ZENA Re: Women and PF

[Guest guest]

Oh, Dyane, I hope she gets better soon and that you've managed to miss it. Have you been able to speak to a doc to say that you may have been exposed to it? Might be worth getting a blood test to check.

Love Ze xx> > > >> > > > No, No, No ...... you said nothing to prompt that that reaction> from> > me. Let's just say I read between lines that are not even there. LOL> > > >> > > > Ze ... I was diagnosed with PH before the PF and pulmo docs have> > assured me they are not related --- totally separate diseases. The> PH,> > they stopped just short of saying it was due to my taking of Phen-Fen> (I> > took it all of 3 months) I've told this story before ... after being> > told I had a heart murmur after never having one prior even after a> > heart attack (from which I flat-lined) a full 10 years prior to taking> > Phen-Fen. Since I could find no rhyme of reason for contacting PF, I> > waz grasping at straws wondering if maybe the battle of the bulge (in> my> > case) could be the culprit also. Just shooting in the dark. LOL> > > >> > > > I should just let it ride I think ....... things are going along> > pretty good although I am looking forward to my appt with pulmo doc on> > the 13th. so see what the numbers possibly say. I have increased my> > oxygen on my own and feel that maybe the numbers may not be so good> ...> > I pray I am wrong, however. I feel pretty good most days in spite of> > things.> > > >> > > > Thanks so much for your sweet reply. I love ya for your concern,> > but all is GOOD!!!> > > >> > > > ~ Donna ~> > > > Yesterday I dared to struggle .....> > > > Today I dare to win!!!> > > >> > > > ~ * ~ * ~ * ~ * ~ * ~ * ~ * ~ * ~ * ~ * ~ * ~ * ~ * ~ * ~ * ~ * ~> *> > ~ *> > > >> > > > Hi Donna,> > > >> > > >> > > >> > > > I hope nothing in my reply implied that you'd stepped on anyones> > toes,> > > >> > > > it certainly wasn't meant to.> > > >> > > >> > > >> > > > I don't think weight has a huge amount to do with PH. Mine's> because> > I> > > >> > > > have PF. The scar tissue causes both the aveoli and the blood> > vessals> > > >> > > > to stiffen up and the PH is the heart is working harder trying to> > pump> > > >> > > > the blood through the stiffness. Your arterial blood pressure (the> > one> > > >> > > > they take with a cuff on your arm) has nothing to do with, and> will> > not> > > >> > > > give any indication of, PH.> > > >> > > >> > > >> > > > I think pred tends to be a default med. I'm on it because of an> auto> > > >> > > > immune disease. It's was discovered that it kept the pf at bay by> > > >> > > > accident really. And I started on the pred when I was naive of> both> > my> > > >> > > > condition and steroids. As far as I was concerned the steroid took> > away> > > >> > > > the horrible symptoms that I had been suffering with and that was> > good> > > >> > > > enough for me.> > > >> > > >> > > >> > > > Keep posting Donna, we will learn as much from you as you will> from> > us> > > >> > > >> > > >> > > > Love Ze xx> > > >> > >> >>