Guest guest Posted March 5, 2009 Report Share Posted March 5, 2009 MARY LOU Hello, you wonderful crazy woman. You are doing incredible and I'm so happy for you. It lifts my spirits two fold-first for you and second, selfishly, looking ahead to when I'm in the same situation. I hope I get someone as wonderful as and I can be as upbeat as you. Aren't drugs wonderful things when needed? As to oxygen, morphine, xanax and anything else, my opinion at this point is very simple.....whatever and however much and whatever combination makes you feel best. I've known people on up to 25 or so liters per minute of oxygen, although there is quite a bit of debate on whether those levels help. Normally people may advance to 15 lpm or even 20. Meanwhile many never go beyond 10 lpm. It's such an individual things and so different for everyone. You are at the point of life that the only thing that matters is what makes you most comfortable. Whatever you're getting appears to be working great right now, based on your attitude. I'm so happy for you. It has to be great for Earl too, seeing you in a good mood and taken care of, and just able to enjoy life with you when he's home. > > Hope you all are having a great mid-week? I am feeling great, is FINALLY behaving herself and keeps me in tow along with katie's directions. > > I have a question for anyone who wants to answer or can give me any advice. I Have asked and Earl about it but would appreciate any input you might have too. Oxygen and morphine. When I am on both am I considered doing my END-TIME exchange? It dawned on me this morning upon arrising otherwise I wouldnt have asked the question. If it is, it is ok with me, but would like to have some input from you guys out there. As you know, I have been on xanax for years and years and since hospice came around my address it has been 2.5 mg/ml. I have been given it when I need it to breathe better. It really helps too. When you take it to relax it does the job pretty good. If this is the END STAGE, I am having a rip-roarin' time!!!!!!!!!!!yippee They have gone from .025 mg to 10mg on xanax, and when they give me both together at the same time under the tongue, it really flaps a lot!!!!!!!!!!!!!!!! > > PARTY STARTS IN 20 MINUTES!!!! BETTER HURRY. > > I REALLY DON'T FEEL MOST TIMES LIKE THERE IS ANYTHING WRONG WITH ME EXCEPT I CAN'T BREATHE TOO WELL. MY FAMILY PHY. CALLED THIS MORNING AND SAID I AM DOING A GOOD JOB AND MY ATTITUDE IS STILL THE SAME. NOT DEPRESSED WHATSOEVER AND WANT TO BEAT THIS DREADFUL DISEASE SO I CAN GO OUT AND TELL OTHERS NOT TO BE AFRAID OF IT EITHER, JUST PRAISE GOD THAT HE HAS GIVEN ME THIS DISEASE TO HELP HEAL OTHERS!!!!!! AMEN > > I DO THINK I AM ON THE HIGHEST LEVEL OF OXY. THAN ANYONE ELSE IS AND WOULD LIKE TO KNOW WHAT YOU ALL HAVE AS THE HIGHEST???????????????// MINE IS " 25 " 24-7 > > I LOVE YOU THIS DAY > MARY LOU > RICHMOND VA > IPF - 02 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2009 Report Share Posted March 5, 2009 MARY LOU Hello, you wonderful crazy woman. You are doing incredible and I'm so happy for you. It lifts my spirits two fold-first for you and second, selfishly, looking ahead to when I'm in the same situation. I hope I get someone as wonderful as and I can be as upbeat as you. Aren't drugs wonderful things when needed? As to oxygen, morphine, xanax and anything else, my opinion at this point is very simple.....whatever and however much and whatever combination makes you feel best. I've known people on up to 25 or so liters per minute of oxygen, although there is quite a bit of debate on whether those levels help. Normally people may advance to 15 lpm or even 20. Meanwhile many never go beyond 10 lpm. It's such an individual things and so different for everyone. You are at the point of life that the only thing that matters is what makes you most comfortable. Whatever you're getting appears to be working great right now, based on your attitude. I'm so happy for you. It has to be great for Earl too, seeing you in a good mood and taken care of, and just able to enjoy life with you when he's home. > > Hope you all are having a great mid-week? I am feeling great, is FINALLY behaving herself and keeps me in tow along with katie's directions. > > I have a question for anyone who wants to answer or can give me any advice. I Have asked and Earl about it but would appreciate any input you might have too. Oxygen and morphine. When I am on both am I considered doing my END-TIME exchange? It dawned on me this morning upon arrising otherwise I wouldnt have asked the question. If it is, it is ok with me, but would like to have some input from you guys out there. As you know, I have been on xanax for years and years and since hospice came around my address it has been 2.5 mg/ml. I have been given it when I need it to breathe better. It really helps too. When you take it to relax it does the job pretty good. If this is the END STAGE, I am having a rip-roarin' time!!!!!!!!!!!yippee They have gone from .025 mg to 10mg on xanax, and when they give me both together at the same time under the tongue, it really flaps a lot!!!!!!!!!!!!!!!! > > PARTY STARTS IN 20 MINUTES!!!! BETTER HURRY. > > I REALLY DON'T FEEL MOST TIMES LIKE THERE IS ANYTHING WRONG WITH ME EXCEPT I CAN'T BREATHE TOO WELL. MY FAMILY PHY. CALLED THIS MORNING AND SAID I AM DOING A GOOD JOB AND MY ATTITUDE IS STILL THE SAME. NOT DEPRESSED WHATSOEVER AND WANT TO BEAT THIS DREADFUL DISEASE SO I CAN GO OUT AND TELL OTHERS NOT TO BE AFRAID OF IT EITHER, JUST PRAISE GOD THAT HE HAS GIVEN ME THIS DISEASE TO HELP HEAL OTHERS!!!!!! AMEN > > I DO THINK I AM ON THE HIGHEST LEVEL OF OXY. THAN ANYONE ELSE IS AND WOULD LIKE TO KNOW WHAT YOU ALL HAVE AS THE HIGHEST???????????????