Guest guest Posted March 29, 2009 Report Share Posted March 29, 2009 dearest Lady G....it's really hard to believe it has been a whole year since your gift arrived........Congratulations .....I'm so happy to hear you're doing so well. No I've never composed any music... I'm more of an 'Audience' than a performer or creative musician.. I feel music but don't have a great 'ear'! I learnt the piano by sight & still need that page up there to do anything. I find my eyesight is a pain with that these days... trying to crane my neck up so that my progressive lens script focuses properly. on the notes... I think I'll see about getting a 'dedicated' pair of specs to leave in the piano seat! Keep up your great progress Gwynne.... lovely to hear from you... GIO>> > Hi All,> In the past few weeks I've begun getting the tests required for> my one-year tx anniversary (Apr. 3). I had a Bronchoscopy this> past Tuesday, and there was no sign of rejection. I hadn't had> a bronch in quite a while, so I was relieved and joyful. Other> tests have shown my blood clots to be gone. I've had a VQ> scan, EKG, Echo, and an HRCT - all good. The only thing> we're still working on is figuring out why I get so many UTI's.> I do still get short of breath, though NOTHING like before,> upon mild to moderate exertion. The doc thinks that, since> my right native lung has gotten worse, it's dragging me down> a bit. But my new left lung looks great and is working fine!> > My sweet brother and sister-in-law are throwing a "re-birthday"> bash for me on Friday, Apr. 3. And some other friends are going> to do a very girly thing and take me to high tea at one of the local> hotels. La dee Dah. Sounds like fun!> > I miss hearing from Judy and Kerry. Jack and Jim, I'm praying> for you and loving your posts. GIO, Keep playing the piano.> I don't play often enough either, but it's so satisfying. Have> you ever written any music? Peggy and Sher, you two just> MUST get better fast. Big hugs to you. To the newbies, a> big welcome.> > Hugs and blessings,> Gwynne 57 (barely) Single-lung Transplant on 4-3-08> at UTHSC- San Fort Worth, TX> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2009 Report Share Posted March 29, 2009 dearest Lady G....it's really hard to believe it has been a whole year since your gift arrived........Congratulations .....I'm so happy to hear you're doing so well. No I've never composed any music... I'm more of an 'Audience' than a performer or creative musician.. I feel music but don't have a great 'ear'! I learnt the piano by sight & still need that page up there to do anything. I find my eyesight is a pain with that these days... trying to crane my neck up so that my progressive lens script focuses properly. on the notes... I think I'll see about getting a 'dedicated' pair of specs to leave in the piano seat! Keep up your great progress Gwynne.... lovely to hear from you... GIO>> > Hi All,> In the past few weeks I've begun getting the tests required for> my one-year tx anniversary (Apr. 3). I had a Bronchoscopy this> past Tuesday, and there was no sign of rejection. I hadn't had> a bronch in quite a while, so I was relieved and joyful. Other> tests have shown my blood clots to be gone. I've had a VQ> scan, EKG, Echo, and an HRCT - all good. The only thing> we're still working on is figuring out why I get so many UTI's.> I do still get short of breath, though NOTHING like before,> upon mild to moderate exertion. The doc thinks that, since> my right native lung has gotten worse, it's dragging me down> a bit. But my new left lung looks great and is working fine!> > My sweet brother and sister-in-law are throwing a "re-birthday"> bash for me on Friday, Apr. 3. And some other friends are going> to do a very girly thing and take me to high tea at one of the local> hotels. La dee Dah. Sounds like fun!> > I miss hearing from Judy and Kerry. Jack and Jim, I'm praying> for you and loving your posts. GIO, Keep playing the piano.> I don't play often enough either, but it's so satisfying. Have> you ever written any music? Peggy and Sher, you two just> MUST get better fast. Big hugs to you. To the newbies, a> big welcome.