Re: Recurrent disease

[Guest guest]

:

This is devastating news. I am so sorry and I can imagine the pain and hurt

you are feeling. Recurrent disease is each of our greatest fears. I am

just going through my first chemo of 6 months and I cannot imagine having to

start over again.

Can you tell me when you were diagnosed and how long you were without

evidence of disease? Did you have mets to the liver the first time?

We are all here for you and feel your pain. You have no choice but to fight

this horrible disease. Please keep in touch. YOu are in my prayers.

in California

[Guest guest]

:

This is devastating news. I am so sorry and I can imagine the pain and hurt

you are feeling. Recurrent disease is each of our greatest fears. I am

just going through my first chemo of 6 months and I cannot imagine having to

start over again.

Can you tell me when you were diagnosed and how long you were without

evidence of disease? Did you have mets to the liver the first time?

We are all here for you and feel your pain. You have no choice but to fight

this horrible disease. Please keep in touch. YOu are in my prayers.

in California

[Guest guest]

:

This is devastating news. I am so sorry and I can imagine the pain and hurt

you are feeling. Recurrent disease is each of our greatest fears. I am

just going through my first chemo of 6 months and I cannot imagine having to

start over again.

Can you tell me when you were diagnosed and how long you were without

evidence of disease? Did you have mets to the liver the first time?

We are all here for you and feel your pain. You have no choice but to fight

this horrible disease. Please keep in touch. YOu are in my prayers.

in California

[Guest guest]

, I feel so bad that you are having to go through this. My

heart goes out to you. Have they mentioned any surgery?

As long as the doctors feel that you can fight this with the chemo

there is always hope. Many have beat this with chemo. And you can

too. Just hang in there and take it one step at a time. Please let us

know when they are going to do another biopsy so we all can send our

Prayers up together for you. Sending you big hugs. Ingrid

> Well, group, I just got back from the clinic and got the news about

> my biopsy, which took forever to get scheduled and then rescheduled

> twice, then waited three weeks for the results.

>

> It seems what I was hoping would be scar tissue is actually

recurrent

> disease. They send in a very nice nurse who wants to know if I

want

> to be on a phase I trial. I had six rounds of Saltz before, this

> time it will be Xeloda and the other two, plus oxaliplatin. It's

> really the same drugs, just different way of administering them.

>

> Needless to say I'm devastated. It's been over a year since I

> finished adjuvant chemo and now I'm facing it again, this time with

> the neuropathy. They're going to schedule me for another biopsy

and

> port placement and then I guess I'll start it all over again. This

> is the first time I really wish I'd had somebody else there to hear

> the things I didn't hear or ask what I didn't know to ask. I think

> I'm more numb than I was when I had my first oncology appointment

> after surgery.

>

> I cried all the way home and since I was there alone, I nearly

missed

> my turn to get home, which is miles from where I thought I was when

I

> happened to notice the street sign.

>

> I haven't posted much here, but I read the posts every day and

you've

> all been such an inspiration for me. I feel like I know so many of

> you personally.

>

> Kaye, I'm counting on you to keep proving we can beat this thing.

> You're my hero, after all. And Cliff, just keep reminding us

> that miracles happen. I'm really feeling low right now.

>

> Has anybody heard how Joe's progressing? I haven't heard anything

> from him in a while, don't know if I missed something or he just

> hasn't posted.

>

> When I know more or remember more, I'll post again.

>

> in Dallas

[Guest guest]

, I feel so bad that you are having to go through this. My

heart goes out to you. Have they mentioned any surgery?

As long as the doctors feel that you can fight this with the chemo

there is always hope. Many have beat this with chemo. And you can

too. Just hang in there and take it one step at a time. Please let us

know when they are going to do another biopsy so we all can send our

Prayers up together for you. Sending you big hugs. Ingrid

> Well, group, I just got back from the clinic and got the news about

> my biopsy, which took forever to get scheduled and then rescheduled

> twice, then waited three weeks for the results.