// MINE IS " 25 " 24-7 > > I LOVE YOU THIS DAY > MARY LOU > RICHMOND VA > IPF - 02 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2009 Report Share Posted March 5, 2009 I'm just saying hello darlin'... in my opinion, like Peggy says, we have no expiration date stamped on us. You are obviously in pretty damn good shape for the shape you're in. lol. ;o}. You are such an example ML. An example especially to take our meds and whatever helps us as we continue to do battle. Make it as easy as we can on ourselves. And our family. I'm allergic to morphine or I'd be taking it right now for pain. It worked great. One day at a time girl! I love you. MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there! HI THERE!!!! Hope you all are having a great mid-week? I am feeling great, is FINALLY behaving herself and keeps me in tow along with katie's directions.I have a question for anyone who wants to answer or can give me any advice. I Have asked and Earl about it but would appreciate any input you might have too. Oxygen and morphine. When I am on both am I considered doing my END-TIME exchange? It dawned on me this morning upon arrising otherwise I wouldnt have asked the question. If it is, it is ok with me, but would like to have some input from you guys out there. As you know, I have been on xanax for years and years and since hospice came around my address it has been 2.5 mg/ml. I have been given it when I need it to breathe better. It really helps too. When you take it to relax it does the job pretty good. If this is the END STAGE, I am having a rip-roarin' time!!!!!!!!!!!yippee They have gone from .025 mg to 10mg on xanax, and when they give me both together at the same time under the tongue, it really flaps a lot!!!!!!!!!!!!!!!!PARTY STARTS IN 20 MINUTES!!!! BETTER HURRY.I REALLY DON'T FEEL MOST TIMES LIKE THERE IS ANYTHING WRONG WITH ME EXCEPT I CAN'T BREATHE TOO WELL. MY FAMILY PHY. CALLED THIS MORNING AND SAID I AM DOING A GOOD JOB AND MY ATTITUDE IS STILL THE SAME. NOT DEPRESSED WHATSOEVER AND WANT TO BEAT THIS DREADFUL DISEASE SO I CAN GO OUT AND TELL OTHERS NOT TO BE AFRAID OF IT EITHER, JUST PRAISE GOD THAT HE HAS GIVEN ME THIS DISEASE TO HELP HEAL OTHERS!!!!!! AMENI DO THINK I AM ON THE HIGHEST LEVEL OF OXY. THAN ANYONE ELSE IS AND WOULD LIKE TO KNOW WHAT YOU ALL HAVE AS THE HIGHEST???????????????// MINE IS "25" 24-7I LOVE YOU THIS DAYMARY LOURICHMOND VAIPF - 02 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2009 Report Share Posted March 5, 2009 I'm just saying hello darlin'... in my opinion, like Peggy says, we have no expiration date stamped on us. You are obviously in pretty damn good shape for the shape you're in. lol. ;o}. You are such an example ML. An example especially to take our meds and whatever helps us as we continue to do battle. Make it as easy as we can on ourselves. And our family. I'm allergic to morphine or I'd be taking it right now for pain. It worked great. One day at a time girl! I love you. MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there! HI THERE!!!! Hope you all are having a great mid-week? I am feeling great, is FINALLY behaving herself and keeps me in tow along with katie's directions.I have a question for anyone who wants to answer or can give me any advice. I Have asked and Earl about it but would appreciate any input you might have too. Oxygen and morphine. When I am on both am I considered doing my END-TIME exchange? It dawned on me this morning upon arrising otherwise I wouldnt have asked the question. If it is, it is ok with me, but would like to have some input from you guys out there. As you know, I have been on xanax for years and years and since hospice came around my address it has been 2.5 mg/ml. I have been given it when I need it to breathe better. It really helps too. When you take it to relax it does the job pretty good. If this is the END STAGE, I am having a rip-roarin' time!!!!!!!!!!!yippee They have gone from .025 mg to 10mg on xanax, and when they give me both together at the same time under the tongue, it really flaps a lot!!!!!!!!!!!!!!!!PARTY STARTS IN 20 MINUTES!!!! BETTER HURRY.I REALLY DON'T FEEL MOST TIMES LIKE THERE IS ANYTHING WRONG WITH ME EXCEPT I CAN'T BREATHE TOO WELL. MY FAMILY PHY. CALLED THIS MORNING AND SAID I AM DOING A GOOD JOB AND MY ATTITUDE IS STILL THE SAME. NOT DEPRESSED WHATSOEVER AND WANT TO BEAT THIS DREADFUL DISEASE SO I CAN GO OUT AND TELL OTHERS NOT TO BE AFRAID OF IT EITHER, JUST PRAISE GOD THAT HE HAS GIVEN ME THIS DISEASE TO HELP HEAL OTHERS!!!!!! AMENI DO THINK I AM ON THE HIGHEST LEVEL OF OXY. THAN ANYONE ELSE IS AND WOULD LIKE TO KNOW WHAT YOU ALL HAVE AS THE HIGHEST???????????????