Re: Hi I'm

[Guest guest]

,

Thanks for writing more so that we can get to know you better. I do remember you now and your family is beautiful. I think we all understand your feelings. The confusion, frustration, sadness and just being overwhelmed by all there is to know and understand and decide.

Fortunately you have found a group of people who are in precisely the same situation you are. We all understand because we're living with it too. Your family is beautiful!! Where do you live?

Beth

Moderator

Fibrotic NSIP 06/06 Dermatomyositis 11/08

To: Breathe-Support Sent: Sunday, May 3, 2009 8:18:54 PMSubject: Hi I'm

Hi my name is realy Winifred Hampton, and every one calls me . My email is pgales (AT) bellsouth (DOT) net I join the group April 13, 2009. I am very proud of my family I am very sorry that no one remember my story. I don't have a very long one I was diagnosis with Scleroderma and Raynaud's in 97. Did not know what it was until it can to me that I had seen a movie about it. Then I know my life was over. In 2000 I had to stop working , be put n oxygen 2liters and need a heart and lung transplant. Went to rehab for a month and as we would say but God!!! I did not need the oxygen any more and they was not talking about a transplant. I was getting around much better. Back in 2005 I had to be put back on oxygen was diagnosis with PH, PF, Fibromyalgia, and Gerd. Now here it is 2009 and my doctor

is talking about a lung transplant again. I have to gave them an answer weather are not I want to go through with it. When I was talking to the doctor, the only question that came to my mind was about the life time 3 to 5 years. And I got so afriad and sad every time I try to read the booklet that they gave me to look over I get so sad and upset all I do is cry. It is not that I don't believe in God yes I do with all my heart I have faith in him. Because it is by Him that I have made it this far. So this is how I found this site and 2nd wind site. I had needed to talk to people who had and is going through the samething. To see if there where people who live longer then that and I thank God that there is.

[Guest guest]

Hi ! CAn I ask you who diagnosed your problem? Did you go to one of the major teaching institutions for pulmonary disorders? If not, you might want to go to one and have a second opinion. I know a person on the list who had a lung transplant and he is doing marvelously! I am so sorry to hear the fear in your letter. I wish I could do something to help but unfortunaltey I cannot. I have been diagnosed with an environmental pneumanitis and so the future is pretty bright for me. I wish you th ebest and hope that you can catch your breath and calm down so you can make good choices. Yes, the 2-5 years is scary but a lot of people live much longer. Take care, Joyce Rudy AZ

Hi I'm

Hi my name is realy Winifred Hampton, and every one calls me . My email is pgales (AT) bellsouth (DOT) net I join the group April 13, 2009. I am very proud of my family I am very sorry that no one remember my story. I don't have a very long one I was diagnosis with Scleroderma and Raynaud's in 97. Did not know what it was until it can to me that I had seen a movie about it. Then I know my life was over. In 2000 I had to stop working , be put n oxygen 2liters and need a heart and lung transplant. Went to rehab for a month and as we would say but God!!! I did not need the oxygen any more and they was not talking about a transplant. I was getting around much better. Back in 2005 I had to be put back on oxygen was diagnosis with PH, PF, Fibromyalgia, and Gerd. Now here it is 2009 and my doctor is talking about a lung transplant again. I have to gave them an answer weather are not I want to go through with it. When I was talking to the doctor, the only question that came to my mind was about the life time 3 to 5 years. And I got so afriad and sad every time I try to read the booklet that they gave me to look over I get so sad and upset all I do is cry. It is not that I don't believe in God yes I do with all my heart I have faith in him. Because it is by Him that I have made it this far. So this is how I found this site and 2nd wind site. I had needed to talk to people who had and is going through the samething. To see if there where people who live longer then that and I thank God that there is.

[Guest guest]

Hi .... I looked at your pictures and as Beth said, you have a beautiful family.

The majority of us here are on oxygen and for me at least, I'm glad I have it. I didn't like it at first but of course changed my mind when I could breathe better.

I'm too old for transplant (70) and would not opt for one at any rate. It is a big decision, that is for sure. Be sure and gather all the info you can before making your decision. Write down questions for the dr and get all the answers.

You are in the best place you can be for support, information and people to talk to.

God Bless.

MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there!

Hi I'm

Hi my name is realy Winifred Hampton, and every one calls me . My email is pgales (AT) bellsouth (DOT) net I join the group April 13, 2009. I am very proud of my family I am very sorry that no one remember my story. I don't have a very long one I was diagnosis with Scleroderma and Raynaud's in 97. Did not know what it was until it can to me that I had seen a movie about it. Then I know my life was over. In 2000 I had to stop working , be put n oxygen 2liters and need a heart and lung transplant. Went to rehab for a month and as we would say but God!!! I did not need the oxygen any more and they was not talking about a transplant. I was getting around much better. Back in 2005 I had to be put back on oxygen was diagnosis with PH, PF, Fibromyalgia, and Gerd. Now here it is 2009 and my doctor is talking about a lung transplant again. I have to gave them an answer weather are not I want to go through with it. When I was talking to the doctor, the only question that came to my mind was about the life time 3 to 5 years. And I got so afriad and sad every time I try to read the booklet that they gave me to look over I get so sad and upset all I do is cry. It is not that I don't believe in God yes I do with all my heart I have faith in him. Because it is by Him that I have made it this far. So this is how I found this site and 2nd wind site. I had needed to talk to people who had and is going through the samething. To see if there where people who live longer then that and I thank God that there is.

