Re: meds, oxygen and prednisone....

[Guest guest]

I personally had problems with prednisone; depression, weight gain, hair loss

and tremendous fatigue. I was on a high dose of 60 mg/day for 2 months. Check

with your doctor and double check drug interactions. I too had problems fixing

my own hair when I was on the prednisone. I had a lot of problems. The oxygen

helps, I'm on 2 liters every night. I am also taking a diabetes medication

(diabetes induced by the prednisone... another thing to watch out for), blood

pressure medication and a statin for cholesterol. Statins can also be tricky.

I am on a 40mg statin that I have to split as at full dose I have unbelievably

painful leg cramps. The half dose is perfect. Though, another option is

quinine (used to be for sleeping sickness and requires a prescription... again

check for drug interactions)... works great for leg cramps. AND AS ALWAYS...

check with your doctor... they know (or should know) more about your physiology

than anyone else.

As always,

Stefani

>

> I guess that you missed my post about my house. I don't have it on the market

yet because first my niece wanted it but she can't get a lone for at least six

months and I can't wait that long. Now my son-in-law knows someone who wants

investment property and a place to stay when they go to Silverwood theme park.

My house should fit that. I haven't heard anything from my daughter yet. I will

wait until next week. Then if she doesn't call me I will call her. I can't wait

much longer to put it on the market. I can't do a garage sale. I just don't

have the strength.

> I will have to move everything. Then my daughter said that she will have a

sale for me. I don't have any help.

> I am worried. I am just so very tired all of the time. My sister thinks that

they are killing me with the meds and oxygen. She can't seem to get it that I

have to have the oxygen. Maybe the Prednisone is doing it. All the pulmo dude

has put me on is prednisone and NAC. Do any of you know what can be making me so

tired. I have an appointment with the pulmo doc in 2 weeks. I am afraid that I

am progressing already. I went to my sister's to have her do my hair and then I

went to the store to get meds and a few groceries. I came home tired and a

little bit breathless. BJ

>

To: Breathe-Support

> Sent: Friday, April 17, 2009 8:39 AM

> Subject: Re: Hi Sher

>

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> You didn't say, is your place on the market yet? You'll no doubt be having

a garage sale first!

> I hope you have someone to help you.

> MamaSher; 70, IPF 3-06, OR.

> Nasturtiums

> Don't fret about tomorrow, God is already there!

>

> Hi Sher

>

>

> Sorry to hear you have been so sick. I did notice that you

hadn't been posting and I mentioned it to my wife, but we have had my son, DIL,

and 2 grandkids (2 & 5 yrs. old),

> with us for the last 12 days and I haven't been on the computer

other that 10 minutes, 3 different days. My butt is dragging trying to be

involved in the activities and I do feel very tired all the time----only three

more days and they will be going back to Olympia, Wa.

>

> My last visit to the Dr. (April 6th) I did my PFTs and

everything is exactly the same except for my DLCO---it has dropped from 55% down

to 49%. In the last 10 months it has dropped from 68% to 49%, so needless to

say it is starting to make me nervous.

>

> What has been going on with you? You have usually been the

" rock " of the group? Hope everything is OK and we can contribute it to the

weather? I did hear you talking about going to the U of W medical hospital for

an evaluation? I just talked to my Dr about checking at the U of W for a

transplant evaluation, so I may go there also, but I don't know when.

> Tell Rich hi and hopefully I will be making the trip up to

Washington again and I can meet up with you guys again.

> Hope you get better and back to posting!!!!!!!!!

> G. UIP/ IPF 5/07

>