// MINE IS "25" 24-7I LOVE YOU THIS DAYMARY LOURICHMOND VAIPF - 02 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2009 Report Share Posted March 5, 2009 Lou, you are one piece of work! I'm so glad that this forum has allowed me to "meet" you. You have a wonderful outlook. B Barbara McD IPF, Sept 08 Beautiful Western NC Let us not become weary in doing good, for at the proper time we will reap a harvest if we do not give up. Galatians 6:9 To: Breathe-Support Sent: Thursday, March 5, 2009 2:12:31 PMSubject: HI THERE!!!! Hope you all are having a great mid-week? I am feeling great, is FINALLY behaving herself and keeps me in tow along with katie's directions.I have a question for anyone who wants to answer or can give me any advice. I Have asked and Earl about it but would appreciate any input you might have too. Oxygen and morphine. When I am on both am I considered doing my END-TIME exchange? It dawned on me this morning upon arrising otherwise I wouldnt have asked the question. If it is, it is ok with me, but would like to have some input from you guys out there. As you know, I have been on xanax for years and years and since hospice came around my address it has been 2.5 mg/ml. I have been given it when I need it to breathe better. It really helps too. When you take it to relax it does the job pretty good. If this is the END STAGE, I am having a rip-roarin' time!!!!!!!! !!!yippee They have gone from .025 mg to 10mg on xanax, and when they give me both together at the same time under the tongue, it really flaps a lot!!!!!!!!! !!!!!!!PARTY STARTS IN 20 MINUTES!!!! BETTER HURRY.I REALLY DON'T FEEL MOST TIMES LIKE THERE IS ANYTHING WRONG WITH ME EXCEPT I CAN'T BREATHE TOO WELL. MY FAMILY PHY. CALLED THIS MORNING AND SAID I AM DOING A GOOD JOB AND MY ATTITUDE IS STILL THE SAME. NOT DEPRESSED WHATSOEVER AND WANT TO BEAT THIS DREADFUL DISEASE SO I CAN GO OUT AND TELL OTHERS NOT TO BE AFRAID OF IT EITHER, JUST PRAISE GOD THAT HE HAS GIVEN ME THIS DISEASE TO HELP HEAL OTHERS!!!!!! AMENI DO THINK I AM ON THE HIGHEST LEVEL OF OXY. THAN ANYONE ELSE IS AND WOULD LIKE TO KNOW WHAT YOU ALL HAVE AS THE HIGHEST????? ????????? ?// MINE IS "25" 24-7I LOVE YOU THIS DAYMARY LOURICHMOND VAIPF - 02 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2009 Report Share Posted March 5, 2009 Lou, you are one piece of work! I'm so glad that this forum has allowed me to "meet" you. You have a wonderful outlook. B Barbara McD IPF, Sept 08 Beautiful Western NC Let us not become weary in doing good, for at the proper time we will reap a harvest if we do not give up. Galatians 6:9 To: Breathe-Support Sent: Thursday, March 5, 2009 2:12:31 PMSubject: HI THERE!!!! Hope you all are having a great mid-week? I am feeling great, is FINALLY behaving herself and keeps me in tow along with katie's directions.I have a question for anyone who wants to answer or can give me any advice. I Have asked and Earl about it but would appreciate any input you might have too. Oxygen and morphine. When I am on both am I considered doing my END-TIME exchange? It dawned on me this morning upon arrising otherwise I wouldnt have asked the question. If it is, it is ok with me, but would like to have some input from you guys out there. As you know, I have been on xanax for years and years and since hospice came around my address it has been 2.5 mg/ml. I have been given it when I need it to breathe better. It really helps too. When you take it to relax it does the job pretty good. If this is the END STAGE, I am having a rip-roarin' time!!!!!!!! !!!yippee They have gone from .025 mg to 10mg on xanax, and when they give me both together at the same time under the tongue, it really flaps a lot!!!!!!!!! !!!!!!!PARTY STARTS IN 20 MINUTES!!!! BETTER HURRY.I REALLY DON'T FEEL MOST TIMES LIKE THERE IS ANYTHING WRONG WITH ME EXCEPT I CAN'T BREATHE TOO WELL. MY FAMILY PHY. CALLED THIS MORNING AND SAID I AM DOING A GOOD JOB AND MY ATTITUDE IS STILL THE SAME. NOT DEPRESSED WHATSOEVER AND WANT TO BEAT THIS DREADFUL DISEASE SO I CAN GO OUT AND TELL OTHERS NOT TO BE AFRAID OF IT EITHER, JUST PRAISE GOD THAT HE HAS GIVEN ME THIS DISEASE TO HELP HEAL OTHERS!!!!!! AMENI DO THINK I AM ON THE HIGHEST LEVEL OF OXY. THAN ANYONE ELSE IS AND WOULD LIKE TO KNOW WHAT YOU ALL HAVE AS THE HIGHEST????? ????????? ?// MINE IS "25" 24-7I LOVE YOU THIS DAYMARY LOURICHMOND VAIPF - 02 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2009 Report Share Posted March 5, 2009 Lou, End stage Shmend stage who cares what you call it. The only thing that matters is you are comfortable and well cared for. You are feeling happy and loved. Who could ask for anything more than that? Lou you and I both know that none of the naming jargon really matters at this point. What matters is to enjoy every single minute that you are here. And you, you wild wonderful wacky woman are doing a spectacular job of that. I love you very much! Beth Moderator Fibrotic NSIP 06/06 Dermatomyositis 11/08 To: Breathe-Support Sent: Thursday, March 5, 2009 2:12:31 PMSubject: HI THERE!!!! Hope you all are having a great