> > Hugs and blessings,> Gwynne 57 (barely) Single-lung Transplant on 4-3-08> at UTHSC- San Fort Worth, TX> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2009 Report Share Posted March 29, 2009 Hi Gwynne! Happy almost re-birth day! My goodness has it been a year already? Times gets by so quickly. I'm glad to hear you are doing well. Keep on keeping on. Prayers answered. Enjoy your tea, that sounds really fun. I hope you have a great hat to wear. S, Lubbock, TX NSIP w/PF 12/2006 et al > > > Hi All, > In the past few weeks I've begun getting the tests required for > my one-year tx anniversary (Apr. 3). I had a Bronchoscopy this > past Tuesday, and there was no sign of rejection. I hadn't had > a bronch in quite a while, so I was relieved and joyful. Other > tests have shown my blood clots to be gone. I've had a VQ > scan, EKG, Echo, and an HRCT - all good. The only thing > we're still working on is figuring out why I get so many UTI's. > I do still get short of breath, though NOTHING like before, > upon mild to moderate exertion. The doc thinks that, since > my right native lung has gotten worse, it's dragging me down > a bit. But my new left lung looks great and is working fine! > > My sweet brother and sister-in-law are throwing a " re-birthday " > bash for me on Friday, Apr. 3. And some other friends are going > to do a very girly thing and take me to high tea at one of the local > hotels. La dee Dah. Sounds like fun! > > I miss hearing from Judy and Kerry. Jack and Jim, I'm praying > for you and loving your posts. GIO, Keep playing the piano. > I don't play often enough either, but it's so satisfying. Have > you ever written any music? Peggy and Sher, you two just > MUST get better fast. Big hugs to you. To the newbies, a > big welcome. > > Hugs and blessings, > Gwynne 57 (barely) Single-lung Transplant on 4-3-08 > at UTHSC- San Fort Worth, TX > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2009 Report Share Posted March 30, 2009 Gwynne, Happy Birthday! Such a special Birthday for you! I am aglad that you are doing so well. Keep enjoying life! Toodles! Jane UIP/IPF 12/1998 Dalton, Georgia aka pianolady_musicgirl > > > Hi All, > In the past few weeks I've begun getting the tests required for > my one-year tx anniversary (Apr. 3). I had a Bronchoscopy this > past Tuesday, and there was no sign of rejection. I hadn't had > a bronch in quite a while, so I was relieved and joyful. Other > tests have shown my blood clots to be gone. I've had a VQ > scan, EKG, Echo, and an HRCT - all good. The only thing > we're still working on is figuring out why I get so many UTI's. > I do still get short of breath, though NOTHING like before, > upon mild to moderate exertion. The doc thinks that, since > my right native lung has gotten worse, it's dragging me down > a bit. But my new left lung looks great and is working fine! > > My sweet brother and sister-in-law are throwing a " re-birthday " > bash for me on Friday, Apr. 3. And some other friends are going > to do a very girly thing and take me to high tea at one of the local > hotels. La dee Dah. Sounds like fun! > > I miss hearing from Judy and Kerry. Jack and Jim, I'm praying > for you and loving your posts. GIO, Keep playing the piano. > I don't play often enough either, but it's so satisfying. Have > you ever written any music? Peggy and Sher, you two just > MUST get better fast. Big hugs to you. To the newbies, a > big welcome. > > Hugs and blessings, > Gwynne 57 (barely) Single-lung Transplant on 4-3-08 > at UTHSC- San Fort Worth, TX > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2009 Report Share Posted March 30, 2009 Gwynne, Happy Birthday! Such a special Birthday for you! I am aglad that you are doing so well. Keep enjoying life! Toodles! Jane UIP/IPF 12/1998 Dalton, Georgia aka pianolady_musicgirl > > > Hi All, > In the past few weeks I've begun getting the tests required for > my one-year tx anniversary (Apr. 3). I had a Bronchoscopy this > past Tuesday, and there was no sign of rejection. I hadn't had > a bronch in quite a while, so I was relieved and joyful. Other > tests have shown my blood clots to be gone. I've had a VQ > scan, EKG, Echo, and an HRCT - all good. The only thing > we're still working on is figuring out why I get so many UTI's. > I do still get short of breath, though NOTHING like before, > upon mild to moderate exertion. The doc thinks that, since > my right native lung has gotten worse, it's dragging me down > a bit. But my new left lung looks great and is working fine! > > My sweet brother and sister-in-law are throwing a " re-birthday " > bash for me on Friday, Apr. 3. And some other friends are going > to do a very girly thing and take me to high tea at one of the local > hotels. La dee Dah. Sounds like fun! > > I miss hearing from Judy and Kerry. Jack and Jim, I'm praying > for you and loving your