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Brain Fog

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  • 1 year later...
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> Margie,

> Thanks for the information. I'm thinking all my pain is associated with my

recently dx Relapsing Polychondritis. This rare disease gives me a whole new

level of symptoms to have woven into my already complex health issues. Some

doctors are so conservative that they won't acknowledge things like

edema/ascites, HE, itching,pain, etc unless they can see it, touch it, smell it,

you know. I'm so glad that you have the treatment that has been helping you. I'm

going to check in to it when I get to see a doctor again. I am getting weary of

trying to convince doctors that I am sick. I mean my weight is down to skeletal,

my cheeks are sunken, it's all dark around my eyes, I have horrible skin

infections and sores. Yet, while they acknowledge the illnesses, they seem to be

so casual about it all. I can't stand that attitude. Let me know what you find

out when you do see the doctor. Take care, Cheryl

Cheryl, I don't have any doctor visits scheduled until the end of July. I have

been having extremely dry skin and am hoping that now that I just started back

on name brand Keppra to prevent seizures that the dry skin and rash on my face

will disappear. How can your doctors ignore your symptoms? My internist tells me

to gain weight which I can do if I want to but I stay on the thin side by

choice.

Margie in MO

PSC DX 3/99

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