mid-week? I am feeling great, is FINALLY behaving herself and keeps me in tow along with katie's directions.I have a question for anyone who wants to answer or can give me any advice. I Have asked and Earl about it but would appreciate any input you might have too. Oxygen and morphine. When I am on both am I considered doing my END-TIME exchange? It dawned on me this morning upon arrising otherwise I wouldnt have asked the question. If it is, it is ok with me, but would like to have some input from you guys out there. As you know, I have been on xanax for years and years and since hospice came around my address it has been 2.5 mg/ml. I have been given it when I need it to breathe better. It really helps too. When you take it to relax it does the job pretty good. If this is the END STAGE, I am having a rip-roarin' time!!!!!!!! !!!yippee They have gone from .025 mg to 10mg on xanax, and when they give me both together at the same time under the tongue, it really flaps a lot!!!!!!!!! !!!!!!!PARTY STARTS IN 20 MINUTES!!!! BETTER HURRY.I REALLY DON'T FEEL MOST TIMES LIKE THERE IS ANYTHING WRONG WITH ME EXCEPT I CAN'T BREATHE TOO WELL. MY FAMILY PHY. CALLED THIS MORNING AND SAID I AM DOING A GOOD JOB AND MY ATTITUDE IS STILL THE SAME. NOT DEPRESSED WHATSOEVER AND WANT TO BEAT THIS DREADFUL DISEASE SO I CAN GO OUT AND TELL OTHERS NOT TO BE AFRAID OF IT EITHER, JUST PRAISE GOD THAT HE HAS GIVEN ME THIS DISEASE TO HELP HEAL OTHERS!!!!!! AMENI DO THINK I AM ON THE HIGHEST LEVEL OF OXY. THAN ANYONE ELSE IS AND WOULD LIKE TO KNOW WHAT YOU ALL HAVE AS THE HIGHEST????? ????????? ?// MINE IS "25" 24-7I LOVE YOU THIS DAYMARY LOURICHMOND VAIPF - 02 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2009 Report Share Posted March 5, 2009 Lou, I have ordered my pilot to prepare the jet so I can come party with you. Should be there in 20 or 30 minutes. You won't need to share your drugs with me, I'm just high on myself, egotist that I am. Just remember I love you. Jack79/IPF - UIP/dx06/05 Maine To: Breathe-Support Sent: Thursday, March 5, 2009 2:12:31 PMSubject: HI THERE!!!! Hope you all are having a great mid-week? I am feeling great, is FINALLY behaving herself and keeps me in tow along with katie's directions.I have a question for anyone who wants to answer or can give me any advice. I Have asked and Earl about it but would appreciate any input you might have too. Oxygen and morphine. When I am on both am I considered doing my END-TIME exchange? It dawned on me this morning upon arrising otherwise I wouldnt have asked the question. If it is, it is ok with me, but would like to have some input from you guys out there. As you know, I have been on xanax for years and years and since hospice came around my address it has been 2.5 mg/ml. I have been given it when I need it to breathe better. It really helps too. When you take it to relax it does the job pretty good. If this is the END STAGE, I am having a rip-roarin' time!!!!!!!! !!!yippee They have gone from .025 mg to 10mg on xanax, and when they give me both together at the same time under the tongue, it really flaps a lot!!!!!!!!! !!!!!!!PARTY STARTS IN 20 MINUTES!!!! BETTER HURRY.I REALLY DON'T FEEL MOST TIMES LIKE THERE IS ANYTHING WRONG WITH ME EXCEPT I CAN'T BREATHE TOO WELL. MY FAMILY PHY. CALLED THIS MORNING AND SAID I AM DOING A GOOD JOB AND MY ATTITUDE IS STILL THE SAME. NOT DEPRESSED WHATSOEVER AND WANT TO BEAT THIS DREADFUL DISEASE SO I CAN GO OUT AND TELL OTHERS NOT TO BE AFRAID OF IT EITHER, JUST PRAISE GOD THAT HE HAS GIVEN ME THIS DISEASE TO HELP HEAL OTHERS!!!!!! AMENI DO THINK I AM ON THE HIGHEST LEVEL OF OXY. THAN ANYONE ELSE IS AND WOULD LIKE TO KNOW WHAT YOU ALL HAVE AS THE HIGHEST????? ????????? ?// MINE IS "25" 24-7I LOVE YOU THIS DAYMARY LOURICHMOND VAIPF - 02 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2009 Report Share Posted March 5, 2009 Lou, I have ordered my pilot to prepare the jet so I can come party with you. Should be there in 20 or 30 minutes. You won't need to share your drugs with me, I'm just high on myself, egotist that I am. Just remember I love you. Jack79/IPF - UIP/dx06/05 Maine To: Breathe-Support Sent: Thursday, March 5, 2009 2:12:31 PMSubject: HI THERE!!!! Hope you all are having a great mid-week? I am feeling great, is FINALLY behaving herself and keeps me in tow along with katie's directions.I have a question for anyone who wants to answer or can give me any advice. I Have asked and Earl about it but would appreciate any input you might have too. Oxygen and morphine. When I am on both am I considered doing my END-TIME exchange? It dawned on me this morning upon arrising otherwise I wouldnt have asked the question. If it is, it is ok with me, but would like to have some input from you guys out there. As you know, I have been on xanax for years and years and since hospice came around my address it has been 2.5 mg/ml. I have been given it when I need it to breathe better. It really helps too. When you take it to relax it does the job pretty good. If this is the END STAGE, I am having a rip-roarin' time!!!!!!!! !!!yippee They have gone from .025 mg to 10mg on xanax, and when they give me both together at the same time under the tongue, it really flaps a lot!!!!!!!!! !!!!!!!PARTY STARTS IN 20 MINUTES!!!! BETTER HURRY.I REALLY DON'T FEEL MOST TIMES LIKE THERE IS ANYTHING WRONG WITH ME EXCEPT I CAN'T BREATHE TOO WELL. MY FAMILY PHY. CALLED THIS MORNING AND SAID I AM DOING A GOOD JOB AND MY ATTITUDE IS STILL THE SAME. NOT DEPRESSED WHATSOEVER AND WANT TO BEAT THIS DREADFUL DISEASE SO I CAN GO OUT AND TELL OTHERS NOT TO BE AFRAID OF IT EITHER, JUST PRAISE GOD THAT HE HAS GIVEN ME THIS DISEASE TO HELP HEAL OTHERS!!!!!! AMENI DO THINK I AM ON THE HIGHEST LEVEL OF OXY. THAN ANYONE ELSE IS AND WOULD LIKE TO KNOW WHAT YOU ALL HAVE AS THE HIGHEST????? ????????? ?