posts. GIO, Keep playing the piano. > I don't play often enough either, but it's so satisfying. Have > you ever written any music? Peggy and Sher, you two just > MUST get better fast. Big hugs to you. To the newbies, a > big welcome. > > Hugs and blessings, > Gwynne 57 (barely) Single-lung Transplant on 4-3-08 > at UTHSC- San Fort Worth, TX > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2009 Report Share Posted April 24, 2009 Hi Everyone. My dad and I drove to San and on Tuesday I had my one-year follow-up appointment with Dr. Angel. I was really excited to see him again. He said I passed the first year with flying colors. The new lung is working at 92% capacity. Sounds good to me! He said all my tests showed that things really couldn't be better (and there was a LOT of testing.) We got to tour the pulmonary research facility where the rat lab is. That was fascinating. There are only 5 places nationally where they do actual rat lung transplants, and it's interesting and important work. Now they're doing testing with nanoparticle delivery of anti-rejection drugs, which should lead to increased survivability of transplant patients during that first critical year. I got the biggest charge out of the tiny little surgical tools that are used on these microsurgeries. I went back to my old room and said hello to several of my nurses from a year ago. Then we got to go to an annual ceremony (talk about good timing!) honoring all those people who donated organs the past year. The experience is still so raw for the donor families, and it was very moving. I was honored to be there as someone who has received the gift of life. My dad and I had a delicious Tex Mex dinner on Monday night. Then on Wednesday we stopped in Austin on the way home to see my daughter and son-in-law, who have just completed the renovation on their little fixer upper house. It's darling and they're so proud and happy. We got to go to lunch with them before we headed out. My dad and I had some great conversations in the car during our three days together. All in all it was a wonderful trip. It's too bad all 84-year-olds can't be as young as my father. Hugs and blessings, Gwynne 58 Single-lung transplant on 4-3-08 at UTHSC - San Fort Worth, TX Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2009 Report Share Posted April 24, 2009 Gwynnie.... what a wonderful post to read from you! God did and has and is truly blessing you. I'm so glad to hear all is well. Keep on keepin' on. MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there! Update on Gwynne Hi Everyone.My dad and I drove to San and on Tuesday Ihad my one-year follow-up appointment with Dr. Angel.I was really excited to see him again. He said I passedthe first year with flying colors. The new lung is workingat 92% capacity. Sounds good to me! He said all mytests showed that things really couldn't be better (andthere was a LOT of testing.)We got to tour the pulmonary research facility wherethe rat lab is. That was fascinating. There are only 5places nationally where they do actual rat lungtransplants, and it's interesting and important work.Now they're doing testing with nanoparticle deliveryof anti-rejection drugs, which should lead to increasedsurvivability of transplant patients during that firstcritical year. I got the biggest charge out of the tinylittle surgical tools that are used on these microsurgeries.I went back to my old room and said hello to several ofmy nurses from a year ago. Then we got to go to an annualceremony (talk about good timing!) honoring all those peoplewho donated organs the past year. The experience is stillso raw for the donor families, and it was very moving. I washonored to be there as someone who has received the giftof life.My dad and I had a delicious Tex Mex dinner on Mondaynight. Then on Wednesday we stopped in Austin on theway home to see my daughter and son-in-law, whohave just completed the renovation on their little fixerupper house. It's darling and they're so proud and happy.We got to go to lunch with them before we headed out.My dad and I had some great conversations in the carduring our three days together. All in all it was awonderful trip. It's too bad all 84-year-olds can't beas young as my father.Hugs and blessings,Gwynne 58 Single-lung transplant on 4-3-08at UTHSC - San Fort Worth, TX Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2009 Report Share Posted April 24, 2009 Gwynnie.... what a wonderful post to read from you! God did and has and is truly blessing