Guest guest Posted July 19, 2005 Report Share Posted July 19, 2005 Hello ladies and gents. Lets start of with Joe , Joe is doing pretty good EXCEPT for the neuropathy they have him on 100mg x3 a day now of neurontin. up from 100 x1 aday Just started this so we will see hopefully gives him some relief as NOTHING else is helping he is getting grumpy from no relief from it , he has also just started to have a burning sensation around old stoma area , AND he now has stretch marks around it ( they werent there last week) As for Dani, she finally has NO MORE problems with plumbing lol , she ate a bowl of cherries for breakfast works as well as prunes we found out Only one headache today (pretty good ) However not sure if I told you but they had to strap her down to the table with TAPE of all things , and we found out she is allergic to it , so her back is peeling just like a bad sunburn Also her legs ( back of thighs/butt muscles) HURT horrible for her tonight , not sure why but hurt so bad i found her sitting in hall , when I asked her why she said that she was coming into our room but legs hurt to bad now i have NO IDEA whats causing this HOWEVER if she is still having issues in the morn im calling doc!! Thinking perhaps its cause she laid on them for a week and now they are protesting , least thats what i hope Deb 33yrold husband Joe, was diagnosed with CC in Sept, resection on Sept 27th 2004 found mets to the abdominal wall lining 3 lymph nodes involved open wound from infection until Jan 2005 Ileostomy reversal Dec 7th 2004 Chemo regiment begun Jan 2005 5fu/levorican/Oxaplatin/ Avastin added Feb 14 2005 (Happy Valentines Calcium Magnesium added for the Tingles Feb 28 2005 Ct Scan done March 23rd 2005 , 16 millimeter cyst like object on liver found April 1 2005 PET scan done awaiting results April 11 PET SCAN SHOWS NED!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! May 9 Plateletts are low 75,000 --------------------------------- Start your day with Yahoo! - make it your home page Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2005 Report Share Posted July 20, 2005 Morning Deb. Sorry to hear that Joe still having problems with neuropathy... From what I have read it can take 6 mos to a year to go away. Hope the neurontin works. Does he do alot of walking etc. at work or for exercise. From What Jay said I got the idea that walking helped somewhat.. Just a thought. A person mulls this stuff around in their mind, and thinks what might work, maybe maybe that. But we can try and see if it might. LOL... Oh I know about the darn tape. When I was in for the initial surgery they gave me epidermal to help with pain after surgery. It helped but I had such a heavy butt could hardly move and my legs looked like tree stumps. Swelled up something fierce. Anyway the tape the epidural on my back with that darn tape. At first couldn't figure out why I was itching, thought just cause I was sweating etc. Then they finally looked and was all broke out from the darn tape. And right around where the epidural was - was really sore and took awhile to heal and think I have a scar from it as well.. Told them keep that tape away from me. LOL... Goodness hope Dani doing okay.... Check out the Aveeno lotions and body washes... Oh yes I bought a bottle of lotion and got a bottle of body wash that reduces stress. Hooray.. LOL. but love the lotion and body washes. Take care big hugs to whole family... JOlene d vamdembos wrote: > Hello ladies and gents. > Lets start of with Joe , Joe is doing pretty good EXCEPT for the > neuropathy they have him on 100mg x3 a day now of neurontin. up from > 100 x1 aday > Just started this so we will see hopefully gives him some relief as > NOTHING else is helping he is getting grumpy from no relief from it > , he has also just started to have a burning sensation around old > stoma area , AND he now has stretch marks around it ( they werent > there last week) > > As for Dani, she finally has NO MORE problems with plumbing lol , she > ate a bowl of cherries for breakfast works as well as prunes we found > out > Only one headache today (pretty good ) > However not sure if I told you but they had to strap her down to the > table with TAPE of all things , and we found out she is allergic to it > , so her back is peeling just like a bad sunburn > Also her legs ( back of thighs/butt muscles) HURT horrible for her > tonight , not sure why but hurt so bad i found her sitting in hall , > when I asked her why she said that she was coming into our room but > legs hurt to bad now i have NO IDEA