// MINE IS "25" 24-7I LOVE YOU THIS DAYMARY LOURICHMOND VAIPF - 02 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2009 Report Share Posted March 5, 2009 Lou, I am so happy your mid-week sounds like it is going very good for you. However, I cannot imagine being on 25 O2. When I was first diagnosed in Nov 06 it was already endstage, but I never had to increase my O2 to more than 4. As you know I am one of the very fortunate post lung transplants. I have been feeling much better since I restarted my physical therapy exercises in the pool at the YMCA 3.5 weeks ago; but since my WBC was reported at 0.6 on Tues. I did not go yesterday and am waiting to hear from my doctor at what level of my WBC can I return to the Y. May God bless you and you take care of yourself. Love and Aloha, Judy (OH) IPF 11/06 TX 8/07 > > Hope you all are having a great mid-week? I am feeling great, is FINALLY behaving herself and keeps me in tow along with katie's directions. > > I have a question for anyone who wants to answer or can give me any advice. I Have asked and Earl about it but would appreciate any input you might have too. Oxygen and morphine. When I am on both am I considered doing my END-TIME exchange? It dawned on me this morning upon arrising otherwise I wouldnt have asked the question. If it is, it is ok with me, but would like to have some input from you guys out there. As you know, I have been on xanax for years and years and since hospice came around my address it has been 2.5 mg/ml. I have been given it when I need it to breathe better. It really helps too. When you take it to relax it does the job pretty good. If this is the END STAGE, I am having a rip-roarin' time!!!!!!!!!!!yippee They have gone from ..025 mg to 10mg on xanax, and when they give me both together at the same time under the tongue, it really flaps a lot!!!!!!!!!!!!!!!! > > PARTY STARTS IN 20 MINUTES!!!! BETTER HURRY. > > I REALLY DON'T FEEL MOST TIMES LIKE THERE IS ANYTHING WRONG WITH ME EXCEPT I CAN'T BREATHE TOO WELL. MY FAMILY PHY. CALLED THIS MORNING AND SAID I AM DOING A GOOD JOB AND MY ATTITUDE IS STILL THE SAME. NOT DEPRESSED WHATSOEVER AND WANT TO BEAT THIS DREADFUL DISEASE SO I CAN GO OUT AND TELL OTHERS NOT TO BE AFRAID OF IT EITHER, JUST PRAISE GOD THAT HE HAS GIVEN ME THIS DISEASE TO HELP HEAL OTHERS!!!!!! AMEN > > I DO THINK I AM ON THE HIGHEST LEVEL OF OXY. THAN ANYONE ELSE IS AND WOULD LIKE TO KNOW WHAT YOU ALL HAVE AS THE HIGHEST???????????????// MINE IS " 25 " 24-7 > > I LOVE YOU THIS DAY > MARY LOU > RICHMOND VA > IPF - 02 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2009 Report Share Posted March 5, 2009 Hello Lou, I am so glad to hear that you are having a rip roaring time and feel like partying. That is always wonderful any time. I also enjoy my oxygen and xanax. As much as it takes for you to feel that way is a good thing and I think you should let it be... :0) I love you this day sweet lady, so let the party roll on... Margaret 62 Anchorage, Alaska Pneumonitis 97, PH 06, COPD, PF, respiratory & heart failure 08 I enjoy traveling, photography, gardening, sewing, home decorating, playing with my toys & classical music aka Grammie Goose To: Breathe-Support Sent: Thursday, March 5, 2009 12:57:56 PMSubject: Re: HI THERE!!!! Lou, I am so happy your mid-week sounds like it is going very good for you. However, I cannot imagine being on 25 O2. When I was first diagnosed in Nov 06 it was already endstage, but I never had to increase my O2 to more than 4. As you know I am one of the very fortunate post lung transplants. I have been feeling much better since I restarted my physical therapy exercises in the pool at the YMCA 3.5 weeks ago; but since my WBC was reported at 0.6 on Tues. I did not go yesterday and am waiting to hear from my doctor at what level of my WBC can I return to the Y.May God bless you and you take care of yourself.Love and Aloha,Judy (OH) IPF 11/06 TX 8/07>> Hope you all are having a great mid-week? I am feeling great, is FINALLY behaving herself and keeps me in tow along with katie's directions.