you. I'm so glad to hear all is well. Keep on keepin' on. MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there! Update on Gwynne Hi Everyone.My dad and I drove to San and on Tuesday Ihad my one-year follow-up appointment with Dr. Angel.I was really excited to see him again. He said I passedthe first year with flying colors. The new lung is workingat 92% capacity. Sounds good to me! He said all mytests showed that things really couldn't be better (andthere was a LOT of testing.)We got to tour the pulmonary research facility wherethe rat lab is. That was fascinating. There are only 5places nationally where they do actual rat lungtransplants, and it's interesting and important work.Now they're doing testing with nanoparticle deliveryof anti-rejection drugs, which should lead to increasedsurvivability of transplant patients during that firstcritical year. I got the biggest charge out of the tinylittle surgical tools that are used on these microsurgeries.I went back to my old room and said hello to several ofmy nurses from a year ago. Then we got to go to an annualceremony (talk about good timing!) honoring all those peoplewho donated organs the past year. The experience is stillso raw for the donor families, and it was very moving. I washonored to be there as someone who has received the giftof life.My dad and I had a delicious Tex Mex dinner on Mondaynight. Then on Wednesday we stopped in Austin on theway home to see my daughter and son-in-law, whohave just completed the renovation on their little fixerupper house. It's darling and they're so proud and happy.We got to go to lunch with them before we headed out.My dad and I had some great conversations in the carduring our three days together. All in all it was awonderful trip. It's too bad all 84-year-olds can't beas young as my father.Hugs and blessings,Gwynne 58 Single-lung transplant on 4-3-08at UTHSC - San Fort Worth, TX Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2009 Report Share Posted April 24, 2009 Gwynnie.... what a wonderful post to read from you! God did and has and is truly blessing you. I'm so glad to hear all is well. Keep on keepin' on. MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there! Update on Gwynne Hi Everyone.My dad and I drove to San and on Tuesday Ihad my one-year follow-up appointment with Dr. Angel.I was really excited to see him again. He said I passedthe first year with flying colors. The new lung is workingat 92% capacity. Sounds good to me! He said all mytests showed that things really couldn't be better (andthere was a LOT of testing.)We got to tour the pulmonary research facility wherethe rat lab is. That was fascinating. There are only 5places nationally where they do actual rat lungtransplants, and it's interesting and important work.Now they're doing testing with nanoparticle deliveryof anti-rejection drugs, which should lead to increasedsurvivability of transplant patients during that firstcritical year. I got the biggest charge out of the tinylittle surgical tools that are used on these microsurgeries.I went back to my old room and said hello to several ofmy nurses from a year ago. Then we got to go to an annualceremony (talk about good timing!) honoring all those peoplewho donated organs the past year. The experience is stillso raw for the donor families, and it was very moving. I washonored to be there as someone who has received the giftof life.My dad and I had a delicious Tex Mex dinner on Mondaynight. Then on Wednesday we stopped in Austin on theway home to see my daughter and son-in-law, whohave just completed the renovation on their little fixerupper house. It's darling and they're so proud and happy.We got to go to lunch with them before we headed out.My dad and I had some great conversations in the carduring our three days together. All in all it was awonderful trip. It's too bad all 84-year-olds can't beas young as my father.Hugs and blessings,Gwynne 58 Single-lung transplant on 4-3-08at UTHSC - San Fort Worth, TX Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2009 Report Share Posted April 24, 2009 Gwynne, How great to hear from you!!!! Your trip with your Dad was wonderful too. You are fortunate to have this time with each other!!! Enjoy your Happy New First Year Lungs with many more easy breathing years to come. Isn't science f.......g amazing!!! Z fibriotic NSIP/05 Z 65, fibriotic NSIP/05/PA And “mild” PH/10/07 an Reynaud’s too!! No, NSIP was not self-inflicted…I never smoked! Potter, reader,carousel lover and MomMom