whats causing this HOWEVER if > she is still having issues in the morn im calling doc!! > Thinking perhaps its cause she laid on them for a week and now they > are protesting , least thats what i hope > > Deb > > > > 33yrold husband Joe, was diagnosed with CC in Sept, > resection on Sept 27th 2004 > found mets to the abdominal wall lining 3 lymph nodes involved > open wound from infection until Jan 2005 > Ileostomy reversal Dec 7th 2004 > Chemo regiment begun Jan 2005 > 5fu/levorican/Oxaplatin/ Avastin added Feb 14 2005 (Happy Valentines > Calcium Magnesium added for the Tingles Feb 28 2005 > Ct Scan done March 23rd 2005 , 16 millimeter cyst like object on liver > found > April 1 2005 PET scan done awaiting results > April 11 PET SCAN SHOWS > NED!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! > May 9 Plateletts are low 75,000 > > > > > > --------------------------------- > Start your day with Yahoo! - make it your home page > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2005 Report Share Posted July 20, 2005 Morning Deb. Sorry to hear that Joe still having problems with neuropathy... From what I have read it can take 6 mos to a year to go away. Hope the neurontin works. Does he do alot of walking etc. at work or for exercise. From What Jay said I got the idea that walking helped somewhat.. Just a thought. A person mulls this stuff around in their mind, and thinks what might work, maybe maybe that. But we can try and see if it might. LOL... Oh I know about the darn tape. When I was in for the initial surgery they gave me epidermal to help with pain after surgery. It helped but I had such a heavy butt could hardly move and my legs looked like tree stumps. Swelled up something fierce. Anyway the tape the epidural on my back with that darn tape. At first couldn't figure out why I was itching, thought just cause I was sweating etc. Then they finally looked and was all broke out from the darn tape. And right around where the epidural was - was really sore and took awhile to heal and think I have a scar from it as well.. Told them keep that tape away from me. LOL... Goodness hope Dani doing okay.... Check out the Aveeno lotions and body washes... Oh yes I bought a bottle of lotion and got a bottle of body wash that reduces stress. Hooray.. LOL. but love the lotion and body washes. Take care big hugs to whole family... JOlene d vamdembos wrote: > Hello ladies and gents. > Lets start of with Joe , Joe is doing pretty good EXCEPT for the > neuropathy they have him on 100mg x3 a day now of neurontin. up from > 100 x1 aday > Just started this so we will see hopefully gives him some relief as > NOTHING else is helping he is getting grumpy from no relief from it > , he has also just started to have a burning sensation around old > stoma area , AND he now has stretch marks around it ( they werent > there last week) > > As for Dani, she finally has NO MORE problems with plumbing lol , she > ate a bowl of cherries for breakfast works as well as prunes we found > out > Only one headache today (pretty good ) > However not sure if I told you but they had to strap her down to the > table with TAPE of all things , and we found out she is allergic to it > , so her back is peeling just like a bad sunburn > Also her legs ( back of thighs/butt muscles) HURT horrible for her > tonight , not sure why but hurt so bad i found her sitting in hall , > when I asked her why she said that she was coming into our room but > legs hurt to bad now i have NO IDEA whats causing this HOWEVER if > she is still having issues in the morn im calling doc!! > Thinking perhaps its cause she laid on them for a week and now they > are protesting , least thats what i hope > > Deb > > > > 33yrold husband Joe, was diagnosed with CC in Sept, > resection on Sept 27th 2004 > found mets to the abdominal wall lining 3 lymph nodes involved > open wound from infection until Jan 2005 > Ileostomy reversal Dec 7th 2004 > Chemo regiment begun Jan 2005 > 5fu/levorican/Oxaplatin/ Avastin added Feb 14 2005 (Happy Valentines > Calcium Magnesium added for the Tingles Feb 28 2005 > Ct Scan done March 23rd 2005 , 16 millimeter cyst like object on liver > found > April 1 2005 PET scan done awaiting results > April 11 PET SCAN SHOWS > NED!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! > May 9 Plateletts are low 75,000 > > > > > > --------------------------------- > Start your day with Yahoo! - make it your home page > > Quote Link to comment Share on other sites More sharing options...
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