> > I have a question for anyone who wants to answer or can give me any advice. I Have asked and Earl about it but would appreciate any input you might have too. Oxygen and morphine. When I am on both am I considered doing my END-TIME exchange? It dawned on me this morning upon arrising otherwise I wouldnt have asked the question. If it is, it is ok with me, but would like to have some input from you guys out there. As you know, I have been on xanax for years and years and since hospice came around my address it has been 2.5 mg/ml. I have been given it when I need it to breathe better. It really helps too. When you take it to relax it does the job pretty good. If this is the END STAGE, I am having a rip-roarin' time!!!!!!!! !!!yippee They have gone from .025 mg to 10mg on xanax, and when they give me both together at the same time under the tongue, it really flaps a lot!!!!!!!!! !!!!!!!> > PARTY STARTS IN 20 MINUTES!!!! BETTER HURRY.> > I REALLY DON'T FEEL MOST TIMES LIKE THERE IS ANYTHING WRONG WITH ME EXCEPT I CAN'T BREATHE TOO WELL. MY FAMILY PHY. CALLED THIS MORNING AND SAID I AM DOING A GOOD JOB AND MY ATTITUDE IS STILL THE SAME. NOT DEPRESSED WHATSOEVER AND WANT TO BEAT THIS DREADFUL DISEASE SO I CAN GO OUT AND TELL OTHERS NOT TO BE AFRAID OF IT EITHER, JUST PRAISE GOD THAT HE HAS GIVEN ME THIS DISEASE TO HELP HEAL OTHERS!!!!!! AMEN> > I DO THINK I AM ON THE HIGHEST LEVEL OF OXY. THAN ANYONE ELSE IS AND WOULD LIKE TO KNOW WHAT YOU ALL HAVE AS THE HIGHEST????? ????????? ?// MINE IS "25" 24-7> > I LOVE YOU THIS DAY> MARY LOU> RICHMOND VA> IPF - 02> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2009 Report Share Posted March 5, 2009 Hello Lou, I am so glad to hear that you are having a rip roaring time and feel like partying. That is always wonderful any time. I also enjoy my oxygen and xanax. As much as it takes for you to feel that way is a good thing and I think you should let it be... :0) I love you this day sweet lady, so let the party roll on... Margaret 62 Anchorage, Alaska Pneumonitis 97, PH 06, COPD, PF, respiratory & heart failure 08 I enjoy traveling, photography, gardening, sewing, home decorating, playing with my toys & classical music aka Grammie Goose To: Breathe-Support Sent: Thursday, March 5, 2009 12:57:56 PMSubject: Re: HI THERE!!!! Lou, I am so happy your mid-week sounds like it is going very good for you. However, I cannot imagine being on 25 O2. When I was first diagnosed in Nov 06 it was already endstage, but I never had to increase my O2 to more than 4. As you know I am one of the very fortunate post lung transplants. I have been feeling much better since I restarted my physical therapy exercises in the pool at the YMCA 3.5 weeks ago; but since my WBC was reported at 0.6 on Tues. I did not go yesterday and am waiting to hear from my doctor at what level of my WBC can I return to the Y.May God bless you and you take care of yourself.Love and Aloha,Judy (OH) IPF 11/06 TX 8/07>> Hope you all are having a great mid-week? I am feeling great, is FINALLY behaving herself and keeps me in tow along with katie's directions.> > I have a question for anyone who wants to answer or can give me any advice. I Have asked and Earl about it but would appreciate any input you might have too. Oxygen and morphine. When I am on both am I considered doing my END-TIME exchange? It dawned on me this morning upon arrising otherwise I wouldnt have asked the question. If it is, it is ok with me, but would like to have some input from you guys out there. As you know, I have been on xanax for years and years and since hospice came around my address it has been 2.5 mg/ml. I have been given it when I need it to breathe better. It really helps too. When you take it to relax it does the job pretty good. If this is the END STAGE, I am having a rip-roarin' time!!!!!!!! !!!yippee They have gone from .025 mg to 10mg on xanax, and when they give me both together at the same time under the tongue, it really flaps a lot!!!!!!!!! !!!!!!!> > PARTY STARTS IN 20 MINUTES!!!! BETTER HURRY.> > I REALLY DON'T FEEL MOST TIMES LIKE THERE IS ANYTHING WRONG WITH ME EXCEPT I CAN'T BREATHE TOO WELL. MY FAMILY PHY. CALLED THIS MORNING AND SAID I AM DOING A GOOD JOB AND MY ATTITUDE IS STILL THE SAME. NOT DEPRESSED WHATSOEVER AND WANT TO BEAT THIS DREADFUL DISEASE SO I CAN GO OUT AND TELL OTHERS NOT TO BE AFRAID OF IT EITHER, JUST PRAISE GOD THAT HE HAS GIVEN ME THIS DISEASE TO HELP HEAL OTHERS!!!!!! AMEN> > I DO THINK I AM ON THE HIGHEST LEVEL OF OXY. THAN ANYONE ELSE IS AND WOULD LIKE TO KNOW WHAT YOU ALL HAVE AS THE HIGHEST????? ????????? ?// MINE IS "25" 24-7> > I LOVE YOU THIS DAY> MARY LOU> RICHMOND VA> IPF - 02> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2009 Report Share Posted March 5, 2009 Hello Lou, I am so glad to hear that you are having a rip roaring time and feel like partying. That is always wonderful any time. I also enjoy my oxygen and xanax. As much as it takes for you to feel that way is a good thing and I think you should let it be... :0) I love you this day sweet lady, so let the party roll on... Margaret 62 Anchorage, Alaska Pneumonitis 97, PH 06, COPD, PF, respiratory & heart failure 08 I enjoy traveling, photography, gardening, sewing, home decorating, playing with my toys & classical music aka Grammie Goose To: Breathe-Support Sent: Thursday, March 5, 2009 12:57:56 PMSubject: Re: HI THERE!!!! Lou, I am so happy your mid-week sounds like it is going very good for you. However, I cannot imagine being on 25 O2. When I was first diagnosed in Nov 06 it was already endstage, but I never had to increase my O2 to more than 4. As you know I am one of the very fortunate post lung transplants. I have been feeling much better since I restarted my physical therapy exercises in the pool at the YMCA 3.5 weeks ago; but since my WBC was reported at 0.6 on Tues. I did not go yesterday and am waiting to hear from my doctor at what level of my WBC can I return to the Y.May God bless you and you take care of yourself.Love and Aloha,Judy (OH) IPF 11/06 TX 8/07>> Hope you all are having a great mid-week? I am feeling great, is FINALLY behaving herself and keeps me in tow along with katie's directions.