Guest guest Posted January 20, 2008 Report Share Posted January 20, 2008 > > I'm spending the weekend working through the famed Amalgam Illness > book. Throughout, I can't help but wonder why the book is so different > than what we talk about here on this site in terms of dosages. I > understand that everybody is different and we need to find dosages > that work for each of us but it makes me wonder, when I'm advised at > almost every other post to " buy Andy's $40 book " , why his basic > treatment, the cornerstone of the whole protocol, disagrees with this > site.. Is the book out of date? Is there another edition in the works? Andy's advice has become more conservative since writing the book, based on the fact that some people are very sensitive. Not everyone is so sensitive - some do tolerate the doses he recommends in the book, but it is best to start low. > I mean, paying $40 for a desktop publishing edition, you'd assume the > thing would be totally up to date. and, btw, how about using an > editor? I, for one, feel that $40 is extremely reasonable for the incredible coverage, depth, and accuracy of information in Andy's book. I also found it quite challenging to take in all the information in the beginning, and still do to some extent. The group can help by suggesting sections or pages of the book, just ask questions if you can't find something or if you are overwhelmed and need help to focus in on what you need most. I sometimes found it easier at first to take in information from Moria's website than from the book. I think the book is an incredibly low cost for the great value of the information it contains. I have developed greater appreciation for this over time. Here is what Andy has to say in response to similar criticism: http://health.groups.yahoo.com/group/frequent-dose-chelation/message/4568 > When people are sick (brain-fogged) with this stuff, the obvious thing > is to want to read clear concise cut-to-the-chase stuff about what to > do to get our noggins working a little better. THEN we can read all > that high-falutin' fine-tuning scientific stuff about what to take for > what ailment; All these amazing pronouncements that only Andy seems to > know about EXACTLY how one's entire body functions. I have found that Andy does, in fact, know vastly, vastly more about chelation and many related matters than any doctor. He knows about the reality of how things work vs. the theory about how they are purported to work or supposed to work. He also knows a lot about how things work differently in mercury toxic people than in other people. The fact that he is a chemist allows him to understand and evaluate some of the literature that doctors cannot and do not even try to do. And he is a careful scientist - he checks sources and checks the reasoning used to derive conclusions before he believes and follows what is stated in the literature. We are extremely lucky to have his advice and his books. > But it is in Andy's protocol, the very treatment we sick patients are > seeking, that we are not to believe him as there seems to be a rather > large disagreement in terms of amounts/days of treatment.... why is > this? His dosages START at 400% of what I've been memorizing here on > this site where 12.5mg DMSA is the mantra. Mr. Cutler says that > 50-200mg DMSA is an effective dose to start with and 10 days on and > 3-4 days off is the way to go.. From my own experience and what I have observed in others over the past 2.5 years, the dosage is one of very few recommendations that have changed. If a person tries those doses, it is far less harmful than the doses usually recommended, and if there is a bad reaction it is a fairly easy inference for a person to make that either reducing the dose or seeking more information would be helpful. Andy's website, email address and phone number are available in the book. Links to useful internet groups are found on his website. > To make matters even more complicated, an NAET doctor of oriental > medicine here in town studied with Andy and told me that I should be > taking DMSA before and during my amalgam removal treatment. She swore > that was his recommendation. I didn't do that as per this site. It is unfortunate, but true, that just because someone attends Andy's seminar, does not mean they understand or accept every detail of what was presented. > I had 9 crowns-over-amalgam/gold replaced a couple days ago, and am > consequently having a lot of brain fog/confusion but between this > tumid book, what I'm hearing and what I'm reading on the site, I'm > more confused than ever. I hardly know where to start to help my > symptoms. Try asking questions when you can't find things or when you don't know where to begin. I know it is very hard to understand and retain things in the beginning, not to mention focusing, etc. > I very much like what Cutler says about doctors treating patients and > about patients dealing with doctors; oh we all know that so well! But, > again, his rather dogmatic pronouncements on EXACTLY how the body > works and EXACTLY what to take for what thing makes me a bit > suspicious; He's doing the same thing as they! The same > high-and-mighty know-it-all overly-scientific diagrammed stuff that > doctors do to sort of scare you into thinking they know more than you > and so you should follow their advise lock, stock, and barrel. How can > anyone purport to know EXACTLY how the body works? Every part of it! > This problem alone makes me a bit nervous about following his > protocol... So be suspicious for now. I was, too. I have found that Andy turns out to be very right about so many things it is hard to believe. Another important quality Andy has is he doesn't make " pronouncements " until he has enough data and/or enough knowledge to be pretty sure about what he is saying. Andy would be the first to tell you that there are exceptions - you may find you don't tolerate a supplement or some other advice may not work well for you. But his recommendations are based on experience with a lot of people and are far more accurate than any doctor I have seen or heard of, and more accurate than any information I have read. I think many other people here have had the same experience. > I surely don't mean to disparage any of the good work done by this > site or by Mr. Cutler. I simply have some problems with the advocacy > angle, a site advertising a book whose treatment differs from its own > recommendations. > > Also, since hundreds of people are buying a $40 book because they are > desperate and instructed to do so by this site, you'd THINK the author > would either update his manuscript, add an addendum or, at least, come > visit more often in person or SOMETHING to show more support for his > advocacy group, the mediators of this informative site. Andy does a lot of things to help " us " , meaning mercury-poisoned people in general. He is only one person. We are grateful to hear from him in person when he has the time, but his time and effort are often better spent in