to Darah and Sara “I’m gonna be iron like a lion in Zion” Bob Marley Vinca Minor-periwinkle is my flower Gwynne Keyland wrote: Hi Everyone. My dad and I drove to San and on Tuesday I had my one-year follow-up appointment with Dr. Angel. I was really excited to see him again. He said I passed the first year with flying colors. The new lung is working at 92% capacity. Sounds good to me! He said all my tests showed that things really couldn't be better (and there was a LOT of testing.) We got to tour the pulmonary research facility where the rat lab is. That was fascinating. There are only 5 places nationally where they do actual rat lung transplants, and it's interesting and important work. Now they're doing testing with nanoparticle delivery of anti-rejection drugs, which should lead to increased survivability of transplant patients during that first critical year. I got the biggest charge out of the tiny little surgical tools that are used on these microsurgeries. I went back to my old room and said hello to several of my nurses from a year ago. Then we got to go to an annual ceremony (talk about good timing!) honoring all those people who donated organs the past year. The experience is still so raw for the donor families, and it was very moving. I was honored to be there as someone who has received the gift of life. My dad and I had a delicious Tex Mex dinner on Monday night. Then on Wednesday we stopped in Austin on the way home to see my daughter and son-in-law, who have just completed the renovation on their little fixer upper house. It's darling and they're so proud and happy. We got to go to lunch with them before we headed out. My dad and I had some great conversations in the car during our three days together. All in all it was a wonderful trip. It's too bad all 84-year-olds can't be as young as my father. Hugs and blessings, Gwynne 58 Single-lung transplant on 4-3-08 at UTHSC - San Fort Worth, TX Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2009 Report Share Posted April 24, 2009 Gwynne, How great to hear from you!!!! Your trip with your Dad was wonderful too. You are fortunate to have this time with each other!!! Enjoy your Happy New First Year Lungs with many more easy breathing years to come. Isn't science f.......g amazing!!! Z fibriotic NSIP/05 Z 65, fibriotic NSIP/05/PA And “mild” PH/10/07 an Reynaud’s too!! No, NSIP was not self-inflicted…I never smoked! Potter, reader,carousel lover and MomMom to Darah and Sara “I’m gonna be iron like a lion in Zion” Bob Marley Vinca Minor-periwinkle is my flower Gwynne Keyland wrote: Hi Everyone. My dad and I drove to San and on Tuesday I had my one-year follow-up appointment with Dr. Angel. I was really excited to see him again. He said I passed the first year with flying colors. The new lung is working at 92% capacity. Sounds good to me! He said all my tests showed that things really couldn't be better (and there was a LOT of testing.) We got to tour the pulmonary research facility where the rat lab is. That was fascinating. There are only 5 places nationally where they do actual rat lung transplants, and it's interesting and important work. Now they're doing testing with nanoparticle delivery of anti-rejection drugs, which should lead to increased survivability of transplant patients during that first critical year. I got the biggest charge out of the tiny little surgical tools that are used on these microsurgeries. I went back to my old room and said hello to several of my nurses from a year ago. Then we got to go to an annual ceremony (talk about good timing!) honoring all those people who donated organs the past year. The experience is still so raw for the donor families, and it was very moving. I was honored to be there as someone who has received the gift of life. My dad and I had a delicious Tex Mex dinner on Monday night. Then on Wednesday we stopped in Austin on the way home to see my daughter and son-in-law, who have just completed the renovation on their little fixer upper house. It's darling and they're so proud and happy. We got to go to lunch with them before we headed out. My dad and I had some great conversations in the car during our three days together. All in all it was a wonderful trip. It's too bad all 84-year-olds can't be as young as my father. Hugs and blessings, Gwynne 58 Single-lung transplant on 4-3-08 at UTHSC - San Fort Worth, TX Quote Link to comment Share on other sites More sharing options...
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