Guest guest Posted April 2, 2009 Report Share Posted April 2, 2009 From: JOE & JOANIE LAMENSKIE Date: 4/2/2009 8:08:22 PM To: Breathe-Support@yahoogrou Subject: TRIAL MEDS HI GANG, Per conversation on the chat, here is the info on the trial drug. ARTEMIS: a phase 3, randomized, double-blind, placebo controlled, multi-center, parallel group, event driven study to evaluate the efficacy and safety of Ambrisentan in subjects with early Idiopathic Pulmonary Fibrosis (IPF). The company sponsoring is Gilead Sciences Inc. They are located in Seattle, Washington Protocol no: GS-US-231-0101 WRIB Protocol #20081290 W00000067 The study is 1-3 years. I was informed the study will begin in the next 4-6 weeks. I will receive a call next week to fill me in on schedule. As I learn more I will keep ya'll informed. I enjoyed chat tonight. It is nice to hear voices of fellow comrades with this stupid disease. Hope all is well, Joe JOE & JOANIE LAMENSKIE IPF JAN. 2008 -- I missed the Chat I am sorry that I missed the Chat tonight. I wish I could have heard all of your voices. Hope everyone is doing well. I started back to my exercise class yesterday after a month of bronchitis and 20 days of Avelox + one steroid shot. Today I was on the Nustep for 30 minutes, arm bicycle for ten minutes and treadmill for 10 minutes = 50 minutes. Yesterday I was on the bicycle for 20 minutes, treadmill for 10 minutes, Nustep for 10 minutes and arm bicycle for 10 minutes = 50 minutes. I feel better today. Toodles! Jane UIP/IPF 12/1998 Dalton, Georgia aka pianolady_musicgirl Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2009 Report Share Posted April 2, 2009 Jane, It sounds as if we've had a similarly miserable month!!!I've also gone through 3 different antibiotics and a huge raise of my prednisone ( from 10 to 60 and now starting to go back slowly to my normal 10)to fight off bronchitis! In addition to that lovely 3 days in the "big house" two weeks ago. I'm hoping to get back to my exercise stuff by the week-end...light weights and the treadmil I hope you're feeling better and that you have a great week-end It was good to chat tonight. Thanks Joe and Joanie for the study info. Lou...We all love you today and every day...sweet dreams! Z fibriotic NSIP/05 Z 65, fibriotic NSIP/05/PA And “mild” PH/10/07 and Reynaud’s too!! No, NSIP was not self-inflicted…I never smoked! Potter, reader,carousel lover and MomMom to Darah and Sara “I’m gonna be iron like a lion in Zion” Bob Marley Vinca Minor-periwinkle is my flower JOE & JOANIE LAMENSKIE wrote: From: JOE & JOANIE LAMENSKIE Date: 4/2/2009 8:08:22 PM To: Breathe-Support@yahoogrou Subject: TRIAL MEDS HI GANG, Per conversation on the chat, here is the info on the trial drug. ARTEMIS: a phase 3, randomized, double-blind, placebo controlled, multi-center, parallel group, event driven study to evaluate the efficacy and safety of Ambrisentan in subjects with early Idiopathic Pulmonary Fibrosis (IPF). The company sponsoring is Gilead Sciences Inc. They are located in Seattle, Washington Protocol no: GS-US-231-0101 WRIB Protocol #20081290 W00000067 The study is 1-3 years. I was informed the study will begin in the next 4-6 weeks. I will receive a call next week to fill me in on schedule. As I learn more I will keep ya'll informed. I enjoyed chat tonight. It is nice to hear voices of fellow comrades with this stupid disease. Hope all is well, Joe JOE & JOANIE LAMENSKIE IPF JAN. 2008 -------Original Message------- From: Jane Date: 4/2/2009 9:31:59 PM To: Breathe-Support Subject: I missed the Chat I am sorry that I missed the Chat tonight. I wish I could have heard all of your voices. Hope everyone is doing well. I started back to my exercise class yesterday after a month of bronchitis and 20 days of Avelox + one steroid shot. Today I was on the Nustep for 30 minutes, arm bicycle for ten minutes and treadmill for 10 minutes = 50 minutes. Yesterday I was on the bicycle for 20 minutes, treadmill for 10 minutes, Nustep for 10 minutes and arm bicycle for 10 minutes = 50 minutes. I feel better today. Toodles! Jane UIP/IPF 12/1998 Dalton, Georgia aka pianolady_musicgirl Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2009 Report Share Posted April 2, 2009 Jane, It sounds as if we've had a similarly miserable month!!!I've also gone through 3 different antibiotics and a huge raise of my prednisone ( from 10 to 60 and now starting to go back slowly to my normal 10)to fight off bronchitis! In addition to that lovely 3 days in the "big house" two weeks ago. I'm hoping to get back to my exercise