> > I have a question for anyone who wants to answer or can give me any advice. I Have asked and Earl about it but would appreciate any input you might have too. Oxygen and morphine. When I am on both am I considered doing my END-TIME exchange? It dawned on me this morning upon arrising otherwise I wouldnt have asked the question. If it is, it is ok with me, but would like to have some input from you guys out there. As you know, I have been on xanax for years and years and since hospice came around my address it has been 2.5 mg/ml. I have been given it when I need it to breathe better. It really helps too. When you take it to relax it does the job pretty good. If this is the END STAGE, I am having a rip-roarin' time!!!!!!!! !!!yippee They have gone from .025 mg to 10mg on xanax, and when they give me both together at the same time under the tongue, it really flaps a lot!!!!!!!!! !!!!!!!> > PARTY STARTS IN 20 MINUTES!!!! BETTER HURRY.> > I REALLY DON'T FEEL MOST TIMES LIKE THERE IS ANYTHING WRONG WITH ME EXCEPT I CAN'T BREATHE TOO WELL. MY FAMILY PHY. CALLED THIS MORNING AND SAID I AM DOING A GOOD JOB AND MY ATTITUDE IS STILL THE SAME. NOT DEPRESSED WHATSOEVER AND WANT TO BEAT THIS DREADFUL DISEASE SO I CAN GO OUT AND TELL OTHERS NOT TO BE AFRAID OF IT EITHER, JUST PRAISE GOD THAT HE HAS GIVEN ME THIS DISEASE TO HELP HEAL OTHERS!!!!!! AMEN> > I DO THINK I AM ON THE HIGHEST LEVEL OF OXY. THAN ANYONE ELSE IS AND WOULD LIKE TO KNOW WHAT YOU ALL HAVE AS THE HIGHEST????? ????????? ?// MINE IS "25" 24-7> > I LOVE YOU THIS DAY> MARY LOU> RICHMOND VA> IPF - 02> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2009 Report Share Posted March 5, 2009 mary lou it was great talking with you on the chat tonight you sound great Pink Joyce IPF 3/06 Pennsylvania Donate Life Listed 1/09 www.transplantfund.org--- Subject: HI THERE!!!!To: Breathe-Support Date: Thursday, March 5, 2009, 2:12 PM Hope you all are having a great mid-week? I am feeling great, is FINALLY behaving herself and keeps me in tow along with katie's directions.I have a question for anyone who wants to answer or can give me any advice. I Have asked and Earl about it but would appreciate any input you might have too. Oxygen and morphine. When I am on both am I considered doing my END-TIME exchange? It dawned on me this morning upon arrising otherwise I wouldnt have asked the question. If it is, it is ok with me, but would like to have some input from you guys out there. As you know, I have been on xanax for years and years and since hospice came around my address it has been 2.5 mg/ml. I have been given it when I need it to breathe better. It really helps too. When you take it to relax it does the job pretty good. If this is the END STAGE, I am having a rip-roarin' time!!!!!!!! !!!yippee They have gone from .025 mg to 10mg on xanax, and when they give me both together at the same time under the tongue, it really flaps a lot!!!!!!!!! !!!!!!!PARTY STARTS IN 20 MINUTES!!!! BETTER HURRY.I REALLY DON'T FEEL MOST TIMES LIKE THERE IS ANYTHING WRONG WITH ME EXCEPT I CAN'T BREATHE TOO WELL. MY FAMILY PHY. CALLED THIS MORNING AND SAID I AM DOING A GOOD JOB AND MY ATTITUDE IS STILL THE SAME. NOT DEPRESSED WHATSOEVER AND WANT TO BEAT THIS DREADFUL DISEASE SO I CAN GO OUT AND TELL OTHERS NOT TO BE AFRAID OF IT EITHER, JUST PRAISE GOD THAT HE HAS GIVEN ME THIS DISEASE TO HELP HEAL OTHERS!!!!!! AMENI DO THINK I AM ON THE HIGHEST LEVEL OF OXY. THAN ANYONE ELSE IS AND WOULD LIKE TO KNOW WHAT YOU ALL HAVE AS THE HIGHEST????? ????????? ?// MINE IS "25" 24-7I LOVE YOU THIS DAYMARY LOURICHMOND VAIPF - 02 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2009 Report Share Posted March 5, 2009 mary lou it was great talking with you on the chat tonight you sound great Pink Joyce IPF 3/06 Pennsylvania Donate Life Listed 1/09 www.transplantfund.org--- Subject: HI THERE!!!!To: Breathe-Support Date: Thursday, March 5, 2009, 2:12 PM Hope you all are having a great mid-week? I am feeling great, is FINALLY behaving herself and keeps me in tow along with katie's directions.I have a question for anyone who wants to answer or can give me any advice. I Have asked and Earl about it but would appreciate any input you might have too. Oxygen and morphine. When I am on both am I considered doing my END-TIME exchange? It dawned on me this morning upon arrising otherwise I wouldnt have asked the question. If it is, it is ok with me, but would like to have some input from you guys out there. As you know, I have been on xanax for years and years and since hospice came around