Guest guest Posted May 11, 2009 Report Share Posted May 11, 2009 Wow!! This is wonderful news!! CaroOSTEOARTHRITIS 2002, COPD 02/06, IPF 08/07, UIP 01/08, RHEUMATOID ARTHRITIS 03/08 SJOGREN SYNDROME 07/08 POLYMYOSITIS/DERMATOMYOSITIS 03/09 CANCER OF UNKNOWN ORIGIN 03/09Mississippi To: Support <breathe-support >; Breathe Support Caregivers <Breathe-SupportCaregivers >Sent: Monday, May 11, 2009 10:50:04 AMSubject: ipfnet.org Hi all, I was just checking out www.ipfnet.org and noticed they updated the centers of excellencefor pulmonary fibrosis. We now have 22 centers across the country! Now let's find a cure! Leanne Storch Executive Director Pulmonary Fibrosis Foundation 1332 N. Halsted, Suite 201 Chicago, IL 60642-2642 www.pulmonaryfibros is.org P F A cure is just a breath away Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 11, 2009 Report Share Posted May 11, 2009 Leanne It's great. We went from 13 not long ago to 16 to 22. This means that nearly everyone here is now within a days drive, at worse, of a center. Some of these come in parts of the country that previously had no center near. Now, this isn't to say that there are not other top facilities, just not part of this group. However, with these, you can be sure of consistent protocol, of a full range of testing for diagnosis, of doctors and nurses use to dealing with PF, and of constant communication and sharing of information among the group as a whole. > > Hi all, > > I was just checking out www.ipfnet.org and noticed they updated the centers of excellencefor pulmonary fibrosis. We now have 22 centers across the country! > > Now let's find a cure! > > > Leanne Storch > Executive Director > Pulmonary Fibrosis Foundation > 1332 N. Halsted, Suite 201 > Chicago, IL 60642-2642 > www.pulmonaryfibrosis.org > P > F > > A cure is just a breath away > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 11, 2009 Report Share Posted May 11, 2009 Leanne It's great. We went from 13 not long ago to 16 to 22. This means that nearly everyone here is now within a days drive, at worse, of a center. Some of these come in parts of the country that previously had no center near. Now, this isn't to say that there are not other top facilities, just not part of this group. However, with these, you can be sure of consistent protocol, of a full range of testing for diagnosis, of doctors and nurses use to dealing with PF, and of constant communication and sharing of information among the group as a whole. > > Hi all, > > I was just checking out www.ipfnet.org and noticed they updated the centers of excellencefor pulmonary fibrosis. We now have 22 centers across the country! > > Now let's find a cure! > > > Leanne Storch > Executive Director > Pulmonary Fibrosis Foundation > 1332 N. Halsted, Suite 201 > Chicago, IL 60642-2642 > www.pulmonaryfibrosis.org > P > F > > A cure is just a breath away > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 11, 2009 Report Share Posted May 11, 2009 Leanne It's great. We went from 13 not long ago to 16 to 22. This means that nearly everyone here is now within a days drive, at worse, of a center. Some of these come in parts of the country that previously had no center near. Now, this isn't to say that there are not other top facilities, just not part of this group. However, with these, you can be sure of consistent protocol, of a full range of testing for diagnosis, of doctors and nurses use to dealing with PF, and of constant communication and sharing of information among the group as a whole. > > Hi all, > > I was just checking out www.ipfnet.org and noticed they updated the centers of excellencefor pulmonary fibrosis. We now have 22 centers across the country! > > Now let's find a cure! > > > Leanne Storch > Executive Director > Pulmonary Fibrosis Foundation > 1332 N. Halsted, Suite 201 > Chicago, IL 60642-2642 > www.pulmonaryfibrosis.org > P > F > > A cure is just a breath away > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2009 Report Share Posted May 12, 2009 I hope that there is more research going on at these 22 centers. Toodles! Jane UIP/IPF> >> > Hi all,> >> > I was just checking out www.ipfnet.org and noticed they updated the> centers of excellencefor pulmonary fibrosis. We now have 22 centers> across the country!> >> > Now let's find a cure!> >> >> > Leanne Storch> > Executive Director> > Pulmonary Fibrosis Foundation> > 1332 N. Halsted, Suite 201> > Chicago, IL 60642-2642> > www.pulmonaryfibrosis.org> > P> > F> >> > A cure is just a breath away> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2009 Report Share Posted May 12, 2009 I hope that there is more research going on at these 22 centers. Toodles! Jane UIP/IPF> >> > Hi all,> >> > I was just checking out www.ipfnet.org and noticed they updated the> centers of excellencefor pulmonary fibrosis. We now have 22 centers> across the country!> >> > Now let's find a cure!> >> >> > Leanne Storch> > Executive Director> > Pulmonary Fibrosis Foundation> > 1332 N. Halsted, Suite 201> > Chicago, IL 60642-2642> > www.pulmonaryfibrosis.org> > P> > F> >> > A cure is just a breath away> >> Quote Link to comment Share on other sites More sharing options...
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