other ways, such as writing other books, consulting on cases, posting on other groups where there is less accurate information provided than what is provided here. This is probably the least important place for him to visit in terms of what he can do to help. JMO. -- > i'm sorry to not be so gung-ho about Andy but, really... > ~robin > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2008 Report Share Posted January 20, 2008 > > I'm spending the weekend working through the famed Amalgam Illness > book. Throughout, I can't help but wonder why the book is so different > than what we talk about here on this site in terms of dosages. I > understand that everybody is different and we need to find dosages > that work for each of us but it makes me wonder, when I'm advised at > almost every other post to " buy Andy's $40 book " , why his basic > treatment, the cornerstone of the whole protocol, disagrees with this > site.. For one thing, we are a support group. We are supporting people who are chelating using Andy's protocol. We are all poisoned. The ones who devote time to helping others do so because we know what it is like, others helped us when we were confused, we know the answers are in Andy's books, we don't like to read the stories of how horribly worse people got with other protocols. We don't have the time to type Andy's book out word for word for people. We can refer people to the page where the information that they are looking for is at. All it takes is a couple of appointments with doctors who prescribe the witch doctor protocols to realize the value of Andy's $35.00 books. For example, I wasted money traveling to another city (gas, hotel, food plus hundreds of dollars the doctor charged me) for an EDTA IV that the well meaning doctor thought would help when in fact it screwed me up considerably, and for chelation advise that would have likely killed me (250 mg DMSA once per day and 250 mg R-ALA once per day). Thankfully, an internet angel who was aware of and understood Andy's book stopped me from following that advise. Another well meaning, well respected doctor and dentist advised me to use NDF - which was not only a waste of over a hundred dollars, but also minimal amounts screwed me and a close friend up considerably. Perhaps it takes those kinds of experiences to truly appreciate the value of Andy's books. There is nothing in Andy's books that will hurt people, if they take the time to study it. The book is jam packed full of information that will help people. The EDTA IV, the NDF, and ALL of the many other things that doctors prescribe in the harmful inappropriate protocols do serious damage that makes appropriate chelation more difficult and that may be irreversible. If a person starts at a dose of 50 mg and gets scared the damage is usually reversible. A closer look at his book will reveal that he does provide cautions similar to those discussed in this group. On p74 he is talking about patient management directed at health care professionals who are managing toxic people. In the previous paragraphs he instructs the professionals to do the appropriate tests and prescribe the appropriate supplements and medications and to modify therapy as test results come in (that are all discussed in other parts of the book). On p 75 his instructions are to " Always test the chelators for side effects by ramping up dosage from 25 or 50 mg the first time. " 25 mg is not too far off from the 12.5 mg that we recommend in this group. It is hugely far off from the 10 mg/kg (do the calculation yourself to see how much that is) that has been routinely prescribed by DAN and other doctors. I believe that the 10 mg/kg DMSA is even in the physician's desk reference for treatment of lead poisoning. Look around for other places in Andy's books where he cautions to adjust the dose depending on side effects. That is the part that many people have missed and that we emphasize in this group by telling people to start at 12.5 mg. > Is the book out of date? The book was published in 1999. Of course much has been learned from the experience of the hundreds of people who have chelated successfully and reported their results to Andy over a 9 year period of time. The vast majority of the book is not out of date. >Is there another edition in the works? Someone on adult metal asked this question. Andy's response was that there are numerous other projects that he will be devoting his limited time to before " Amalgam Illness " gets a rewrite. In " Hair Test Interpretation " he does give some clues that his next book will focus on the treatment of children. In my opinion that book is desperately needed because of the autism, ADHD, epidemics. Spend some time in the autism mercury group to develop some appreciation for what parents are going through, and how much time Andy selflessly devotes to helping them. > I mean, paying $40 for a desktop publishing edition, you'd assume the > thing would be totally up to date. and, btw, how about using an > editor? > This type of not very constructive criticism has come up before in groups. I have come to the conclusion that some people want to attract negative attention. Andy has acknowledged people who review his books. I can only guess that an editor who does not understand the content would not be helpful. > When people are sick (brain-fogged) with this stuff, the obvious thing > is to want to read clear concise cut-to-the-chase stuff about what to > do to get our noggins working a little better. I think that you have really hit the nail on the head here. The problem is not so much with Andy's books as it is with his audience. He is writing for people who are having difficulty with concentration, attention, focus, memory and often serious psychological problems. I found myself that I had trouble focusing on the book and remembering anything about what I had read. I use it more like a reference book. As a person finds the appropriate diet, supplements, medication, and chelates properly they find that they understand the book more easily. Personally I find Andy's style of writing very skillful considering that he is a PhD writing to an audience of people who mostly have no science background at all. >THEN we can read all > that high-falutin' fine-tuning scientific stuff about what to take for > what ailment; All these amazing pronouncements that only Andy seems to > know about EXACTLY how one's entire body functions. > Sometimes I wonder if the reason that I appreciate Andy's writing more than some people seem to is because my background is in science and I spent my working years working with scientists in research. Considering that Andy is a chemist it is actually very impressive that he DOES know exactly how one's body functions. He has invested an enormous amount of time in educating himself, and continues to do so. > But it is in Andy's protocol, the very treatment we sick patients are > seeking, that we are not to believe him as there seems to be a rather > large disagreement in terms of amounts/days of