's DLCO

[Guest guest]

Hi , I read that your DLCO has dropped to 49%.. but everything else is the same... did they give you any reasons for how that works. You'd think that other readings would also drop to explain the DLCO drop as well.

I've been at 49% in my DLCO reading since I was diagnosed 2 years ago.. I have no idea how long I've had the PF for .. I'm still not using O2. I'm due for review next month. That'll be interesting....I'm wondering if my 15 kg weight drop will positively influence my PFT results.

Are you using O2????

in Oz

IPF: Fibrotic NSIP/UIP?????

Raynauds'

May 2007

Ro52

May 2008

>> Sorry to hear you have been so sick. I did notice that you hadn't been posting and I mentioned it to my wife, but we have had my son, DIL, and 2 grandkids (2 & 5 yrs. old),> with us for the last 12 days and I haven't been on the computer other that 10 minutes, 3 different days. My butt is dragging trying to be involved in the activities and I do feel very tired all the time----only three more days and they will be going back to Olympia, Wa.> > My last visit to the Dr. (April 6th) I did my PFTs and everything is exactly the same except for my DLCO---it has dropped from 55% down to 49%. In the last 10 months it has dropped from 68% to 49%, so needless to say it is starting to make me nervous. > > What has been going on with you? You have usually been the "rock" of the group? Hope everything is OK and we can contribute it to the weather? I did hear you talking about going to the U of W medical hospital for an evaluation? I just talked to my Dr about checking at the U of W for a transplant evaluation, so I may go there also, but I don't know when.> Tell Rich hi and hopefully I will be making the trip up to Washington again and I can meet up with you guys again. > Hope you get better and back to posting!!!!!!!!!> G. UIP/ IPF 5/07> >