with values tending towards the lower end of reference range (particularly early morning) DHEA: overall profile indicates normal hormone output. Not at all sure what this means apart from that my DHEA seems to be OK. Any insights would be welcome. Thanks. Mo Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2005 Report Share Posted March 10, 2005 just bumping this one up as I recommended this site to Mo, telling her she would get excellent advice but I haven't seen any replies yet. Lynda (in the UK) ----- Original Message ----- From: hepaction@... Hello everyone I am Mo and this list has been recommended to me today. I am at the very beginning stages of looking into the possibility that I am hypoadrenalic (if that's the right word!) and hypothyroid. I have been assessed as such on clinical signs and the first test I have done has come back today, the adrenal profile. The figures are below. I am hoping this group will be able to give me some feedback on these figures to enable me to understand and maybe some tips about supplementation. Salivary cortisol 8.00 10.2 6.0 to 33.0 noon 11.2 4.0 to 28.0 (this one was actually taken at 1.30 pm) 4.00 6.1 4.0 to 11.8 midnight 5.0 1.0 to 5.0 DHEA 8.00 8.2 4.0 to 29.0 noon 7.1 2.5 to 13.0 4 pm 4.6 2.0 to 6.0 midnight 3.4 1.0 to 4.0 Comments: Salivary cortisol relatively flat profile with values tending towards the lower end of reference range (particularly early morning) DHEA: overall profile indicates normal hormone output. Not at all sure what this means apart from that my DHEA seems to be OK. Any insights would be welcome. Thanks. Mo Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2005 Report Share Posted March 10, 2005 HI Mo. Actually I don't see any severe adrenal problems, though I do note that you are on the lower side of the range except at midnight. Are you having any symptoms which are profoundly adrenal related? Have you tried the pupil test? What about thyroid tests? What you need are the free T3 and free T4. Janie > I am Mo and this list has been recommended to me today. I am at the very > beginning stages of looking into the possibility that I am hypoadrenalic (if > that's the right word!) and hypothyroid. I have been assessed as such on > clinical signs and the first test I have done has come back today, the adrenal > profile. The figures are below. > I am hoping this group will be able to give me some feedback on these > figures to enable me to understand and maybe some tips about supplementation. > > > Salivary cortisol > 8.00 10.2 6.0 to 33.0 > noon 11.2 4.0 to 28.0 (this one was actually taken > at 1.30 pm) > 4.00 6.1 4.0 to 11.8 > midnight 5.0 1.0 to 5.0 > > DHEA > 8.00 8.2 4.0 to 29.0 > noon 7.1 2.5 to 13.0 > 4 pm 4.6 2.0 to 6.0 > midnight 3.4 1.0 to 4.0 > > Comments: > Salivary cortisol relatively flat profile with values tending towards the > lower end of reference range (particularly early morning) > > DHEA: overall profile indicates normal hormone output. > > Not at all sure what this means apart from that my DHEA seems to be OK. > > Any insights would be welcome. Thanks. > > > Mo > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2005 Report Share Posted March 10, 2005 HI Mo. Actually I don't see any severe adrenal problems, though I do note that you are on the lower side of the range except at midnight. Are you having any symptoms which are profoundly adrenal related? Have you tried the pupil test? What about thyroid tests? What you need are the free T3 and free T4. Janie > I am Mo and this list has been recommended to me today. I am at the very > beginning stages of looking into the possibility that I am hypoadrenalic (if > that's the right word!) and hypothyroid. I have been assessed as such on > clinical signs and the first test I have done has come back today, the adrenal > profile. The figures are below. > I am hoping this group will be able to give me some feedback on these > figures to enable me to understand and maybe some tips about supplementation. > > > Salivary cortisol > 8.00 10.2 6.0 to 33.0 > noon 11.2 4.0 to 28.0 (this one was actually taken > at 1.30 pm) > 4.00 6.1 4.0 to 11.8 > midnight 5.0 1.0 to 5.0 > > DHEA > 8.00 8.2 4.0 to 29.0 > noon 7.1 2.5 to 13.0 > 4 pm 4.6 2.0 to 6.0 > midnight 3.4 1.0 to 4.0 > > Comments: > Salivary cortisol relatively flat profile with values tending towards the > lower end of reference range (particularly early morning) > > DHEA: overall profile indicates normal hormone output. > > Not at all sure what this means apart from that my DHEA seems to be OK. > > Any insights would be welcome. Thanks. > > > Mo > > > Quote Link to comment Share on other sites More sharing options...
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