Hi I am a newbie to the site, some help please

[Guest guest]

My journey started 2 years ago wwhen I had a UTI I did not know I had

went to the E.R. cause of a really bad head ache work up 8 days later

on life support and I haven't been right since. I had been see the

Doctor that had taken care of me in the hospital and at first he did

really good, he put me on sprivia, advair and xeopenox but things

just kept getting worse I;ve been in the shopital14 times in 2 years

and they all say its pnuemonia. Well I changed doctors and this doc

really got on the ball, first he did alot of blood work the a bronc.

and then an open biopsy which showed I was approaching end stage

Pulmonary Fibrosis, and had DIP, Idiopathic pulmonary fibrosis,

aspergillous versicolor, and a few others that doesn't come to mind

right now. Well my new pulmo.suggested I go to a University in

Atlanta at Emory Hosptial, I went and took all the papers, test, cat

scans and the path department here overnight my biopsy slides to them

and they re read them and came up with a totally diferent diagonsis,

so now I have two different opions and still no answers, I go see my

reg pulmo on Wed, kind of courious what he is going to say and do.

Atlanta put me on a 90 days supply of predisone 30mg a day. Walking

from the bathroom to the ditchen which isn't very far without o2 my

sats will drop in the low eighties. going to the car I'm usually in

the sixties before I get in to it, the docs in Atlanta I felt like

just dismissed it as being nothing but I don't feel its nothing and

I've already been on life support once. Guess will see on Wed. THanks

for listening.

Kyetia