treatment.... why is > this? His dosages START at 400% of what I've been memorizing here on > this site where 12.5mg DMSA is the mantra. As I just pointed out, in AI Andy suggests starting at 25 mg. 25 mg is only twice as much as 12.5 mg. Many people are fine with starting at 25 mg or higher. By starting at 12.5 mg we are trying to protect the really sick frail people who would get scared off with those doses (but who might get killed off with any other protocol, as I truly believe I would have). If anyone calculates the 1/8-1/2 mg per pound that is mentioned at Moria's web site they will find that 12.5 mg is 1/8 mg per pound for a 100 lb person. Mr. Cutler says that > 50-200mg DMSA is an effective dose to start with and 10 days on and > 3-4 days off is the way to go.. > > To make matters even more complicated, an NAET doctor of oriental > medicine here in town studied with Andy and told me that I should be > taking DMSA before and during my amalgam removal treatment. She swore > that was his recommendation. Clearly many people don't read his books carefully and pass on mis information. Andy clearly advises to avoid any and all chelators until all amalgam is safely removed, and never has said anything that could possibly be interpreted as the NAET doctor did. I didn't do that as per this site. > > I had 9 crowns-over-amalgam/gold replaced a couple days ago, and am > consequently having a lot of brain fog/confusion but between this > tumid book, what I'm hearing and what I'm reading on the site, I'm > more confused than ever. I hardly know where to start to help my > symptoms. > Start with the diet and supplement sections. You may find that you need to read them several times. Or, try some alka seltzer gold before reading. > I very much like what Cutler says about doctors treating patients and > about patients dealing with doctors; oh we all know that so well! But, > again, his rather dogmatic pronouncements on EXACTLY how the body > works and EXACTLY what to take for what thing makes me a bit > suspicious; He's doing the same thing as they! Perhaps you will start to understand when you start to experiment and find that so many things that Andy writes about turn out to be true for you. This has been the case with me - starting with the description of poisoning, my hair test that turned out just as he would have predicted, my reaction to sulfur foods, my need for certain supplements, hormones, medications. The same > high-and-mighty know-it-all overly-scientific diagrammed stuff that > doctors do to sort of scare you into thinking they know more than you > and so you should follow their advise lock, stock, and barrel. How can > anyone purport to know EXACTLY how the body works? Every part of it! > This problem alone makes me a bit nervous about following his > protocol... > You really need to do more reading. > I surely don't mean to disparage any of the good work done by this > site or by Mr. Cutler. I simply have some problems with the advocacy > angle, a site advertising a book whose treatment differs from its own > recommendations. > > Also, since hundreds of people are buying a $40 book because they are > desperate and instructed to do so by this site, you'd THINK the author > would either update his manuscript, add an addendum or, at least, come > visit more often in person or SOMETHING to show more support for his > advocacy group, the mediators of this informative site. > > i'm sorry to not be so gung-ho about Andy but, really... This type of criticism has come up before from negative toxic people. All you need to do is go to the autism mercury archives and count the number of posts that Andy has submitted over the number of years he has been contributing to chelation groups to realize that he has devoted thousands of un paid hours of his free time to helping toxic people and all too often what he gets back is abuse from people who are too toxic to see what they are doing. There are also thousands of posts from people who thank him for the recovery of themselves or their child. They are the ones who realize that without Andy's protocol there is no safe way out. Just because Andy found the safe way out, wrote the books, and continues to be the most knowledgeable person in the world about metal toxicity, does not mean that he has any obligation to hand hold people on the internet (nor does he have much time for it). If people truly want or need his attention the positive, reasonable way to ask for it is to ask their health care provider to consult with him. Then they will find out how limited his time is. J > ~robin > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2008 Report Share Posted January 20, 2008 > I mean, paying $40 for a desktop publishing edition, you'd assume the > thing would be totally up to date. and, btw, how about using an > editor? Hi Robin: This was the best $40 I have spent, possibly ever in my life. I am reading the book for the second time. Admittedly, the first time that I read it was hard for me as brain fog made it hard to understand. When the chelation starts to clear the brain fog, you understand just how clear and concise this book is. > When people are sick (brain-fogged) with this stuff, the obvious thing > is to want to read clear concise cut-to-the-chase stuff about what to > do to get our noggins working a little better. THEN we can read all > that high-falutin' fine-tuning scientific stuff about what to take for > what ailment; I should, probably, mention that every time that I have a problem, I look it up in the book. Usually, the supplement suggested is just what I needed. Not a placebo effect either, as the benefits last as long as I take the supplements. From time to time, I stop my supplements (foolish, but I fool myself into thinking I need a break). Within a short time, I start to feel the effects and start them up again. Always, I feel better within a few days. All these amazing pronouncements that only Andy seems to > know about EXACTLY how one's entire body functions. > > But it is in Andy's protocol, the very treatment we sick patients are > seeking, that we are not to believe him as there seems to be a rather > large disagreement in terms of amounts/days of treatment.... why is > this? His dosages START at 400% of what I've been memorizing here on > this site where 12.5mg DMSA is the mantra. Mr. Cutler says that > 50-200mg DMSA is an effective dose to start with and 10 days on and > 3-4 days off is the way to go.. I started at 12.5 mg DMSA and 6 mg. ALA. I am up to 50 mg. ALA. >I hardly know where to start to help my >symptoms. The information out there was so conflicting, and I was scared. I wasn't sure where to start. I had a time finding the book. But, I looked up the links, used searches, and asked questions on this forum. It was a great help, and just what I needed. > I surely don't mean to disparage any of the good work done by this > site or by Mr. Cutler. I simply have some problems with the advocacy > angle, a site advertising a book whose treatment differs