Guest guest Posted September 25, 2005 Report Share Posted September 25, 2005 What a wonderful day it was! I was nervous as heck! The essay is now posted. It is through the eyes of my precious eight year old. Enjoy! Jay http://jaydebaca.home.comcast.net/index.html Re: GOOD NEWS Jay: I am having difficulty accessing your website to look for the essay. Can you post the web address again? Also, are the photos of the group there? Are you receiving any more? Thanks so much for everything. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 25, 2005 Report Share Posted September 25, 2005 It was great that you all had such a wonderful day. And the essay is so heartwarming. You must bve so proud of . Thank You for sharing it with us. Ingrid > What a wonderful day it was! I was nervous as heck! The essay is now posted. It is through the eyes of my precious eight year old. Enjoy! Jay > > http://jaydebaca.home.comcast.net/index.html > Re: GOOD NEWS > > > Jay: I am having difficulty accessing your website to look for the essay. > Can you post the web address again? Also, are the photos of the group there? > Are you receiving any more? > Thanks so much for everything. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 25, 2005 Report Share Posted September 25, 2005 It was great that you all had such a wonderful day. And the essay is so heartwarming. You must bve so proud of . Thank You for sharing it with us. Ingrid > What a wonderful day it was! I was nervous as heck! The essay is now posted. It is through the eyes of my precious eight year old. Enjoy! Jay > > http://jaydebaca.home.comcast.net/index.html > Re: GOOD NEWS > > > Jay: I am having difficulty accessing your website to look for the essay. > Can you post the web address again? Also, are the photos of the group there? > Are you receiving any more? > Thanks so much for everything. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 25, 2005 Report Share Posted September 25, 2005 It was great that you all had such a wonderful day. And the essay is so heartwarming. You must bve so proud of . Thank You for sharing it with us. Ingrid > What a wonderful day it was! I was nervous as heck! The essay is now posted. It is through the eyes of my precious eight year old. Enjoy! Jay > > http://jaydebaca.home.comcast.net/index.html > Re: GOOD NEWS > > > Jay: I am having difficulty accessing your website to look for the essay. > Can you post the web address again? Also, are the photos of the group there? > Are you receiving any more? > Thanks so much for everything. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 25, 2005 Report Share Posted September 25, 2005 This part really grabbed my heart: " My dad felt really happy that I could help him with his I.V. and that I was there with him that terrible storm. " I wonder how a trained counselor would interpret that...which storm? What a little man!! J As most of you know by now, I am 2 weeks out from my last chemo treatment. I go in next week for a check up with United Airlines and expect to return to work October 7th! I am gaining my wieght back, and my hair is growing back. What a journey! I thank you for all your well wishes and support! Jay ---------- No virus found in this outgoing message. Checked by AVG Anti-Virus. Version: 7.0.344 / Virus Database: 267.11.6/111 - Release Date: 9/23/2005 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 25, 2005 Report Share Posted September 25, 2005 This part really grabbed my heart: " My dad felt really happy that I could help him with his I.V. and that I was there with him that terrible storm. " I wonder how a trained counselor would interpret that...which storm? What a little man!! J As most of you know by now, I am 2 weeks out from my last chemo treatment. I go in next week for a check up with United Airlines and expect to return to work October 7th! I am gaining my wieght back, and my hair is growing back. What a journey! I thank you for all your well wishes and support! Jay ---------- No virus found in this outgoing message. Checked by AVG Anti-Virus. Version: 7.0.344 / Virus Database: 267.11.6/111 - Release Date: 9/23/2005 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 25, 2005 Report Share Posted September 25, 2005 This part really grabbed my heart: " My dad felt really happy that I could help him with his I.V. and that I was there with him that terrible storm. " I wonder how a trained counselor would interpret that...which storm? What a little man!! J As most of you know by now, I am 2 weeks out from my last chemo treatment. I go in next week for a check up with United Airlines and expect to return to work October 7th! I am gaining my wieght back, and my hair is growing back. What a journey! I thank you for all your well wishes and support! Jay ---------- No virus found in this outgoing message. Checked by AVG Anti-Virus. Version: 7.0.344 / Virus Database: 267.11.6/111 - Release Date: 9/23/2005 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 25, 2005 Report Share Posted September 25, 2005 Pay a visit to this colon cancer blog. Neat site http://medicineworld.org/cancer/colon/colon-cancer-blog.html Grandmommyandme@... wrote: In a message dated 9/25/2005 1:14:12 PM Eastern Standard Time, jayishome@... writes: My son (8) won the Denver region Essay Contest!! He won 8 VIP tickets to the Rockies game and an opportunity to be on the players field to accept the award!! He wrote about my battle with cancer. It was a tear jerker! Especially when you realize it is through the eyes of an 8 year old! I will post the essay tomorrow on my web site. Thanks for all your continued support! Love you guys! JAY What an AWESOME accomplishment...WTG, !!! And WTG, Jay, who raised !! Can't wait to read it.... Lots