>

> It seems what I was hoping would be scar tissue is actually

recurrent

> disease. They send in a very nice nurse who wants to know if I

want

> to be on a phase I trial. I had six rounds of Saltz before, this

> time it will be Xeloda and the other two, plus oxaliplatin. It's

> really the same drugs, just different way of administering them.

>

> Needless to say I'm devastated. It's been over a year since I

> finished adjuvant chemo and now I'm facing it again, this time with

> the neuropathy. They're going to schedule me for another biopsy

and

> port placement and then I guess I'll start it all over again. This

> is the first time I really wish I'd had somebody else there to hear

> the things I didn't hear or ask what I didn't know to ask. I think

> I'm more numb than I was when I had my first oncology appointment

> after surgery.

>

> I cried all the way home and since I was there alone, I nearly

missed

> my turn to get home, which is miles from where I thought I was when

I

> happened to notice the street sign.

>

> I haven't posted much here, but I read the posts every day and

you've

> all been such an inspiration for me. I feel like I know so many of

> you personally.

>

> Kaye, I'm counting on you to keep proving we can beat this thing.

> You're my hero, after all. And Cliff, just keep reminding us

> that miracles happen. I'm really feeling low right now.

>

> Has anybody heard how Joe's progressing? I haven't heard anything

> from him in a while, don't know if I missed something or he just

> hasn't posted.

>

> When I know more or remember more, I'll post again.

>

> in Dallas

[Guest guest]

,

I was diagnosed with cancer in the descending colon in July/August 2003, had a

resection with no colostomy, no mets to lungs, liver or bones, started adjuvant

chemo at the end of October and finished up June 2004. For a year I've been

NED, oncologist appointments every three months with scans and colonoscopy, etc.

Four months ago I noticed kind of a sore spot on my side near where the original

tumor was, talked to the doc three months ago and started trying to get a biopsy

scheduled.

I have no insurance so I'm being treated through the county hospital here, which

is really a good hospital, just very, very busy. It took about five weeks for

them to get things figured out, trying to do a renal biopsy (nothing wrong with

my " renal " ), then rescheduling twice and finally I had the computer guided

biopsy the 25th of July. My regularly scheduled appointment was today so it's

been three weeks I've been waiting to hear what the results were.

I've naturally been a basket case for three weeks and now I'm just exhausted.

I'm not looking forward to this, but life goes on and I intend for my life to go

on quite a while longer.

Thanks for the prayers and kind thoughts.

[Guest guest]

,

I was diagnosed with cancer in the descending colon in July/August 2003, had a

resection with no colostomy, no mets to lungs, liver or bones, started adjuvant

chemo at the end of October and finished up June 2004. For a year I've been

NED, oncologist appointments every three months with scans and colonoscopy, etc.

Four months ago I noticed kind of a sore spot on my side near where the original

tumor was, talked to the doc three months ago and started trying to get a biopsy

scheduled.

I have no insurance so I'm being treated through the county hospital here, which

is really a good hospital, just very, very busy. It took about five weeks for

them to get things figured out, trying to do a renal biopsy (nothing wrong with

my " renal " ), then rescheduling twice and finally I had the computer guided

biopsy the 25th of July. My regularly scheduled appointment was today so it's

been three weeks I've been waiting to hear what the results were.

I've naturally been a basket case for three weeks and now I'm just exhausted.

I'm not looking forward to this, but life goes on and I intend for my life to go

on quite a while longer.

Thanks for the prayers and kind thoughts.

[Guest guest]

I am so sorry to hear your news and hell of just waiting for results. I

also had my resect 7/03. Last year two spots showed up on a pet scan. Had the

needle biopsy and they were scar tissue. This year one of the same spots has

shown up twice now on a pet scan done three months apart. This time for some

reason they can't get to it with needle biopsy as say it is to close to the bone

but also have been told very little change in it so don't know why they can't or

was the biopsy wrong last year? The surgeon did tell me last week that it did

not light up real bright on the pet so still have hopes it is scar tissue. Since

because of my striture there is no way to biopsy it and I need the surgery to

get the striture open anyway. Will have another resect Monday and then wait for

the pathology report. The only good thing if there is any is it has not spread

to other organs if it is cancer. I am so full of scar tissue they will have a

time again just doing the surgery.