my address it has been 2.5 mg/ml. I have been given it when I need it to breathe better. It really helps too. When you take it to relax it does the job pretty good. If this is the END STAGE, I am having a rip-roarin' time!!!!!!!! !!!yippee They have gone from .025 mg to 10mg on xanax, and when they give me both together at the same time under the tongue, it really flaps a lot!!!!!!!!! !!!!!!!PARTY STARTS IN 20 MINUTES!!!! BETTER HURRY.I REALLY DON'T FEEL MOST TIMES LIKE THERE IS ANYTHING WRONG WITH ME EXCEPT I CAN'T BREATHE TOO WELL. MY FAMILY PHY. CALLED THIS MORNING AND SAID I AM DOING A GOOD JOB AND MY ATTITUDE IS STILL THE SAME. NOT DEPRESSED WHATSOEVER AND WANT TO BEAT THIS DREADFUL DISEASE SO I CAN GO OUT AND TELL OTHERS NOT TO BE AFRAID OF IT EITHER, JUST PRAISE GOD THAT HE HAS GIVEN ME THIS DISEASE TO HELP HEAL OTHERS!!!!!! AMENI DO THINK I AM ON THE HIGHEST LEVEL OF OXY. THAN ANYONE ELSE IS AND WOULD LIKE TO KNOW WHAT YOU ALL HAVE AS THE HIGHEST????? ????????? ?// MINE IS "25" 24-7I LOVE YOU THIS DAYMARY LOURICHMOND VAIPF - 02 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2009 Report Share Posted March 5, 2009 mary lou it was great talking with you on the chat tonight you sound great Pink Joyce IPF 3/06 Pennsylvania Donate Life Listed 1/09 www.transplantfund.org--- Subject: HI THERE!!!!To: Breathe-Support Date: Thursday, March 5, 2009, 2:12 PM Hope you all are having a great mid-week? I am feeling great, is FINALLY behaving herself and keeps me in tow along with katie's directions.I have a question for anyone who wants to answer or can give me any advice. I Have asked and Earl about it but would appreciate any input you might have too. Oxygen and morphine. When I am on both am I considered doing my END-TIME exchange? It dawned on me this morning upon arrising otherwise I wouldnt have asked the question. If it is, it is ok with me, but would like to have some input from you guys out there. As you know, I have been on xanax for years and years and since hospice came around my address it has been 2.5 mg/ml. I have been given it when I need it to breathe better. It really helps too. When you take it to relax it does the job pretty good. If this is the END STAGE, I am having a rip-roarin' time!!!!!!!! !!!yippee They have gone from .025 mg to 10mg on xanax, and when they give me both together at the same time under the tongue, it really flaps a lot!!!!!!!!! !!!!!!!PARTY STARTS IN 20 MINUTES!!!! BETTER HURRY.I REALLY DON'T FEEL MOST TIMES LIKE THERE IS ANYTHING WRONG WITH ME EXCEPT I CAN'T BREATHE TOO WELL. MY FAMILY PHY. CALLED THIS MORNING AND SAID I AM DOING A GOOD JOB AND MY ATTITUDE IS STILL THE SAME. NOT DEPRESSED WHATSOEVER AND WANT TO BEAT THIS DREADFUL DISEASE SO I CAN GO OUT AND TELL OTHERS NOT TO BE AFRAID OF IT EITHER, JUST PRAISE GOD THAT HE HAS GIVEN ME THIS DISEASE TO HELP HEAL OTHERS!!!!!! AMENI DO THINK I AM ON THE HIGHEST LEVEL OF OXY. THAN ANYONE ELSE IS AND WOULD LIKE TO KNOW WHAT YOU ALL HAVE AS THE HIGHEST????? ????????? ?// MINE IS "25" 24-7I LOVE YOU THIS DAYMARY LOURICHMOND VAIPF - 02 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2009 Report Share Posted March 5, 2009 CRIKEY Lou if you were having any MORE fun it'd be ILLEGAL! so thoughtful of you n' to sahre it with US! Thinking of you every single day, wonderful Friend, lotsa, in Oz >> Hope you all are having a great mid-week? I am feeling great, is FINALLY behaving herself and keeps me in tow along with katie's directions.> > I have a question for anyone who wants to answer or can give me any advice. I Have asked and Earl about it but would appreciate any input you might have too. Oxygen and morphine. When I am on both am I considered doing my END-TIME exchange? It dawned on me this morning upon arrising otherwise I wouldnt have asked the question. If it is, it is ok with me, but would like to have some input from you guys out there. As you know, I have been on xanax for years and years and since hospice came around my address it has been 2.5 mg/ml. I have been given it when I need it to breathe better. It really helps too. When you take it to relax it does the job pretty good. If this is the END STAGE, I am having a rip-roarin' time!!!!!!!!!!!yippee They have gone from .025 mg to 10mg on xanax, and when they give me both together at the same time under the tongue, it really flaps a lot!!!!!!!!!!!!!!!!> > PARTY STARTS IN 20 MINUTES!!!! BETTER HURRY.> > I REALLY DON'T FEEL MOST TIMES LIKE THERE IS ANYTHING WRONG WITH ME EXCEPT I CAN'T BREATHE TOO WELL. MY FAMILY PHY. CALLED THIS MORNING AND SAID I AM DOING A GOOD JOB AND MY ATTITUDE IS STILL THE SAME. NOT DEPRESSED WHATSOEVER AND WANT TO BEAT THIS DREADFUL DISEASE SO I CAN GO OUT AND TELL OTHERS NOT TO BE AFRAID OF IT EITHER, JUST PRAISE GOD THAT HE HAS GIVEN ME THIS DISEASE TO HELP HEAL OTHERS!!!!!! AMEN> > I DO THINK I AM ON THE HIGHEST LEVEL OF OXY. THAN ANYONE ELSE IS AND WOULD LIKE TO KNOW WHAT YOU ALL HAVE AS THE HIGHEST???????????????// MINE IS "25" 24-7> > I LOVE YOU THIS DAY> MARY LOU> RICHMOND VA> IPF - 02> Quote Link to comment Share on other sites More sharing options...
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