stuff by the week-end...light weights and the treadmil I hope you're feeling better and that you have a great week-end It was good to chat tonight. Thanks Joe and Joanie for the study info. Lou...We all love you today and every day...sweet dreams! Z fibriotic NSIP/05 Z 65, fibriotic NSIP/05/PA And “mild” PH/10/07 and Reynaud’s too!! No, NSIP was not self-inflicted…I never smoked! Potter, reader,carousel lover and MomMom to Darah and Sara “I’m gonna be iron like a lion in Zion” Bob Marley Vinca Minor-periwinkle is my flower JOE & JOANIE LAMENSKIE wrote: From: JOE & JOANIE LAMENSKIE Date: 4/2/2009 8:08:22 PM To: Breathe-Support@yahoogrou Subject: TRIAL MEDS HI GANG, Per conversation on the chat, here is the info on the trial drug. ARTEMIS: a phase 3, randomized, double-blind, placebo controlled, multi-center, parallel group, event driven study to evaluate the efficacy and safety of Ambrisentan in subjects with early Idiopathic Pulmonary Fibrosis (IPF). The company sponsoring is Gilead Sciences Inc. They are located in Seattle, Washington Protocol no: GS-US-231-0101 WRIB Protocol #20081290 W00000067 The study is 1-3 years. I was informed the study will begin in the next 4-6 weeks. I will receive a call next week to fill me in on schedule. As I learn more I will keep ya'll informed. I enjoyed chat tonight. It is nice to hear voices of fellow comrades with this stupid disease. Hope all is well, Joe JOE & JOANIE LAMENSKIE IPF JAN. 2008 -------Original Message------- From: Jane Date: 4/2/2009 9:31:59 PM To: Breathe-Support Subject: I missed the Chat I am sorry that I missed the Chat tonight. I wish I could have heard all of your voices. Hope everyone is doing well. I started back to my exercise class yesterday after a month of bronchitis and 20 days of Avelox + one steroid shot. Today I was on the Nustep for 30 minutes, arm bicycle for ten minutes and treadmill for 10 minutes = 50 minutes. Yesterday I was on the bicycle for 20 minutes, treadmill for 10 minutes, Nustep for 10 minutes and arm bicycle for 10 minutes = 50 minutes. I feel better today. Toodles! Jane UIP/IPF 12/1998 Dalton, Georgia aka pianolady_musicgirl Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2009 Report Share Posted April 3, 2009 Z. Sorry to hear about your visit to the "big house" and 3 antibiotics? Wow! I am still coughing up stuff and doing some neubulizing. I am trying to avoid that old booger called pneumonia. I am hoping that the exercise will help me to feel better. Take care of you, Z. Toodles! Jane UIP/IPF 12/1998 Dalton, Georgia aka pianolady_musicgirl> >> > /*From:*/ JOE & JOANIE LAMENSKIE > /*Date:*/ 4/2/2009 8:08:22 PM> > /*To:*/ Breathe-Support@yahoogrou <mailto:Breathe-Support > > /*Subject:*/ TRIAL MEDS> > > > > > > > > >> > HI GANG,> > Per conversation on the chat, here is the info on the trial drug.> > ARTEMIS: a phase 3, randomized, double-blind, placebo controlled, > > multi-center, parallel group, event driven study to evaluate the > > efficacy and safety of Ambrisentan in subjects with early Idiopathic > > Pulmonary Fibrosis (IPF). The company sponsoring is Gilead Sciences Inc.> > They are located in Seattle, Washington> > Protocol no: GS-US-231-0101> > WRIB Protocol #20081290> > W00000067> > The study is 1-3 years.> > I was informed the study will begin in the next 4-6 weeks. I will > > receive a call next week to fill me in on schedule. As I learn more I > > will keep ya'll informed.> > I enjoyed chat tonight. It is nice to hear voices of fellow > > comrades with this stupid disease.> > > > Hope all is well,> > > > Joe> > > > > > JOE & JOANIE LAMENSKIE> > IPF JAN. 2008> >> > > > > >> > > > /--*/ I missed the Chat> > > >> > I am sorry that I missed the Chat tonight. I wish I could have heard > > all of your voices. Hope everyone is doing well. I started back to > > my exercise class yesterday after a month of bronchitis and 20 days of > > Avelox + one steroid shot.> >> > Today I was on the Nustep for 30 minutes, arm bicycle for ten minutes > > and treadmill for 10 minutes = 50 minutes. Yesterday I was on the > > bicycle for 20 minutes, treadmill for 10 minutes, Nustep for 10 > > minutes and arm bicycle for 10 minutes = 50 minutes. I feel better today.> >> > Toodles!> >> > Jane UIP/IPF 12/1998 Dalton, Georgia aka pianolady_musicgirl> >> > > >> > > > > >> > Free Animations for your email - by IncrediMail! Click Here! > > <http://www.incredimail.com/?id=600876 & rui=110113153>> >> >> Quote Link to comment Share on other sites More sharing options...
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