of hugs and prayers, Donelle Caregiver to Glenn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 25, 2005 Report Share Posted September 25, 2005 Pay a visit to this colon cancer blog. Neat site http://medicineworld.org/cancer/colon/colon-cancer-blog.html Grandmommyandme@... wrote: In a message dated 9/25/2005 1:14:12 PM Eastern Standard Time, jayishome@... writes: My son (8) won the Denver region Essay Contest!! He won 8 VIP tickets to the Rockies game and an opportunity to be on the players field to accept the award!! He wrote about my battle with cancer. It was a tear jerker! Especially when you realize it is through the eyes of an 8 year old! I will post the essay tomorrow on my web site. Thanks for all your continued support! Love you guys! JAY What an AWESOME accomplishment...WTG, !!! And WTG, Jay, who raised !! Can't wait to read it.... Lots of hugs and prayers, Donelle Caregiver to Glenn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 25, 2005 Report Share Posted September 25, 2005 What a lucky dad you are and what a lucky son he is and aren't we lucky too to have you in our lives. Karima Re: GOOD NEWS In a message dated 9/25/2005 1:14:12 PM Eastern Standard Time, jayishome@... writes: My son (8) won the Denver region Essay Contest!! He won 8 VIP tickets to the Rockies game and an opportunity to be on the players field to accept the award!! He wrote about my battle with cancer. It was a tear jerker! Especially when you realize it is through the eyes of an 8 year old! I will post the essay tomorrow on my web site. Thanks for all your continued support! Love you guys! JAY What an AWESOME accomplishment...WTG, !!! And WTG, Jay, who raised !! Can't wait to read it.... Lots of hugs and prayers, Donelle Caregiver to Glenn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2009 Report Share Posted May 4, 2009 I just got off the phone with my pulmo dude's office. He reviewed all the CT films from my previous pulmo dude. He said that there's no change from CT done a year ago and now. I'm still on a prednisone taper. He says so far he doesn't feel that I need O2 in the daytime. So, I'll continue with bedtime O2 only. I'm doing an overnight oximetry study thurs. and he said he'll call me next week with results on that. He says unless I run into a problem, I don't need to see him until October. Hope all are having a breathe easy day! Nan 49, MASS started the list in '82 Added PF '08 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 5, 2009 Report Share Posted May 5, 2009 Nan If he hasn't done a six minute walk even, hasn't done a 24 hour oximeter, and you don't have an oximeter you've used then there is no way to know. So, any statement that you don't need oxygen is based on a complete lack of information. He could at least do a 24 hour oximeter on you. This cannot wait. The most common result of going too long without adequate oxygen is Pulmonary Hypertension. That is not something you want to risk. How much experience with PF does he claim to have? > > > > > > I just got off the phone with my pulmo dude's office. He reviewed all > > the CT films from my previous pulmo dude. He said that there's no change > > from CT done a year ago and now. I'm still on a prednisone taper. He > > says so far he doesn't feel that I need O2 in the daytime. So, I'll > > continue with bedtime O2 only. I'm doing an overnight oximetry study > > thurs. and he said he'll call me next week with results on that. > > > He says unless I run into a problem, I don't need to see him until > > October. > > > Hope all are having a breathe easy day! > > > Nan 49, MASS > > > started the list in '82 > > > Added PF '08 > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 5, 2009 Report Share Posted May 5, 2009 Nan If he hasn't done a six minute walk even, hasn't done a 24 hour oximeter, and you don't have an oximeter you've used then there is no way to know. So, any statement that you don't need oxygen is based on a complete lack of information. He could at least do a 24 hour oximeter on you. This cannot wait. The most common result of going too long without adequate oxygen is Pulmonary Hypertension. That is not something you want to risk. How much experience with PF does he claim to have? > > > > > > I just got off the phone with my pulmo dude's office. He reviewed all > > the CT films from my previous pulmo dude. He said that there's no change > > from CT done a year ago and now. I'm still on a prednisone taper. He > > says so far he doesn't feel that I need O2 in the daytime. So, I'll > > continue with bedtime O2 only. I'm doing an overnight oximetry study > > thurs. and he said he'll call me next week with results on that. > > > He says unless I run into a problem, I don't need to see him until > > October. > > > Hope all are having a breathe easy day! > > > Nan 49, MASS > > > started the list in '82 > > > Added PF '08 > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 5, 2009 Report Share Posted May 5, 2009 Nan If he hasn't done a six minute walk even, hasn't done a 24 hour oximeter, and you don't have an oximeter you've used then there is no way to know. So, any statement that you don't need oxygen is based on a complete lack of information. He could at least do a 24 hour oximeter on you. This cannot wait. The most common result of going too long without adequate oxygen is Pulmonary Hypertension. That is not something you want to risk. How much experience with PF does he claim to have? > > > > > > I just got off the phone with my pulmo dude's office. He reviewed all > > the CT films from my previous pulmo dude. He said that there's no change > > from CT done a year ago and now. I'm still on a prednisone taper. He > > says so far he doesn't feel that I need