from its own > recommendations. I appreciate that you don't mean to disparage any of his good work, as many of us are being helped by the information in this book. Wishing you the best in whatever you choose to do. Jan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2008 Report Share Posted January 20, 2008 Robin: I'm a huge fan of Andy's. I agree with everything says about him - his generosity, the incredible number of people he's helped, his brilliant fresh look at the problem of chelation, the incredible amount of information in his book... The list goes on and on. I too was a skeptic at the outset but after months of research, I think Andy towers above everyone else in the field of chelation. At the same time, I think it is a valid criticism that the book continues to propone doses that are - according to much experience - too high. It IS confusing for a newcomer. I do wish he would revise his recommendations, go on record with the new protocol, and be done with it. Dean Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2008 Report Share Posted January 21, 2008 For what it's worth... > > I wouldn't be looking at your site or reading this book if I didn't > think there was some merit in it. I'm a veteran of support groups and > my writing can be found all over the Internet. I'm typically upbeat > and positive. It's quite rare that I find myself in the position of > critic but from the beginning, this mercury-poisoning " movement " has > made me a bit nervous. It has sometimes sounded less like science and > more like dogma. > I just discovered this alternative chelation protocol movement last month, and am very excited about it's potential to help me turn my health situation around. But I agree that it often comes across as dogmatic, moreso in the forums than in the book. > I bring this up because I too am a scientist and have a natural > dislike of fundamentalism. I generally like what Mr. Cutler is doing > and I think your site and the other two I look at are great. After > researching others, I've chosen to follow this protocol. > Me too. > I paid 40 dollars for a book that I simply think could have been a lot > better had the author resisted overstatement and organized it in a > more useful way. Also, the primary information, the whole point of the > book, the small/low-dose protocol turns out to be wrong now. > As I told my D.C., who is willing to learn along with me, thankfully, Amalgam Illness seems to contain nuggets of invaluable information regarding the effects of mercury and what to do about it. However, the organization of the book is bewildering, at best. > What would be so hard about including a one page addendum that updates > his key message, his current position on dosage and protocol? > A very good point. For several weeks I debated posting a simple question on this forum: " Is there any website that contains an official listing of the points that need to be updated from the 1999 edition of AI? " Instead of posting this, I resorted to searching Andy's posts and this site, discovering on my own that (a) there definitely have been revisions to the recommended protocol, and ( there is no one site containing an update list for AI. It took a lot of work to figure this out, and I'm sure others will continue to have this same questions and degree of confusion until the situation is remedied. I do not intend to criticize Andy or anyone else personally -- I just echo Robin's suggestion that an update would be a helpful improvement. If the recommended dosages have been updated since 1999, what other parts of the book need to be revised? > I'm agreeing with you that this is important stuff to get out there. > People need to have a choice of treatment. But, right now, were I to > offer this book to a suffering friend, I would have to explain a whole > lot about what Andy REALLY means to say. That's just silly and casts > his book, from the start, in a rather questionable light. Agreed. > > > This type of not very constructive criticism has come up before in > > groups. I have come to the conclusion that some people want to > > attract negative attention. > > I'm sorry. " not very constructive criticism " ? It is entirely > constructive. A book is not well laid out if you need a team of > moderators on a support group to explain what the author means. > > > I can only guess that an editor who does not understand the content > > would not be helpful. > > This is what editors do... > > > Considering that Andy is a chemist it is actually very impressive that > > he DOES know exactly how one's body functions. > > Yes. It is rather incredible and that's what makes me nervous -- his > tone of certainty about the way the body works. That is an automatic > turn-off for me as a patient. This stuff is just not so black and > white. > I was immediately bothered, too, by the " tone of certainty " when I read AI, which seems certain about exactly how the body will respond to various treatments, without stating why in many cases. I hate to call it pseudo-science, but that's what it seems like to me. That said, I think it may very well still be the best resource available for mercury toxic individuals. All of the proclamations in the book are certainly not 100% correct, especially 9 years later, but at least he offers a lot of options and theories for individuals to try out on their own or under the guidance of their doctor. > > This type of criticism has come up before from negative toxic people. > > I'm not sure that name-calling is an effective means of support. It's > this sort of thinking that will hurt your cause and propel > well-meaning savvy people like me, who have already gone through > numerous therapies and doctors, to question the basis of Andy's > claims. Is he for real or is this adulation? It's clear that Mr. > Cutler has a faithful following. A very faithful following, indeed. He's also making a living putting on > seminars and writing books for sick desperate people. I'm just trying > to gather some facts and find something that I trust will work for me > and for my friends. > > So, once again I will say, the point of my post is not to be angry or > toxic or negative but simply this: > The author of a $40 hand-made textbook ought to update his book for > sick readers somehow. If he doesn't agree with the doses/protocol in > his current edition then he should include, at the very least, an > addendum, a little note sent out with the book. What's so hard about > that? > > ~robin > Agree. My only disagreement is that the main point of the book does not seem to be the " low dose " aspect of the protocol. Frustratingly, AI is 'all over the place' when it comes to recommended dosages, even stating that " Exactly how much DMSA, LA " is not important (Page 73), " You select the dosages of DMSA and LA based on how you feel when you take them, " (Page 90), " Suggested target dose (DMSA, DMPS) = maximum tolerated dose " (Page 204), and " DMSA dosages will usually be driven by economics " (Page 208). I believe the