Infrequent Flyer!

[Guest guest]

Hello to everyone in the group-including more newbies! I have been one of those

lurkers for a while now-going thru more problems as well. I probably have missed

a lot but I am glad (old news) Bruce's move went well. Sorry to hear about you

Beth and hope you are feeling better soon. Slow going day to day more now

for me. Hospice has finally been better with me-you just have to know how to

play their games to get what you need.I was impressed by MB's letter she wrote

about when she was diagnosed and such-she hits the nail right on the head for so

many of us. On top of everything I did come down with the shingles going on six

weeks ago now. Very painful and still is.They are trying to desensitize my skin

with Benadryl cream because I have hyper-sensitive skin now. Hospice said if

this doesn't help it is possible I will have to live with this pain!!! I can't

even wear a shirt on my skin even after 6 weeks! I wouldn't wish this on anyone.

I get into a position and can't move with all the pain going on and now I

believe I have lost more strength and lung capacity from just sitting around. I

have tried everything- my family doc will not give out Lidocaine cream however

and hospice feels this would help. I am really pulling my hair out at this

point. It is hard to stay calm and hang in there with all this pain.

I hope everyone is as well as can be expected. I will try to post once in a

while-not too good at sitting with the computer still. Have a good holiday

weekend. I look forward to my sister coming on Sunday to plant some flowers for

me to cheer me up! Thank God for the family that DOES get it!

God bless you all....

Diane 51 NY PF,PM,RAYNAUDS,SJORGRENS 2006 PH 2008