I know you are devestated to think your ok then someone telling you that you

start all over again. I was stage 2 and had no chemo or radiation. I know the

oncologist that I am going to now will insist on both if it is cancer. Of course

I am in denial and insisting it is scar tissue.

What have they told you is the next step for your treatment? Know you are in my

thoughts and prayers.

Hil

Re: Recurrent disease

,

I was diagnosed with cancer in the descending colon in July/August 2003, had a

resection with no colostomy, no mets to lungs, liver or bones, started adjuvant

chemo at the end of October and finished up June 2004. For a year I've been

NED, oncologist appointments every three months with scans and colonoscopy, etc.

Four months ago I noticed kind of a sore spot on my side near where the original

tumor was, talked to the doc three months ago and started trying to get a biopsy

scheduled.

I have no insurance so I'm being treated through the county hospital here,

which is really a good hospital, just very, very busy. It took about five weeks

for them to get things figured out, trying to do a renal biopsy (nothing wrong

with my " renal " ), then rescheduling twice and finally I had the computer guided

biopsy the 25th of July. My regularly scheduled appointment was today so it's

been three weeks I've been waiting to hear what the results were.

I've naturally been a basket case for three weeks and now I'm just exhausted.

I'm not looking forward to this, but life goes on and I intend for my life to go

on quite a while longer.

Thanks for the prayers and kind thoughts.

[Guest guest]

I am so sorry to hear your news and hell of just waiting for results. I

also had my resect 7/03. Last year two spots showed up on a pet scan. Had the

needle biopsy and they were scar tissue. This year one of the same spots has

shown up twice now on a pet scan done three months apart. This time for some

reason they can't get to it with needle biopsy as say it is to close to the bone

but also have been told very little change in it so don't know why they can't or

was the biopsy wrong last year? The surgeon did tell me last week that it did

not light up real bright on the pet so still have hopes it is scar tissue. Since

because of my striture there is no way to biopsy it and I need the surgery to

get the striture open anyway. Will have another resect Monday and then wait for

the pathology report. The only good thing if there is any is it has not spread

to other organs if it is cancer. I am so full of scar tissue they will have a

time again just doing the surgery.

I know you are devestated to think your ok then someone telling you that you

start all over again. I was stage 2 and had no chemo or radiation. I know the

oncologist that I am going to now will insist on both if it is cancer. Of course

I am in denial and insisting it is scar tissue.

What have they told you is the next step for your treatment? Know you are in my

thoughts and prayers.

Hil

Re: Recurrent disease

,

I was diagnosed with cancer in the descending colon in July/August 2003, had a

resection with no colostomy, no mets to lungs, liver or bones, started adjuvant

chemo at the end of October and finished up June 2004. For a year I've been

NED, oncologist appointments every three months with scans and colonoscopy, etc.

Four months ago I noticed kind of a sore spot on my side near where the original

tumor was, talked to the doc three months ago and started trying to get a biopsy

scheduled.

I have no insurance so I'm being treated through the county hospital here,

which is really a good hospital, just very, very busy. It took about five weeks

for them to get things figured out, trying to do a renal biopsy (nothing wrong

with my " renal " ), then rescheduling twice and finally I had the computer guided

biopsy the 25th of July. My regularly scheduled appointment was today so it's

been three weeks I've been waiting to hear what the results were.

I've naturally been a basket case for three weeks and now I'm just exhausted.

I'm not looking forward to this, but life goes on and I intend for my life to go

on quite a while longer.

Thanks for the prayers and kind thoughts.