O2 in the daytime. So, I'll > > continue with bedtime O2 only. I'm doing an overnight oximetry study > > thurs. and he said he'll call me next week with results on that. > > > He says unless I run into a problem, I don't need to see him until > > October. > > > Hope all are having a breathe easy day! > > > Nan 49, MASS > > > started the list in '82 > > > Added PF '08 > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 5, 2009 Report Share Posted May 5, 2009 Bruce, I think he's going on what the previous pulmo said. I will definately ask him about doing a 24 hour test. So far, I've had PFTs in the hospital resp. lab and in the office, Ct scans and 2 sleep studies. But that's it. Everytime they check my SATS in the hospital or office, I usually get between 92 and 96. That's at total rest and after sitting for a few minutes. I never asked about his experience w/ PF. I should have and it's not like me to not check that stuff out first before seeing a new doctor. Thank you for bring this to my attn. Nan, 49, MASS listed started in '82 PF added in '08 > > > > > > > > I just got off the phone with my pulmo dude's office. He reviewed > all > > > the CT films from my previous pulmo dude. He said that there's no > change > > > from CT done a year ago and now. I'm still on a prednisone taper. He > > > says so far he doesn't feel that I need O2 in the daytime. So, I'll > > > continue with bedtime O2 only. I'm doing an overnight oximetry study > > > thurs. and he said he'll call me next week with results on that. > > > > He says unless I run into a problem, I don't need to see him until > > > October. > > > > Hope all are having a breathe easy day! > > > > Nan 49, MASS > > > > started the list in '82 > > > > Added PF '08 > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 5, 2009 Report Share Posted May 5, 2009 Bruce, I think he's going on what the previous pulmo said. I will definately ask him about doing a 24 hour test. So far, I've had PFTs in the hospital resp. lab and in the office, Ct scans and 2 sleep studies. But that's it. Everytime they check my SATS in the hospital or office, I usually get between 92 and 96. That's at total rest and after sitting for a few minutes. I never asked about his experience w/ PF. I should have and it's not like me to not check that stuff out first before seeing a new doctor. Thank you for bring this to my attn. Nan, 49, MASS listed started in '82 PF added in '08 > > > > > > > > I just got off the phone with my pulmo dude's office. He reviewed > all > > > the CT films from my previous pulmo dude. He said that there's no > change > > > from CT done a year ago and now. I'm still on a prednisone taper. He > > > says so far he doesn't feel that I need O2 in the daytime. So, I'll > > > continue with bedtime O2 only. I'm doing an overnight oximetry study > > > thurs. and he said he'll call me next week with results on that. > > > > He says unless I run into a problem, I don't need to see him until > > > October. > > > > Hope all are having a breathe easy day! > > > > Nan 49, MASS > > > > started the list in '82 > > > > Added PF '08 > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 5, 2009 Report Share Posted May 5, 2009 Bruce, I think he's going on what the previous pulmo said. I will definately ask him about doing a 24 hour test. So far, I've had PFTs in the hospital resp. lab and in the office, Ct scans and 2 sleep studies. But that's it. Everytime they check my SATS in the hospital or office, I usually get between 92 and 96. That's at total rest and after sitting for a few minutes. I never asked about his experience w/ PF. I should have and it's not like me to not check that stuff out first before seeing a new doctor. Thank you for bring this to my attn. Nan, 49, MASS listed started in '82 PF added in '08 > > > > > > > > I just got off the phone with my pulmo dude's office. He reviewed > all > > > the CT films from my previous pulmo dude. He said that there's no > change > > > from CT done a year ago and now. I'm still on a prednisone taper. He > > > says so far he doesn't feel that I need O2 in the daytime. So, I'll > > > continue with bedtime O2 only. I'm doing an overnight oximetry study > > > thurs. and he said he'll call me next week with results on that. > > > > He says unless I run into a problem, I don't need to see him until > > > October. > > > > Hope all are having a breathe easy day! > > > > Nan 49, MASS > > > > started the list in '82 > > > > Added PF '08 > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 5, 2009 Report Share Posted May 5, 2009 I can get 96 at rest....and I could easily exert myself and get 55. Twenty steps gets me around 85. You can't check PF sats just at rest. You really need a pulmonologist who knows the disease. You don't have to ask much....if he's saying you don't need oxygen and hasn't done anything that would give him a clue. That says a lot about his experience with it. > > > > > > > > > > I just got off the phone with my pulmo dude's office. He reviewed > > all > > > > the CT films from my previous pulmo dude. He said that there's no > > change > > > > from CT done a year ago and now. I'm still on a prednisone taper. He > > > > says so far he doesn't feel that I need O2 in the daytime. So, I'll > > > > continue with bedtime O2 only. I'm doing an overnight oximetry study > > > > thurs. and he said he'll call me next week with results on that. > > > > > He says unless I run into a problem, I don't need to see him until > > > > October. > > > > > Hope all are having a breathe easy day! > > > > > Nan 49, MASS > > > > > started the list in '82 > > > > > Added PF '08 > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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