Guest guest Posted April 16, 2009 Report Share Posted April 16, 2009 I hope that I am in the right place. Because I need a hold lot of answers about PF. I have scleroderma sense 1997 but in 2000 PF can into my live when the doctor told me that I need to be put on oxygen 2liters 24/7. Then he drop the ball and said that I will need a lung and heart transplant. But some thing happen while I was going to rehab my O2 want you and no more talk of transplant. Will now it is nine years later and the ball has drop again. I need a transplant again and I have to give an answer to the doctor. But that is like rolling dice with your live but I belive in God and I know that He will giuld me the right way to go. Have any one had to face this? I am very very sorry my name is Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 17, 2009 Report Share Posted April 17, 2009 welcome to the group, sorry you need us, but glad you found us Pink Joyce IPF 3/06 Pennsylvania Donate Life Listed 1/09 inactive 4/09 www.transplantfund.org--- Subject: Hey I am new to the groupTo: Breathe-Support Date: Friday, April 17, 2009, 1:02 AM I hope that I am in the right place. Because I need a hold lot of answers about PF. I have scleroderma sense 1997 but in 2000 PF can into my live when the doctor told me that I need to be put on oxygen 2liters 24/7. Then he drop the ball and said that I will need a lung and heart transplant. But some thing happen while I was going to rehab my O2 want you and no more talk of transplant. Will now it is nine years later and the ball has drop again. I need a transplant again and I have to give an answer to the doctor. But that is like rolling dice with your live but I belive in God and I know that He will giuld me the right way to go. Have any one had to face this? I am very very sorry my name is Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 17, 2009 Report Share Posted April 17, 2009 welcome to the group, sorry you need us, but glad you found us Pink Joyce IPF 3/06 Pennsylvania Donate Life Listed 1/09 inactive 4/09 www.transplantfund.org--- Subject: Hey I am new to the groupTo: Breathe-Support Date: Friday, April 17, 2009, 1:02 AM I hope that I am in the right place. Because I need a hold lot of answers about PF. I have scleroderma sense 1997 but in 2000 PF can into my live when the doctor told me that I need to be put on oxygen 2liters 24/7. Then he drop the ball and said that I will need a lung and heart transplant. But some thing happen while I was going to rehab my O2 want you and no more talk of transplant. Will now it is nine years later and the ball has drop again. I need a transplant again and I have to give an answer to the doctor. But that is like rolling dice with your live but I belive in God and I know that He will giuld me the right way to go. Have any one had to face this? I am very very sorry my name is Quote Link to comment Share on other sites More sharing options...
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