[Guest guest]

Hil,

I'm going to start again on 5-FU/leucovorin/Camptosar, only this time it'll be

pills, Xeloda and whatever the generic names are, plus oxaliplatin through a

port which will have to be placed. They want another biopsy first, the port

placement, and then they'll start the chemo. Ingrid or somebody asked about

more surgery and that didn't even occur to me to ask about, but I will. I guess

it's a blessing, if there is one, that it's not in any organs. The doctor doing

the last biopsy told me it's in the muscle, not the abdomen.

I'll continue praying for everyone here still and change my prayers for myself,

back to the courage and peace part. I've been in such a knot the last three

months, it's driving me crazy. Good thing the dogs don't notice....lol. I keep

wondering how we can walk on the moon, repair the Space Shuttle, kill tens of

thousands of people with a single bomb but everybody with cancer feels so

hopeless sometimes. It just doesn't make sense to me at all. Oh, well, I guess

it's another one of those imponderables, isn't it.

I'll keep y'all posted as soon as I know more.

Re: Recurrent disease

,

I was diagnosed with cancer in the descending colon in July/August 2003, had a

resection with no colostomy, no mets to lungs, liver or bones, started adjuvant

chemo at the end of October and finished up June 2004. For a year I've been

NED, oncologist appointments every three months with scans and colonoscopy, etc.

Four months ago I noticed kind of a sore spot on my side near where the original

tumor was, talked to the doc three months ago and started trying to get a biopsy

scheduled.

I have no insurance so I'm being treated through the county hospital here,

which is really a good hospital, just very, very busy. It took about five weeks

for them to get things figured out, trying to do a renal biopsy (nothing wrong

with my " renal " ), then rescheduling twice and finally I had the computer guided

biopsy the 25th of July. My regularly scheduled appointment was today so it's

been three weeks I've been waiting to hear what the results were.

I've naturally been a basket case for three weeks and now I'm just exhausted.

I'm not looking forward to this, but life goes on and I intend for my life to go

on quite a while longer.

Thanks for the prayers and kind thoughts.

[Guest guest]

Yes, You need to ask about surgery. You need to find out why they do

not do the surgery to remove the new cancer. That way they could be

sure if it is a metasis or a new cancer. Ingrid

> Hil,

>

> I'm going to start again on 5-FU/leucovorin/Camptosar, only this

time it'll be pills, Xeloda and whatever the generic names are, plus

oxaliplatin through a port which will have to be placed. They want

another biopsy first, the port placement, and then they'll start the

chemo. Ingrid or somebody asked about more surgery and that didn't

even occur to me to ask about, but I will. I guess it's a blessing,

if there is one, that it's not in any organs. The doctor doing the

last biopsy told me it's in the muscle, not the abdomen.

>

> I'll continue praying for everyone here still and change my prayers

for myself, back to the courage and peace part. I've been in such a

knot the last three months, it's driving me crazy. Good thing the

dogs don't notice....lol. I keep wondering how we can walk on the

moon, repair the Space Shuttle, kill tens of thousands of people with

a single bomb but everybody with cancer feels so hopeless sometimes.

It just doesn't make sense to me at all. Oh, well, I guess it's

another one of those imponderables, isn't it.

>

> I'll keep y'all posted as soon as I know more.

>

>

>

>

>

>

> Re: Recurrent disease

>

>

> ,

>

> I was diagnosed with cancer in the descending colon in

July/August 2003, had a resection with no colostomy, no mets to

lungs, liver or bones, started adjuvant chemo at the end of October

and finished up June 2004. For a year I've been NED, oncologist

appointments every three months with scans and colonoscopy, etc.

Four months ago I noticed kind of a sore spot on my side near where

the original tumor was, talked to the doc three months ago and

started trying to get a biopsy scheduled.

>

> I have no insurance so I'm being treated through the county

hospital here, which is really a good hospital, just very, very

busy. It took about five weeks for them to get things figured out,

trying to do a renal biopsy (nothing wrong with my " renal " ), then

rescheduling twice and finally I had the computer guided biopsy the

25th of July. My regularly scheduled appointment was today so it's

been three weeks I've been waiting to hear what the results were.