main pillars of AI's mercury detox protocol are these: (I) Avoid chelating until amalgams are safely removed (II) Avoid using " partial (single thiol) chelators, " which are not true chelators but merely mobilizers of mercury (III) When chelating, maintain fairly steady plasma concentrations of the chelators by taking them frequently enough (DMSA-4 hours, ALA-3 hours, DMPS-8 hours) during campaigns. The fourth pillar seems to have been an amendment to the protocol based on patient experience since 1999: (IV) start with extremely low doses (e.g., 12.5mg) and only gradually work your way up to modest doses (e.g., 50mg) Am I missing any Pillars? Anyway, it is encouraging to hear about so many people finding healing through this protocol. I am hoping to be one of the success stories, eventually. God knows I've tried everything else, it seems. For others in our predicament, hopefully these posts -- and potentially an updated version of AI someday or a website showing the protocol recommendations that have changed since 1999, would make it easier for other newbies trying to find their way. Darren Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2008 Report Share Posted January 21, 2008 Keep in mind that Andy's book is old. He does state that many times in posts. The small/low dose protocol is still correct, the dosing in the book is not, but can still be used. Andy explained to some of us in a post that he has not had time to revise Amalgam Illness. Often times people are just busy, simply. Not to mention it is difficult to get any company to publish such a book. Too much politically, so it's virtually impossible. Often times authors have to publish it themselves much as Andy has had to do. Andy is a chemist, not an author of novels so perhaps it is not written as one would expect. It's more like a manual of A and B and this is what A does to B. The same information is available on Moria's website and this group, and Autism-Mercury, and Onibasu. If he were a profit monger...he would have patent his treatment and charge a fortune through some special clinic like all the regular doctors who find anything helpful do. My personal experience with the " mercury theory " that many people doubt is... " until you actually get sick from it, you won't believe it. " I find this time and time again in anyone first learning about mercury. I was easy to convince since I was very sick from mercury fillings and my children were as well. I know it can be very hard for others to grasp in light of their education in the medical field or scientific field, because it is contrary to what they are taught. I think if history teaches us anything..it's that medicine is repeatedly wrong. Since Andy had mercury poisoning himself from his fillings, and is a very knowledgeable chemist..what he says in his book makes complete sense..regardless of dosing differences. Andy does have to make a living, but I don't see him a rich man for any of what he has done. Otherwise, this information would not be free on the web. It would be heavily guarded and require a membership fee or whatever to obtain it. I obtained it for free, and then later purchased the book to have as reference after I had been doing chelation for a year. Each of us must come to choose what we feel will help us. Maybe this won't help, maybe it will. That is up to you. What it has done for me and thousands of other people is give me my son back and my life. I saw tons of doctors, none of which had any clue what was wrong with me or my kids. It's typical for mainstream medicine. In medical school they teach that mercury poisoning can only happen in the work place. So they automatically rule it out. There is a lot wrong with the medical system and it's teachings but that would take years to get into. What I always tell people, is that if you have tried so many other treatments, and physicians..and nothing and no one has helped you...then what have you to lose?? His book is more a manual than a " book " . Anyway, he has saved my child from autism and who knows what else in the future. His treatment has given me life back, the ability to work, think and feel well. I have not for one day regretted using his protocol. > > I wouldn't be looking at your site or reading this book if I didn't > think there was some merit in it. I'm a veteran of support groups and > my writing can be found all over the Internet. I'm typically upbeat > and positive. It's quite rare that I find myself in the position of > critic but from the beginning, this mercury-poisoning " movement " has > made me a bit nervous. It has sometimes sounded less like science and > more like dogma. > > I bring this up because I too am a scientist and have a natural > dislike of fundamentalism. I generally like what Mr. Cutler is doing > and I think your site and the other two I look at are great. After > researching others, I've chosen to follow this protocol. > > I paid 40 dollars for a book that I simply think could have been a lot > better had the author resisted overstatement and organized it in a > more useful way. Also, the primary information, the whole point of the > book, the small/low-dose protocol turns out to be wrong now. > > What would be so hard about including a one page addendum that updates > his key message, his current position on dosage and protocol? > > I'm agreeing with you that this is important stuff to get out there. > People need to have a choice of treatment. But, right now, were I to > offer this book to a suffering friend, I would have to explain a whole > lot about what Andy REALLY means to say. That's just silly and casts > his book, from the start, in a rather questionable light. > > > This type of not very constructive criticism has come up before in > > groups. I have come to the conclusion that some people want to > > attract negative attention. > > I'm sorry. " not very constructive criticism " ? It is entirely > constructive. A book is not well laid out if you need a team of > moderators on a support group to explain what the author means. > > > I can only guess that an editor who does not understand the content > > would not be helpful. > > This is what editors do... > > > Considering that Andy is a chemist it is actually very impressive that > > he DOES know exactly how one's body functions. > > Yes. It is rather incredible and that's what makes me nervous -- his > tone of certainty about the way the body works. That is an automatic > turn-off for me as a patient. This stuff is just not so black and > white. > > > This type of criticism has come up before from negative toxic people. > > I'm not sure that name-calling is an effective means of support. It's > this sort of thinking that will hurt your cause and propel > well-meaning savvy people like me, who have already gone through > numerous therapies and doctors, to question the basis of Andy's > claims. Is he for real or is this adulation? It's clear that Mr. > Cutler has a faithful following. He's also making a living putting on > seminars and writing