Guest guest Posted July 19, 2005 Report Share Posted July 19, 2005 Hello ladies and gents. Lets start of with Joe , Joe is doing pretty good EXCEPT for the neuropathy they have him on 100mg x3 a day now of neurontin. up from 100 x1 aday Just started this so we will see hopefully gives him some relief as NOTHING else is helping he is getting grumpy from no relief from it , he has also just started to have a burning sensation around old stoma area , AND he now has stretch marks around it ( they werent there last week) As for Dani, she finally has NO MORE problems with plumbing lol , she ate a bowl of cherries for breakfast works as well as prunes we found out Only one headache today (pretty good ) However not sure if I told you but they had to strap her down to the table with TAPE of all things , and we found out she is allergic to it , so her back is peeling just like a bad sunburn Also her legs ( back of thighs/butt muscles) HURT horrible for her tonight , not sure why but hurt so bad i found her sitting in hall , when I asked her why she said that she was coming into our room but legs hurt to bad now i have NO IDEA whats causing this HOWEVER if she is still having issues in the morn im calling doc!! Thinking perhaps its cause she laid on them for a week and now they are protesting , least thats what i hope Deb 33yrold husband Joe, was diagnosed with CC in Sept, resection on Sept 27th 2004 found mets to the abdominal wall lining 3 lymph nodes involved open wound from infection until Jan 2005 Ileostomy reversal Dec 7th 2004 Chemo regiment begun Jan 2005 5fu/levorican/Oxaplatin/ Avastin added Feb 14 2005 (Happy Valentines Calcium Magnesium added for the Tingles Feb 28 2005 Ct Scan done March 23rd 2005 , 16 millimeter cyst like object on liver found April 1 2005 PET scan done awaiting results April 11 PET SCAN SHOWS NED!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! May 9 Plateletts are low 75,000 __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2005 Report Share Posted July 20, 2005 OhHH Deb, Always something. Hopefully Dani is feeling better today. It is rough on ones body getting over the surgery. Perhaps that is all it is. I do hope and Pray you are holding up. This has got to be zapping on your part. Take it easy for yourself also. Ingrid > Hello ladies and gents. > Lets start of with Joe , Joe is doing pretty good EXCEPT for the neuropathy they have him on 100mg x3 a day now of neurontin. up from 100 x1 aday > Just started this so we will see hopefully gives him some relief as NOTHING else is helping he is getting grumpy from no relief from it : ( , he has also just started to have a burning sensation around old stoma area , AND he now has stretch marks around it ( they werent there last week) > > As for Dani, she finally has NO MORE problems with plumbing lol , she ate a bowl of cherries for breakfast works as well as prunes we found out > Only one headache today (pretty good ) > However not sure if I told you but they had to strap her down to the table with TAPE of all things , and we found out she is allergic to it , so her back is peeling just like a bad sunburn > Also her legs ( back of thighs/butt muscles) HURT horrible for her tonight , not sure why but hurt so bad i found her sitting in hall , when I asked her why she said that she was coming into our room but legs hurt to bad now i have NO IDEA whats causing this HOWEVER if she is still having issues in the morn im calling doc!! > Thinking perhaps its cause she laid on them for a week and now they are protesting , least thats what i hope > > Deb > > > > 33yrold husband Joe, was diagnosed with CC in Sept, > resection on Sept 27th 2004 > found mets to the abdominal wall lining 3 lymph nodes involved > open wound from infection until Jan 2005 > Ileostomy reversal Dec 7th 2004 > Chemo regiment begun Jan 2005 > 5fu/levorican/Oxaplatin/ Avastin added Feb 14 2005 (Happy Valentines > Calcium Magnesium added for the Tingles Feb 28 2005 > Ct Scan done March 23rd 2005 , 16 millimeter cyst like object on liver found > April 1 2005 PET scan done awaiting results > April 11 PET SCAN SHOWS NED!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! > May 9 Plateletts are low 75,000 > > > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2005 Report Share Posted July 20, 2005 OhHH Deb, Always something. Hopefully Dani is feeling better today. It is rough on ones body getting over the surgery. Perhaps that is all it is. I do hope and Pray you are holding up. This has got to be zapping on your part. Take it easy for yourself also. Ingrid > Hello ladies and gents. > Lets start of with Joe , Joe is doing pretty good EXCEPT for the neuropathy they have him on 100mg x3 a day now of neurontin. up from 100 x1 aday > Just started this so we will see hopefully gives him some relief as NOTHING else is helping he is getting grumpy from no relief from it : ( , he has also just started to have a burning sensation around old stoma area , AND he now has stretch marks around it ( they werent there last week) > > As for Dani, she finally has NO MORE problems with plumbing lol , she ate a bowl of cherries for breakfast works as well as prunes we found out > Only one headache today (pretty good ) > However not sure if I told you but they had to strap her down to the table with TAPE of all things , and we found out she is allergic to it , so her back is peeling just like a bad sunburn > Also her legs ( back of thighs/butt muscles) HURT horrible for her tonight , not sure why but hurt so bad i found her sitting in hall , when I asked her why she said that she was coming into our room but legs hurt to bad now i have NO IDEA whats causing this HOWEVER if she is still having issues in the morn im calling doc!! > Thinking perhaps its cause she laid on them for a week and now they are protesting , least thats what i hope > > Deb > > > > 33yrold husband Joe, was diagnosed with CC in Sept, > resection on Sept 27th 2004 > found mets to the abdominal wall lining 3 lymph nodes involved > open wound from infection until Jan 2005 > Ileostomy reversal Dec 7th 2004 > Chemo regiment begun Jan 2005 > 5fu/levorican/Oxaplatin/ Avastin added Feb 14 2005 (Happy Valentines > Calcium Magnesium added for the Tingles Feb 28 2005 > Ct Scan done March 23rd 2005 , 16 millimeter cyst like object on liver found > April 1 2005 PET scan done awaiting results > April 11 PET SCAN SHOWS NED!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! > May 9 Plateletts are low 75,000 > > > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
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