Re: Hi Dyane

[Guest guest]

Hi Margaret,

From one round grammie to another! You sound like me, I too am 150lbs

overweight and aside from the fact it may keep me from transplant, I'm

not gonna worry about it anymore! You need oxygen to work out

aerobically and the one thing we all lack is enough o2 LOL so there, we

have an actual medical excuse. (on top of the fact I make one mean

rhrubarb pie!) Crinkle gauze makes great grammie dresses. Have a good

one!

Dyane

Life's journey is not to arrive at the grave safely in a well preserved

body, but rather to slide in sideways, thoroughly used up, totally worn

out, screaming " HOLY S**T what a ride!

>

> Hi Dyane,

> ���� When I was trying to find out what was causing

my�SOB &�coughing problems, I had visited about 8-10 different

DRs between Washington St. and Arizona before I met Dr. Comp in

Phoenix, ( he does not work at the Mayo Clinic)�he immediately told

me that he thought I had a pulmonary fibrosis problem and he ordered a

Hi-resolution Cat scan and wanted the Mayo Clinic in sdale to do

it, as they had the best radiologist in his opinion.�

> ���� �After going to the Mayo (this is a negative

story in it self)�and getting caught up in their " greater that

thou " Doctors & medical progam for a year, I�finally got pissed off

and went back to Dr. Comp in April�and we talked about the pro &

con of a biopsy, had the biopsy done May 1, 2008 and had me in a

Bosentan Drug trial study program by July and everything has been mostly

" Stable " since then with an occassional bad day here and there,

depending on the weather, how well I pace myself with my exercise

program and watching what I eat.� If I could just stay the way I am

now, I would be a happy camper, but we all know that it is just a matter

of time-------

> ���� I am not on O2 yet, I stay active�by taking my

yellow lab (Dakota) to the park 3-4 times a day and throwing the ball

and letting him get his exercise also, I only live 3 blocks from the

park..

> ���� I had my biopsy at JCL, spent 4 days there LOVED my

nursing staff except for 1 girl on the nite shift and they immediately

moved her when I raised questions about her " nursing talents. " � My

surgeon Dr Derrick Von Hegge did a fabulous job, I felt so good after

the�VATS biopsy that I told my wife I was thinking about getting

one done every other month--LOL.��

> ���� Then Bosentan Study I am in is a blind study so no one

knows if I am on the drug or placebo except some dude back at the

factory.� I kinda think I am on it because the first blood test

they took my liver enzyme count was down and that was an indicator

according to the�medical journal, so I take a Iron pill every day

and that brought it back to normal.

> The only other drugs I take is Benzonatate 200mg, it helps

me�with the SOB and coughing and allows me to get that " full deep

breath. "

> ���� If you would like to communicate by

phone�concerning our Hospital and Dr issues or what ever, just

Email me at sngodfrey46@ yahoo.com and I will give you my Phone #�.

> Maybe between the two of us we can find that " miracle Doctor " in

Phoenix to solve our problems.�

> �� G.� UIP/IPF� 5/07� AZ

> P.S.� Tell your daughter that Anthem is the best place in the

world to raise kids!!!!!!

> ����

>

>

>

> --

> Dyane 53 �Phoenix, AZ Diabetic 96, NSIP 02 Breast Cancer 02,

Fibro 07, IPF 07, lipodermatosclerosi s 08, and Ive forgotten the rest

�HA HA

>