books for sick desperate people. I'm just trying > to gather some facts and find something that I trust will work for me > and for my friends. > > So, once again I will say, the point of my post is not to be angry or > toxic or negative but simply this: > The author of a $40 hand-made textbook ought to update his book for > sick readers somehow. If he doesn't agree with the doses/protocol in > his current edition then he should include, at the very least, an > addendum, a little note sent out with the book. What's so hard about > that? > > ~robin > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2008 Report Share Posted January 21, 2008 Keep in mind that Andy's book is old. He does state that many times in posts. The small/low dose protocol is still correct, the dosing in the book is not, but can still be used. Andy explained to some of us in a post that he has not had time to revise Amalgam Illness. Often times people are just busy, simply. Not to mention it is difficult to get any company to publish such a book. Too much politically, so it's virtually impossible. Often times authors have to publish it themselves much as Andy has had to do. Andy is a chemist, not an author of novels so perhaps it is not written as one would expect. It's more like a manual of A and B and this is what A does to B. The same information is available on Moria's website and this group, and Autism-Mercury, and Onibasu. If he were a profit monger...he would have patent his treatment and charge a fortune through some special clinic like all the regular doctors who find anything helpful do. My personal experience with the " mercury theory " that many people doubt is... " until you actually get sick from it, you won't believe it. " I find this time and time again in anyone first learning about mercury. I was easy to convince since I was very sick from mercury fillings and my children were as well. I know it can be very hard for others to grasp in light of their education in the medical field or scientific field, because it is contrary to what they are taught. I think if history teaches us anything..it's that medicine is repeatedly wrong. Since Andy had mercury poisoning himself from his fillings, and is a very knowledgeable chemist..what he says in his book makes complete sense..regardless of dosing differences. Andy does have to make a living, but I don't see him a rich man for any of what he has done. Otherwise, this information would not be free on the web. It would be heavily guarded and require a membership fee or whatever to obtain it. I obtained it for free, and then later purchased the book to have as reference after I had been doing chelation for a year. Each of us must come to choose what we feel will help us. Maybe this won't help, maybe it will. That is up to you. What it has done for me and thousands of other people is give me my son back and my life. I saw tons of doctors, none of which had any clue what was wrong with me or my kids. It's typical for mainstream medicine. In medical school they teach that mercury poisoning can only happen in the work place. So they automatically rule it out. There is a lot wrong with the medical system and it's teachings but that would take years to get into. What I always tell people, is that if you have tried so many other treatments, and physicians..and nothing and no one has helped you...then what have you to lose?? His book is more a manual than a " book " . Anyway, he has saved my child from autism and who knows what else in the future. His treatment has given me life back, the ability to work, think and feel well. I have not for one day regretted using his protocol. > > I wouldn't be looking at your site or reading this book if I didn't > think there was some merit in it. I'm a veteran of support groups and > my writing can be found all over the Internet. I'm typically upbeat > and positive. It's quite rare that I find myself in the position of > critic but from the beginning, this mercury-poisoning " movement " has > made me a bit nervous. It has sometimes sounded less like science and > more like dogma. > > I bring this up because I too am a scientist and have a natural > dislike of fundamentalism. I generally like what Mr. Cutler is doing > and I think your site and the other two I look at are great. After > researching others, I've chosen to follow this protocol. > > I paid 40 dollars for a book that I simply think could have been a lot > better had the author resisted overstatement and organized it in a > more useful way. Also, the primary information, the whole point of the > book, the small/low-dose protocol turns out to be wrong now. > > What would be so hard about including a one page addendum that updates > his key message, his current position on dosage and protocol? > > I'm agreeing with you that this is important stuff to get out there. > People need to have a choice of treatment. But, right now, were I to > offer this book to a suffering friend, I would have to explain a whole > lot about what Andy REALLY means to say. That's just silly and casts > his book, from the start, in a rather questionable light. > > > This type of not very constructive criticism has come up before in > > groups. I have come to the conclusion that some people want to > > attract negative attention. > > I'm sorry. " not very constructive criticism " ? It is entirely > constructive. A book is not well laid out if you need a team of > moderators on a support group to explain what the author means. > > > I can only guess that an editor who does not understand the content > > would not be helpful. > > This is what editors do... > > > Considering that Andy is a chemist it is actually very impressive that > > he DOES know exactly how one's body functions. > > Yes. It is rather incredible and that's what makes me nervous -- his > tone of certainty about the way the body works. That is an automatic > turn-off for me as a patient. This stuff is just not so black and > white. > > > This type of criticism has come up before from negative toxic people. > > I'm not sure that name-calling is an effective means of support. It's > this sort of thinking that will hurt your cause and propel > well-meaning savvy people like me, who have already gone through > numerous therapies and doctors, to question the basis of Andy's > claims. Is he for real or is this adulation? It's clear that Mr. > Cutler has a faithful following. He's also making a living putting on > seminars and writing books for sick desperate people. I'm just trying > to gather some facts and find something that I trust will work for me > and for my friends. > > So, once again I will say, the point of my post is not to be angry or > toxic or negative but simply this: > The author of a $40 hand-made textbook ought to update his book for > sick readers somehow. If he doesn't agree with the doses/protocol in > his current edition then he should include, at the very least, an > addendum, a little note sent out with the book. What's so hard about > that? > > ~robin > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2008 Report Share Posted January 21, 2008 I have to agree with the generosity and willingness to help others. He did interpret my kids hair tests and charged us not one penny. He replied quickly and promptly. I have also emailed him on occasion with questions I could not find answers to that pertain to my kids or myself and our chelation treatment and he always replies. In fact, one of the questions had nothing to do with chelation. Never does he " refer me to his book " or charge me for this information. I agree Dean, I spent two years researching..and found this protocol sane! The others were insane, haphazard, violated common sense...or just didn't work. I always remind everyone that the book is old and they need to follow the dosing by weight protocol. > > Robin: > > I'm a huge fan of Andy's. I agree with everything says about him - > his generosity, the incredible number of people he's helped, his brilliant > fresh look at the problem of chelation, the incredible amount of information > in his book... The list goes on and on. I too was a skeptic at the outset > but after months of research, I think Andy towers above everyone else in the > field of chelation. > > At the same time, I think it is a valid criticism that the book continues to > propone doses that are - according to much experience - too high. It IS > confusing for a newcomer. I do wish he would revise his recommendations, go > on record with the new protocol, and be done with it. > > Dean > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2008 Report Share Posted January 21, 2008 > I have to agree with the generosity and willingness to help others. He > did interpret my kids hair tests and charged us not one penny. He > replied quickly and promptly. I have also emailed him on occasion with > questions I could not find answers to that pertain to my kids or > myself and our chelation treatment and he always replies. ------------ Yeah, he always responds quickly to the odd questions I have sent him as well. It always amazes me how some people can find fault with anybody - no matter how good their deeds are. Val Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2008 Report Share Posted January 21, 2008 > I have to agree with the generosity and willingness to help others. He > did interpret my kids hair tests and charged us not one penny. He > replied quickly and promptly. I have also emailed him on occasion with > questions I could not find answers to that pertain to my kids or > myself and our chelation treatment and he always replies. ------------ Yeah, he always responds quickly to the odd questions I have sent him as well. It always amazes me how some people can find fault with anybody - no matter how good their deeds are. Val Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2008 Report Share Posted January 21, 2008 I think parents when first joining this group are looking for answers. I feel they often are very suspicious of what anyone tells them ( as many MD's have already failed there child..possibly unitentionally ) I know for me I am very much on the defense at times and have a hard time believing anything. This just comes from the combo above.. There is sooo much information and when you are not educated enough in the field, it can be overwhelming. It took alot of questions and reading of files and reading reading reading many articles until I felt comfortable about Andy's protocol. It just made sense to me.. If it doesn't make sense to you...read more.. Thats my suggestion. As far as Andy thinking he knows IT ALL.. well he knows more than I do thats for sure and he is passionate about it! Has to be, to be so involved when he actually doesn't have to help anyone. My only gripe is, he can seem to respond to questions as if we are stupid.sometimes : ) But when it comes to most of this stuff, when first learning..we are! read up on it more, or look Re: Amalgam Illness, a criticism of Andy's book... > I have to agree with the generosity and willingness to help others. He > did interpret my kids hair tests and charged us not one penny. He > replied quickly and promptly. I have also emailed him on occasion with > questions I could not find answers to that pertain to my kids or > myself and our chelation treatment and he always replies. ------------ Yeah, he always responds quickly to the odd questions I have sent him as well. It always amazes me how some people can find fault with anybody - no matter how good their deeds are. Val ________________________________________________________________________________\ ____ Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. http://mobile.yahoo.com/;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2008 Report Share Posted January 21, 2008 There is a file called " Andy's protocol " that sums up his current chelation protocol in two pages. This is what we give parents on Autism-Mercury who need to learn about it. I bought his Hair Test Interpretation Book also which has been invaluable. So the best $80 I ever spent. These are things most doctors do not know or won't tell you. They are paid to keep you sick. I agree that re-reading it is important. Again..Andy is human! Perhaps someday he will have time to update his book, or have time to find an editor or a publishing company that really believes in free speech..but right now..this is all we have. If you are seeking reassurances...we have given that. Guarantees, no one can give that. If you want to talk to more people who use this protocol, see Autism-Mercury where many of us are recovering our children. But no one can convince you, you must come to your own conclusion. > > > I mean, paying $40 for a desktop publishing edition, you'd assume > the > > thing would be totally up to date. and, btw, how about using an > > editor? > > > Hi Robin: > > This was the best $40 I have spent, possibly ever in my life. I am > reading the book for the second time. Admittedly, the first time > that I read it was hard for me as brain fog made it hard to > understand. When the chelation starts to clear the brain fog, you > understand just how clear and concise this book is. > > > When people are sick (brain-fogged) with this stuff, the obvious > thing > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2008 Report Share Posted January 21, 2008 According to my local NBC morning news, today is supposed to be the most depressing day of the year according to psychiatrists and psychologists. In the Northern Hemisphere, the days are short. We are getting hit with the Christmas bills. We get to begin thinking about filing our tax forms. Everyone on this site is in a situation that logically should be considered criminal. There should be legal action against the medical/pharmaceutical industry, that we have learned, only exists for profits. This reality is a cause of a great deal of frustration for all of us. I consider myself a success story for Dr. Cutler's protocol. I had similar issues with the confusion of trying to grasp the message of Amalgam Illness. The postings on the site and T.K.s responses kept me focused on the key issues that need to be addressed, so that you don't hurt yourself. It isn't easy. It takes time. There are many posts on these sites that distract us from the key issue. GET THE MERCURY OUT. The days are starting to get longer. Soon we will be seeing more sunshine. Keep physically active (your brain is the only thing that allows you to move your muscles in a controlled manner.) Keep mentally active (your brain is capable of learning an unlimited amount of information. This involves new nerve connections.) Keep a positive attitude (your brain has a reward system that aids all parts of your body when it responds.) The damage that mercury has caused to our nerve connections can be repaired. We simply need to exercise the areas of our brains that were damaged to give them a reason to reconnect. Don't forget to smile. It makes everyone wonder what you are thinking. Enjoy. Klipfel --- seashell_555 seashell_555@...