Re: Lab Results - severely high - what is the highest ever?

[Guest guest]

Elaine said:

Hi ,

" Your lab results are severely high, about what we see when new Graves'

patients come into the emergency room. Symptoms, though, are more important

than lab results. "

This just blows my mind I have to say. My lab numbers were even more

severely high " when I first went to the docs last December. And my symptoms

were out of control... Yet I went around and around with 4-5 docs (over 4

months) who wouldn't treat me because they thought my thyroid was just dying

out and because I wouldn't do the uptake scan so they didn't want to

prescribe meds until I did. I'm sitting here thinking of all the emails I

got from people telling me how dangerously high my numbers were and that I

was going to die if I didn't get help asap... and I'm wondering (besides how

did I get so lucky that I didn't die), what is the highest numbers that

people have had?

Here are mine - now how severe is this really? And how does it compare to

the rest of you who were told that yours were severe to? (All of these were

before I started any treatment other than the beta-blocker)

Results of blood work on 1/28/2000

Total T4: 24 (range 4.5 -12.5)

Results of blood work on 12/26/2001

T3: 1065 (range 70-180)

Results of blood work on 2/22/2002

TSI: 501 H % (range <130%)

Results of blood work on 5/4/02

Free T3 14.1 (1.3-4.2)

Free T4 5.4 (0.8-1.6)

Pam B.

Diagnosed 12/01 (hyper with both graves and hashimotos ABs)

Mostly Alt Med - doing MUCH better. Numbers very close to normal and ABs

going away.

My story: http://www.webmosaics.com/thyroid/

" If you can't be a good example, then you'll just have to be a horrible

warning. " - anonymous

[Guest guest]

> Here are mine - now how severe is this really? And how does it

compare to

> the rest of you who were told that yours were severe to? (All of

these were

> before I started any treatment other than the beta-blocker)

>

> Results of blood work on 1/28/2000

> Total T4: 24 (range 4.5 -12.5)

>

> Results of blood work on 12/26/2001

> T3: 1065 (range 70-180)

>

> Results of blood work on 2/22/2002

> TSI: 501 H % (range <130%)

>

> Results of blood work on 5/4/02

> Free T3 14.1 (1.3-4.2)

> Free T4 5.4 (0.8-1.6)

>

> Pam B.

Pam, My labs were considered extremely high also, ...not even

measurable they were so high (8/22/02-before treatment):

FT4 >6.0, range .0.6-2.0

TSH <.002, range 0.3-5.0

Antibodies: Microsomal AB 266, range <35; Thyroglobulin AB 148, range

<40.

For the antibodies...I think the microsomal AB is TPO. Is

Thyroglobulin AB TSI? I just want to make sure I'm talking the same

labs as most do on this board.

I was told by my endo that my labs were so severly high that RAI was

the only realistic choice for me. I had an RAI Uptake that also had

very high results. Without this board and especially Jody and Val, I

might have headed towards that choice. I am so thankful that I chose

PTU and homeopathic remedies instead. I think that the numbers can

be confusing, and that a lot depends on how you actually feel. For

me, the biggest help with dealing with Graves', has been being able

to learn more about it, and especially alternative treatment options.

Every person and situation is different, someone with lower labs

maybe in more of a crisis than those of us with the more extreme

numbers.

Pam, BTW, I was interested in how the Portland get-together went this

last week. I was wishing I could have hopped over there from Boise,

just to touch base with others on this board who've been so helpful.

Maybe this came up in a previous post...I've only been able to log on

occasionally lately.

.

Diagnosed 8/02; on PTU and homeopathic/herbal remedies; doing much

better.

[Guest guest]

Hi Pam,

Like I said, symptoms are more important than lab values, although when lab

values are markedly high, symtoms usually are out of control. People don't

die from having high thyroid hormone levels. People in thyroid storm do not

necessarily have higher thyroid hormone levels than other people. Thyroid

storm occurs when changes in the body, like that caused by an infection,

change the way cells and neurotransmitters react with thyroid hormone.

Certain symptoms are also suggestive of thyroid storm. You may not have had

those. I do recall your doctor's insisting on the uptake test and that was

ridiculous given your high TSI. Take care, Elaine