>

> I've naturally been a basket case for three weeks and now I'm

just exhausted. I'm not looking forward to this, but life goes on

and I intend for my life to go on quite a while longer.

>

> Thanks for the prayers and kind thoughts.

>

>

>

>

>

>

[Guest guest]

Ingrid,

I asked the guy who's scheduling everything today and he didn't know, but he

wrote down all my questions so he could maybe have some answers for me when I

talk to him again. I've also written them all down and will ask the doctor

myself when I see him. I was amazed at how I just kind of shut down yesterday

and didn't ask as many questions as the first time when I didn't know s****.

Dumb, huh?

Ingrid Lowe lowenco@...> wrote:

Yes, You need to ask about surgery. You need to find out why they do

not do the surgery to remove the new cancer. That way they could be

sure if it is a metasis or a new cancer. Ingrid

> Hil,

>

> I'm going to start again on 5-FU/leucovorin/Camptosar, only this

time it'll be pills, Xeloda and whatever the generic names are, plus

oxaliplatin through a port which will have to be placed. They want

another biopsy first, the port placement, and then they'll start the

chemo. Ingrid or somebody asked about more surgery and that didn't

even occur to me to ask about, but I will. I guess it's a blessing,

if there is one, that it's not in any organs. The doctor doing the

last biopsy told me it's in the muscle, not the abdomen.

>

> I'll continue praying for everyone here still and change my prayers

for myself, back to the courage and peace part. I've been in such a

knot the last three months, it's driving me crazy. Good thing the

dogs don't notice....lol. I keep wondering how we can walk on the

moon, repair the Space Shuttle, kill tens of thousands of people with

a single bomb but everybody with cancer feels so hopeless sometimes.

It just doesn't make sense to me at all. Oh, well, I guess it's

another one of those imponderables, isn't it.

>

> I'll keep y'all posted as soon as I know more.

>

>

>

>

>

>

> Re: Recurrent disease

>

>

> ,

>

> I was diagnosed with cancer in the descending colon in

July/August 2003, had a resection with no colostomy, no mets to

lungs, liver or bones, started adjuvant chemo at the end of October

and finished up June 2004. For a year I've been NED, oncologist

appointments every three months with scans and colonoscopy, etc.

Four months ago I noticed kind of a sore spot on my side near where

the original tumor was, talked to the doc three months ago and

started trying to get a biopsy scheduled.

>

> I have no insurance so I'm being treated through the county

hospital here, which is really a good hospital, just very, very

busy. It took about five weeks for them to get things figured out,

trying to do a renal biopsy (nothing wrong with my " renal " ), then

rescheduling twice and finally I had the computer guided biopsy the

25th of July. My regularly scheduled appointment was today so it's

been three weeks I've been waiting to hear what the results were.

>

> I've naturally been a basket case for three weeks and now I'm

just exhausted. I'm not looking forward to this, but life goes on

and I intend for my life to go on quite a while longer.

>

> Thanks for the prayers and kind thoughts.

>

>

>

>

>

>

[Guest guest]

Ingrid,

I asked the guy who's scheduling everything today and he didn't know, but he

wrote down all my questions so he could maybe have some answers for me when I

talk to him again. I've also written them all down and will ask the doctor

myself when I see him. I was amazed at how I just kind of shut down yesterday

and didn't ask as many questions as the first time when I didn't know s****.

Dumb, huh?

Ingrid Lowe lowenco@...> wrote:

Yes, You need to ask about surgery. You need to find out why they do

not do the surgery to remove the new cancer. That way they could be

sure if it is a metasis or a new cancer. Ingrid

> Hil,

>

> I'm going to start again on 5-FU/leucovorin/Camptosar, only this

time it'll be pills, Xeloda and whatever the generic names are, plus

oxaliplatin through a port which will have to be placed. They want

another biopsy first, the port placement, and then they'll start the

chemo. Ingrid or somebody asked about more surgery and that didn't

even occur to me to ask about, but I will. I guess it's a blessing,

if there is one, that it's not in any organs. The doctor doing the

last biopsy told me it's in the muscle, not the abdomen.