> wrote: > > I have to agree with the generosity and > willingness to help others. > He > > did interpret my kids hair tests and charged us > not one penny. He > > replied quickly and promptly. I have also emailed > him on occasion > with > > questions I could not find answers to that > pertain to my kids or > > myself and our chelation treatment and he always > replies. > > ------------ > > Yeah, he always responds quickly to the odd > questions I have sent > him as well. It always amazes me how some people can > find fault with > anybody - no matter how good their deeds are. > > Val > > ________________________________________________________________________________\ ____ Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. http://mobile.yahoo.com/;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2008 Report Share Posted January 21, 2008 Thanks Jada. For those looking you can find the " Andy_protocol " file here: http://health.groups.yahoo.com/group/Autism-Mercury/files/ You have to be a member of Autism-Mercury to get this file though. The full link is the following (not sure the link will work for others besides me) http://f1.grp.yahoofs.com/v1/wPmUR8EybH9yqk4pJIuvlWH0zOq8pT3EVWb2QuTzg wOd7f3C_orgLUKzaApkIxipTtOnvH9onH4fXCyE2VE0iOTbsg/Andy_protocol This would probably be a good file to have here in FDC as well. I think that having some supplemental document like this up on the web would serve well as an adendum/update to the book without anyone having to put a lot of time and effort into creating a new edition of the book. Though I would have to admit the only reason I might be against this is that Andy won't get the monetary support he deserves for doing all the work to begin with if folks use this instead of purchasing a book. I would hope that anyone who was helped by his work/protocol and are able to afford it would purchase his book as support for the work he's done for us. Thanks, Mike > > There is a file called " Andy's protocol " that sums up his current > chelation protocol in two pages. This is what we give parents on > Autism-Mercury who need to learn about it. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2008 Report Share Posted January 21, 2008 Thanks, . I saved & printed this, after knocking out the first few paragraphs, and will read it every morning when I wake up. This part is poetry to me. We don't often get uplifting reminders like this. Joanne > > > > I have to agree with the generosity and > > willingness to help others. > > He > > > did interpret my kids hair tests and charged us > > not one penny. He > > > replied quickly and promptly. I have also emailed > > him on occasion > > with > > > questions I could not find answers to that > > pertain to my kids or > > > myself and our chelation treatment and he always > > replies. > > > > ------------ > > > > Yeah, he always responds quickly to the odd > > questions I have sent > > him as well. It always amazes me how some people can > > find fault with > > anybody - no matter how good their deeds are. > > > > Val > > > > > > > > _____________________________________________________________________ _______________ > Be a better friend, newshound, and > know-it-all with Yahoo! Mobile. Try it now. http://mobile.yahoo.com/;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2008 Report Share Posted January 21, 2008 Thanks, . I saved & printed this, after knocking out the first few paragraphs, and will read it every morning when I wake up. This part is poetry to me. We don't often get uplifting reminders like this. Joanne > > > > I have to agree with the generosity and > > willingness to help others. > > He > > > did interpret my kids hair tests and charged us > > not one penny. He > > > replied quickly and promptly. I have also emailed > > him on occasion > > with > > > questions I could not find answers to that > > pertain to my kids or > > > myself and our chelation treatment and he always > > replies. > > > > ------------ > > > > Yeah, he always responds quickly to the odd > > questions I have sent > > him as well. It always amazes me how some people can > > find fault with > > anybody - no matter how good their deeds are. > > > > Val > > > > > > > > _____________________________________________________________________ _______________ > Be a better friend, newshound, and > know-it-all with Yahoo! Mobile. Try it now. http://mobile.yahoo.com/;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2008 Report Share Posted January 21, 2008 I've read all the posts in this thread and pretty much everything that everyone said, pro and con, is valid, IMO. I'd like to make a suggestion: Since Andy is, in fact, only one person, and a busy one at that, is there anyone on these lists that knows the archives well enough to be able to copy and paste the most important info that should be included in an addendum, then possibly edit it enough to be included when Andy sends out his book? He obviously can't take the time out to do this yet (and I think he relies on the fact that he knows there are knowledgeable people on these sites answering the confusing questions, repeatedly), but perhaps, since it may only be a few pages that's absolutely necessary at this point in time, some knowledgeable person here can do it for him? I also think it may help to cut down on the repetitious info having to be posted, time and time again, because the archives are so time-consuming to search. I can't offer 'cause I'm relatively ignorant, only just started reading AI after a year of reading posts here, and have barely looked at the archives (I can barely handle keeping up on all the lists, let alone understanding them and putting them into action). Anyway, it's just a suggestion and I don't know who on the list has the time to do it. Meanwhile, I'm still reading AI and know I will have some basic questions. I'm glad you're all here! Thanks! : Donna Quote Link to comment Share on other sites More sharing options...
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