Guest guest Posted May 4, 2009 Report Share Posted May 4, 2009 Zena, wow no one every mentioned the dog? I fully admit I treat my Doxie as a human including kisses, so she's 'shared' everything with me as it is, but then I'm only on 25mg of imuran and 10 of prednisone. Weird what one doctor tells someone and another never mentions. On another front, I'm guessing my granddaugher has the swine flu. Sick all weekend with 103 degree temp. O f course I saw (and kissed) her mother on Friday just before she got sick. So we will see..... Dyane Phoenix IPF 02 > > > > > > No, No, No ...... you said nothing to prompt that that reaction from > me. Let's just say I read between lines that are not even there. LOL > > > > > > Ze ... I was diagnosed with PH before the PF and pulmo docs have > assured me they are not related --- totally separate diseases. The PH, > they stopped just short of saying it was due to my taking of Phen-Fen (I > took it all of 3 months) I've told this story before ... after being > told I had a heart murmur after never having one prior even after a > heart attack (from which I flat-lined) a full 10 years prior to taking > Phen-Fen. Since I could find no rhyme of reason for contacting PF, I > waz grasping at straws wondering if maybe the battle of the bulge (in my > case) could be the culprit also. Just shooting in the dark. LOL > > > > > > I should just let it ride I think ....... things are going along > pretty good although I am looking forward to my appt with pulmo doc on > the 13th. so see what the numbers possibly say. I have increased my > oxygen on my own and feel that maybe the numbers may not be so good .... > I pray I am wrong, however. I feel pretty good most days in spite of > things. > > > > > > Thanks so much for your sweet reply. I love ya for your concern, > but all is GOOD!!! > > > > > > ~ Donna ~ > > > Yesterday I dared to struggle ..... > > > Today I dare to win!!! > > > > > > ~ * ~ * ~ * ~ * ~ * ~ * ~ * ~ * ~ * ~ * ~ * ~ * ~ * ~ * ~ * ~ * ~ * > ~ * > > > > > > Hi Donna, > > > > > > > > > > > > I hope nothing in my reply implied that you'd stepped on anyones > toes, > > > > > > it certainly wasn't meant to. > > > > > > > > > > > > I don't think weight has a huge amount to do with PH. Mine's because > I > > > > > > have PF. The scar tissue causes both the aveoli and the blood > vessals > > > > > > to stiffen up and the PH is the heart is working harder trying to > pump > > > > > > the blood through the stiffness. Your arterial blood pressure (the > one > > > > > > they take with a cuff on your arm) has nothing to do with, and will > not > > > > > > give any indication of, PH. > > > > > > > > > > > > I think pred tends to be a default med. I'm on it because of an auto > > > > > > immune disease. It's was discovered that it kept the pf at bay by > > > > > > accident really. And I started on the pred when I was naive of both > my > > > > > > condition and steroids. As far as I was concerned the steroid took > away > > > > > > the horrible symptoms that I had been suffering with and that was > good > > > > > > enough for me. > > > > > > > > > > > > Keep posting Donna, we will learn as much from you as you will from > us > > > > > > > > > > > > Love Ze xx > > > > > > Quote Link to comment Share on other sites More sharing options...
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