>

> I'll continue praying for everyone here still and change my prayers

for myself, back to the courage and peace part. I've been in such a

knot the last three months, it's driving me crazy. Good thing the

dogs don't notice....lol. I keep wondering how we can walk on the

moon, repair the Space Shuttle, kill tens of thousands of people with

a single bomb but everybody with cancer feels so hopeless sometimes.

It just doesn't make sense to me at all. Oh, well, I guess it's

another one of those imponderables, isn't it.

>

> I'll keep y'all posted as soon as I know more.

>

>

>

>

>

>

> Re: Recurrent disease

>

>

> ,

>

> I was diagnosed with cancer in the descending colon in

July/August 2003, had a resection with no colostomy, no mets to

lungs, liver or bones, started adjuvant chemo at the end of October

and finished up June 2004. For a year I've been NED, oncologist

appointments every three months with scans and colonoscopy, etc.

Four months ago I noticed kind of a sore spot on my side near where

the original tumor was, talked to the doc three months ago and

started trying to get a biopsy scheduled.

>

> I have no insurance so I'm being treated through the county

hospital here, which is really a good hospital, just very, very

busy. It took about five weeks for them to get things figured out,

trying to do a renal biopsy (nothing wrong with my " renal " ), then

rescheduling twice and finally I had the computer guided biopsy the

25th of July. My regularly scheduled appointment was today so it's

been three weeks I've been waiting to hear what the results were.

>

> I've naturally been a basket case for three weeks and now I'm

just exhausted. I'm not looking forward to this, but life goes on

and I intend for my life to go on quite a while longer.

>

> Thanks for the prayers and kind thoughts.

>

>

>

>

>

>

[Guest guest]

, No not dumb. You were and most likely still am in a deep

shock. I hope you can get the answers real soon. Ingrid

> > Hil,

> >

> > I'm going to start again on 5-FU/leucovorin/Camptosar, only this

> time it'll be pills, Xeloda and whatever the generic names are,

plus

> oxaliplatin through a port which will have to be placed. They want

> another biopsy first, the port placement, and then they'll start

the

> chemo. Ingrid or somebody asked about more surgery and that didn't

> even occur to me to ask about, but I will. I guess it's a

blessing,

> if there is one, that it's not in any organs. The doctor doing the

> last biopsy told me it's in the muscle, not the abdomen.

> >

> > I'll continue praying for everyone here still and change my

prayers

> for myself, back to the courage and peace part. I've been in such

a

> knot the last three months, it's driving me crazy. Good thing the

> dogs don't notice....lol. I keep wondering how we can walk on the

> moon, repair the Space Shuttle, kill tens of thousands of people

with

> a single bomb but everybody with cancer feels so hopeless

sometimes.

> It just doesn't make sense to me at all. Oh, well, I guess it's

> another one of those imponderables, isn't it.

> >

> > I'll keep y'all posted as soon as I know more.

> >

> >

> >

> >

> >

> >

> > Re: Recurrent disease

> >

> >

> > ,

> >

> > I was diagnosed with cancer in the descending colon in

> July/August 2003, had a resection with no colostomy, no mets to

> lungs, liver or bones, started adjuvant chemo at the end of October

> and finished up June 2004. For a year I've been NED, oncologist

> appointments every three months with scans and colonoscopy, etc.

> Four months ago I noticed kind of a sore spot on my side near where

> the original tumor was, talked to the doc three months ago and

> started trying to get a biopsy scheduled.

> >

> > I have no insurance so I'm being treated through the county

> hospital here, which is really a good hospital, just very, very

> busy. It took about five weeks for them to get things figured out,

> trying to do a renal biopsy (nothing wrong with my " renal " ), then

> rescheduling twice and finally I had the computer guided biopsy the

> 25th of July. My regularly scheduled appointment was today so it's

> been three weeks I've been waiting to hear what the results were.