[Guest guest]

Hi .... I looked at your pictures and as Beth said, you have a beautiful family.

The majority of us here are on oxygen and for me at least, I'm glad I have it. I didn't like it at first but of course changed my mind when I could breathe better.

I'm too old for transplant (70) and would not opt for one at any rate. It is a big decision, that is for sure. Be sure and gather all the info you can before making your decision. Write down questions for the dr and get all the answers.

You are in the best place you can be for support, information and people to talk to.

God Bless.

MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there!

Hi I'm

Hi my name is realy Winifred Hampton, and every one calls me . My email is pgales (AT) bellsouth (DOT) net I join the group April 13, 2009. I am very proud of my family I am very sorry that no one remember my story. I don't have a very long one I was diagnosis with Scleroderma and Raynaud's in 97. Did not know what it was until it can to me that I had seen a movie about it. Then I know my life was over. In 2000 I had to stop working , be put n oxygen 2liters and need a heart and lung transplant. Went to rehab for a month and as we would say but God!!! I did not need the oxygen any more and they was not talking about a transplant. I was getting around much better. Back in 2005 I had to be put back on oxygen was diagnosis with PH, PF, Fibromyalgia, and Gerd. Now here it is 2009 and my doctor is talking about a lung transplant again. I have to gave them an answer weather are not I want to go through with it. When I was talking to the doctor, the only question that came to my mind was about the life time 3 to 5 years. And I got so afriad and sad every time I try to read the booklet that they gave me to look over I get so sad and upset all I do is cry. It is not that I don't believe in God yes I do with all my heart I have faith in him. Because it is by Him that I have made it this far. So this is how I found this site and 2nd wind site. I had needed to talk to people who had and is going through the samething. To see if there where people who live longer then that and I thank God that there is.

[Guest guest]

Hi .... I looked at your pictures and as Beth said, you have a beautiful family.

The majority of us here are on oxygen and for me at least, I'm glad I have it. I didn't like it at first but of course changed my mind when I could breathe better.

I'm too old for transplant (70) and would not opt for one at any rate. It is a big decision, that is for sure. Be sure and gather all the info you can before making your decision. Write down questions for the dr and get all the answers.

You are in the best place you can be for support, information and people to talk to.

God Bless.

MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there!

Hi I'm

Hi my name is realy Winifred Hampton, and every one calls me . My email is pgales (AT) bellsouth (DOT) net I join the group April 13, 2009. I am very proud of my family I am very sorry that no one remember my story. I don't have a very long one I was diagnosis with Scleroderma and Raynaud's in 97. Did not know what it was until it can to me that I had seen a movie about it. Then I know my life was over. In 2000 I had to stop working , be put n oxygen 2liters and need a heart and lung transplant. Went to rehab for a month and as we would say but God!!! I did not need the oxygen any more and they was not talking about a transplant. I was getting around much better. Back in 2005 I had to be put back on oxygen was diagnosis with PH, PF, Fibromyalgia, and Gerd. Now here it is 2009 and my doctor is talking about a lung transplant again. I have to gave them an answer weather are not I want to go through with it. When I was talking to the doctor, the only question that came to my mind was about the life time 3 to 5 years. And I got so afriad and sad every time I try to read the booklet that they gave me to look over I get so sad and upset all I do is cry. It is not that I don't believe in God yes I do with all my heart I have faith in him. Because it is by Him that I have made it this far. So this is how I found this site and 2nd wind site. I had needed to talk to people who had and is going through the samething. To see if there where people who live longer then that and I thank God that there is.

[Guest guest]

Dearest ,

My prayers on flying on wings of angels for you at this moment. God is indeed gracious and he will see you through this no matter what may come. You sound like such a wonderful woman with a beautiful family. Be assured now that I have your name, (I keep a notepad with everyone to pray for on it), I will not forget you. I am so glad you found this "Air Family". I would still be lost in a fog if it wasn't for them. Keep a worship song in your heart, a prayer in your soul and a smile on your lips. God Bless you and your family.

Sunny, PF "09, CAN '09, Lupus/Sjogrens/Arthritis '04, & ect..., Idaho

From: P GALES

Sent: Sunday, May 03, 2009 5:18 PM

To: Breathe-Support

Subject: Hi I'm

Hi my name is realy Winifred Hampton, and every one calls me . My email is pgales (AT) bellsouth (DOT) net I join the group April 13, 2009. I am very proud of my family I am very sorry that no one remember my story. I don't have a very long one I was diagnosis with Scleroderma and Raynaud's in 97. Did not know what it was until it can to me that I had seen a movie about it. Then I know my life was over. In 2000 I had to stop working , be put n oxygen 2liters and need a heart and lung transplant. Went to rehab for a month and as we would say but God!!! I did not need the oxygen any more and they was not talking about a transplant. I was getting around much better. Back in 2005 I had to be put back on oxygen was diagnosis with PH, PF, Fibromyalgia, and Gerd. Now here it is 2009 and my doctor is talking about a lung transplant again. I have to gave them an answer weather are not I want to go through with it. When I was talking to the doctor, the only question that came to my mind was about the life time 3 to 5 years. And I got so afriad and sad every time I try to read the booklet that they gave me to look over I get so sad and upset all I do is cry. It is not that I don't believe in God yes I do with all my heart I have faith in him. Because it is by Him that I have made it this far. So this is how I found this site and 2nd wind site. I had needed to talk to people who had and is going through the samething. To see if there where people who live longer then that and I thank God that there is.