> >

> > I've naturally been a basket case for three weeks and now I'm

> just exhausted. I'm not looking forward to this, but life goes on

> and I intend for my life to go on quite a while longer.

> >

> > Thanks for the prayers and kind thoughts.

> >

> >

> >

> >

> >

> >

[Guest guest]

:

Thanks for the update. I am so shocked that this has happened to you. No

original mets, etc. Were you on FolFox? Avastin? Oxaliplatin? I am so

sorry to hear this news but it sounds like they monitored you in a timely

manner

and likely got this early rather than later. We have to look at these things

in the best light possible. It is miserable to start this again. I am so

miserable, I cried all morning and I am just going through my first 6 months

of chemo. I know I would be heartbroken to find it again later. Please keep

in touch and let me know how you are doing.

in California

,

I was diagnosed with cancer in the descending colon in July/August 2003, had

a resection with no colostomy, no mets to lungs, liver or bones, started

adjuvant chemo at the end of October and finished up June 2004. For a year

I've

been NED, oncologist appointments every three months with scans and

colonoscopy, etc. Four months ago I noticed kind of a sore spot on my side

near

where the original tumor was, talked to the doc three months ago and started

trying to get a biopsy scheduled.

I have no insurance so I'm being treated through the county hospital here,

which is really a good hospital, just very, very busy. It took about five

weeks for them to get things figured out, trying to do a renal biopsy (nothing

wrong with my " renal " ), then rescheduling twice and finally I had the computer

guided biopsy the 25th of July. My regularly scheduled appointment was

today so it's been three weeks I've been waiting to hear what the results were.

I've naturally been a basket case for three weeks and now I'm just

exhausted. I'm not looking forward to this, but life goes on and I intend for

my life

to go on quite a while longer.

Thanks for the prayers and kind thoughts.

[Guest guest]

,

After I had surgery to remove the original tumor, I was on adjuvant

chemo for six rounds, Camptosar/5-FU/leucovorin. They got clear

margins in the colon resection, no ostomy, but it was in the omentum

and apparently trying to become attached to the abdominal muscle

wall, which is where it is now.

I made a call yesterday and talked to the nurse who's taken over my

case and he wrote down all the questions I had for him (which he

couldn't answer) to be sure he asked the doctor and have some answers

for me next time I see him. He'll be calling Monday to give me the

schedule for port placement and biopsy.

This is depressing but I survived it once, I'll do it again, even if

the side effects are worse. This time it's Xeloda with the Camptosar

(I can never remember the generic name for that one) plus

oxaliplatin. I'm now reading a book I bought called " I'd Rather Do

Chemo Than Clean The Garage. " I'm not so sure about that, but it

really does lift my spirits. I might as well laugh or I'd spend all

my time crying.

This board really is great for sympathy and empathy. At least I know

there really are people out there who know what's happening, not just

someone saying " I can imagine how you must feel. " Thanks everyone.

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[Guest guest]

This board really is great for sympathy and empathy. At least I know

there really are people out there who know what's happening, not just

someone saying " I can imagine how you must feel. " Thanks everyone.

, I realize that people mean well when they tell us that they

know how we feel. And they honestly mean to make us feel better. But

no one, other then someone who has faced cancer can know how we

really feel. Or understand our feelings of going back and forth

between the we are alright feelings and the hopelessness we often

feel. Yes, I agree with you. This board has helped me very much to

deal with all my emotions. Ingrid

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[Guest guest]

This board really is great for sympathy and empathy. At least I know

there really are people out there who know what's happening, not just

someone saying " I can imagine how you must feel. " Thanks everyone.

, I realize that people mean well when they tell us that they

know how we feel. And they honestly mean to make us feel better. But

no one, other then someone who has faced cancer can know how we

really feel. Or understand our feelings of going back and forth

between the we are alright feelings and the hopelessness we often

feel. Yes, I agree with you. This board has helped me very much to

deal with all my emotions. Ingrid

> >

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